A Chronic Voice
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achronicvoice.com
A Chronic Voice
@achronicvoice.com
2.6K followers 2.3K following 8.3K posts
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.

https://achronicvoice.com/
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achronicvoice.com
A Chronic Voice @achronicvoice.com · Dec 21
Don't forget to check out the revamped #website, and visit our #AboutPage for more info and resources. My aim is and always will be to raise #awareness about lifelong #illnesses from VARIOUS #perspectives. Context matters. 👉 buff.ly/TKHRkRo

#ChronicIllness #disability #ChronicPain #MedSky #spoonie
About
Learn more about “A Chronic Voice”, a blog that aims to raise awareness about chronic illness and disabilities through various perspectives.
achronicvoice.com
achronicvoice.com
“Studies of #joy in nonhumans can help us understand the #evolution & importance of joy in #humans. Joy is expressed by many different #animals including parrots, dolphins, and great apes in different contexts.”: buff.ly/JFpRWzl

from @psychologytoday.com
#emotions
A Deep Dive Into Why Joy is Essential, Who Feels It, and Why
Joy—fleeting woo-hoo moments like "catching the perfect wave"—is felt by many diverse animals, and researchers want to know how they express it in various situations and why.
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February 3, 2026 at 7:30 AM
achronicvoice.com
"For those..with #ChronicIllness who spend many of our days at home in pain, unable to work, cook or clean, this #routine can feel terminal. How do u live yr life, when it feels as if #ChronicPain or fatigue is the 1 who’s running the show?": buff.ly/NfGZ0Aj

#MondayBlogs
Finding My Best New Normal with Chronic Illness
February 3, 2026 at 4:30 AM
achronicvoice.com
"There’s something wildly #empowering about refusing to let #illness take everything. Abt saying, no, u don’t get this too..in the end, the goal isn’t perfection. It’s #presence. It’s #joy. It’s making something that illness didn’t get to decide": buff.ly/VGTXh56

by @unremarkableme.bsky.social
Crafting Joy: How Chronically Ill Hobbies Keep Us Going (and Occasionally Covered in Glitter)
By Antonia at Unremarkable Me(Currently making clay earrings with one hand, balancing a heat pack on my neck, and seriously considering whether my glue gun is judging me.)Let’s be honest: if hobbies…
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February 3, 2026 at 2:30 AM
achronicvoice.com
CW: #suicide
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"My #daughter Trinity Lillian Graves, 18, took her life leaving these words...My physical #pain is beyond unbearable and I’m tired so so so so tired of living in a #body that isn’t my body.": buff.ly/yKBY77M

via Endofound
#endometriosis #ChronicPain #SuicideAwareness #WomensHealth
Sarah Austin, Whose Daughter Died By Suicide Due to Endometriosis Pain, Speaks Out
Trinity suffered debilitating pain from endometriosis and adenomyosis for nearly four years before she took her own life.
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February 2, 2026 at 11:30 PM
achronicvoice.com
"As someone who lives with #ChronicIllness, chronic #stress does actually yield a tangible feedback. This is reflected in my blood tests on a micro level, and intense #ChronicPain on a larger scale.": buff.ly/WN2P02p

#MondayBlogs #MentalHealth
Chronic Stress, the Silent Assassin
Chronic stress is often glorified in modern society, yet its effects are more harmful than you would believe, especially with chronic illness.
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February 2, 2026 at 9:30 PM
achronicvoice.com
"We invite u to attend this symposium, featuring leading #Hemostasis experts—Dr. Steven Pipe & Prof Katrien Devreese, along with 2 patient #advocates." — I am excited to be a speaker for #Werfen! Sign up to watch 🙂 buff.ly/vtjPjQI

#AntiphospholipidSyndrome #MedSky #ChronicIllness #rheumatology
Webinar: Shared Journeys in Hemostasis: Connecting Patient Voices with Hot Topics in the Hemostasis Laboratory | Werfen North America
LOG IN
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February 2, 2026 at 8:30 PM
achronicvoice.com
"I’ve got #journal entries that will never see the light of day but helped me process #heartbreak, #burnout &.. #inspiration. There are half-finished short #stories in my drafts folder that taught me how to write better dialogue.": buff.ly/Yx3kvQ7

via Vocal_Creators
#WritingCommunity #MentalHealth
Why I Keep Writing Even When No One’s Reading (Yet)
And Why I Will Continue to Do So
buff.ly
February 2, 2026 at 6:30 PM
achronicvoice.com
"All this #REM time [in #newborns ], it has been theorized, is the equivalent of the #brain testing its software, preparing to come fully on line. The process is called #telencephalization. It’s nothing less than the opening of the #mind.": buff.ly/pFJBJY7

via NatGeo
#sleep #science #trivia #babies
Sleep Science: In the Era of Screens, Rest is Crucial
Our floodlit society has made sleep deprivation a lifestyle. But we know more than ever about how we rest—and how it keeps us healthy.
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February 2, 2026 at 5:31 PM
achronicvoice.com
"One cannot deal with chronic physical pain when they're already defeated mentally. At that point, you're too tired to even care anymore.": buff.ly/QGwUFjd

#ChronicPain #MondayBlogs #ChronicIllness #MentalHealth #InvisibleIllness
Sometimes Physical Pain Isn't The Worst Part About Chronic Illness
February 2, 2026 at 3:30 PM
achronicvoice.com
"You’re expected to be inspiring or invisible. #Sick people are often reduced to two roles: heroic overcomer or quiet sufferer. Both of those erase the complexity of your real life.": buff.ly/yyD8djt

by @thethrivingspoonie.com
#ChronicIllness #NEisVoid #disability #InvisibleIllness #ableism
What It Really Means to Live Authentically With Chronic Illness—And Why It’s So Hard to Do
Discover what it really means to live authentically with chronic illness—and why it’s so challenging to let go of expectations.
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February 2, 2026 at 2:30 PM
achronicvoice.com
“Sometimes I'll wake up one day in the same amount of #pain I was in the previous day & even though I managed fine yesterday, today I just. can't. handle it. That's when we have to allow ourselves to rest and recuperate.”: buff.ly/ARVEwUm

via theodyssey
#ChronicPain #InvisibleIllness #disabled
13 Harsh Realities You Experience As You're Living With A Chronic Illness
Everything you secretly wanted to know, but were too afraid to ask.
buff.ly
February 2, 2026 at 12:30 PM
achronicvoice.com
“'Disabled people have terrible lives.' Don’t get me wrong being #disabled is hard. However, many #DisabledPeople lead fulfilling lives. Obviously, what that looks like is different from person to person as it would be across #society.": buff.ly/SZX5sGO

by @HannahEDeakin.bsky.social
#awareness
Stereotypes and The Assumptions They Make - Hannah's Hope
Stereotypes and the assumptions they make often cause harm or mislead people. Not all disabled people are going to become Paralympians.
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February 2, 2026 at 11:30 AM
achronicvoice.com
"Navigating the rocky terrain, holding onto #hope when u have none, just going through the motions of daily life, feels so futile. It feels wrong somehow, to still be standing, breathing, functioning, in the face of such #despair.": buff.ly/FN17aXj

by @Jenniferkindera.bsky.social
#loss #grief
The Shattered Encasement of Suicide Grief
Jennifer Kindera, CTRC-S, CHSP, TICC, CLC
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February 2, 2026 at 9:30 AM
achronicvoice.com
“this would be my new existence. Going into #anaphylaxis - a life threatening condition - at random times for absolutely no reason. It wasn’t the news I had hoped for. The flu would have been better.": buff.ly/rzWmlzg

by @Broadwaybabyto.bsky.social
#MCAS #allergies #ChronicIllness #ChronicPain
When You're Allergic to Everything and Nothing... That's MCAS
An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.
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February 2, 2026 at 7:30 AM
achronicvoice.com
"What is one thing you can do to show love to someone who matters today? It can even be someone who is in general need, because every life is precious" — Get the #February #journaling prompts & also for all 365 days of the year! buff.ly/KWuIarx #MondayBlogs #SelfAwareness
February Journaling Prompts. Theme: Loving Kindness. “What is one thing you can do to show love to someone who matters today? It can even be someone who is in general need, because every life is precious.” a chronic voice .com
February 2, 2026 at 4:30 AM
achronicvoice.com
"My #body moves in ways I can’t #control —or it refuses to move at all. It aches quietly, collapses without warning & spasms for no reason. It hides things from me, keeps its secrets & exposes me in the worst ways.": buff.ly/qG5t2J9

by @serenebutterfly.bsky.social
#ChronicIllness #FND #disabled
Disability And Its Hidden Anger: This Body Betrays Me –
An exploration of living with disability, where anger is both a shield and a source of grief and how it feels to have a body that betrays you
buff.ly
February 2, 2026 at 1:30 AM
achronicvoice.com
“The colors and sounds of #birds invite undivided attention, and learning the names of common species builds a #connection with the space around us.”: buff.ly/F8xBhKL

from @plough.bsky.social
#environment #nature #mindfulness #BirdWatching #animals
Consider the Birds
Birdwatching, George Orwell suggests, makes a peaceful and decent future a little more probable. Calvin and Hobbes would agree.
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February 1, 2026 at 11:30 PM
achronicvoice.com
"I truly wish that I were seeing a #gynecologist for pregnancy reasons, but unfortunately, it’s because I’ve had two deadly #OvarianCyst ruptures, no thanks to the #medications I take for #AntiphospholipidSyndrome.": buff.ly/XCRWjd7

#MondayBlogs
Why I need to see so many different types of doctors
February 1, 2026 at 9:30 PM
achronicvoice.com
"Their #activism wasn’t always loud or dramatic. Sometimes it looked like endless meetings with lawmakers..And sometimes, it was simply showing up, even when every system was designed to keep them home and silent.": buff.ly/rjKIMjD

by @thethrivingspoonie.com
#advocates #SelfAdvocacy #ChronicPain
The Powerful Legacy of Chronically Ill Activists—and Why Disability Rights Are Still Under Threat
Discover the powerful legacy of chronically ill activists in U.S. disability rights history—and why their fight still matters today.
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February 1, 2026 at 8:30 PM
achronicvoice.com
"It’s not something that happened over night. It was from getting up each day for weeks, months and years, and making a #choice to tackle that day. You see, my oldest son was diagnosed at 18 months old with #CerebralPalsy.": buff.ly/N7DMuIn

via boldjourney
#health #resilient #motherhood #humanity
Portraits of Resilience
Sometimes just seeing resilience can change out mindset and unlock our own resilience. That’s our
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February 1, 2026 at 6:33 PM
achronicvoice.com
"It’s a reflection of a broken system that still doesn’t know how to #support complex, #ChronicIllness. We shouldn’t have to be #medical librarians & legal analysts & administrative experts just to access #compassionate, informed care.": buff.ly/34ER8ZL

via EDSShare
#healthcare #disabled #NEisVoid
“Who Says Disability Isn’t a Full-Time Job?”: The Frustration Fatigue Reality of Uncoordinated Care
If you live with hypermobile Ehlers-Danlos syndrome (hEDS), you likely already know the truth: managing your health is a full-time job — one with no paid time off, no clear job description, and no…
buff.ly
February 1, 2026 at 4:30 PM
achronicvoice.com
"Somehow in my #memories, the pain during those #moments have been erased, and only the treasures remain. They are beautiful moments that my brain has chosen to tuck neatly into its folds; safe, sweet and sound.": buff.ly/WdT6gFW

#ChronicPain #GoodMemories #ChronicIllness
Coming Alive in the Winter Air (Pushing for Personal Changes & Group Advocacy)
Read my diary entry for February, where I reminisce being alive in the winter air in Berlin. I've also been pushing for more changes in my life.
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February 1, 2026 at 3:30 PM
achronicvoice.com
“The #grief is real and painful dealing with #ChronicIllness, losing your #job, your savings, and your sense of #purpose ..I’m trying to hold onto the idea that I can create a new #life, even if it’s not the one I had planned.": buff.ly/13lZGDN

by twipblog
#NEisVoid #disability #identity #awareness
When Chronic Illness Puts Your Career and Life on Hold
When you live with chronic illness, it can often feel like life is in a constant state of limbo. You’re caught between the hopes of getting better and the harsh reality that things may never go back…
buff.ly
February 1, 2026 at 2:30 PM
achronicvoice.com
"They found that #statins jam open a critical #muscle protein, causing a toxic calcium leak. The discovery could lead to safer statins that keep their life-saving benefits without the muscle damage.": buff.ly/erbgV0D

via sciencedaily
#MusclePain #medications #HeartDisease #MedSky #cardiology
Scientists finally explain statin muscle pain
Statins are a cornerstone of heart health, but muscle pain and weakness cause many patients to quit taking them. Scientists have now identified the precise molecular trigger behind these side…
buff.ly
February 1, 2026 at 12:30 PM
achronicvoice.com
"The recordings of yr #voice that they collect could one day be used against u..to increase yr insurance premiums; tailor ads to yr interests, needs, or #emotional states; screen u for..jobs & worst of all, harass, stalk, or extort u.": buff.ly/qgA0kfD

via @nautil.us
#technology #information #AI
Your Voice Gives Away Valuable Personal Information
Your Voice Gives Away Valuable Personal Information: The risks of always-listening voice control systems—and how to protect against them.
buff.ly
February 1, 2026 at 10:30 AM