Jenny Meagher
@jennmeagher.bsky.social
Life stolen by Myalgic Encephalomyelitis.
Waiting to be rescued by science.
Science waiting to be funded by governments #MECFS
Waiting to be rescued by science.
Science waiting to be funded by governments #MECFS
Reposted by Jenny Meagher
If you’re living with ME/CFS, long COVID, or want to volunteer as a ‘healthy control’ for medical research studies, becoming an AusME Registry participant is the simplest way to get involved in research!
Sign up today and make a difference!
zurl.co/4ebne
Sign up today and make a difference!
zurl.co/4ebne
February 2, 2026 at 9:00 PM
If you’re living with ME/CFS, long COVID, or want to volunteer as a ‘healthy control’ for medical research studies, becoming an AusME Registry participant is the simplest way to get involved in research!
Sign up today and make a difference!
zurl.co/4ebne
Sign up today and make a difference!
zurl.co/4ebne
Reposted by Jenny Meagher
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.
youtu.be/eu8Lj_R-OtQ?...
youtu.be/eu8Lj_R-OtQ?...
BBC Inside Science - £1.1M ME/CFS and Long Covid Study
YouTube video by Broken Battery
youtu.be
January 8, 2026 at 5:20 PM
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.
youtu.be/eu8Lj_R-OtQ?...
youtu.be/eu8Lj_R-OtQ?...
Reposted by Jenny Meagher
Big congratulations to @tessamunt.bsky.social!
Tessa has been an incredible advocate for the community and we look forward to working with her in this new role 🙌
Tessa has been an incredible advocate for the community and we look forward to working with her in this new role 🙌
Honoured to be elected as Chair of the APPG ME today. I’m grateful to have @JoPlatt.bsky.social continue to serve as an officer, facilitating continued coordination with the APPG Long COVID, and the support of @actionforme.bsky.social and @meassociation.org.uk through providing the Secretariat.
January 22, 2026 at 6:56 AM
Big congratulations to @tessamunt.bsky.social!
Tessa has been an incredible advocate for the community and we look forward to working with her in this new role 🙌
Tessa has been an incredible advocate for the community and we look forward to working with her in this new role 🙌
Reposted by Jenny Meagher
Board of Peace - Season 1
January 24, 2026 at 7:45 AM
Board of Peace - Season 1
Reposted by Jenny Meagher
Meet our new Parliamentary Friends Group members. Co-chaired by Dr Mike Freelander and Senator Jordon Steele-John, our first meeting of 2026 is to be advised.
zurl.co/EpRFU
zurl.co/EpRFU
January 16, 2026 at 9:00 PM
Meet our new Parliamentary Friends Group members. Co-chaired by Dr Mike Freelander and Senator Jordon Steele-John, our first meeting of 2026 is to be advised.
zurl.co/EpRFU
zurl.co/EpRFU
Reposted by Jenny Meagher
Randa Abdel-Fattah—
"Adelaide Festival has apologised unreservedly. Vindication. My response."
"Adelaide Festival has apologised unreservedly. Vindication. My response."
January 15, 2026 at 2:58 AM
Randa Abdel-Fattah—
"Adelaide Festival has apologised unreservedly. Vindication. My response."
"Adelaide Festival has apologised unreservedly. Vindication. My response."
When Poppy Bradley, 25, was diagnosed with #MyalgicEncephalomyelitis #MECFS three years ago, she had to find new ways to stay connected.
@theageaustralia.bsky.social
✍️Pen pals and snail mail clubs: Why Gen Z is reviving the art of letter writing. By Lauren Ironmonger
@theageaustralia.bsky.social
✍️Pen pals and snail mail clubs: Why Gen Z is reviving the art of letter writing. By Lauren Ironmonger
January 13, 2026 at 1:08 AM
When Poppy Bradley, 25, was diagnosed with #MyalgicEncephalomyelitis #MECFS three years ago, she had to find new ways to stay connected.
@theageaustralia.bsky.social
✍️Pen pals and snail mail clubs: Why Gen Z is reviving the art of letter writing. By Lauren Ironmonger
@theageaustralia.bsky.social
✍️Pen pals and snail mail clubs: Why Gen Z is reviving the art of letter writing. By Lauren Ironmonger
Reposted by Jenny Meagher
🌈 LGBTQIA+ Virtual Support Group – Feb 2026
A welcoming space for LGBTQIA+ people living with #MECFS or #longCOVID. Connect, share, and feel supported.
Starts Thu 5 Feb, 2pm AEDT (fortnightly).
Join here: zurl.co/DWJM8 🌈
A welcoming space for LGBTQIA+ people living with #MECFS or #longCOVID. Connect, share, and feel supported.
Starts Thu 5 Feb, 2pm AEDT (fortnightly).
Join here: zurl.co/DWJM8 🌈
January 5, 2026 at 9:00 PM
🌈 LGBTQIA+ Virtual Support Group – Feb 2026
A welcoming space for LGBTQIA+ people living with #MECFS or #longCOVID. Connect, share, and feel supported.
Starts Thu 5 Feb, 2pm AEDT (fortnightly).
Join here: zurl.co/DWJM8 🌈
A welcoming space for LGBTQIA+ people living with #MECFS or #longCOVID. Connect, share, and feel supported.
Starts Thu 5 Feb, 2pm AEDT (fortnightly).
Join here: zurl.co/DWJM8 🌈
Reposted by Jenny Meagher
New:
On the alarming politicisation of the Bondi massacre, and the calls for Albanese to announce a royal commission
On the alarming politicisation of the Bondi massacre, and the calls for Albanese to announce a royal commission
Weaponising Grief
The media’s response to the Bondi tragedy
nickfeik.substack.com
January 5, 2026 at 2:10 AM
New:
On the alarming politicisation of the Bondi massacre, and the calls for Albanese to announce a royal commission
On the alarming politicisation of the Bondi massacre, and the calls for Albanese to announce a royal commission
Reposted by Jenny Meagher
Thank you Annie from Understanding ME channel, for this insightful conversation with Dr Shiam who recently participated in Emerge Australia’s clinical education program.
Donate now to support Emerge Australia to educate clinicians like Dr Shiam.
zurl.co/myyTU
Donate now to support Emerge Australia to educate clinicians like Dr Shiam.
zurl.co/myyTU
December 29, 2025 at 9:01 PM
Thank you Annie from Understanding ME channel, for this insightful conversation with Dr Shiam who recently participated in Emerge Australia’s clinical education program.
Donate now to support Emerge Australia to educate clinicians like Dr Shiam.
zurl.co/myyTU
Donate now to support Emerge Australia to educate clinicians like Dr Shiam.
zurl.co/myyTU
Reposted by Jenny Meagher
Reposted by Jenny Meagher
Israel has banned Medecins Sans Frontieres from operating in Gaza, rounding off a banner year for inhumanity.
December 31, 2025 at 6:14 AM
Israel has banned Medecins Sans Frontieres from operating in Gaza, rounding off a banner year for inhumanity.
Reposted by Jenny Meagher
Happy all the things, lovelies. Squeeze those you love (including the four legged ones) tight. It’s a hard time of year for lots of people, for lots of reasons and this year is even harder - but you’re not alone. Sending love. Take care of you and those around you. Happy Kucios 🩷
December 24, 2025 at 6:01 AM
Happy all the things, lovelies. Squeeze those you love (including the four legged ones) tight. It’s a hard time of year for lots of people, for lots of reasons and this year is even harder - but you’re not alone. Sending love. Take care of you and those around you. Happy Kucios 🩷
Reposted by Jenny Meagher
December 22, 2025 at 3:38 AM
Reposted by Jenny Meagher
Univ. of South Australia: 'Who is more likely to get long COVID? New study uncovers genetic drivers behind the disease'
'The breakthrough, made using large scale biological datasets, could pave the way for targeted treatments and personalised diagnostics.'
www.unisa.edu.au/media-centre...
'The breakthrough, made using large scale biological datasets, could pave the way for targeted treatments and personalised diagnostics.'
www.unisa.edu.au/media-centre...
Who is more likely to get long COVID? New study uncovers genetic drivers behind the disease
Australian scientists have identified the key genetic drivers behind long COVID, revealing why some people are more likely to be affected.
www.unisa.edu.au
December 15, 2025 at 10:29 PM
Univ. of South Australia: 'Who is more likely to get long COVID? New study uncovers genetic drivers behind the disease'
'The breakthrough, made using large scale biological datasets, could pave the way for targeted treatments and personalised diagnostics.'
www.unisa.edu.au/media-centre...
'The breakthrough, made using large scale biological datasets, could pave the way for targeted treatments and personalised diagnostics.'
www.unisa.edu.au/media-centre...
Reposted by Jenny Meagher
Parliamentary Friends of ME/CFS launched for the 48th Parliament!
Watch this space as the ME/CFS Alliance Australia plans its first 2026 Parliament House meeting.
🔗 zurl.co/m4xW2
#ParliamentaryFriends #MECFS #mecfsadvocacy
Watch this space as the ME/CFS Alliance Australia plans its first 2026 Parliament House meeting.
🔗 zurl.co/m4xW2
#ParliamentaryFriends #MECFS #mecfsadvocacy
December 9, 2025 at 6:00 AM
Parliamentary Friends of ME/CFS launched for the 48th Parliament!
Watch this space as the ME/CFS Alliance Australia plans its first 2026 Parliament House meeting.
🔗 zurl.co/m4xW2
#ParliamentaryFriends #MECFS #mecfsadvocacy
Watch this space as the ME/CFS Alliance Australia plans its first 2026 Parliament House meeting.
🔗 zurl.co/m4xW2
#ParliamentaryFriends #MECFS #mecfsadvocacy
Reposted by Jenny Meagher
The facts are stark: Europe must open the door to migrants, or face its own extinction | George Monbiot
The facts are stark: Europe must open the door to migrants, or face its own extinction | George Monbiot
These are the facts: plummeting birth rates mean that without attracting immigration, many countries are sliding towards collapse, says Guardian columnist George Monbiot
www.theguardian.com
December 12, 2025 at 6:31 AM
The facts are stark: Europe must open the door to migrants, or face its own extinction | George Monbiot
Reposted by Jenny Meagher
A helpful guide to support you in understanding what your friend with #MECFS or #LongCOVID may be going through and how you can stay connected, even when things are tough.
📘 Explore the guide and learn how to be a supportive friend:
👉 zurl.co/QaI3P
📘 Explore the guide and learn how to be a supportive friend:
👉 zurl.co/QaI3P
November 24, 2025 at 9:00 PM
A helpful guide to support you in understanding what your friend with #MECFS or #LongCOVID may be going through and how you can stay connected, even when things are tough.
📘 Explore the guide and learn how to be a supportive friend:
👉 zurl.co/QaI3P
📘 Explore the guide and learn how to be a supportive friend:
👉 zurl.co/QaI3P
🎧 An easy 30min listen: The #MyalgicEncephalomyelitis #MECFS medical scandal
The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely.
F bombs fly as he lambastes the PACE trial & RACGP HANDI guide.
Starts 1:30
@milliganreports.bsky.social
The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely.
F bombs fly as he lambastes the PACE trial & RACGP HANDI guide.
Starts 1:30
@milliganreports.bsky.social
November 29, 2025 at 9:04 AM
🎧 An easy 30min listen: The #MyalgicEncephalomyelitis #MECFS medical scandal
The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely.
F bombs fly as he lambastes the PACE trial & RACGP HANDI guide.
Starts 1:30
@milliganreports.bsky.social
The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely.
F bombs fly as he lambastes the PACE trial & RACGP HANDI guide.
Starts 1:30
@milliganreports.bsky.social
Reposted by Jenny Meagher
🎄✨ This Christmas, give a gift that truly makes a difference. Introducing the #EmergeAustralia Collection.
The range, with artworks by people living with #MECFS, has evolved with guidance from our community. 💙 Every purchase powers education, advocacy & support for #MECFS.
Shop gifts zurl.co/3a4Fr
The range, with artworks by people living with #MECFS, has evolved with guidance from our community. 💙 Every purchase powers education, advocacy & support for #MECFS.
Shop gifts zurl.co/3a4Fr
November 16, 2025 at 11:09 PM
🎄✨ This Christmas, give a gift that truly makes a difference. Introducing the #EmergeAustralia Collection.
The range, with artworks by people living with #MECFS, has evolved with guidance from our community. 💙 Every purchase powers education, advocacy & support for #MECFS.
Shop gifts zurl.co/3a4Fr
The range, with artworks by people living with #MECFS, has evolved with guidance from our community. 💙 Every purchase powers education, advocacy & support for #MECFS.
Shop gifts zurl.co/3a4Fr
Reposted by Jenny Meagher
A horrendous report on ABC radio from a Brisbane doctor doing a second tour in Gaza with Medecins sans Frontières. She says the ceasefire is in name only, the genocide continues and the deprivation of basic food, shelter and resources means even the injured haven’t what the need to heal.
November 18, 2025 at 7:31 AM
A horrendous report on ABC radio from a Brisbane doctor doing a second tour in Gaza with Medecins sans Frontières. She says the ceasefire is in name only, the genocide continues and the deprivation of basic food, shelter and resources means even the injured haven’t what the need to heal.
Reposted by Jenny Meagher
Treaty has just passed Victoria's Parliament!
This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law.
Thank you to generations of First Nations ppl who have fought for this historic moment.
This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law.
Thank you to generations of First Nations ppl who have fought for this historic moment.
October 30, 2025 at 8:20 PM
Treaty has just passed Victoria's Parliament!
This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law.
Thank you to generations of First Nations ppl who have fought for this historic moment.
This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law.
Thank you to generations of First Nations ppl who have fought for this historic moment.
Reposted by Jenny Meagher
Dumping net zero by 2050 ignores Australia’s international commitment to slash climate pollution, sells out young Australians and leaves the regional communities the Nationals claim to represent more vulnerable to fossil-fuelled extreme fires, floods, and storms.
Sussan Ley under pressure as Nationals formally scrap net zero target
David Littleproud says he informed the Liberal leader days ago of the policy position his party was considering
www.theguardian.com
November 2, 2025 at 5:29 AM
Dumping net zero by 2050 ignores Australia’s international commitment to slash climate pollution, sells out young Australians and leaves the regional communities the Nationals claim to represent more vulnerable to fossil-fuelled extreme fires, floods, and storms.
Reposted by Jenny Meagher
Thank you to everyone who joined, what an incredible day at APH!
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
October 30, 2025 at 7:54 AM
Thank you to everyone who joined, what an incredible day at APH!
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
Reposted by Jenny Meagher
Stay updated with Emerge Australia's Research Digest on #mecfs and #longcovid
• Summarized • Easy-to-read • Convenient • Accessible
Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY
• Summarized • Easy-to-read • Convenient • Accessible
Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY
October 29, 2025 at 9:00 PM
Stay updated with Emerge Australia's Research Digest on #mecfs and #longcovid
• Summarized • Easy-to-read • Convenient • Accessible
Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY
• Summarized • Easy-to-read • Convenient • Accessible
Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY