Maddy
@maddyoby.bsky.social
Disability. M.E. Netball. Women’s cricket. Clean Air. Art.
Curator of netball and women’s cricket lists and starter packs. ↘️
Curator of netball and women’s cricket lists and starter packs. ↘️
Pinned
Maddy
@maddyoby.bsky.social
· Mar 24
Obligatory intro post!
I’ve decided it was time to have an account just for my #art.
You’ll find an eclectic mix of nature, cricket, netball, portraiture, chronic illness & disability… & whatever else takes my fancy that day!
My main medium is digital art, plus some photography & watercolour.
I’ve decided it was time to have an account just for my #art.
You’ll find an eclectic mix of nature, cricket, netball, portraiture, chronic illness & disability… & whatever else takes my fancy that day!
My main medium is digital art, plus some photography & watercolour.
So I did a thing!
If you’d like to have my art pop up in your feed sporadically, follow my new art account 🎨
It’ll be a seemingly random collection of art covering #Netball #Cricket #ChronicIllness #Disability #pwME #MECFS #BloomScrolling #Nature #SciArt #Illustration #KidLitArt and more 😅
⬇️
If you’d like to have my art pop up in your feed sporadically, follow my new art account 🎨
It’ll be a seemingly random collection of art covering #Netball #Cricket #ChronicIllness #Disability #pwME #MECFS #BloomScrolling #Nature #SciArt #Illustration #KidLitArt and more 😅
⬇️
Reposted by Maddy
As Wicked season is upon us again, this is your reminder to read the book before you buy it for your 9 year old.
November 16, 2025 at 1:31 AM
As Wicked season is upon us again, this is your reminder to read the book before you buy it for your 9 year old.
Reposted by Maddy
Alice Wong was a luminary, and her light will shine on for many years to come. this is a beautiful tribute from @thesicktimes.org co-founder @mileswgriffis.bsky.social
November 16, 2025 at 1:08 AM
Alice Wong was a luminary, and her light will shine on for many years to come. this is a beautiful tribute from @thesicktimes.org co-founder @mileswgriffis.bsky.social
Reposted by Maddy
“Don’t let the bastards grind you down. I love you all.”
November 15, 2025 at 6:15 AM
“Don’t let the bastards grind you down. I love you all.”
Reposted by Maddy
With Alice Wong's @sfdirewolf.bsky.social passing, I hope people who never knew her or her work are making time to dig in today.
I'm sharing some of my favorite interviews with or articles from Alice below.
Please feel free to chime in and do the same.
I'm sharing some of my favorite interviews with or articles from Alice below.
Please feel free to chime in and do the same.
November 15, 2025 at 2:27 PM
With Alice Wong's @sfdirewolf.bsky.social passing, I hope people who never knew her or her work are making time to dig in today.
I'm sharing some of my favorite interviews with or articles from Alice below.
Please feel free to chime in and do the same.
I'm sharing some of my favorite interviews with or articles from Alice below.
Please feel free to chime in and do the same.
Shefa council in Vanuatu have banned menstruating women from operating & selling food at markets & roadside stalls.
Sudden change without consulting community or following science. How will officials know who’s menstruating?
Potentially cutting women off from critical income source.
First 5mins.
Sudden change without consulting community or following science. How will officials know who’s menstruating?
Potentially cutting women off from critical income source.
First 5mins.
Vanuatu council slammed for prohibiting menstruating women from working - ABC Pacific
The Shefa provincial council comes under fire in Vanuatu over a new by-law, prohibiting menstruating women from operating and selling food at markets and road side stalls. Also, tension brews in the K...
www.abc.net.au
November 14, 2025 at 2:07 AM
Shefa council in Vanuatu have banned menstruating women from operating & selling food at markets & roadside stalls.
Sudden change without consulting community or following science. How will officials know who’s menstruating?
Potentially cutting women off from critical income source.
First 5mins.
Sudden change without consulting community or following science. How will officials know who’s menstruating?
Potentially cutting women off from critical income source.
First 5mins.
Reposted by Maddy
Government using machine learning to help create draft plans for NDIS participants, documents reveal www.theguardian.com/australia-ne...
Government using machine learning to help create draft plans for NDIS participants, documents reveal
Exclusive: NDIA defines machine learning as a subset of AI that uses algorithms to learn from data and make decisions or predictions
www.theguardian.com
November 12, 2025 at 9:50 PM
Government using machine learning to help create draft plans for NDIS participants, documents reveal www.theguardian.com/australia-ne...
Reposted by Maddy
“Free public hospital clinics” lol. Four years wait to see a rheumatologist at Alfred Health was my experience. It’s free cos you wait years without healthcare
Struggling to afford specialist doctors’ fees? See if your GP can refer you to one of Australia’s free public hospital clinics
www.theguardian.com/australia-ne...
www.theguardian.com/australia-ne...
Struggling to afford specialist doctors’ fees? See if your GP can refer you to one of Australia’s free public hospital clinics
Excellent treatment is available for outpatients – though where you live matters and wait lists can be long
www.theguardian.com
November 12, 2025 at 11:27 PM
“Free public hospital clinics” lol. Four years wait to see a rheumatologist at Alfred Health was my experience. It’s free cos you wait years without healthcare
Reposted by Maddy
'A landmark mental health agreement signed by federal, state and territory governments three years ago is failing, a scathing Productivity Commission inquiry has concluded.' Includes that 500,000 people need support and aren't in the NDIS
www.abc.net.au/news/2025-11...
www.abc.net.au/news/2025-11...
Half a million Australians with psychosocial illness without support
A scathing Productivity Commission review concludes that Australia's mental health system is failing and needs a rewrite, while warning that 500,000 Australians are unable to access the care that they...
www.abc.net.au
November 12, 2025 at 5:05 AM
'A landmark mental health agreement signed by federal, state and territory governments three years ago is failing, a scathing Productivity Commission inquiry has concluded.' Includes that 500,000 people need support and aren't in the NDIS
www.abc.net.au/news/2025-11...
www.abc.net.au/news/2025-11...
Reposted by Maddy
WATCH ALERT: ⚠️
History will be made tonight when Australia play their first ever match at a Blind Cricket World Cup against India.
History will be made tonight when Australia play their first ever match at a Blind Cricket World Cup against India.
November 12, 2025 at 5:11 AM
WATCH ALERT: ⚠️
History will be made tonight when Australia play their first ever match at a Blind Cricket World Cup against India.
History will be made tonight when Australia play their first ever match at a Blind Cricket World Cup against India.
Reposted by Maddy
I'm lucky in that while I was once down to literally only 3 safe foods (white rice, chicken, kale)--which took me 3 weeks and 15 lost lbs subsisting on multivitamins and broth to even figure out--I'm now up to "just" a strict low histamine diet.
But this is why we tell you to protect yourself--
But this is why we tell you to protect yourself--
So I try not to give too many gory details about life with long covid, but I also think it’s important to give a clear picture of what can happen to anyone.
Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.
Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.
November 12, 2025 at 3:56 AM
I'm lucky in that while I was once down to literally only 3 safe foods (white rice, chicken, kale)--which took me 3 weeks and 15 lost lbs subsisting on multivitamins and broth to even figure out--I'm now up to "just" a strict low histamine diet.
But this is why we tell you to protect yourself--
But this is why we tell you to protect yourself--
Petition to make construction site boom boxes/music blasting illegal.
Signed
People with ME and others with sensory (auditory and vibration) sensitivities.
Signed
People with ME and others with sensory (auditory and vibration) sensitivities.
November 12, 2025 at 2:14 AM
Petition to make construction site boom boxes/music blasting illegal.
Signed
People with ME and others with sensory (auditory and vibration) sensitivities.
Signed
People with ME and others with sensory (auditory and vibration) sensitivities.
Reposted by Maddy
It is near impossible to convince people that I’m telling the truth when I say “exercise damages my muscles” bc it’s so counter to everything we think we know about bodies.
Update on Dr. David Systrom Study led by Harvard MECFS Collaboration
A cardiopulmonary exercise test with muscle biopsy reveals reduced mitochondrial biomass and disturbed mitochondrial function in skeletal muscle.
www.omf.ngo/investigatio...
A cardiopulmonary exercise test with muscle biopsy reveals reduced mitochondrial biomass and disturbed mitochondrial function in skeletal muscle.
www.omf.ngo/investigatio...
Investigating PEM via Muscle Biopsy in ME/CFS and Long COVID - Open Medicine Foundation
The study explores the pathophysiology of post-exertional malaise (PEM), the hallmark symptom of ME/CFS.
www.omf.ngo
November 10, 2025 at 9:56 PM
It is near impossible to convince people that I’m telling the truth when I say “exercise damages my muscles” bc it’s so counter to everything we think we know about bodies.
Reposted by Maddy
🧵
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome
www.sciencedirect.com/science/arti...
"Severe ME/CFS patients face deep social, medical, and structural exclusion."
#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome
www.sciencedirect.com/science/arti...
"Severe ME/CFS patients face deep social, medical, and structural exclusion."
#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
November 11, 2025 at 12:47 PM
🧵
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome
www.sciencedirect.com/science/arti...
"Severe ME/CFS patients face deep social, medical, and structural exclusion."
#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome
www.sciencedirect.com/science/arti...
"Severe ME/CFS patients face deep social, medical, and structural exclusion."
#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Reposted by Maddy
Menulog closing in Australia, affecting thousands of delivery drivers and 120 employees
Menulog closing in Australia, affecting thousands of delivery drivers and 120 employees
Transport Workers’ Union says it will be working to ensure workers receive fair exit payments ahead of 26 November closure
Menulog is closing its Australian operations, marking the latest casualty in the competitive delivery service app sector that will affect thousands of delivery riders, as well as about 120 direct employees.
The owner, Dutch multinational Just Eat Takeaway.com, said in a statement on Wednesday the Australian-founded service will no longer take orders from 26 November.
Do you know more? Email jonathan.barrett@theguardian.com Continue reading...
www.theguardian.com
November 12, 2025 at 2:00 AM
Menulog closing in Australia, affecting thousands of delivery drivers and 120 employees
Reposted by Maddy
It's just been confirmed that Monash University is dropping Woodside as a partner because they don't align with their sustainable values. This is an incredible win for @stopwoodsidemonash.bsky.social who have run a dedicated grass roots campaign for years.
November 11, 2025 at 5:37 AM
It's just been confirmed that Monash University is dropping Woodside as a partner because they don't align with their sustainable values. This is an incredible win for @stopwoodsidemonash.bsky.social who have run a dedicated grass roots campaign for years.
Reposted by Maddy
And stating the obvious, none of this will improve until aged and disability care, hospital care and community health care is all funded and managed as an integrated whole rather than across layers of govt. It is all connected. The pandemic highlighted this, and no lessons were learned - again.
November 10, 2025 at 8:44 AM
And stating the obvious, none of this will improve until aged and disability care, hospital care and community health care is all funded and managed as an integrated whole rather than across layers of govt. It is all connected. The pandemic highlighted this, and no lessons were learned - again.
Reposted by Maddy
Dumping NDIS participants in Emergency Departments is becoming increasingly common. But they don’t get admitted to the hospital as there is often no acute issue.
So they stay in ED for days whilst social workers desperately look for alternatives. Appalling care and another stressor EDs done need.
So they stay in ED for days whilst social workers desperately look for alternatives. Appalling care and another stressor EDs done need.
November 10, 2025 at 8:39 AM
Dumping NDIS participants in Emergency Departments is becoming increasingly common. But they don’t get admitted to the hospital as there is often no acute issue.
So they stay in ED for days whilst social workers desperately look for alternatives. Appalling care and another stressor EDs done need.
So they stay in ED for days whilst social workers desperately look for alternatives. Appalling care and another stressor EDs done need.
Reposted by Maddy
Literally none of these residents can live in the community without supported accomodation services and specialist housing infrastructure. If these homes close, the vast majority of clients will end up in hospital beds
November 10, 2025 at 8:26 AM
Literally none of these residents can live in the community without supported accomodation services and specialist housing infrastructure. If these homes close, the vast majority of clients will end up in hospital beds
Reposted by Maddy
Thousands of people with complex disabilities are at risk of eviction from group homes that may close due to a looming funding crisis, say workers endeavourhillshallamdoveton.starcommunity.com.au/news/2025-11...
30 disability homes ‘at risk’ in South East
Thousands of people with complex disabilities are at risk of eviction from group homes that may close due to a looming funding crisis, say workers. As of 31 December, an eight-year, $2.1 billion state...
endeavourhillshallamdoveton.starcommunity.com.au
November 10, 2025 at 8:25 AM
Thousands of people with complex disabilities are at risk of eviction from group homes that may close due to a looming funding crisis, say workers endeavourhillshallamdoveton.starcommunity.com.au/news/2025-11...
Reposted by Maddy
how is the partner income test enforced you ask? welcome to the fucking form.
it’s not just sex tho, they’ll also scrutinise whether you eat together, share the washing and so on.
www.pedestrian.tv/news/centrel...
it’s not just sex tho, they’ll also scrutinise whether you eat together, share the washing and so on.
www.pedestrian.tv/news/centrel...
November 9, 2025 at 2:38 AM
how is the partner income test enforced you ask? welcome to the fucking form.
it’s not just sex tho, they’ll also scrutinise whether you eat together, share the washing and so on.
www.pedestrian.tv/news/centrel...
it’s not just sex tho, they’ll also scrutinise whether you eat together, share the washing and so on.
www.pedestrian.tv/news/centrel...
Reposted by Maddy
It's fascinating how in a policy expert culture dominated by economism - everything is about efficient taxes, behavioural distortions and deadweight losses - we have a huge effective tax on something as profound to society as relationship formation and exit and the wonk class has no interest in it
November 7, 2025 at 2:48 AM
It's fascinating how in a policy expert culture dominated by economism - everything is about efficient taxes, behavioural distortions and deadweight losses - we have a huge effective tax on something as profound to society as relationship formation and exit and the wonk class has no interest in it
Reposted by Maddy
Such absolute dominance of familism is almost unique - most countries have some individual-level unemployment protection.
None of the Australian welfare technocratic class seem to be interested in the issue. Brush it off as secondary.
None of the Australian welfare technocratic class seem to be interested in the issue. Brush it off as secondary.
November 7, 2025 at 2:43 AM
Such absolute dominance of familism is almost unique - most countries have some individual-level unemployment protection.
None of the Australian welfare technocratic class seem to be interested in the issue. Brush it off as secondary.
None of the Australian welfare technocratic class seem to be interested in the issue. Brush it off as secondary.
Reposted by Maddy
Can't afford to be in a relationship with a person who is unemployed or disabled... seems bad!
Placing the person who is unemployed or disabled in a position of absolute dependency on a partner, without any financial autonomy... seems bad!
Placing the person who is unemployed or disabled in a position of absolute dependency on a partner, without any financial autonomy... seems bad!
November 7, 2025 at 2:42 AM
Can't afford to be in a relationship with a person who is unemployed or disabled... seems bad!
Placing the person who is unemployed or disabled in a position of absolute dependency on a partner, without any financial autonomy... seems bad!
Placing the person who is unemployed or disabled in a position of absolute dependency on a partner, without any financial autonomy... seems bad!