Too Long Covid
@toolongcovid.bsky.social
Lived experience of Long Covid and parent of a child with LC. Wear a mask. Collective care. Aotearoa NZ.
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
Pinned
Too Long Covid
@toolongcovid.bsky.social
· Aug 13
When you're talking, reporting about Covid
It's DISINFO not to mention that the Covid pandemic is ongoing
We are not 'post Covid' in any way, shape or form
It's DISINFO not to mention that the Covid pandemic is ongoing
We are not 'post Covid' in any way, shape or form
Reposted by Too Long Covid
Trouble is they are all #AtlasNetwork shills, working for foreign corporate & Billionaire #takeover of our wealth & country #nzpol
November 29, 2025 at 10:00 AM
Trouble is they are all #AtlasNetwork shills, working for foreign corporate & Billionaire #takeover of our wealth & country #nzpol
Reposted by Too Long Covid
As I was alluding on this platform about a year ago over a refreshing bowl of Maggi Soup, embedding advertising in natural seeming conversations is pretty inevitable when extracting maximum value from the systems where there are no consumer guard-rails around quality or truth.
The end goal of advertising is to make it indistinguishable from one’s own wants and needs. That aim is finally going to be realized very soon.
Leak confirms OpenAI is preparing ads on ChatGPT for public roll out
OpenAI is now internally testing 'ads' inside ChatGPT that could redefine the web economy.
www.bleepingcomputer.com
November 29, 2025 at 8:03 PM
As I was alluding on this platform about a year ago over a refreshing bowl of Maggi Soup, embedding advertising in natural seeming conversations is pretty inevitable when extracting maximum value from the systems where there are no consumer guard-rails around quality or truth.
Reposted by Too Long Covid
I especially feel this when sociologists who study technology do this.
Y'all are supposed to take sociotechnical approaches to the study of technology. A throwaway AI-generated image does not help that credibility.
Y'all are supposed to take sociotechnical approaches to the study of technology. A throwaway AI-generated image does not help that credibility.
I don’t know if anyone else notices or cares, but when I see a presentation in which the speaker uses obviously generated-AI images to illustrate their slides, it makes me immediately less confident in whatever other content they’re presenting.
November 29, 2025 at 5:54 PM
I especially feel this when sociologists who study technology do this.
Y'all are supposed to take sociotechnical approaches to the study of technology. A throwaway AI-generated image does not help that credibility.
Y'all are supposed to take sociotechnical approaches to the study of technology. A throwaway AI-generated image does not help that credibility.
Reposted by Too Long Covid
From not allowing pets in rentals to closing down facilities to “moving people on” without giving them anywhere to go, to underfunding wrap around services, to deliberately ignoring the wealth distribution crisis, including ignoring the power/food oligarchies in NZ - our policy choices say it all.
Plunged into poverty: Hardship rising in Southland:
National, ACT & NZF failed economic policies are pushing more & more Kiwis into hardship, while the wealthy & foreign corporates get richer #nzpol
www.rnz.co.nz/news/nationa...
National, ACT & NZF failed economic policies are pushing more & more Kiwis into hardship, while the wealthy & foreign corporates get richer #nzpol
www.rnz.co.nz/news/nationa...
Plunged into poverty: Hardship rising in Southland
Social service providers say there's been an uptick in people needing support to feed their family, going without heating, living homeless or sharing shoes.
www.rnz.co.nz
November 29, 2025 at 5:52 PM
From not allowing pets in rentals to closing down facilities to “moving people on” without giving them anywhere to go, to underfunding wrap around services, to deliberately ignoring the wealth distribution crisis, including ignoring the power/food oligarchies in NZ - our policy choices say it all.
Reposted by Too Long Covid
This is a powerful read if you want to know how to talk to a person with LC about how they are doing, in a truly genuine way.
"The problem with Long COVID is that most of society would rather not see it. We want to believe the pandemic was just a bad dream we awoke from years ago. (When I hear someone say during COVID, in the past tense, I want to flip a table.)"
#LongCOVID
Source: archive.md/7Rer1
#LongCOVID
Source: archive.md/7Rer1
November 29, 2025 at 6:03 AM
This is a powerful read if you want to know how to talk to a person with LC about how they are doing, in a truly genuine way.
😡😡 West Auckland’s Lincoln Heights School forced to waitlist disabled students amid high demand for zone - NZ Herald share.google/O7KlCascOgBw...
#nzpol
#nzpol
share.google
November 29, 2025 at 9:20 AM
😡😡 West Auckland’s Lincoln Heights School forced to waitlist disabled students amid high demand for zone - NZ Herald share.google/O7KlCascOgBw...
#nzpol
#nzpol
Reposted by Too Long Covid
Easy. Get off of Twitter. I left as soon as it became X and not one day goes by that I miss that shit salad. I only come here and YouTube now. I never miss anything relevant. Try it.
November 27, 2025 at 10:48 PM
Easy. Get off of Twitter. I left as soon as it became X and not one day goes by that I miss that shit salad. I only come here and YouTube now. I never miss anything relevant. Try it.
Reposted by Too Long Covid
Amazon employees in over 30 countries are walking off the job today as part of a global protest called “Make Amazon Pay”.
They’re demanding the company honour workers rights to unionize, improve environmental sustainability and raise wages.
This is the biggest disruption in the company’s history.
They’re demanding the company honour workers rights to unionize, improve environmental sustainability and raise wages.
This is the biggest disruption in the company’s history.
November 28, 2025 at 8:37 PM
Amazon employees in over 30 countries are walking off the job today as part of a global protest called “Make Amazon Pay”.
They’re demanding the company honour workers rights to unionize, improve environmental sustainability and raise wages.
This is the biggest disruption in the company’s history.
They’re demanding the company honour workers rights to unionize, improve environmental sustainability and raise wages.
This is the biggest disruption in the company’s history.
Reposted by Too Long Covid
Aotearoa Covid Action (ACA) is holding its first ever online open mic night! It will take place on the 6th of December from 8pm to 10pm and is open to all sorts of art forms; singing, playing an instrument, reciting poetry/prose, showing your visual art, etc.
November 29, 2025 at 1:12 AM
Aotearoa Covid Action (ACA) is holding its first ever online open mic night! It will take place on the 6th of December from 8pm to 10pm and is open to all sorts of art forms; singing, playing an instrument, reciting poetry/prose, showing your visual art, etc.
Reposted by Too Long Covid
Callous and stupid.
"the one in four children in our local schools who are disabled and/or neurodivergent could be collateral damage from the minister’s refresh"
We have had some terrible Ministers of Education in our history but Stanford is shaping up to be our worst. #nzpol
"the one in four children in our local schools who are disabled and/or neurodivergent could be collateral damage from the minister’s refresh"
We have had some terrible Ministers of Education in our history but Stanford is shaping up to be our worst. #nzpol
Education's Stanford experiment not for everyone
From Auckland University - Opinion: The exclusion of disabled children from the latest iteration of the curriculum can be added to the list of problematic ministerial decisions in education.
newsroom.co.nz
November 18, 2025 at 9:11 PM
Callous and stupid.
"the one in four children in our local schools who are disabled and/or neurodivergent could be collateral damage from the minister’s refresh"
We have had some terrible Ministers of Education in our history but Stanford is shaping up to be our worst. #nzpol
"the one in four children in our local schools who are disabled and/or neurodivergent could be collateral damage from the minister’s refresh"
We have had some terrible Ministers of Education in our history but Stanford is shaping up to be our worst. #nzpol
Reposted by Too Long Covid
Our precious teenager has had the rug pulled on her. No funding next year for her (or anyone else). No support for NCEA, no WelTech, no career path. Off to the scrap heap with her. In between my tears comes red rage.
PS..has the article been pulled? It's not there anymore
PS..has the article been pulled? It's not there anymore
November 19, 2025 at 9:32 AM
Our precious teenager has had the rug pulled on her. No funding next year for her (or anyone else). No support for NCEA, no WelTech, no career path. Off to the scrap heap with her. In between my tears comes red rage.
PS..has the article been pulled? It's not there anymore
PS..has the article been pulled? It's not there anymore
Reposted by Too Long Covid
🚨🧵 by @1goodtern.bsky.social on Twitter:
"... I've just stumbled across the official NHS coding guidance for U07.3 - 'Personal history of Covid-19' - and it left me on the floor.
🚨When paired with the data on the number of times it is currently used, it is a..."
threadreaderapp.com/thread/19937...
"... I've just stumbled across the official NHS coding guidance for U07.3 - 'Personal history of Covid-19' - and it left me on the floor.
🚨When paired with the data on the number of times it is currently used, it is a..."
threadreaderapp.com/thread/19937...
November 26, 2025 at 10:19 PM
🚨🧵 by @1goodtern.bsky.social on Twitter:
"... I've just stumbled across the official NHS coding guidance for U07.3 - 'Personal history of Covid-19' - and it left me on the floor.
🚨When paired with the data on the number of times it is currently used, it is a..."
threadreaderapp.com/thread/19937...
"... I've just stumbled across the official NHS coding guidance for U07.3 - 'Personal history of Covid-19' - and it left me on the floor.
🚨When paired with the data on the number of times it is currently used, it is a..."
threadreaderapp.com/thread/19937...
Reposted by Too Long Covid
Andrew has nailed it. we have to gear up to stop this
Increasingly of the view as this spreads that:
(a) this is a grab for all adults' identity documents so there can be no truly pseudonymous posting as far as the state is concerned; and
(b) states want to be free to indoctrinate Gen AA (or whatever we're calling them) while they're impressionable.
(a) this is a grab for all adults' identity documents so there can be no truly pseudonymous posting as far as the state is concerned; and
(b) states want to be free to indoctrinate Gen AA (or whatever we're calling them) while they're impressionable.
Malaysia says it plans to ban social media for under-16s from 2026 reut.rs/48dqhmF
November 26, 2025 at 7:42 AM
Andrew has nailed it. we have to gear up to stop this
Reposted by Too Long Covid
A 12 year old girl died while sectioned in a psychiatric hospital because doctors missed autoimmune encephalitis
Psychosis is exceedingly rare in a 12 year old.
It’s heartbreaking that they locked her up rather than attempt to determine the true cause.
Psychologizing patients must stop
Psychosis is exceedingly rare in a 12 year old.
It’s heartbreaking that they locked her up rather than attempt to determine the true cause.
Psychologizing patients must stop
12-year-old girl who died after being sectioned had underlying brain disorder
A 12-year-old girl who died after she was admitted to a specialist mental health unit when she developed acute psychosis was suffering from a potentially treatable physical brain disorder, a pathologi...
www.yorkshirepost.co.uk
November 26, 2025 at 2:08 AM
A 12 year old girl died while sectioned in a psychiatric hospital because doctors missed autoimmune encephalitis
Psychosis is exceedingly rare in a 12 year old.
It’s heartbreaking that they locked her up rather than attempt to determine the true cause.
Psychologizing patients must stop
Psychosis is exceedingly rare in a 12 year old.
It’s heartbreaking that they locked her up rather than attempt to determine the true cause.
Psychologizing patients must stop
Reposted by Too Long Covid
again, any other government doing this would not have had a moments rest from nz media, their public lives made almost impossible and been hounded out of government
this coalition is being given the most cover and support, maybe in nz history, by media and institutions
this coalition is being given the most cover and support, maybe in nz history, by media and institutions
I do not know off the top of head what is in the oath an incoming government makes to the Governor General, but it seems like passing legislation you actually think is bad should be some kind of breach of it
www.nzherald.co.nz/nz/politics/...
www.nzherald.co.nz/nz/politics/...
'It's not impossible': Willis says National may join other parties to repeal Regulatory Standards Act
The National deputy leader said her party may also campaign to get rid of the law.
www.nzherald.co.nz
November 26, 2025 at 5:27 AM
again, any other government doing this would not have had a moments rest from nz media, their public lives made almost impossible and been hounded out of government
this coalition is being given the most cover and support, maybe in nz history, by media and institutions
this coalition is being given the most cover and support, maybe in nz history, by media and institutions
Reposted by Too Long Covid
⚠️ BREAKING:
Japan’s Osaka University Hospital Reinstates Mandatory Masking for All Patients and Staff Starting Nov 25 Amid Growing Influenza Epidemic
Japan’s Osaka University Hospital Reinstates Mandatory Masking for All Patients and Staff Starting Nov 25 Amid Growing Influenza Epidemic
November 26, 2025 at 3:19 AM
⚠️ BREAKING:
Japan’s Osaka University Hospital Reinstates Mandatory Masking for All Patients and Staff Starting Nov 25 Amid Growing Influenza Epidemic
Japan’s Osaka University Hospital Reinstates Mandatory Masking for All Patients and Staff Starting Nov 25 Amid Growing Influenza Epidemic
What the hell is going on with the new New Zealand school curriculum, and what does it have to do with the Atlas Network? (No, really!)
A thread:
#nzpol #kikorangi
A thread:
#nzpol #kikorangi
November 26, 2025 at 4:38 AM
Reposted by Too Long Covid
Australia's Heart Foundation just launched an info campaign on the harms of COVID to cardiovascular health - good to see!
But current vaccines only reduce risk of heart damage, they do not eliminate it. We need masking, clean indoor air, better prevention & next gen vaccines
But current vaccines only reduce risk of heart damage, they do not eliminate it. We need masking, clean indoor air, better prevention & next gen vaccines
November 25, 2025 at 9:03 PM
Australia's Heart Foundation just launched an info campaign on the harms of COVID to cardiovascular health - good to see!
But current vaccines only reduce risk of heart damage, they do not eliminate it. We need masking, clean indoor air, better prevention & next gen vaccines
But current vaccines only reduce risk of heart damage, they do not eliminate it. We need masking, clean indoor air, better prevention & next gen vaccines
Reposted by Too Long Covid
"We might campaign on repealing the law we just passed" is dumber and more flailingly chaotic than literally ANYTHING on the left (and I'm making the call that that includes losing an MP to kleptomania and the implosion of TPM)
November 26, 2025 at 12:37 AM
"We might campaign on repealing the law we just passed" is dumber and more flailingly chaotic than literally ANYTHING on the left (and I'm making the call that that includes losing an MP to kleptomania and the implosion of TPM)
Reposted by Too Long Covid
The risk from surfaces is less than 1 in 10,000 of catching COVID. We should handwash for many reasons but this alone WILL NOT protect you from COVID. 🧵
Here is Dr Barry Jones explaining that they knew from ‘day 1’ it was airborne and a virus of some consequence. www.youtube.com/watch?v=2cpR...
UK Covid 19 Inquiry - Module 3 Hearing - 12 September 2024 AM
YouTube video by UK Covid-19 Inquiry
www.youtube.com
November 24, 2025 at 12:11 PM
The risk from surfaces is less than 1 in 10,000 of catching COVID. We should handwash for many reasons but this alone WILL NOT protect you from COVID. 🧵
Reposted by Too Long Covid
It's the COVID.
There is no such thing as an intelligent report on increasing school absences due to chronic illness and mental health issues that does not lead with a discussion of the out-of-control virus that causes chronic illness and mental health issues.
@cbcnews.ca has seriously weird biases about COVID. 🙄
@cbcnews.ca has seriously weird biases about COVID. 🙄
November 23, 2025 at 11:48 AM
It's the COVID.
Reposted by Too Long Covid
You cant move labour left by voting for them. Greens literally exist if you want green policies
November 23, 2025 at 6:28 PM
You cant move labour left by voting for them. Greens literally exist if you want green policies
People with Long Covid are getting worse and yes, some are passing away. We urgently need help and treatment.
How sad! I have seen so many healthy women in the prime of their lives severely impacted by long Covid.
From being a professional athlete to being in a wheelchair, from being a fun mom to an ill parent who spends their day in their bed in the dark with ice on their head and belly.
It’s awful!
From being a professional athlete to being in a wheelchair, from being a fun mom to an ill parent who spends their day in their bed in the dark with ice on their head and belly.
It’s awful!
Brazilian singer Eva Rodrigues Praia Walkey, 40, has died after nearly 5 years battling severe Long COVID. She faced repeated hospitalisations, grueling treatment, and never regained her health. Her family confirmed she passed away on 18 November in Manaus, Brazil.
Source: archive.md/nxK4K
Source: archive.md/nxK4K
November 23, 2025 at 4:21 AM
People with Long Covid are getting worse and yes, some are passing away. We urgently need help and treatment.