#MEawarenessDay
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petitfeu.bsky.social
Und das auch noch! Etwas älter, aber kann man ruhig immer mal wieder rausholen.

Passt gut auf euch auf ❤️

#MECFS #MEAwareness
Tweet von Kevin Deans vom 13.5.2024: Some encouragement if you participated in #MEAwarenessDay: My daughter (med student): “Dad, how do you diagnose ME?” So I talked her through it and asked why she was asking. “It was ME Awareness Day, so I figured I should learn about it.” Perhaps there is hope for the future.
September 3, 2025 at 9:19 PM
liegenddemo.bsky.social
Macht gemeinsam mit uns Werbung, damit wir an den Severe ME/CFS Awareness Days ganz ganz viele sind 🙏🏼

#LiegendDemo #MECFS #PostCovid #PostVac #LongCovid #MEAwareness #meawarenessday #severeME #Fluorchinolone #EBV #Influenza #Trauergang #Awarness #cureMECFS #cureME #Demonstration
Der Hintergrund des Bildes besteht aus einem farbigen Übergang von hell- zu dunkelblau. Rechts oben steht in weißer Schrift "mecfs-info.de". Darunter steht "Bitte geh für uns zur Demo - #Trauergang - denn wir sind selbst zu krank dafür!" Unter diesem Text ist eine blaue Schleife mit der Aufschrift "Severe M.E.", daneben steht "Köln, 08.08.2025, 16:30 bis 17:45 Uhr, Start und Ziel: Alter Markt Rungang um den Heumarkt" Unter diesen Informationen steht "Aktionstag zum Severe ME/CFS Awarness Day! - Sei stellvertretend dabei und unterstütze so Menschen mit der Erkrankung ME/CFS. Für mehr Pflege, Forschung und Engagement!" Links unten ist das Liegenddemo Logo mit dem Text "Initiative #Liegenddemo" zu sehen. Unten mittig steht "Long Covid, ME/CFS, Post Vac" und rechts davon sieht man das Liegenddemo Community Logo mit dem Text "#Liegenddemo Community Köln"
July 28, 2025 at 6:49 PM
liegenddemo.bsky.social
#LiegendDemo #MECFS #PostCovid #PostVac #LongCovid #MEAwareness #meawarenessday
July 27, 2025 at 5:07 PM
liegenddemo.bsky.social
❣️ P.s.: Es gibt auch digitale Dateien in verschiedenen Ausführungen und Formaten.

#LiegendDemo #MECFS #PostCovid #PostVac #LongCovid #MEAwareness #meawarenessday

@me-hilfe.bsky.social @fatigatioev.bsky.social @dgmecfs.bsky.social @binemilchkaffee.bsky.social
July 21, 2025 at 5:00 PM
bennevis.bsky.social
#MEAwarenessDay
The Seeking Kale Assana
June 22, 2025 at 6:24 PM
rgleadow.bsky.social
Wearing blue to raise awareness about Myalgic Encephalomyelitis and raise funds for research. Our daughter got this multisystem, debilitating illness after a virus. It's awful. Donate to the ME support group of your choice. Here's one: www.emerge.org.au #MEAwarenessDay #GoBlueforME
Selfie of a dark haired woman (left) and a blad man in glasses (right) wearing light blue jumpers/sweaters (and blue jeans, which you can't see). Behind is an autumn garden of pin oaks and oak-leaf hydrangeas and a blue sky
May 18, 2025 at 9:13 AM
douggreigyyc.bsky.social
#MEAwarenessDay #MECFS
#MillionsMissing 2025: SOS - The Signal Was Sent!
mailchi.mp
May 17, 2025 at 5:04 PM
wilhelminaj.bsky.social
Thanks to all who sent out an S.O.S. on #MEAwarenessDay! Check the great pictures and stories in the post below and don’t forget the continuing actions listed that need your support. Also listed is ME Action GA’s Blue Sunday event featuring the TEDx talk by @maggieboxey.bsky.social.
Join us on Zoom!
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · May 16
We have a HUGE update for you! Check your emails! See the full update here as well: bit.ly/4kleN4T

#MEAction wants to send out a huge thanks to everyone who participated and continues to take action in response to this year’s #MillionsMissing campaign.

#pwME #MECFS #LongCovid #DisabilitySOS
A collage of photos from in person and online actions for #MillionsMissing and International ME Awareness Day. All are overlaid with a red tint and in the middle is the SOS #MIllionsMissing logo.
May 17, 2025 at 4:46 PM
fatigatioev.bsky.social
Schaut euch hier Impressionen von den LiegendDemos in Berlin, Hamburg, Kassel, Stuttgart und Fulda auf unserer Website an.

Hier geht´s zur Bildergalerie: buff.ly/6rdNKJ1

Ganz herzlichen Dank an alle Beteiligten und Helfer:innen! 💙

#LiegendDemo #MECFSAwarenessDay #MEAwarenessDay #MECFS
Foto des Fatigatio e.V. vom Info-Stand des Vereins auf der LiegendDemo am 10. Mai 2025 in Berlin. Auf dem Foto blaue Ballons mit Botschaften der Betroffenen sowie ein Ausschnitt eines Plakats mit den Leitbild des Fatigatio e.V.. Weitere Fotos auf der Website.
May 16, 2025 at 9:38 AM
emilyesfraser.bsky.social
This is how the #GreatestMEdicalScandal continues. Patients spend precious energy raising awareness for #MEAwarenessDay on May 12th & @bmj.com publishes harmful, disproven, psychologizing propaganda on May 14th to put us back in our places. It’s disgusting, cruel, extremely pre-meditated behavior
putrinolab.bsky.social Putrino Lab @putrinolab.bsky.social · May 15
Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has

www.bmj.com/content/389/...

1/
Patients with severe ME/CFS need hope and expert multidisciplinary care
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic...
www.bmj.com
May 15, 2025 at 8:11 PM
dawnjarvis.bsky.social
ME/CFS is not “just tired.” It’s a serious, debilitating condition still dismissed by many. On #MEAwarenessDay, let’s believe patients, stop the stigma, and push for real change. #MECFS #MillionsMissing #HealthEquity
May 15, 2025 at 11:26 AM
mefreake.bsky.social
Podcast „Lebendig begraben“ von Lottie/ Visa Vie zum #MEAwarenessDay mit Zitaten Betroffener von #MECFS
🙏🙏🙏
#16 Lebendig begraben - (K)ein Leben mit ME/CFS
+++ Triggerwarnung: In dieser Folge geht es um die tiefgreifenden gesundheitlichen Auswirkungen einer schweren ME/CFS-Erkrankung und um assistierten ärztlichen Suizid. +++ ME/CFS – eine Krankheit, d...
plot-house.podigee.io
May 15, 2025 at 7:18 AM
z3r0gravitas.bsky.social
Sorry I missed posting this for #MEawarenessDay yesterday. I was exhausted from a rough night of acute mould exposure reaction. (Good now today.) I'm also rubbish with organised event dates in general, though. 😳
May 13, 2025 at 4:33 PM
guusontheinternet.bsky.social
“Ik hoop dat je mij niet vergeet. Dat je voor mij opkomt, mijn verhaal vertelt. Niet morgen. Niet ooit. Niet wanneer ik dood ben. Maar nu. Nu, terwijl ik er nog ben. Nu, voordat er weer iemand verdwijnt in het duister.”

Luister jij naar Bente’s verhaal?

#MeAwarenessDay #MECVS
Foto van Bente, die ze gedeeld heeft op haar Instagram account @bentealinda. Bente is een jonge vrouw met lang rood haar. Op de foto glimlacht ze in de camera. Ze heeft gele bloemetjes in haar haar. Op de foto staat ‘vergeet ME niet’ geschreven met een hartje erbij.
May 13, 2025 at 3:27 PM
joshclimate.bsky.social
I missed #MEAwarenessDay yesterday, but great to see
@zackpolanski.bsky.social talking about this issue.

Millions of people live with ME yet next to nothing is being done to fund dedicated support and research into it.

As the overlap between long-covid and ME becomes clearer, action is needed now.
May 13, 2025 at 1:59 PM
authoramyorrell.bsky.social
I have family and friends who struggle with ME, and I know they're often frustrated by people's inability to understand. Stories can help with that understanding and provide insight in a way no other words can.
#meawarenessday #booksky #magicalrealism
May 13, 2025 at 1:18 PM
rgleadow.bsky.social
#MEawarenessday
bhanlon15.bsky.social Billy Hanlon @bhanlon15.bsky.social · May 13
Milwaukee Independent: "A health puzzle: Four years of long COVID research paints an unsettling medical picture"

By Ziyad Al-Aly, Chief of Research and Development, VA St. Louis Health Care System. Clinical Epidemiologist, Washington University

www.milwaukeeindependent.com/syndicated/h...
A health puzzle: Four years of long COVID research paints an unsettling medical picture | Milwaukee Independent
www.milwaukeeindependent.com
May 13, 2025 at 12:47 PM
nmjk.bsky.social
#MEAwarenessDay was yesterday. I got ill after an enterovirus in 1982. I remain ill today. Research remains perilously slow. My 2008 novel The State of Me portrays a young woman getting ill in eighties. There is black humour to balance the grimness & hell. www.goodreads.com/review/show/...
Luna E's review of The State of Me
5/5: A witty and absorbing book. The characterisation of Helen Fleet is really effective and, although it is hard to pull off a proper arc in writing about chronic illness, Jafry does is so effectivel...
www.goodreads.com
May 13, 2025 at 10:33 AM
cabruce.bsky.social
Portrait (by Rembrandt) of an #ME patient the day after #MEAwarenessDay.
Make of it what you will!
May 13, 2025 at 10:27 AM
morethanless.bsky.social
Der 12.05. ist internationaler #MEAwarenessDay❗️

ME/CFS ist eine schwere und komplexe neuroimmunologische Erkrankung, die oft zu einem hohen Grad der körperlichen Behinderung führt.

Es gibt es keine Medikamente, viel zu wenig Forschung und keine adäquate Versorgung der Betroffenen.

#ME/CFS
Text: MECFS ist echt!
May 13, 2025 at 10:18 AM
nowbreezing.ntw.app

Bluesky's Top 10 Trending Words from the Past 10 Minutes:
💨x1* - trump 🔓
💨x48 - ダリア
💨x1* - gaza 🔓
💨x34 - depardieu
💨x31 - 1﹐424
💨x1* - ukraine 🔓
💨x25 - gérard
💨x22 - enoch
💨x13 - condamné
💨x10 - スカーク
(tap to see all posts w/ the word! ANDROID: long-press©)

#FreePalestine 🇵🇸
Word Cloud; its top words (sorted by weighted frequency, descending): trump*, ダリア, gaza*, depardieu, 1﹐424, ukraine*, gérard, enoch, condamné, スカーク, tatum, qatar, 2025-05-13, 13/05/2025, xperia, pınar, powell, jungla, duvet, sursis, sewage, omtzigt, hassan, détails, bacteria, aydınlar, tahliye, strangers, saudis, salman, piercings, mohammed, mavs, jayson, djokovic, cannes, acteur, $400m, ベタ, パンク, yvette, verpassen, verdades, tournage, semi-final, seleção, powell's, interviewer, hapis, greet, gafas, fleeing, bribes, bribe, assaulting, aries, ancelotti, africans, adulta, @seaofthieves.com, 5/13/2025, 3-1, 05/13, $4, ５月, 赤字, 触り, 減り, 日産, 幼児, 寧ろ, 動機, 値下げ, リエ, ヒューゴ, スプラ, きが, yuck, weaknesses, volets, vii, vacancies, tuesday, tub, traducción, tocado, titty, terça-feira, terça, terminator, tenis, tamén, sätzen, sunglasses, stevie, starmer's, sexuelles, saudi, sarcasmo, sanatçı, salas, s25, riyadh, riad, renal, pünktlich, prostate, pathogens, paco, oilers, nodule, nigerian, miljard, menendez, mehmet, mbti, mbs, matcha, martes, loyalist, lottery, königreich, klimaschutz, jumbo, hydrogen, gordo, esila, episcopal, dracula, debat, daphne, creek, cohesion, cobertura, cabaret, bounds, boil, aya, arabia, agyemang, afrikaners, 5/13, 298, 13th, $400, 커미션, 중에, 있나요, 여자, 소리, 당신은, 그러면, 飼い, 開示, 貿易, 訪れ, 笑み, 異性, 炭酸, 減税, 決断, 核心, 有給, 懐き, 強調, 強者, 将軍, 好感, 執事, 収益, 利口, 入れ替え, 備考, 会見, 付き合う, 両立, モヤ, ムービー, ミント, プレイリスト, スイパラ, シルエット, ココア, カリフォルニア, イメソン, まう, くるん, かみ, かしこ, あんぱん, ура, такое, зсу, ώρα, μη, đức, ülkeye, örgütü, établissements, ábalos Hashtag Cloud; its hashtagged words/phrases (sorted by weighted frequency, descending): usa, soma, uk, tech, naturephotography, eurovision, styleofthieves, mentalhealthawarenessweek, 702, 原神, イラスト#イラスト, あなた, videogames, rule34, nsfwbsky, mentalhealth, 自炊班, wildlifephotography, opensource, mermay, indiemusic, indie, ice, games, eurovision2025, econsky, book, 암캐, ゆるい, wwe, wirtschaft, tummytuesday, tennis, soccer, seaofthieves, protest, meawarenessday, japanese, health, goonsky, girl, free, etsy, environment, energy, economy, deal, cosplay, bundesliga, bbcnews, basketball, animeart, aiartcommunity, ポケポケ#ポケポケ, young, wweraw, vtuber準備中, venezuela, ux, unutma, trivia, tattoo, sony, solo, sellingcontent, reichsbürger, quotes, qatar, popmaster, playstation5, nowspinning, newrelease, naturelovers, mh17, masturbation, latina, hung, hsr, hamas, growth, gooning, genai, forest, foreskin, fgo#fgo, energytransition, discourse, depardieu, dahlia, creampie, color, chile, cannes2025, budget, bottom, bl, artbots, analog, alberta, adventure, action, 436, 박제, 꽁스쿨, 김해, 肖战, 絵柄, 東方project, 日向坂46, 日向, 小説, 可愛い, 写真好きな人と繋がりたい, 入門, 今日のおやつ, 交通, メンズファッション, ポーチ, プラモデル, ブルスコ写真部, ブルスコ, ノベルアッププラス, デレステ, オリキャラ, オリ, らくがき, らく, ねこ, どう, あなたをコーヒーに例えると, удаленка, рисунок, şehitlerbugünöldü, zen, zelensky, zelda, yoga, wxmafc, wwfc, wrestling, worldmeday, worldbuilding, workout, witchsky, weektfortime, water, warriorsnation, warriors, walkthrough, walking, wald, unutturma, united, underwear, undertale, ukwildlife, ucp, türkiye, twunk, twitchstream, tummy, ttt, transformacióndigital, trailertuesday, tongueouttuesday, tombraiderremastered, tombraider, tittytuesday, threesome, thinking, thesmiths, the, tecnologia, technologie, teachers, tarot, switch2, swfc, sulawesi_utara, studybullet-20, studybullet, states, startups, spireites, spicybooks, soporific, somamadenfaciası, solarenergy, socks, socialscienceresearch, socialjustice, skype, singles, short, seriea, senior, samsung, safc, sachsen, rtve Emoji Cloud; its emojis (sorted by weighted frequency, descending): 🇳🇴, 👂, 🐂, 🏹, 🍠, 🍏, 🇧🇪, ✒️, 🪡, 🧹, 🧩, 🚴, 🚛, 🙇🏻, 🙇‍♀️, 😾, 🐥, 🐝, 🐔, 🐓, 🐄, 🏈, 🌮, 🌕, 🇻🇪, 🇸🇮, 🇪🇪, 🆙, ❔, ⚜️, ♉, ☂, 🫸, 🫐, 🪧, 🧙‍♂️, 🧊, 🧁, 🦝, 🦐, 🥦, 🥖, 🥒, 🥎, 🤷🏼‍♂️, 🤷🏻‍♂️, 🤳, 🤦🏽‍♀️, 🤞🏼, 🤘🏻, 🛸, 🛏️, 🚆, 🚅, 🙉, 🙇‍♂️, 😟, 🗿, 🗒️, 🖱️, 🖇️, 🔦, 🔐, 📵, 💣, 💠, 👢, 👓, 👌🏼, 👇🏾, 👃, 🐐, 🐌, 🏴, 🏳️‍⚧️, 🏦, 🏙️, 🏉, 🎋, 🍳, 🍙, 🍅, 🍂, 🌶️, 🌪️, 🌇, 🇸🇲, 🇸🇪, 🇷🇴, 🇵🇹, 🇵🇰, 🇳🇬, 🇭🇺, 🇭🇷, 🇬🇱, 🇪🇨, 🇩🇰, 🇨🇾, 🇧🇬, 🇦🇱, 🅰️, ❓, ✝, ✍🏻, ♨, ♦, ♌, ♋, ♈, ☠️, ☠, ☝, ⏩, ⌚, ↪, 3⃣, 2⃣, 0⃣ Emoji Legend 💨x# | "Increased Trending Rate" for a Word (meaningful value; "💨x8 - burger" will mean "burger" is trending at 8 times its own normal rate for this time of day) 🔓 | "Unlocked" Ongoing Emergency Word (such words are not weighted down by their own previous usage; their *ongoing* increased usage--weeks, months, years--would otherwise move them down the list.) [PREVIOUSLY USED] ⚠️💨# | "Trend Strength Rating" ⚠️🌀💨 | "Trend Strength Rating" (see above) ⚠️🌀 CAT. # | [same; "CAT." = Category, like hurricane] 💬# | 10min Post Count 🆎# | 10min Word Count 🙂# | 10min Emoji Count
May 13, 2025 at 10:10 AM
arizona10238417.bsky.social
Ab 34:22

Ob die Schwerstbetroffenen noch davon profitieren, hofft sie, aber es braucht einfach lange Linien, leider (P. Krebs)

Ich bin sprachlos

Das passt zur Mail, von gestern

@regierungbw.bsky.social
#MEAwarenessDay
#MECFS

#PingPong
1/3
Chronisch krank, chronisch ignoriert - Diskussion über die Lage von ME/CFS-Erkrankten
YouTube video by Mannheimer Abendakademie
www.youtube.com
May 13, 2025 at 10:08 AM
andrewhaglington.bsky.social
Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙
May 13, 2025 at 10:06 AM
andrewhaglington.bsky.social
Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙
May 13, 2025 at 10:05 AM
lucibee.bsky.social
Excellent short (15 mins) film from Re: News (New Zealand) for #MEAwarenessDay #WorldMEDay

ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies

Parent carer of daughter with #SevereME sets up hospice to care for others.

www.youtube.com/watch?v=DsOA...
ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies
YouTube video by Re: News
www.youtube.com
May 13, 2025 at 10:05 AM