Jenny Meagher
@jennmeagher.bsky.social
Life stolen by Myalgic Encephalomyelitis.
Waiting to be rescued by science.
Science waiting to be funded by governments #MECFS
Waiting to be rescued by science.
Science waiting to be funded by governments #MECFS
Reposted by Jenny Meagher
Treaty has just passed Victoria's Parliament!
This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law.
Thank you to generations of First Nations ppl who have fought for this historic moment.
This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law.
Thank you to generations of First Nations ppl who have fought for this historic moment.
October 30, 2025 at 8:20 PM
Treaty has just passed Victoria's Parliament!
This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law.
Thank you to generations of First Nations ppl who have fought for this historic moment.
This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law.
Thank you to generations of First Nations ppl who have fought for this historic moment.
Reposted by Jenny Meagher
Dumping net zero by 2050 ignores Australia’s international commitment to slash climate pollution, sells out young Australians and leaves the regional communities the Nationals claim to represent more vulnerable to fossil-fuelled extreme fires, floods, and storms.
Sussan Ley under pressure as Nationals formally scrap net zero target
David Littleproud says he informed the Liberal leader days ago of the policy position his party was considering
www.theguardian.com
November 2, 2025 at 5:29 AM
Dumping net zero by 2050 ignores Australia’s international commitment to slash climate pollution, sells out young Australians and leaves the regional communities the Nationals claim to represent more vulnerable to fossil-fuelled extreme fires, floods, and storms.
Reposted by Jenny Meagher
Thank you to everyone who joined, what an incredible day at APH!
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
October 30, 2025 at 7:54 AM
Thank you to everyone who joined, what an incredible day at APH!
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
Reposted by Jenny Meagher
Stay updated with Emerge Australia's Research Digest on #mecfs and #longcovid
• Summarized • Easy-to-read • Convenient • Accessible
Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY
• Summarized • Easy-to-read • Convenient • Accessible
Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY
October 29, 2025 at 9:00 PM
Stay updated with Emerge Australia's Research Digest on #mecfs and #longcovid
• Summarized • Easy-to-read • Convenient • Accessible
Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY
• Summarized • Easy-to-read • Convenient • Accessible
Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY
Reposted by Jenny Meagher
Join online for our #MECFS & #LongCOVID Action Forum
New speakers include
* E/Prof Andy Gleadow & E/Prof Ros Gleadow - 🏁 Eliza
* Pete McCluskey - 🏁 Jenny
* Peter Schubert - 🏁 Lily
* Sen Jordon Steele-John - Sen for WA
🗓️ 1pm – 3pm AEDT, 30 Oct
🌐 Zoom zurl.co/jgCuH
New speakers include
* E/Prof Andy Gleadow & E/Prof Ros Gleadow - 🏁 Eliza
* Pete McCluskey - 🏁 Jenny
* Peter Schubert - 🏁 Lily
* Sen Jordon Steele-John - Sen for WA
🗓️ 1pm – 3pm AEDT, 30 Oct
🌐 Zoom zurl.co/jgCuH
October 27, 2025 at 9:00 PM
Join online for our #MECFS & #LongCOVID Action Forum
New speakers include
* E/Prof Andy Gleadow & E/Prof Ros Gleadow - 🏁 Eliza
* Pete McCluskey - 🏁 Jenny
* Peter Schubert - 🏁 Lily
* Sen Jordon Steele-John - Sen for WA
🗓️ 1pm – 3pm AEDT, 30 Oct
🌐 Zoom zurl.co/jgCuH
New speakers include
* E/Prof Andy Gleadow & E/Prof Ros Gleadow - 🏁 Eliza
* Pete McCluskey - 🏁 Jenny
* Peter Schubert - 🏁 Lily
* Sen Jordon Steele-John - Sen for WA
🗓️ 1pm – 3pm AEDT, 30 Oct
🌐 Zoom zurl.co/jgCuH
Reposted by Jenny Meagher
Join us online for our #MECFS & #LongCOVID Action Forum
New speakers include
* Dr Mike Freelander MP
* Prof Michael Kidd AO
* Penelope McMillan
* Zoe Simmons
* Anne Wilson
More announced soon
🗓️ 1pm – 3pm AEDT, 30 Oct
🌐 Zoom zurl.co/jgCuH
New speakers include
* Dr Mike Freelander MP
* Prof Michael Kidd AO
* Penelope McMillan
* Zoe Simmons
* Anne Wilson
More announced soon
🗓️ 1pm – 3pm AEDT, 30 Oct
🌐 Zoom zurl.co/jgCuH
October 22, 2025 at 4:00 AM
Join us online for our #MECFS & #LongCOVID Action Forum
New speakers include
* Dr Mike Freelander MP
* Prof Michael Kidd AO
* Penelope McMillan
* Zoe Simmons
* Anne Wilson
More announced soon
🗓️ 1pm – 3pm AEDT, 30 Oct
🌐 Zoom zurl.co/jgCuH
New speakers include
* Dr Mike Freelander MP
* Prof Michael Kidd AO
* Penelope McMillan
* Zoe Simmons
* Anne Wilson
More announced soon
🗓️ 1pm – 3pm AEDT, 30 Oct
🌐 Zoom zurl.co/jgCuH
Reposted by Jenny Meagher
With the US govt making catastrophic cuts to its health and medical research programs, American experts are saying that Australia has to step up. When we debate the CDC legislation in the House tomorrow, I'll be proposing amendments to increase its size and scope.
Australia must ‘step up to prevent catastrophic and preventable loss of life’ amid Trump cuts, former CDC boss says
Dr Tom Frieden served as director of the US health body under Barack Obama until 2017 and warns about cuts under Donald Trump
www.theguardian.com
October 25, 2025 at 9:56 PM
With the US govt making catastrophic cuts to its health and medical research programs, American experts are saying that Australia has to step up. When we debate the CDC legislation in the House tomorrow, I'll be proposing amendments to increase its size and scope.
Reposted by Jenny Meagher
Did you know that Emerge Australia has a range of position statements on critical matters that relate to various issues surrounding #MECFS and #longCOVID in Australia?
You can find our more here: zurl.co/ms4si
#myalgicencephalomyelitis #chronicfatiguesyndrome
You can find our more here: zurl.co/ms4si
#myalgicencephalomyelitis #chronicfatiguesyndrome
October 23, 2025 at 4:00 AM
Did you know that Emerge Australia has a range of position statements on critical matters that relate to various issues surrounding #MECFS and #longCOVID in Australia?
You can find our more here: zurl.co/ms4si
#myalgicencephalomyelitis #chronicfatiguesyndrome
You can find our more here: zurl.co/ms4si
#myalgicencephalomyelitis #chronicfatiguesyndrome
Reposted by Jenny Meagher
I speak to Australian ME/CFS researchers who rely on either the austerity ridden UK or US based grants. Since Labor came to power, the NHMRC has allocated a grand total of ZERO in research grants for ME/CFS, a condition that impacts hundreds of thousands of Australians.
October 23, 2025 at 1:24 AM
I speak to Australian ME/CFS researchers who rely on either the austerity ridden UK or US based grants. Since Labor came to power, the NHMRC has allocated a grand total of ZERO in research grants for ME/CFS, a condition that impacts hundreds of thousands of Australians.
Reposted by Jenny Meagher
Congratulations to the Government for securing a deal to grow Australia's critical minerals industry and put us in the running to become clean tech heavyweight, but it's a shame to see the PM return empty-handed on another critical sector of our economy.
October 23, 2025 at 1:09 AM
Congratulations to the Government for securing a deal to grow Australia's critical minerals industry and put us in the running to become clean tech heavyweight, but it's a shame to see the PM return empty-handed on another critical sector of our economy.
Reposted by Jenny Meagher
Join us in our mission to educate and empower!
With $400, we can educate a GP on #MECFS and #longCOVID.
Can you introduce us to someone in philanthropy who could support? If so, please email information@emerge.org.au
More info: zurl.co/Kujtx
With $400, we can educate a GP on #MECFS and #longCOVID.
Can you introduce us to someone in philanthropy who could support? If so, please email information@emerge.org.au
More info: zurl.co/Kujtx
October 16, 2025 at 4:00 AM
Join us in our mission to educate and empower!
With $400, we can educate a GP on #MECFS and #longCOVID.
Can you introduce us to someone in philanthropy who could support? If so, please email information@emerge.org.au
More info: zurl.co/Kujtx
With $400, we can educate a GP on #MECFS and #longCOVID.
Can you introduce us to someone in philanthropy who could support? If so, please email information@emerge.org.au
More info: zurl.co/Kujtx
Reposted by Jenny Meagher
We congratulate Assoc Prof Bernard Shiu, co-Chair of our MSAC, for his appointment as Chair to the RACGP Specific Interest Group - Energy-Limiting and Post-Infection Conditions.
This marks real progress in supporting GPs in diagnosis, management & treatment of #MECFS & #longCOVID
This marks real progress in supporting GPs in diagnosis, management & treatment of #MECFS & #longCOVID
October 17, 2025 at 1:00 AM
We congratulate Assoc Prof Bernard Shiu, co-Chair of our MSAC, for his appointment as Chair to the RACGP Specific Interest Group - Energy-Limiting and Post-Infection Conditions.
This marks real progress in supporting GPs in diagnosis, management & treatment of #MECFS & #longCOVID
This marks real progress in supporting GPs in diagnosis, management & treatment of #MECFS & #longCOVID
Can a new blood test really detect ME/CFS? An expert unpacks new research
#MyalgicEncephalomyelitis #MECFS #LongCOVID
theconversation.com/can-a-new-bl...
#MyalgicEncephalomyelitis #MECFS #LongCOVID
theconversation.com/can-a-new-bl...
Can a new blood test really detect ME/CFS? An expert unpacks new research
Diagnosis for myalgic encephalomyelitis/chronic fatigue syndrome currently relies on sometimes controversial diagnostic criteria – and can take years.
theconversation.com
October 11, 2025 at 10:44 PM
Can a new blood test really detect ME/CFS? An expert unpacks new research
#MyalgicEncephalomyelitis #MECFS #LongCOVID
theconversation.com/can-a-new-bl...
#MyalgicEncephalomyelitis #MECFS #LongCOVID
theconversation.com/can-a-new-bl...
Reposted by Jenny Meagher
@davetuller1.bsky.social nails it again.
"Her response illustrates what has been a problem in this field for 30+ years—the conflation of chronic fatigue syndrome, as a distinct clinical entity, with the symptom of unexplained or 'idiopathic' chronic fatigue." 1/2
virology.ws/2025/09/25/t...
"Her response illustrates what has been a problem in this field for 30+ years—the conflation of chronic fatigue syndrome, as a distinct clinical entity, with the symptom of unexplained or 'idiopathic' chronic fatigue." 1/2
virology.ws/2025/09/25/t...
Trial By Error: Cochrane CFS Exercise Review "May Not Apply" to Patients Diagnosed with Newer ME/CFS Definitions, Per Lead Author | Virology Blog
By David Tuller, DrPH It’s hard to keep up with everything going on in this field these days. So I missed the fact that Lillebeth Larun, the lead author beh ...
virology.ws
September 30, 2025 at 1:58 AM
@davetuller1.bsky.social nails it again.
"Her response illustrates what has been a problem in this field for 30+ years—the conflation of chronic fatigue syndrome, as a distinct clinical entity, with the symptom of unexplained or 'idiopathic' chronic fatigue." 1/2
virology.ws/2025/09/25/t...
"Her response illustrates what has been a problem in this field for 30+ years—the conflation of chronic fatigue syndrome, as a distinct clinical entity, with the symptom of unexplained or 'idiopathic' chronic fatigue." 1/2
virology.ws/2025/09/25/t...
Reposted by Jenny Meagher
Australia has an amazing opportunity to use its Medical Research Future Fund to immediately supercharge healthcare innovation - to develop new medicines, new therapies, new cures.
The economic and social potential for our country is huge.
The government could release billions of dollars today.
The economic and social potential for our country is huge.
The government could release billions of dollars today.
September 28, 2025 at 9:25 PM
Australia has an amazing opportunity to use its Medical Research Future Fund to immediately supercharge healthcare innovation - to develop new medicines, new therapies, new cures.
The economic and social potential for our country is huge.
The government could release billions of dollars today.
The economic and social potential for our country is huge.
The government could release billions of dollars today.
Reposted by Jenny Meagher
I just completed this after feeling overwhelmed the first time I tried. It’s less complicated than I thought, & Lenny confirmed you can leave questions unanswered if you don’t have an opinion. I hope especially longtime #pwME who have seen many severity scales come & go will offer your insights!
Friends with ME/CFS!
The incomparable Lenny Jason is working to develop consensus on a research definition and severity scales to use in studying ME. He needs your opinion!
Takes ~15 mins but you can save and come back if you need a break.
If you could also share this, that would be a huge help!
The incomparable Lenny Jason is working to develop consensus on a research definition and severity scales to use in studying ME. He needs your opinion!
Takes ~15 mins but you can save and come back if you need a break.
If you could also share this, that would be a huge help!
Can we reach consensus on an ME research case definition?
redcap.is.depaul.edu
September 29, 2025 at 12:30 AM
I just completed this after feeling overwhelmed the first time I tried. It’s less complicated than I thought, & Lenny confirmed you can leave questions unanswered if you don’t have an opinion. I hope especially longtime #pwME who have seen many severity scales come & go will offer your insights!
Listen and weep for our fellow human beings.
This courageous Australian doctor chooses to risk her own life to work in Gaza. What she describes makes harrowing listening.
#Auspol #Gaza
www.abc.net.au/listen/progr...
This courageous Australian doctor chooses to risk her own life to work in Gaza. What she describes makes harrowing listening.
#Auspol #Gaza
www.abc.net.au/listen/progr...
Australian doctor describes horror inside Gaza's Al-Shifa Hospital - ABC listen
WARNING: This interview contains distressing details about injuries and deaths.
France and Saudi Arabia have convened dozens of world leaders alongside this week's UN General Assembly, to rally suppo...
www.abc.net.au
September 23, 2025 at 2:31 AM
Listen and weep for our fellow human beings.
This courageous Australian doctor chooses to risk her own life to work in Gaza. What she describes makes harrowing listening.
#Auspol #Gaza
www.abc.net.au/listen/progr...
This courageous Australian doctor chooses to risk her own life to work in Gaza. What she describes makes harrowing listening.
#Auspol #Gaza
www.abc.net.au/listen/progr...
Reposted by Jenny Meagher
“Panadol Rapid has been proven to give autism twice as fast as regular Panadol,” warned Robert Kennedy Jr.
theshovel.com.au/2025/09/23/w...
theshovel.com.au/2025/09/23/w...
White House Announce Panadol Rapid is Linked to Stronger, Faster Acting Autism — The Shovel
A new finding unveiled by the Secretary of Health and the US President has informed Americans that taking Panadol Rapid during a pregnancy can lead to faster, stronger, and longer-lasting autism “Pan...
theshovel.com.au
September 23, 2025 at 1:02 AM
“Panadol Rapid has been proven to give autism twice as fast as regular Panadol,” warned Robert Kennedy Jr.
theshovel.com.au/2025/09/23/w...
theshovel.com.au/2025/09/23/w...
Reposted by Jenny Meagher
Dr Richard Denniss says the “obvious” ones to pay for damage from increased floods as per the latest climate report should be the Fossil Fuel co’s, as houses will become uninsurable
“The insurance industry will not help ppl in 20yrs time with their flooded houses”💯 #Estimates
“The insurance industry will not help ppl in 20yrs time with their flooded houses”💯 #Estimates
September 16, 2025 at 5:10 AM
Dr Richard Denniss says the “obvious” ones to pay for damage from increased floods as per the latest climate report should be the Fossil Fuel co’s, as houses will become uninsurable
“The insurance industry will not help ppl in 20yrs time with their flooded houses”💯 #Estimates
“The insurance industry will not help ppl in 20yrs time with their flooded houses”💯 #Estimates
Reposted by Jenny Meagher
Coeliac was known for a very long time, but not understood, until world war 2. The disruptions to diet in that era were like a natural experiment that shone a bright light on the disease. #Mecfs has been known but not understood for ages. But covid and #longcovid have shone a light on it. 1/2
September 15, 2025 at 2:14 AM
Coeliac was known for a very long time, but not understood, until world war 2. The disruptions to diet in that era were like a natural experiment that shone a bright light on the disease. #Mecfs has been known but not understood for ages. But covid and #longcovid have shone a light on it. 1/2
Reposted by Jenny Meagher
When speaking doesn't come easily the consequences can be life altering: https://www.abc.net.au/news/2025-09-14/australias-speech-pathology-therapy-language-delay/105658306
When speaking doesn't come easily the consequences can be life altering
One in four children starting school now has a speech or language delay. It can hold back their learning, affect their friendships and harm their mental health. Speech therapists are struggling to find ways to support them all, but one school is leading the way.
www.abc.net.au
September 13, 2025 at 7:20 PM
When speaking doesn't come easily the consequences can be life altering: https://www.abc.net.au/news/2025-09-14/australias-speech-pathology-therapy-language-delay/105658306
Reposted by Jenny Meagher
Please read this!
A doctor says sorry to Long COVID and ME/CFS patients—he truly didn’t understand until he got Long COVID himself.
"I gaslit myself, pushed myself, gave myself the wrong advice"
Source: www.reddit.com/r/covidlongh...
A doctor says sorry to Long COVID and ME/CFS patients—he truly didn’t understand until he got Long COVID himself.
"I gaslit myself, pushed myself, gave myself the wrong advice"
Source: www.reddit.com/r/covidlongh...
September 12, 2025 at 6:04 AM
Please read this!
A doctor says sorry to Long COVID and ME/CFS patients—he truly didn’t understand until he got Long COVID himself.
"I gaslit myself, pushed myself, gave myself the wrong advice"
Source: www.reddit.com/r/covidlongh...
A doctor says sorry to Long COVID and ME/CFS patients—he truly didn’t understand until he got Long COVID himself.
"I gaslit myself, pushed myself, gave myself the wrong advice"
Source: www.reddit.com/r/covidlongh...
Reposted by Jenny Meagher
If you have #ME/CFS, no matter how much you want to do activities most people take for granted, exertion can make you far more ill — for days, weeks, months, or longer.
Someday, hopefully soon, we’ll be able to explain and treat the biological abnormalities behind post-exertional malaise (PEM) and
Someday, hopefully soon, we’ll be able to explain and treat the biological abnormalities behind post-exertional malaise (PEM) and
The worst thing about ME/CFS
YouTube video by MECFS Quotes
youtube.com
August 29, 2025 at 6:29 PM
If you have #ME/CFS, no matter how much you want to do activities most people take for granted, exertion can make you far more ill — for days, weeks, months, or longer.
Someday, hopefully soon, we’ll be able to explain and treat the biological abnormalities behind post-exertional malaise (PEM) and
Someday, hopefully soon, we’ll be able to explain and treat the biological abnormalities behind post-exertional malaise (PEM) and
Reposted by Jenny Meagher
Are there many #pwME still active on here?
I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙
Would love to know who's around! 😊
I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙
Would love to know who's around! 😊
August 26, 2025 at 11:27 AM
Are there many #pwME still active on here?
I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙
Would love to know who's around! 😊
I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙
Would love to know who's around! 😊
Reposted by Jenny Meagher
Labor’s plan to fix FOI is to make it harder to apply for information.
September 1, 2025 at 9:49 PM
Labor’s plan to fix FOI is to make it harder to apply for information.