Shelley Jules
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
I took how to stop a coup training in 2020 before the election as we knew they had plans to steal the election…George Lakey did the training and it was excellent. Here he gives us some hope of what has worked before: wagingnonviolence.org/2025/01/can-...
Can nonviolent struggle defeat a dictator? This database emphatically says yes
The Global Nonviolent Action Database details some 40 cases of mass movements overcoming tyrants through strategic nonviolent campaigns.
wagingnonviolence.org
March 7, 2025 at 4:55 PM
I took how to stop a coup training in 2020 before the election as we knew they had plans to steal the election…George Lakey did the training and it was excellent. Here he gives us some hope of what has worked before: wagingnonviolence.org/2025/01/can-...
I’m participating in the Economic Boycott on Friday Feb 28th. I hope it’s possible to join us. We have the power to push back.
February 27, 2025 at 11:40 PM
I’m participating in the Economic Boycott on Friday Feb 28th. I hope it’s possible to join us. We have the power to push back.
We can and er must…https://www.theguardian.com/commentisfree/2025/feb/21/lessons-for-the-resistance-20-on-how-to-fight-back-against-trump?CMP=Share_iOSApp_Other
Lessons for the resistance 2.0 on how to fight back against Trump | Jan-Werner Müller
Defeatism and demoralisation are rampant in Trump’s second term. But we cannot give up
www.theguardian.com
February 21, 2025 at 5:32 PM
We can and er must…https://www.theguardian.com/commentisfree/2025/feb/21/lessons-for-the-resistance-20-on-how-to-fight-back-against-trump?CMP=Share_iOSApp_Other
This can work!
Want to learn more about the General Strike? Here’s our Welcome Packet. We’re so happy you’re here! #USprotests
docs.google.com/presentation...
docs.google.com/presentation...
GSUS Welcome Packet
The Packet Welcome to the resource hub for everything GSUS They came down on us because we had a grass-roots, real people's revolution, complete with the programs, complete with the unity, complete wi...
docs.google.com
February 14, 2025 at 4:56 PM
This can work!
This is important! Please share with any journalists you know that are doing the work to protect the truth.
Journalists, sign up for this free, hands-on digital security training being held in Washington, D.C.
docs.google.com/forms/d/1pIi...
docs.google.com/forms/d/1pIi...
February 12, 2025 at 9:01 PM
This is important! Please share with any journalists you know that are doing the work to protect the truth.
Reposted by Shelley Jules
Posted around NYC, Chicago, DC and other cities. Be creative. Do something!
February 10, 2025 at 7:07 PM
Posted around NYC, Chicago, DC and other cities. Be creative. Do something!
Reposted by Shelley Jules
"We initially were not going to do whole genome on the entire RECOVER cohort, but now, after a lot of lobbying by the scientists who are involved in RECOVER, most of the patients will have their genome sequenced."
(Most of the total 14,743 patients)
(Most of the total 14,743 patients)
January 25, 2025 at 6:50 PM
"We initially were not going to do whole genome on the entire RECOVER cohort, but now, after a lot of lobbying by the scientists who are involved in RECOVER, most of the patients will have their genome sequenced."
(Most of the total 14,743 patients)
(Most of the total 14,743 patients)
Reposted by Shelley Jules
One thing that isn’t talked about enough is how closely tied disability can be to homelessness. Many disabled people are forced into poverty in order to keep their medical benefits. By doing so, the income they receive isn’t enough to live off of. This isn’t a moral failing, it’s the system’s fault.
January 6, 2025 at 7:52 PM
One thing that isn’t talked about enough is how closely tied disability can be to homelessness. Many disabled people are forced into poverty in order to keep their medical benefits. By doing so, the income they receive isn’t enough to live off of. This isn’t a moral failing, it’s the system’s fault.
🤯👇🏻
Very important point for healthcare providers in @kkjetelina.bsky.social’s newsletter this morning.
Bird flu shows up positive on our standard flu A tests.
If someone is flu A+ but has conjunctivitis, is more sick than expected, or had exposure to birds/cows, consider bird flu.
Bird flu shows up positive on our standard flu A tests.
If someone is flu A+ but has conjunctivitis, is more sick than expected, or had exposure to birds/cows, consider bird flu.
January 7, 2025 at 7:10 PM
🤯👇🏻
Reposted by Shelley Jules
"Widespread use of metal caused estimated 2- to 3-point drop in IQ for nearly 180 years of Pax Romana"
Meanwhile, #Covid in 5 years:
"Participants with persistent symptoms had a 6-point loss in IQ, while those who had been admitted to an ICU experienced a 9-point loss in IQ."
Meanwhile, #Covid in 5 years:
"Participants with persistent symptoms had a 6-point loss in IQ, while those who had been admitted to an ICU experienced a 9-point loss in IQ."
January 7, 2025 at 5:29 AM
"Widespread use of metal caused estimated 2- to 3-point drop in IQ for nearly 180 years of Pax Romana"
Meanwhile, #Covid in 5 years:
"Participants with persistent symptoms had a 6-point loss in IQ, while those who had been admitted to an ICU experienced a 9-point loss in IQ."
Meanwhile, #Covid in 5 years:
"Participants with persistent symptoms had a 6-point loss in IQ, while those who had been admitted to an ICU experienced a 9-point loss in IQ."
Reposted by Shelley Jules
Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients www.mdpi.com/1648-9144/60... @scheibenbogen.bsky.social et al 2024
January 7, 2025 at 5:20 PM
Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients www.mdpi.com/1648-9144/60... @scheibenbogen.bsky.social et al 2024
It’s important to remember that the person who stole FB from the actual idea guys did so because he felt rejected by the hot women on campus. This guy has always shown a us who he is. An incel who got lucky and was rewarded for very inappropriate behavior.
January 7, 2025 at 4:42 PM
It’s important to remember that the person who stole FB from the actual idea guys did so because he felt rejected by the hot women on campus. This guy has always shown a us who he is. An incel who got lucky and was rewarded for very inappropriate behavior.
Reposted by Shelley Jules
A wilderness survival trainer spent years undercover, climbing the ranks of right-wing militias. He didn’t tell police or the FBI. He didn’t tell his family or friends. By @josh-kaplan.bsky.social
A Mole Infiltrated the Highest Ranks of American Militias. This Is What He Found.
Outraged by the Jan. 6 Capitol riot, a wilderness survival trainer spent years undercover climbing the ranks of right-wing militias. He didn’t tell police or the FBI. He didn’t tell family or friends....
www.propublica.org
January 4, 2025 at 3:00 PM
A wilderness survival trainer spent years undercover, climbing the ranks of right-wing militias. He didn’t tell police or the FBI. He didn’t tell his family or friends. By @josh-kaplan.bsky.social
Just donated to a few of these…my heart breaks at our failure as a society to stop this genocide. Shame on humanity. 🥲
Okay I cannot even keep track of the number of people who have lost things in the rain in Gaza last night so I’m going to make a thread of accounts I’ve shared before who have contacted me today
December 31, 2024 at 5:38 PM
Just donated to a few of these…my heart breaks at our failure as a society to stop this genocide. Shame on humanity. 🥲
Reposted by Shelley Jules
Received an unexpected influx of donations 🥲 so it is very possible that the fundraising goal will be met today! $522 left!
gofund.me/a24782e1
It looks like I won’t make my goal by Jan 1 but I have one more week until I may have to cancel my appt. I’m 99% of the way there. Please share or contribute if you can!
It looks like I won’t make my goal by Jan 1 but I have one more week until I may have to cancel my appt. I’m 99% of the way there. Please share or contribute if you can!
Donate to Critical Healthcare Support for Victoria, organized by Vee Copeland
Hello everyone,
My name is Victoria and thank you for checking out my gofun… Vee Copeland needs your support for Critical Healthcare Support for Victoria
gofund.me
December 31, 2024 at 2:48 PM
Received an unexpected influx of donations 🥲 so it is very possible that the fundraising goal will be met today! $522 left!
🥲
BREAKING: Jimmy Carter has died at 100, AJC reports. www.ajc.com/news/former-...
Former U.S. President Jimmy Carter, 100, dies
Former U.S. President Jimmy Carter has died at home in Georgia.
www.ajc.com
December 29, 2024 at 9:13 PM
🥲
Reposted by Shelley Jules
very, very sympathetic to this argument from @ryanlcooper.com prospect.org/politics/202...
Democrats Lost the Propaganda War
The party used up about $5 billion on political ads in 2024. There’s a better way.
prospect.org
December 12, 2024 at 2:47 PM
very, very sympathetic to this argument from @ryanlcooper.com prospect.org/politics/202...
🤓🤓🤓 100% accuracy in sorting who has long covid or NOT.
As frustrating as it is to have a chronic illness that doctors can’t help (most don’t even understand what it is) - the speed of research data coming out now is encouraging. #LongCovid
As frustrating as it is to have a chronic illness that doctors can’t help (most don’t even understand what it is) - the speed of research data coming out now is encouraging. #LongCovid
Important #LongCovid pilot study
"72 genes were identified as significantly up- or down-regulated in Long COVID samples, and the vast majority were downregulated. The most significantly up- or downregulated genes fell into 2 main categories, either associated with cell survival or with inflammation"
"72 genes were identified as significantly up- or down-regulated in Long COVID samples, and the vast majority were downregulated. The most significantly up- or downregulated genes fell into 2 main categories, either associated with cell survival or with inflammation"
Our new Long COVID pilot study found two genes whose mRNAs separated a small cohort of Long COVID from recovered post COVID blood samples with 100% accuracy: www.frontiersin.org/journals/imm...
December 3, 2024 at 8:02 PM
🤓🤓🤓 100% accuracy in sorting who has long covid or NOT.
As frustrating as it is to have a chronic illness that doctors can’t help (most don’t even understand what it is) - the speed of research data coming out now is encouraging. #LongCovid
As frustrating as it is to have a chronic illness that doctors can’t help (most don’t even understand what it is) - the speed of research data coming out now is encouraging. #LongCovid
💯🙌💯
"Most of the disabled people I know who have long Covid probably read more studies about it than most doctors."
Whewww this whole article is great but a lot of y'all need to internalize this line.
Yes, most of us know more than your doctor about long covid. That's not hubris talking. That's facts.
Whewww this whole article is great but a lot of y'all need to internalize this line.
Yes, most of us know more than your doctor about long covid. That's not hubris talking. That's facts.
“having to convince people that accessibility and disability justice are social justice issues in the first place is incredibly dehumanizing and exhausting and usually very fruitless."
www.theguardian.com/wellness/ng-...
www.theguardian.com/wellness/ng-...
December 3, 2024 at 3:31 AM
💯🙌💯
Great overview of findings of different bacteria, viruses and dementia/Alzheimer’s. Even a mention of using the BCG vaccine to boost the immune system. #LongCovid #MECFS @remissionbiome.bsky.social @renegaderesearch.bsky.social www.theguardian.com/lifeandstyle...
The brain microbiome: could understanding it help prevent dementia?
Long thought to be sterile, our brains are now believed to harbour all sorts of micro-organisms, from bacteria to fungi. How big a part do they play in Alzheimer’s and similar diseases?
www.theguardian.com
December 2, 2024 at 6:26 AM
Great overview of findings of different bacteria, viruses and dementia/Alzheimer’s. Even a mention of using the BCG vaccine to boost the immune system. #LongCovid #MECFS @remissionbiome.bsky.social @renegaderesearch.bsky.social www.theguardian.com/lifeandstyle...
Reposted by Shelley Jules
Oh this is exciting to see!
This whole project was started and run by LC/ME patient and PharmD Martha Eckey, most of you know her as LongCovidPharmD
I helped screen & edit the early versions if the survey, which was v long but comprehensive!
1000’s of you took part!
This whole project was started and run by LC/ME patient and PharmD Martha Eckey, most of you know her as LongCovidPharmD
I helped screen & edit the early versions if the survey, which was v long but comprehensive!
1000’s of you took part!
Patient-Reported Treatment Outcomes in ME/CFS and Long COVID https://www.medrxiv.org/content/10.1101/2024.11.27.24317656v1
Patient-Reported Treatment Outcomes in ME/CFS and Long COVID https://www.medrxiv.org/content/10.1101/2024.11.27.24317656v1
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID are persistent multi-syst
www.medrxiv.org
December 1, 2024 at 9:27 AM
Oh this is exciting to see!
This whole project was started and run by LC/ME patient and PharmD Martha Eckey, most of you know her as LongCovidPharmD
I helped screen & edit the early versions if the survey, which was v long but comprehensive!
1000’s of you took part!
This whole project was started and run by LC/ME patient and PharmD Martha Eckey, most of you know her as LongCovidPharmD
I helped screen & edit the early versions if the survey, which was v long but comprehensive!
1000’s of you took part!
Reposted by Shelley Jules
New RCT of oxaloacetate in ME/CFS at Bateman Horne was just published – it showed some positive effect on fatigue, but they used the Chalder Fatigue Scale. And it is still so expensive that I don't know if it's even worth trying.
www.frontiersin.org/journals/neu...
www.frontiersin.org/journals/neu...
Frontiers | RESTORE ME: a RCT of oxaloacetate for improving fatigue in patients with myalgic encephalomyelitis/chronic fatigue syndrome
BackgroundThe energy metabolite oxaloacetate is significantly lower in the blood plasma of ME/CFS subjects. A previous open-label trial with oxaloacetate sup...
www.frontiersin.org
November 30, 2024 at 2:17 AM
New RCT of oxaloacetate in ME/CFS at Bateman Horne was just published – it showed some positive effect on fatigue, but they used the Chalder Fatigue Scale. And it is still so expensive that I don't know if it's even worth trying.
www.frontiersin.org/journals/neu...
www.frontiersin.org/journals/neu...
Reposted by Shelley Jules
#LongCOVID RESEARCH looking for participants!
Research opportunity on long COVID, employment, & disability benefits for recruitment. This research is led by Deborah Lefkowitz, PhD at the University of California, Riverside, with a fellowship supported by the Social Security Administration. (1/4) 🧵
Research opportunity on long COVID, employment, & disability benefits for recruitment. This research is led by Deborah Lefkowitz, PhD at the University of California, Riverside, with a fellowship supported by the Social Security Administration. (1/4) 🧵
November 26, 2024 at 3:01 PM
#LongCOVID RESEARCH looking for participants!
Research opportunity on long COVID, employment, & disability benefits for recruitment. This research is led by Deborah Lefkowitz, PhD at the University of California, Riverside, with a fellowship supported by the Social Security Administration. (1/4) 🧵
Research opportunity on long COVID, employment, & disability benefits for recruitment. This research is led by Deborah Lefkowitz, PhD at the University of California, Riverside, with a fellowship supported by the Social Security Administration. (1/4) 🧵
Reposted by Shelley Jules
Ah, this is great. Super-simple to use, works immediately, really clear format. Thank you @davidsainez.com and skywriter.blue. skywriter.blue
skywriter.blue
Convert Bluesky threads into shareable web pages.
skywriter.blue
November 25, 2024 at 9:17 AM
Ah, this is great. Super-simple to use, works immediately, really clear format. Thank you @davidsainez.com and skywriter.blue. skywriter.blue