A Chronic Voice
@achronicvoice.com
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
https://achronicvoice.com/
https://achronicvoice.com/
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A Chronic Voice
@achronicvoice.com
· Nov 18
About - A Chronic Voice
More about A Chronic Voice, a blog that aims to raise awareness about chronic illness and disabilities through various perspectives.
www.achronicvoice.com
My aim with this site is to raise #awareness about lifelong #illnesses from various #perspectives" - Check out my About Page for more info & resources! www.achronicvoice.com/about/ #ChronicPain #ChronicIllness
“I’m not looking for pity. I want acknowledgement..I want less #suffering. I want some #dignity back on the lavvy. I want someone to take seriously that “not #cancer” isn’t the same as “not a problem.””: buff.ly/dsW9FFh
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #spoonie
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #spoonie
Multiple sclerosis is My Living Hell - The weird eccentric ramblings of a multiple sclerosis sufferer
The mishaps and weird stuff that just seem to happen in my own personal world of cognitive disfuction and other worldly weirdness throughout my life, a spiritual awakening staring multiple scelrosis and...
buff.ly
December 19, 2025 at 6:30 PM
“I’m not looking for pity. I want acknowledgement..I want less #suffering. I want some #dignity back on the lavvy. I want someone to take seriously that “not #cancer” isn’t the same as “not a problem.””: buff.ly/dsW9FFh
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #spoonie
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #spoonie
“Unfortunately..no-one wants to sit in a house with their #sick #friend while the world downs cocktails & watches firework displays in some of the..most exciting & impressive venues in the whole of the country.”: buff.ly/N2CzZSR
via theodyssey
#ChronicIllness #holidays
via theodyssey
#ChronicIllness #holidays
buff.ly
December 19, 2025 at 4:30 PM
“Unfortunately..no-one wants to sit in a house with their #sick #friend while the world downs cocktails & watches firework displays in some of the..most exciting & impressive venues in the whole of the country.”: buff.ly/N2CzZSR
via theodyssey
#ChronicIllness #holidays
via theodyssey
#ChronicIllness #holidays
"The #book is interesting in the sense that it believes in strengthening your #strengths, as opposed to continuous ‘improvement’ on your #weaknesses, and the struggle that comes along with something that isn’t inherently natural.": buff.ly/8mZB4XO
#MentalHealthAwareness #PersonalGrowth
#MentalHealthAwareness #PersonalGrowth
December 19, 2025 at 3:31 PM
"The #book is interesting in the sense that it believes in strengthening your #strengths, as opposed to continuous ‘improvement’ on your #weaknesses, and the struggle that comes along with something that isn’t inherently natural.": buff.ly/8mZB4XO
#MentalHealthAwareness #PersonalGrowth
#MentalHealthAwareness #PersonalGrowth
“when I have days with very few symptoms, I describe these to my #doctor, not as feeling good, but as feeling #normal. I feel the way other people look. Comfortable in their bodies. Unaware of their inner workings.”: buff.ly/MmL4stl
via @psychologytoday.com
#InvisibleIllness
via @psychologytoday.com
#InvisibleIllness
In a Cage: The Inner Life of the Chronically Ill
A Personal Perspective: When chronically ill, you may try to join others in the world, but you will likely be separate from them.
buff.ly
December 19, 2025 at 2:30 PM
“when I have days with very few symptoms, I describe these to my #doctor, not as feeling good, but as feeling #normal. I feel the way other people look. Comfortable in their bodies. Unaware of their inner workings.”: buff.ly/MmL4stl
via @psychologytoday.com
#InvisibleIllness
via @psychologytoday.com
#InvisibleIllness
CW: death
.
"I certainly still rmb Chris’ tragic #illness & #death, but I choose to spend more time focusing on his wicked sense of humor..the nights we danced our asses off. I choose to recall how proud he was of me & how much he loved me.”: buff.ly/BLVi3Az
by dlhampton
#HIV #BrotherSister #loss
.
"I certainly still rmb Chris’ tragic #illness & #death, but I choose to spend more time focusing on his wicked sense of humor..the nights we danced our asses off. I choose to recall how proud he was of me & how much he loved me.”: buff.ly/BLVi3Az
by dlhampton
#HIV #BrotherSister #loss
Are You Torturing Yourself With Your Thoughts? - The Best Brain Possible
There's always going to be pain, joy and everything in between. Your experience of this life and your brain are shaped by what you choose to focus on.
buff.ly
December 19, 2025 at 12:30 PM
CW: death
.
"I certainly still rmb Chris’ tragic #illness & #death, but I choose to spend more time focusing on his wicked sense of humor..the nights we danced our asses off. I choose to recall how proud he was of me & how much he loved me.”: buff.ly/BLVi3Az
by dlhampton
#HIV #BrotherSister #loss
.
"I certainly still rmb Chris’ tragic #illness & #death, but I choose to spend more time focusing on his wicked sense of humor..the nights we danced our asses off. I choose to recall how proud he was of me & how much he loved me.”: buff.ly/BLVi3Az
by dlhampton
#HIV #BrotherSister #loss
“Most of us don’t time our activities, so we have little #memory (or the wrong memory) of how long we spent doing them. When the boss asks whether we can get that report done in a week or a month, we don’t really know.": buff.ly/64ZDalq
via @behscientist.bsky.social
#work #SelfAwareness #habitual
via @behscientist.bsky.social
#work #SelfAwareness #habitual
How Do You Become More Conscientious When You’re Not Conscientious Already? - by Olga Khazan - Behavioral Scientist
The easiest way to become more conscientious is to already be conscientious—last week’s to-do list makes writing this week’s easier. But if you can’t lean on your past self, considering your future…
buff.ly
December 19, 2025 at 10:30 AM
“Most of us don’t time our activities, so we have little #memory (or the wrong memory) of how long we spent doing them. When the boss asks whether we can get that report done in a week or a month, we don’t really know.": buff.ly/64ZDalq
via @behscientist.bsky.social
#work #SelfAwareness #habitual
via @behscientist.bsky.social
#work #SelfAwareness #habitual
“ #BladderCancer is one of the most common #cancers worldwide, yet it often receives far less attention than other #smoking -related cancers..occurs significantly more often in men than in women & the risk rises steadily with age.”: buff.ly/ZaJyO3b
from kevinmd
#cancer #bladder
from kevinmd
#cancer #bladder
Why smoking is the top cause of bladder cancer
Bladder cancer and smoking are strongly linked. Discover how tobacco toxins affect the bladder and why quitting improves survival and lowers recurrence.
buff.ly
December 19, 2025 at 9:30 AM
“ #BladderCancer is one of the most common #cancers worldwide, yet it often receives far less attention than other #smoking -related cancers..occurs significantly more often in men than in women & the risk rises steadily with age.”: buff.ly/ZaJyO3b
from kevinmd
#cancer #bladder
from kevinmd
#cancer #bladder
"When we hear #emotion “ #regulation,” Brackett writes, we tend to think..“controlling”..[but] there’s always a reason for #feeling as we do—and what matters is how we choose to work with our #emotions, to shape our lives & others’.": buff.ly/rRfbzZy
via mindful .org
#BooksToRead #mindfulness
via mindful .org
#BooksToRead #mindfulness
10 Must-Read Mindfulness Books for 2026
Dealing with Feeling: Use Your Emotions to Create the Life You Want Marc Brackett - Celadon Books In his first book, Permission to Feel, Marc
buff.ly
December 19, 2025 at 7:30 AM
"When we hear #emotion “ #regulation,” Brackett writes, we tend to think..“controlling”..[but] there’s always a reason for #feeling as we do—and what matters is how we choose to work with our #emotions, to shape our lives & others’.": buff.ly/rRfbzZy
via mindful .org
#BooksToRead #mindfulness
via mindful .org
#BooksToRead #mindfulness
"My face was a swollen balloon, as a result of being on high dose #steroids to control the #Lupus flares. It was a demoralising period, esp when everyone else around u is enjoying their prime years of #health & beauty. But I didn’t have a choice": buff.ly/Nod61PT #spoonie
December 19, 2025 at 4:30 AM
"My face was a swollen balloon, as a result of being on high dose #steroids to control the #Lupus flares. It was a demoralising period, esp when everyone else around u is enjoying their prime years of #health & beauty. But I didn’t have a choice": buff.ly/Nod61PT #spoonie
"I do love it when people come to me, and #holidays are celebrated at my house because it makes it easier to manage my #PainLevels and the challenges of my #disability in general.": buff.ly/HNMIzfG
by sarahlynn358
#ChronicPain #ChristmasTime #ChronicIllness
by sarahlynn358
#ChronicPain #ChristmasTime #ChronicIllness
How To Make The Holidays Easier With Chronic Pain
When you live with pain, often you want to do a lot of things with your friends, but live in a body that has limited energy and doesn’t want to do anything except sit on your couch and watch …
buff.ly
December 19, 2025 at 2:30 AM
"I do love it when people come to me, and #holidays are celebrated at my house because it makes it easier to manage my #PainLevels and the challenges of my #disability in general.": buff.ly/HNMIzfG
by sarahlynn358
#ChronicPain #ChristmasTime #ChronicIllness
by sarahlynn358
#ChronicPain #ChristmasTime #ChronicIllness
“The roads are busier. Malls overrun by zombies (We are The Walking Dead, but with brightly-wrapped #gifts ). #Christmas songs drone on, but #peace on Earth, really, there’s barely a pretense of civility.”: buff.ly/pQYR3gi
by yadadarcyyada
#stress #ChronicallyIll
by yadadarcyyada
#stress #ChronicallyIll
12 Unusual Ways To Relieve Your Holiday Stress
The holiday season stresses out most everyone, but for those who are ill, the holidays can be a nightmare (before and during Christmas); it’s stressful for even those who don’t celebrat…
buff.ly
December 19, 2025 at 12:31 AM
“The roads are busier. Malls overrun by zombies (We are The Walking Dead, but with brightly-wrapped #gifts ). #Christmas songs drone on, but #peace on Earth, really, there’s barely a pretense of civility.”: buff.ly/pQYR3gi
by yadadarcyyada
#stress #ChronicallyIll
by yadadarcyyada
#stress #ChronicallyIll
"In general, fat soluble #vitamins A, D & K will be deficient in 2/3s of [ #Bariatric #surgery] #patients within 4 years of surgery. This leads to other #HealthProblems such as easy bruising, rashes, osteomalacia & more.": buff.ly/bNu2Ajm
for SpectraSpray
for SpectraSpray
December 18, 2025 at 9:30 PM
"In general, fat soluble #vitamins A, D & K will be deficient in 2/3s of [ #Bariatric #surgery] #patients within 4 years of surgery. This leads to other #HealthProblems such as easy bruising, rashes, osteomalacia & more.": buff.ly/bNu2Ajm
for SpectraSpray
for SpectraSpray
“I find it easiest to loosely define my #health into 3 categories, #Flareup, #Recovery and Energy. Of course, it is not a given that this state will last for a full day. It can begin in 1 way & rapidly change completely.”: buff.ly/3khsT06
by creativefibro
#fibromyalgia
by creativefibro
#fibromyalgia
What is a Fibromyalgia Flare-Up? Exposed
Have you ever wondered what a Fibromyalgia Flare-up is? This post tells you all about my experience of flare-ups and explains the different types of flare.
buff.ly
December 18, 2025 at 8:30 PM
“I find it easiest to loosely define my #health into 3 categories, #Flareup, #Recovery and Energy. Of course, it is not a given that this state will last for a full day. It can begin in 1 way & rapidly change completely.”: buff.ly/3khsT06
by creativefibro
#fibromyalgia
by creativefibro
#fibromyalgia
“I havent..crossed everything off my #TodoList. I didnt think of 3 things I was grateful for before I went to sleep..nor did I meditate this morning..The #perfect version of myself hovers in my peripheral vision-healthy, happy.. #productive.": buff.ly/Wu8SrJt
via @aeon.co
#PersonalDevelopment
via @aeon.co
#PersonalDevelopment
Victorian diary-writers kicked off our age of self-optimisation | Aeon Essays
Our cursed age of self-monitoring and optimisation didn’t start with big tech: as so often, the Victorians are to blame
buff.ly
December 18, 2025 at 7:30 PM
“I havent..crossed everything off my #TodoList. I didnt think of 3 things I was grateful for before I went to sleep..nor did I meditate this morning..The #perfect version of myself hovers in my peripheral vision-healthy, happy.. #productive.": buff.ly/Wu8SrJt
via @aeon.co
#PersonalDevelopment
via @aeon.co
#PersonalDevelopment
"When I looked back on certain years, I realized most of my #ChronicIllness #YearEnd reviews weren’t reflections at all. They were performances..lists of #accomplishments that didn’t tell the #truth about what it cost to #achieve them.": buff.ly/vO03Xf2
by @thethrivingspoonie.com
#disability
by @thethrivingspoonie.com
#disability
A Gentler Way to End the Year When You Live With Chronic Illness
End the year with a chronic illness year end review. Discover how to embrace gentleness and self-care amid challenges.
buff.ly
December 18, 2025 at 5:30 PM
"When I looked back on certain years, I realized most of my #ChronicIllness #YearEnd reviews weren’t reflections at all. They were performances..lists of #accomplishments that didn’t tell the #truth about what it cost to #achieve them.": buff.ly/vO03Xf2
by @thethrivingspoonie.com
#disability
by @thethrivingspoonie.com
#disability
Reposted by A Chronic Voice
Sheryl writes about her life w. #ChronicIllness & #disability.
"To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7
Via @achronicvoice.com
"To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7
Via @achronicvoice.com
buff.ly
December 18, 2025 at 9:24 AM
Sheryl writes about her life w. #ChronicIllness & #disability.
"To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7
Via @achronicvoice.com
"To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7
Via @achronicvoice.com
"My #BloodCount was already within the red zone & to make matters worse, I have the rarest #BloodType ..with #autoimmune #antibodies thrown into the party..doctors always have trouble procuring #blood for me & sometimes it takes days to find a match.": buff.ly/INX9UJ1
#ChronicIllness
#ChronicIllness
December 18, 2025 at 3:30 PM
"My #BloodCount was already within the red zone & to make matters worse, I have the rarest #BloodType ..with #autoimmune #antibodies thrown into the party..doctors always have trouble procuring #blood for me & sometimes it takes days to find a match.": buff.ly/INX9UJ1
#ChronicIllness
#ChronicIllness
"What if you want to give a #gift that acknowledges and even helps with their #ChronicIllness or #disability? This #GiftGuide is here to help!": buff.ly/Ds3uhRD
via @tbqtalks.com
#disability #spoonies
via @tbqtalks.com
#disability #spoonies
December 18, 2025 at 3:06 PM
"What if you want to give a #gift that acknowledges and even helps with their #ChronicIllness or #disability? This #GiftGuide is here to help!": buff.ly/Ds3uhRD
via @tbqtalks.com
#disability #spoonies
via @tbqtalks.com
#disability #spoonies
CW: #mortality
“This week the #PalliativeCare #doctor called me. My condition has progressed to #EndOfLife stage...Thankfully Peter will be able to come with me & have a bed in my room. We will be together & that’s all that matters.” - Rest well, Sam 😔 buff.ly/jC4cn0V
by Sam Moss
“This week the #PalliativeCare #doctor called me. My condition has progressed to #EndOfLife stage...Thankfully Peter will be able to come with me & have a bed in my room. We will be together & that’s all that matters.” - Rest well, Sam 😔 buff.ly/jC4cn0V
by Sam Moss
The Final chapter
It’s time to say goodbye and thank you for everything
buff.ly
December 18, 2025 at 1:31 PM
CW: #mortality
“This week the #PalliativeCare #doctor called me. My condition has progressed to #EndOfLife stage...Thankfully Peter will be able to come with me & have a bed in my room. We will be together & that’s all that matters.” - Rest well, Sam 😔 buff.ly/jC4cn0V
by Sam Moss
“This week the #PalliativeCare #doctor called me. My condition has progressed to #EndOfLife stage...Thankfully Peter will be able to come with me & have a bed in my room. We will be together & that’s all that matters.” - Rest well, Sam 😔 buff.ly/jC4cn0V
by Sam Moss
“Becoming a #mother changed my relationship to #time — #AloneTime in particular. It made my once plentiful #solitude more scarce, sacred & complicated. It has also made me wonder: How do I make the most of this now much rarer #resource?”: buff.ly/0gQw4CR
via @behscientist.bsky.social
via @behscientist.bsky.social
December 18, 2025 at 10:02 AM
“Becoming a #mother changed my relationship to #time — #AloneTime in particular. It made my once plentiful #solitude more scarce, sacred & complicated. It has also made me wonder: How do I make the most of this now much rarer #resource?”: buff.ly/0gQw4CR
via @behscientist.bsky.social
via @behscientist.bsky.social
"We all know the importance of a good diet, exercise & quality sleep, but #stress is something that the average person severely undermines. We often think that this is the last factor to eliminate on our journey to #wellness": buff.ly/VdmsZDo
#ChronicPain #InvisibleIllness #awareness
#ChronicPain #InvisibleIllness #awareness
This is What It’s Like to Live With A Chronic and Invisible Illness in Singapore
The post This is What It's Like to Live With A Chronic and Invisible Illness in Singapore appeared first on RICE.
buff.ly
December 18, 2025 at 7:30 AM
"We all know the importance of a good diet, exercise & quality sleep, but #stress is something that the average person severely undermines. We often think that this is the last factor to eliminate on our journey to #wellness": buff.ly/VdmsZDo
#ChronicPain #InvisibleIllness #awareness
#ChronicPain #InvisibleIllness #awareness
“What had yet to be discovered is the mechanism responsible for..activating Tregs in those circumstances when they r needed to suppress a dangerous #immune response..We not only discovered this..but also..how it can be turned on & off.”: buff.ly/yTXogfS
via @Stanford.bsky.social
#MedSky #autoimmune
via @Stanford.bsky.social
#MedSky #autoimmune
Study uncovers immune switch for cancer and autoimmunity
Researchers found that a key molecule involved in red blood cell production governs whether the immune system attacks or tolerates cells, revealing potential treatments for autoimmune diseases and…
buff.ly
December 18, 2025 at 4:30 AM
“What had yet to be discovered is the mechanism responsible for..activating Tregs in those circumstances when they r needed to suppress a dangerous #immune response..We not only discovered this..but also..how it can be turned on & off.”: buff.ly/yTXogfS
via @Stanford.bsky.social
#MedSky #autoimmune
via @Stanford.bsky.social
#MedSky #autoimmune
“The specific sensations can depend on the type of #arthritis (such as #osteoarthritis, #RheumatoidArthritis, or #PsoriaticArthritis ), the severity of the condition, and the individual’s pain threshold.”: buff.ly/2KIbd43
by @carriekellenberger.bsky.social
#ChronicPain
by @carriekellenberger.bsky.social
#ChronicPain
December 18, 2025 at 2:49 AM
“The specific sensations can depend on the type of #arthritis (such as #osteoarthritis, #RheumatoidArthritis, or #PsoriaticArthritis ), the severity of the condition, and the individual’s pain threshold.”: buff.ly/2KIbd43
by @carriekellenberger.bsky.social
#ChronicPain
by @carriekellenberger.bsky.social
#ChronicPain
"Yet I feel that the #psychological damage is the worst #SideEffect of them all. It is a #clinical condition that needs to be taken seriously, and dealt with care.": buff.ly/DIvQsAW
#MentalHealthMatters #ChronicIllness
#MentalHealthMatters #ChronicIllness
What's it Like to be on a High Dose of Steroids? (And the First Question You Will Definitely Ask)
Ever wondered what it's like to be on a high dose of steroids for an autoimmune disease? Here is how they affected me — in mind and body.
buff.ly
December 17, 2025 at 9:30 PM
"Yet I feel that the #psychological damage is the worst #SideEffect of them all. It is a #clinical condition that needs to be taken seriously, and dealt with care.": buff.ly/DIvQsAW
#MentalHealthMatters #ChronicIllness
#MentalHealthMatters #ChronicIllness
“Decades of living in the coastal community of #Exmouth, 1,200 kilometres north of Perth, had taught her that even general #healthcare was limited, let alone #specialist #WomensHealth services.”: buff.ly/0DaPp4v
from abcnews
#PublicHealth
from abcnews
#PublicHealth
Regional women facing lack of resources taking health into own hands
Faced with a lack of specialist women's health services, women in regional WA are researching their own conditions and volunteering to raise awareness.
buff.ly
December 17, 2025 at 8:30 PM
“Decades of living in the coastal community of #Exmouth, 1,200 kilometres north of Perth, had taught her that even general #healthcare was limited, let alone #specialist #WomensHealth services.”: buff.ly/0DaPp4v
from abcnews
#PublicHealth
from abcnews
#PublicHealth