Too Long Covid
@toolongcovid.bsky.social
Lived experience of Long Covid and parent of a child with LC. Wear a mask. Collective care. Aotearoa NZ.
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
Pinned
Too Long Covid
@toolongcovid.bsky.social
· Aug 13
When you're talking, reporting about Covid
It's DISINFO not to mention that the Covid pandemic is ongoing
We are not 'post Covid' in any way, shape or form
It's DISINFO not to mention that the Covid pandemic is ongoing
We are not 'post Covid' in any way, shape or form
Reposted by Too Long Covid
Callous and stupid.
"the one in four children in our local schools who are disabled and/or neurodivergent could be collateral damage from the minister’s refresh"
We have had some terrible Ministers of Education in our history but Stanford is shaping up to be our worst. #nzpol
"the one in four children in our local schools who are disabled and/or neurodivergent could be collateral damage from the minister’s refresh"
We have had some terrible Ministers of Education in our history but Stanford is shaping up to be our worst. #nzpol
Education's Stanford experiment not for everyone
From Auckland University - Opinion: The exclusion of disabled children from the latest iteration of the curriculum can be added to the list of problematic ministerial decisions in education.
newsroom.co.nz
November 18, 2025 at 9:11 PM
Callous and stupid.
"the one in four children in our local schools who are disabled and/or neurodivergent could be collateral damage from the minister’s refresh"
We have had some terrible Ministers of Education in our history but Stanford is shaping up to be our worst. #nzpol
"the one in four children in our local schools who are disabled and/or neurodivergent could be collateral damage from the minister’s refresh"
We have had some terrible Ministers of Education in our history but Stanford is shaping up to be our worst. #nzpol
Reposted by Too Long Covid
Our precious teenager has had the rug pulled on her. No funding next year for her (or anyone else). No support for NCEA, no WelTech, no career path. Off to the scrap heap with her. In between my tears comes red rage.
PS..has the article been pulled? It's not there anymore
PS..has the article been pulled? It's not there anymore
November 19, 2025 at 9:32 AM
Our precious teenager has had the rug pulled on her. No funding next year for her (or anyone else). No support for NCEA, no WelTech, no career path. Off to the scrap heap with her. In between my tears comes red rage.
PS..has the article been pulled? It's not there anymore
PS..has the article been pulled? It's not there anymore
Reposted by Too Long Covid
🚨🧵 by @1goodtern.bsky.social on Twitter:
"... I've just stumbled across the official NHS coding guidance for U07.3 - 'Personal history of Covid-19' - and it left me on the floor.
🚨When paired with the data on the number of times it is currently used, it is a..."
threadreaderapp.com/thread/19937...
"... I've just stumbled across the official NHS coding guidance for U07.3 - 'Personal history of Covid-19' - and it left me on the floor.
🚨When paired with the data on the number of times it is currently used, it is a..."
threadreaderapp.com/thread/19937...
November 26, 2025 at 10:19 PM
🚨🧵 by @1goodtern.bsky.social on Twitter:
"... I've just stumbled across the official NHS coding guidance for U07.3 - 'Personal history of Covid-19' - and it left me on the floor.
🚨When paired with the data on the number of times it is currently used, it is a..."
threadreaderapp.com/thread/19937...
"... I've just stumbled across the official NHS coding guidance for U07.3 - 'Personal history of Covid-19' - and it left me on the floor.
🚨When paired with the data on the number of times it is currently used, it is a..."
threadreaderapp.com/thread/19937...
Reposted by Too Long Covid
Andrew has nailed it. we have to gear up to stop this
Increasingly of the view as this spreads that:
(a) this is a grab for all adults' identity documents so there can be no truly pseudonymous posting as far as the state is concerned; and
(b) states want to be free to indoctrinate Gen AA (or whatever we're calling them) while they're impressionable.
(a) this is a grab for all adults' identity documents so there can be no truly pseudonymous posting as far as the state is concerned; and
(b) states want to be free to indoctrinate Gen AA (or whatever we're calling them) while they're impressionable.
Malaysia says it plans to ban social media for under-16s from 2026 reut.rs/48dqhmF
November 26, 2025 at 7:42 AM
Andrew has nailed it. we have to gear up to stop this
Reposted by Too Long Covid
A 12 year old girl died while sectioned in a psychiatric hospital because doctors missed autoimmune encephalitis
Psychosis is exceedingly rare in a 12 year old.
It’s heartbreaking that they locked her up rather than attempt to determine the true cause.
Psychologizing patients must stop
Psychosis is exceedingly rare in a 12 year old.
It’s heartbreaking that they locked her up rather than attempt to determine the true cause.
Psychologizing patients must stop
12-year-old girl who died after being sectioned had underlying brain disorder
A 12-year-old girl who died after she was admitted to a specialist mental health unit when she developed acute psychosis was suffering from a potentially treatable physical brain disorder, a pathologi...
www.yorkshirepost.co.uk
November 26, 2025 at 2:08 AM
A 12 year old girl died while sectioned in a psychiatric hospital because doctors missed autoimmune encephalitis
Psychosis is exceedingly rare in a 12 year old.
It’s heartbreaking that they locked her up rather than attempt to determine the true cause.
Psychologizing patients must stop
Psychosis is exceedingly rare in a 12 year old.
It’s heartbreaking that they locked her up rather than attempt to determine the true cause.
Psychologizing patients must stop
Reposted by Too Long Covid
again, any other government doing this would not have had a moments rest from nz media, their public lives made almost impossible and been hounded out of government
this coalition is being given the most cover and support, maybe in nz history, by media and institutions
this coalition is being given the most cover and support, maybe in nz history, by media and institutions
I do not know off the top of head what is in the oath an incoming government makes to the Governor General, but it seems like passing legislation you actually think is bad should be some kind of breach of it
www.nzherald.co.nz/nz/politics/...
www.nzherald.co.nz/nz/politics/...
'It's not impossible': Willis says National may join other parties to repeal Regulatory Standards Act
The National deputy leader said her party may also campaign to get rid of the law.
www.nzherald.co.nz
November 26, 2025 at 5:27 AM
again, any other government doing this would not have had a moments rest from nz media, their public lives made almost impossible and been hounded out of government
this coalition is being given the most cover and support, maybe in nz history, by media and institutions
this coalition is being given the most cover and support, maybe in nz history, by media and institutions
Reposted by Too Long Covid
⚠️ BREAKING:
Japan’s Osaka University Hospital Reinstates Mandatory Masking for All Patients and Staff Starting Nov 25 Amid Growing Influenza Epidemic
Japan’s Osaka University Hospital Reinstates Mandatory Masking for All Patients and Staff Starting Nov 25 Amid Growing Influenza Epidemic
November 26, 2025 at 3:19 AM
⚠️ BREAKING:
Japan’s Osaka University Hospital Reinstates Mandatory Masking for All Patients and Staff Starting Nov 25 Amid Growing Influenza Epidemic
Japan’s Osaka University Hospital Reinstates Mandatory Masking for All Patients and Staff Starting Nov 25 Amid Growing Influenza Epidemic
What the hell is going on with the new New Zealand school curriculum, and what does it have to do with the Atlas Network? (No, really!)
A thread:
#nzpol #kikorangi
A thread:
#nzpol #kikorangi
November 26, 2025 at 4:38 AM
Reposted by Too Long Covid
Australia's Heart Foundation just launched an info campaign on the harms of COVID to cardiovascular health - good to see!
But current vaccines only reduce risk of heart damage, they do not eliminate it. We need masking, clean indoor air, better prevention & next gen vaccines
But current vaccines only reduce risk of heart damage, they do not eliminate it. We need masking, clean indoor air, better prevention & next gen vaccines
November 25, 2025 at 9:03 PM
Australia's Heart Foundation just launched an info campaign on the harms of COVID to cardiovascular health - good to see!
But current vaccines only reduce risk of heart damage, they do not eliminate it. We need masking, clean indoor air, better prevention & next gen vaccines
But current vaccines only reduce risk of heart damage, they do not eliminate it. We need masking, clean indoor air, better prevention & next gen vaccines
Reposted by Too Long Covid
"We might campaign on repealing the law we just passed" is dumber and more flailingly chaotic than literally ANYTHING on the left (and I'm making the call that that includes losing an MP to kleptomania and the implosion of TPM)
November 26, 2025 at 12:37 AM
"We might campaign on repealing the law we just passed" is dumber and more flailingly chaotic than literally ANYTHING on the left (and I'm making the call that that includes losing an MP to kleptomania and the implosion of TPM)
Reposted by Too Long Covid
The risk from surfaces is less than 1 in 10,000 of catching COVID. We should handwash for many reasons but this alone WILL NOT protect you from COVID. 🧵
Here is Dr Barry Jones explaining that they knew from ‘day 1’ it was airborne and a virus of some consequence. www.youtube.com/watch?v=2cpR...
UK Covid 19 Inquiry - Module 3 Hearing - 12 September 2024 AM
YouTube video by UK Covid-19 Inquiry
www.youtube.com
November 24, 2025 at 12:11 PM
The risk from surfaces is less than 1 in 10,000 of catching COVID. We should handwash for many reasons but this alone WILL NOT protect you from COVID. 🧵
Reposted by Too Long Covid
It's the COVID.
There is no such thing as an intelligent report on increasing school absences due to chronic illness and mental health issues that does not lead with a discussion of the out-of-control virus that causes chronic illness and mental health issues.
@cbcnews.ca has seriously weird biases about COVID. 🙄
@cbcnews.ca has seriously weird biases about COVID. 🙄
November 23, 2025 at 11:48 AM
It's the COVID.
Reposted by Too Long Covid
You cant move labour left by voting for them. Greens literally exist if you want green policies
November 23, 2025 at 6:28 PM
You cant move labour left by voting for them. Greens literally exist if you want green policies
People with Long Covid are getting worse and yes, some are passing away. We urgently need help and treatment.
How sad! I have seen so many healthy women in the prime of their lives severely impacted by long Covid.
From being a professional athlete to being in a wheelchair, from being a fun mom to an ill parent who spends their day in their bed in the dark with ice on their head and belly.
It’s awful!
From being a professional athlete to being in a wheelchair, from being a fun mom to an ill parent who spends their day in their bed in the dark with ice on their head and belly.
It’s awful!
Brazilian singer Eva Rodrigues Praia Walkey, 40, has died after nearly 5 years battling severe Long COVID. She faced repeated hospitalisations, grueling treatment, and never regained her health. Her family confirmed she passed away on 18 November in Manaus, Brazil.
Source: archive.md/nxK4K
Source: archive.md/nxK4K
November 23, 2025 at 4:21 AM
People with Long Covid are getting worse and yes, some are passing away. We urgently need help and treatment.
Reposted by Too Long Covid
Brazilian singer Eva Rodrigues Praia Walkey, 40, has died after nearly 5 years battling severe Long COVID. She faced repeated hospitalisations, grueling treatment, and never regained her health. Her family confirmed she passed away on 18 November in Manaus, Brazil.
Source: archive.md/nxK4K
Source: archive.md/nxK4K
November 23, 2025 at 4:11 AM
Brazilian singer Eva Rodrigues Praia Walkey, 40, has died after nearly 5 years battling severe Long COVID. She faced repeated hospitalisations, grueling treatment, and never regained her health. Her family confirmed she passed away on 18 November in Manaus, Brazil.
Source: archive.md/nxK4K
Source: archive.md/nxK4K
Reposted by Too Long Covid
First H5N5 bird flu death, globally – but don't look to the CDC, HHS, or RFKjr for any remotely accurate advice.
Grays Harbor County resident dies from complications of avian influenza
For immediate release: Nov. 21, 2025 (25-140) Contact: DOH Communications The person was infected with the H5N5 virus; the risk to the public remains low OLYMPIA – A Grays Harbor County resident who w...
doh.wa.gov
November 22, 2025 at 8:21 PM
First H5N5 bird flu death, globally – but don't look to the CDC, HHS, or RFKjr for any remotely accurate advice.
Reposted by Too Long Covid
Novovax isn't available in Aotearoa either.
Everyone must have access to safe vaccination.
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Novavax is the safest option for those with Long COVID.
Please help bring back access to this excellent vaccination tool for all Canadians:
www.change.org/p/demand-acc...
Sign the Petition
Demand Access to NovaVax for All Canadians
www.change.org
November 22, 2025 at 10:55 PM
Novovax isn't available in Aotearoa either.
Reposted by Too Long Covid
Can even this government ignore 1000 schools?
Over 1000 schools say they will back Te Tiriti, after Government removes obligation
This law change has put Education Minister Erica Stanford under pressure, facing heat from schools, from parents and, unusually, supporters of the change.
www.stuff.co.nz
November 21, 2025 at 6:24 AM
Can even this government ignore 1000 schools?
Reposted by Too Long Covid
The question we should all be asking is, if cabinet can make clinical decisions for trans youth what is preventing them for making clinical decisions for other groups?
Over 75? No medical care for you. It's too expensive and not worthwhile.
Not working? Only life preserving treatment for you #nzpol
Over 75? No medical care for you. It's too expensive and not worthwhile.
Not working? Only life preserving treatment for you #nzpol
The Government’s decision to stop new prescriptions of puberty blockers for young people with gender dysphoria for at least six years has been called politically motivated and discriminatory.
‘Shockingly inappropriate overreach of politics’: Doctors slam puberty blocker pause
The Government’s decision to stop new prescriptions of puberty blockers for young people with gender dysphoria for at least six years has been called politically motivated and discriminatory.
dlvr.it
November 20, 2025 at 5:37 AM
The question we should all be asking is, if cabinet can make clinical decisions for trans youth what is preventing them for making clinical decisions for other groups?
Over 75? No medical care for you. It's too expensive and not worthwhile.
Not working? Only life preserving treatment for you #nzpol
Over 75? No medical care for you. It's too expensive and not worthwhile.
Not working? Only life preserving treatment for you #nzpol
Reposted by Too Long Covid
"The coveted Listeners’ Choice title, decided entirely by public vote, went to #BHN Big Hairy News, reflecting the show’s highly engaged audience across subscriptions and social channels."
November 20, 2025 at 3:47 AM
"The coveted Listeners’ Choice title, decided entirely by public vote, went to #BHN Big Hairy News, reflecting the show’s highly engaged audience across subscriptions and social channels."
What a bloody embarrassment of a Government!
Hey, Aotearoa New Zealand #nzpol. This vandalous National Party/NZ First/ACT coalition government has set us 'back on track' to being ridiculed by the world on the international stage again.
🙄🤬
#TooManyCows #ClimateCrisis
www.rnz.co.nz/news/politic...
🙄🤬
#TooManyCows #ClimateCrisis
www.rnz.co.nz/news/politic...
New Zealand awarded dubious 'Fossil of the Day' at COP30 climate talks
The government's decision to weaken methane emissions targets have garnered it the award for a fourth time, after avoiding it last year.
www.rnz.co.nz
November 20, 2025 at 1:33 AM
What a bloody embarrassment of a Government!
Reposted by Too Long Covid
What a dodgy fucking cunt this guy is. Why did NZLast support it in the first fucking place?! 🤬🤨🤬 #nzpol #OneTermGovernment
www.nzherald.co.nz/nz/politics/...
www.nzherald.co.nz/nz/politics/...
Peters promises to repeal two-day old Regulatory Standards Act
"We will campaign at the next election to repeal it," says NZ First leader.
www.nzherald.co.nz
November 20, 2025 at 1:22 AM
What a dodgy fucking cunt this guy is. Why did NZLast support it in the first fucking place?! 🤬🤨🤬 #nzpol #OneTermGovernment
www.nzherald.co.nz/nz/politics/...
www.nzherald.co.nz/nz/politics/...
None of this is a surprise. It's all laid out in Project 2025.
- Fund research specifically into the "negative effects" of gender-affirming care
- Directing federal agencies to adopt the view that gender is fixed at birth
- Banning gender-affirming care, including puberty blockers, for minors
- Fund research specifically into the "negative effects" of gender-affirming care
- Directing federal agencies to adopt the view that gender is fixed at birth
- Banning gender-affirming care, including puberty blockers, for minors
November 20, 2025 at 1:27 AM
None of this is a surprise. It's all laid out in Project 2025.
- Fund research specifically into the "negative effects" of gender-affirming care
- Directing federal agencies to adopt the view that gender is fixed at birth
- Banning gender-affirming care, including puberty blockers, for minors
- Fund research specifically into the "negative effects" of gender-affirming care
- Directing federal agencies to adopt the view that gender is fixed at birth
- Banning gender-affirming care, including puberty blockers, for minors