🗣️Important wide-ranging interview w high profile Aussie journo, and carer of wife & daughter with #MyalgicEncephalomyelitis ‼️
🎧 Listen & share podcast 😀
#MECFS #LongCOVID @tomkindlon.bsky.social @mmissingaus.bsky.social
@exceedhergrasp1.bsky.social @aaronca11.bsky.social
@bhanlon15.bsky.social

Invisible Illness @SBS Insight on Tuesday 20 May 8.30AEST featuring patients, experts and carers.

#MyalgicEncephalomyelitis #MECFS #LongCovid #Fibromyalgia #POTS #FairGoForME

facebook.com/share/v/1DVL...

A week is a long time in politics😀
A recap:
What did you think of the social media campaign❓
Did you like the community actions including commenting and tagging candidates on social media❓
What were your thoughts about the election scorecard ❓
#ElectionCampaignSurvey MECFS #MyalgicEncephalomyelitis

The Age "chronic fatigue" story is the 3rd most viewed piece in the world 🌏
🗣️ #MEcfs is a hot topic that ~million Aussies wanna talk about
Calling curious journalists to give the people what they want.
Uncover other stories of exciting research, medical misogyny & scandal
#MyalgicEncephalomyelitis

🎙️ Interview with Dr Schloeffel ABCNews

🗣️ At "..The friends of #MECFS in Parliament, I spoke to @markbutlermp.bsky.social and..Dr Mike Freelander MP and basically they heard me loud and clear..we need funding for"

GP training, research & notification
@traceyspicer.bsky.social
tinyurl.com/25wsjsn8

Au Parliamentary Friends of #MECFS
Thank you Minister @markbutlermp.bsky.social for this commitment ⬇️

🗣️“I look forward to having further discussions..about how we can continue to do much better by a large community of maybe 250,000 Australians who need better support”

🛌 Not as much as we do #pwME

📘 Need a comprehensive, evidence-based #MECFS resource that's ready to go❓
👩‍💻 The @EmergeAus 'State of the Nation' report is a handy advocacy resource that can be shared with politicians, GPs & others.
📨📨 Try emailing a copy to your MP 🙂
#MyalgicEncephalomyelitis
www.emerge.org.au/stateofthena...

🗣️The federal Health Minister Mark Butler will speak at the Parliamentary Friends of #MECFS meeting 18th Nov

👩🏻‍💻 Pls join event via zoom to ⬆️ attendee numbers
🗳️ Politicians notice numbers
🛌Cameras can be off to allow resting

Click on link to join zoom
tinyurl.com/2zt7wbas