kate
@bookhaven.bsky.social
Neurodivergent library ghost 👻
Napping instead of making lemonade 😴
♿🦓🛏️ 😷 📚🚀
🪫 Often limited capacity
Don't share my posts on other platforms without asking.
Header: Will Santino 🍋🥛
PFP: Pies Are Awesome 🥧
Napping instead of making lemonade 😴
♿🦓🛏️ 😷 📚🚀
🪫 Often limited capacity
Don't share my posts on other platforms without asking.
Header: Will Santino 🍋🥛
PFP: Pies Are Awesome 🥧
Reposted by kate
Anyone on my network familiar with social supports in Canada, specifically in Edmonton, where a disabled autistic guy might turn for help? He’s about to lose housing and internet access. He’s brilliant but physically hurt, and he’s about to be on the street in this winter.
February 8, 2026 at 2:41 AM
Anyone on my network familiar with social supports in Canada, specifically in Edmonton, where a disabled autistic guy might turn for help? He’s about to lose housing and internet access. He’s brilliant but physically hurt, and he’s about to be on the street in this winter.
Reposted by kate
other "alerts" that can affect how/if the liver sends energy to the brain include:
- signals from the gut microbiome (inflammatory signals cause problems; "good bacteria" digesting fiber send "alerts" that help)
- immune signals (chronic inflammation can cause problems)
- signals from the gut microbiome (inflammatory signals cause problems; "good bacteria" digesting fiber send "alerts" that help)
- immune signals (chronic inflammation can cause problems)
February 8, 2026 at 2:53 PM
other "alerts" that can affect how/if the liver sends energy to the brain include:
- signals from the gut microbiome (inflammatory signals cause problems; "good bacteria" digesting fiber send "alerts" that help)
- immune signals (chronic inflammation can cause problems)
- signals from the gut microbiome (inflammatory signals cause problems; "good bacteria" digesting fiber send "alerts" that help)
- immune signals (chronic inflammation can cause problems)
Reposted by kate
however, there's a lot of other "alerts" that can also tell the liver it's time to actually use send the "battery backup" to the brain
if these alerts go haywire or get "dysregulated," that can also mess with the liver-brain backup battery system
if these alerts go haywire or get "dysregulated," that can also mess with the liver-brain backup battery system
February 8, 2026 at 2:48 PM
however, there's a lot of other "alerts" that can also tell the liver it's time to actually use send the "battery backup" to the brain
if these alerts go haywire or get "dysregulated," that can also mess with the liver-brain backup battery system
if these alerts go haywire or get "dysregulated," that can also mess with the liver-brain backup battery system
Reposted by kate
Go submit your testimony to the House right now! And again (or if you miss today’s House deadline) to the Senate on Tuesday! You don’t need to live in Maryland—the idea is to show this is a global problem/global market. Here’s how to submit:
docs.google.com/document/d/1...
docs.google.com/document/d/1...
February 6, 2026 at 7:32 PM
Go submit your testimony to the House right now! And again (or if you miss today’s House deadline) to the Senate on Tuesday! You don’t need to live in Maryland—the idea is to show this is a global problem/global market. Here’s how to submit:
docs.google.com/document/d/1...
docs.google.com/document/d/1...
Reposted by kate
This need has become quite acute quickly, and I'm rapidly deteriorating. I'm worried about losing the progress I've made over the past few months.
I know there's a lot of need right now, but if I were to start a gofundme or something to hire some help, is that something people might contribute to?
I know there's a lot of need right now, but if I were to start a gofundme or something to hire some help, is that something people might contribute to?
Hey folks, if you read my recent blog post, you may be surprised to hear this but unfortunately my main source of support has abruptly ended today and I am scrambling to figure out how to replace both boring support (like help with dishes) and emergency support (when I have serious MCAS attacks).
Genuine q for other folks with MCAS:
(please note if you do not have MCAS and reply unhelpfully to this, I will block you for wasting all of our time)
If you regularly wake up to anaphylactoid crises in the middle of the night, what is your support strategy? Do you live w/ someone you can wake up?
(please note if you do not have MCAS and reply unhelpfully to this, I will block you for wasting all of our time)
If you regularly wake up to anaphylactoid crises in the middle of the night, what is your support strategy? Do you live w/ someone you can wake up?
February 5, 2026 at 7:27 PM
This need has become quite acute quickly, and I'm rapidly deteriorating. I'm worried about losing the progress I've made over the past few months.
I know there's a lot of need right now, but if I were to start a gofundme or something to hire some help, is that something people might contribute to?
I know there's a lot of need right now, but if I were to start a gofundme or something to hire some help, is that something people might contribute to?
Reposted by kate
me, librarian: I think information should be organized and structured logically so that searches are high in precision and recall
tech industry, 2000: nope, keyword searching and opaque relevance rankings are what you’ll get
…
tech industry, 2026: now you’ll just get fake hallucinatory text
tech industry, 2000: nope, keyword searching and opaque relevance rankings are what you’ll get
…
tech industry, 2026: now you’ll just get fake hallucinatory text
February 6, 2026 at 4:57 PM
me, librarian: I think information should be organized and structured logically so that searches are high in precision and recall
tech industry, 2000: nope, keyword searching and opaque relevance rankings are what you’ll get
…
tech industry, 2026: now you’ll just get fake hallucinatory text
tech industry, 2000: nope, keyword searching and opaque relevance rankings are what you’ll get
…
tech industry, 2026: now you’ll just get fake hallucinatory text
#MECFS and rest research survey*
- includes a low energy version
- allows self ID MECFS
- includes medical providers
*I have no affiliation or gain. Just sharing a random find
www.restandmecfs.com
- includes a low energy version
- allows self ID MECFS
- includes medical providers
*I have no affiliation or gain. Just sharing a random find
www.restandmecfs.com
Rest and ME/CFS
www.restandmecfs.com
February 6, 2026 at 5:31 PM
#MECFS and rest research survey*
- includes a low energy version
- allows self ID MECFS
- includes medical providers
*I have no affiliation or gain. Just sharing a random find
www.restandmecfs.com
- includes a low energy version
- allows self ID MECFS
- includes medical providers
*I have no affiliation or gain. Just sharing a random find
www.restandmecfs.com
Reposted by kate
“Winter may be beautiful, but bed is much better.”
January 29, 2026 at 11:37 AM
“Winter may be beautiful, but bed is much better.”
Reposted by kate
The Insta post has 7 slides that summarize the study but it doesn't link to the study itself so I grabbed a free study link:
LED lighting (350-650nm) undermines human visual performance unless supplemented by wider spectra (400-1500nm+) like daylight - PMC share.google/OLosvASkU58v...
LED lighting (350-650nm) undermines human visual performance unless supplemented by wider spectra (400-1500nm+) like daylight - PMC share.google/OLosvASkU58v...
LED lighting (350-650nm) undermines human visual performance unless supplemented by wider spectra (400-1500nm+) like daylight
Life evolved under broad spectrum sunlight, from ultraviolet to infrared (300–2500 nm). This spectrally balanced light sculpted life’s physiology and metabolism. But modern lighting has recently become dominated by restricted spectrum light emitting ...
share.google
January 29, 2026 at 1:02 AM
The Insta post has 7 slides that summarize the study but it doesn't link to the study itself so I grabbed a free study link:
LED lighting (350-650nm) undermines human visual performance unless supplemented by wider spectra (400-1500nm+) like daylight - PMC share.google/OLosvASkU58v...
LED lighting (350-650nm) undermines human visual performance unless supplemented by wider spectra (400-1500nm+) like daylight - PMC share.google/OLosvASkU58v...
Reposted by kate
I KNEW IT. WE WERE RIGHT TO HATE LEDS
January 29, 2026 at 1:02 AM
I KNEW IT. WE WERE RIGHT TO HATE LEDS
Reposted by kate
A great article about clinics closing by @brittashoot.com with @thesicktimes.org! Please give it a read.
Today @thesicktimes.org: big story by @brittashoot.com examining the Metrodora Institute, a clinic for “neuroimmune disorders” like Long COVID and myalgic encephalomyelitis that made big promises to patients... then abruptly closed. thesicktimes.org/2026/01/27/m...
Metrodora promised comprehensive treatment. But within two years, it abruptly closed. - The Sick Times
The clinic sought to cure “neuroimmune disorders” like Long COVID and myalgic encephalomyelitis. Former patients feel betrayed.
thesicktimes.org
January 27, 2026 at 7:09 PM
A great article about clinics closing by @brittashoot.com with @thesicktimes.org! Please give it a read.
Reposted by kate
Toronto may cancel new community centres, libraries if development funding dries up globalnews.ca/news/1163476...
The city's chief financial officer reiterated that roughly $300 million had been deferred as revenue from development charges dries up, adding that some projects may be cancelled.
The city's chief financial officer reiterated that roughly $300 million had been deferred as revenue from development charges dries up, adding that some projects may be cancelled.
Toronto may cancel new community centres, libraries if development funding dries up - Toronto | Globalnews.ca
The city's chief financial officer reiterated that roughly $300 million had been deferred as revenue from development charges dries up, adding that some projects may be cancelled.
globalnews.ca
January 26, 2026 at 1:52 PM
Toronto may cancel new community centres, libraries if development funding dries up globalnews.ca/news/1163476...
The city's chief financial officer reiterated that roughly $300 million had been deferred as revenue from development charges dries up, adding that some projects may be cancelled.
The city's chief financial officer reiterated that roughly $300 million had been deferred as revenue from development charges dries up, adding that some projects may be cancelled.
Reposted by kate
The structures people are now building are the structures we need as part of everyday life.
Your ill and disabled friends have been trying to tell you this for years: there are many people sick with socially-maligned illnesses, that most other people simply disappear from their minds.
Your ill and disabled friends have been trying to tell you this for years: there are many people sick with socially-maligned illnesses, that most other people simply disappear from their minds.
I see how people, even in resourced & calm times, don’t have enough care structures to prevent burnout. In all domains of care including child care, elder care, house tending, etc.
We have to build up these circles of secondary care if we’re gonna get sustainably good at primary care provision.
We have to build up these circles of secondary care if we’re gonna get sustainably good at primary care provision.
January 27, 2026 at 11:51 PM
The structures people are now building are the structures we need as part of everyday life.
Your ill and disabled friends have been trying to tell you this for years: there are many people sick with socially-maligned illnesses, that most other people simply disappear from their minds.
Your ill and disabled friends have been trying to tell you this for years: there are many people sick with socially-maligned illnesses, that most other people simply disappear from their minds.
Reposted by kate
Watch it here: Finding Our Voices After COVID
Julia Claire Taylor is an opera singer based in NYC who lost her ability to perform after a COVID infection in 2022. A clinical trial with @putrinolab.bsky.social allowed her to reach a milestone this October. www.youtube.com/watch?v=SJZM...
#LongCOVID
Julia Claire Taylor is an opera singer based in NYC who lost her ability to perform after a COVID infection in 2022. A clinical trial with @putrinolab.bsky.social allowed her to reach a milestone this October. www.youtube.com/watch?v=SJZM...
#LongCOVID
“Finding our Voices after COVID” written by Emma Smith, journalist
YouTube video by Julia Claire Taylor
www.youtube.com
January 22, 2026 at 1:30 AM
Watch it here: Finding Our Voices After COVID
Julia Claire Taylor is an opera singer based in NYC who lost her ability to perform after a COVID infection in 2022. A clinical trial with @putrinolab.bsky.social allowed her to reach a milestone this October. www.youtube.com/watch?v=SJZM...
#LongCOVID
Julia Claire Taylor is an opera singer based in NYC who lost her ability to perform after a COVID infection in 2022. A clinical trial with @putrinolab.bsky.social allowed her to reach a milestone this October. www.youtube.com/watch?v=SJZM...
#LongCOVID
Reposted by kate
They need to invent a rest that makes you feel rested.
January 27, 2026 at 3:06 PM
They need to invent a rest that makes you feel rested.
Reposted by kate
🧵
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"
substack.com/home/post/p-...
Thoughtful blog post which tries to explain postexertional malaise & how those who suffer from it need to be very careful with which activities they take on
#LongCovid #PwME #MEcfs
1/
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"
substack.com/home/post/p-...
Thoughtful blog post which tries to explain postexertional malaise & how those who suffer from it need to be very careful with which activities they take on
#LongCovid #PwME #MEcfs
1/
January 26, 2026 at 9:20 PM
🧵
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"
substack.com/home/post/p-...
Thoughtful blog post which tries to explain postexertional malaise & how those who suffer from it need to be very careful with which activities they take on
#LongCovid #PwME #MEcfs
1/
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"
substack.com/home/post/p-...
Thoughtful blog post which tries to explain postexertional malaise & how those who suffer from it need to be very careful with which activities they take on
#LongCovid #PwME #MEcfs
1/
3 is my day job, but 4 is my aspiration
2 is biologically out of reach, and as for 1, I'm typically the author of repeated nap requests
2 is biologically out of reach, and as for 1, I'm typically the author of repeated nap requests
Who do you aspire to be?
1. author of mild esteem
2. semi functional human
3. rumpled library detective
4. mossy forest monster
1. author of mild esteem
2. semi functional human
3. rumpled library detective
4. mossy forest monster
January 26, 2026 at 3:55 AM
3 is my day job, but 4 is my aspiration
2 is biologically out of reach, and as for 1, I'm typically the author of repeated nap requests
2 is biologically out of reach, and as for 1, I'm typically the author of repeated nap requests
Reposted by kate
I ask community to hold me in kindness, once again, as I heal, for practical things like shelter, phone, small bills since I can't work to do these things for myself right now.
Every dime is appreciated.
Grateful to all. 🧵 2/3
linktr.ee/khernandez
#helpfolkslive2025
Every dime is appreciated.
Grateful to all. 🧵 2/3
linktr.ee/khernandez
#helpfolkslive2025
January 23, 2026 at 10:19 PM
I ask community to hold me in kindness, once again, as I heal, for practical things like shelter, phone, small bills since I can't work to do these things for myself right now.
Every dime is appreciated.
Grateful to all. 🧵 2/3
linktr.ee/khernandez
#helpfolkslive2025
Every dime is appreciated.
Grateful to all. 🧵 2/3
linktr.ee/khernandez
#helpfolkslive2025
Reposted by kate
Just a few years ago, I escaped one of the most horrific chapter in my life.
I still don't know how I survived, and with physical and emotional reminders that have changed me forever. 🧵 1/3
#Helpfolkslive2025
linktr.ee/khernandez
I still don't know how I survived, and with physical and emotional reminders that have changed me forever. 🧵 1/3
#Helpfolkslive2025
linktr.ee/khernandez
January 23, 2026 at 10:19 PM
Just a few years ago, I escaped one of the most horrific chapter in my life.
I still don't know how I survived, and with physical and emotional reminders that have changed me forever. 🧵 1/3
#Helpfolkslive2025
linktr.ee/khernandez
I still don't know how I survived, and with physical and emotional reminders that have changed me forever. 🧵 1/3
#Helpfolkslive2025
linktr.ee/khernandez
Reposted by kate
Sharing from Alice Wong's IG account. Alice's Celebration of Life will be on March 25, 2026.
January 26, 2026 at 1:50 AM
Sharing from Alice Wong's IG account. Alice's Celebration of Life will be on March 25, 2026.
Reposted by kate
Anyway Working in the Times of Chaos is mostly about clinging to your own humanity, accepting imperfect solutions while gently nudging for better when it comes to people, and reminding yourself that everyone is working a part time job of emotional self-regulation.
January 25, 2026 at 7:04 PM
Anyway Working in the Times of Chaos is mostly about clinging to your own humanity, accepting imperfect solutions while gently nudging for better when it comes to people, and reminding yourself that everyone is working a part time job of emotional self-regulation.
Reposted by kate
I don’t have anything funny or witty to offer as a balm for what we’re currently living through.
But, what I do want you to know is that there is a human behind this account and humans behind this brand that are hurting with you.
Sending hugs across the internet to everyone who needs one. 💜
But, what I do want you to know is that there is a human behind this account and humans behind this brand that are hurting with you.
Sending hugs across the internet to everyone who needs one. 💜
January 24, 2026 at 7:31 PM
I don’t have anything funny or witty to offer as a balm for what we’re currently living through.
But, what I do want you to know is that there is a human behind this account and humans behind this brand that are hurting with you.
Sending hugs across the internet to everyone who needs one. 💜
But, what I do want you to know is that there is a human behind this account and humans behind this brand that are hurting with you.
Sending hugs across the internet to everyone who needs one. 💜
Reposted by kate
For years now whenever I’m super stressed I run low on magnesium (perhaps because it’s used to break down norepinephrine?). I try to eat high-magnesium foods, but I’ve had issues sleeping/managing my heart rate so I finally went back to supplements.
And of course it’s working great, why did I wait?
And of course it’s working great, why did I wait?
January 24, 2026 at 7:20 PM