Shelley Jules
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
Good to hear it wasn’t as bad as you feared. I’m coming up soon!
December 14, 2024 at 6:38 PM
Good to hear it wasn’t as bad as you feared. I’m coming up soon!
Check out our YouTube for some of our past sessions - youtube.com/@remissionbi...
RemissionBiome
Community science project
youtube.com
December 14, 2024 at 6:19 PM
Check out our YouTube for some of our past sessions - youtube.com/@remissionbi...
We are doing this at @renegaderesearch.bsky.social with the clinician’s round tables - we’d love to have more support for this program that was @isabelrb.bsky.social idea. Experts are eager to share their expertise so more patients can get help….1/2
RemissionBiome
Community science project
youtube.com
December 14, 2024 at 6:19 PM
We are doing this at @renegaderesearch.bsky.social with the clinician’s round tables - we’d love to have more support for this program that was @isabelrb.bsky.social idea. Experts are eager to share their expertise so more patients can get help….1/2
The gap between our reality & what our friends/ family understand is one of the hardest parts for me. Why am I also responsible for educating them (often they fight back as if I’m sharing opinions vs facts) on top of being my own medical provider & researcher? Media, govt, society failed us. 😱
December 12, 2024 at 7:46 PM
The gap between our reality & what our friends/ family understand is one of the hardest parts for me. Why am I also responsible for educating them (often they fight back as if I’m sharing opinions vs facts) on top of being my own medical provider & researcher? Media, govt, society failed us. 😱
😱🤣😱🤣😱🤣😱🤣 - one tiny line. Welcome to our world medical team (how clueless!). I refuse to fill things like out now. I just hand over a 3 page pdf.
December 10, 2024 at 5:21 AM
😱🤣😱🤣😱🤣😱🤣 - one tiny line. Welcome to our world medical team (how clueless!). I refuse to fill things like out now. I just hand over a 3 page pdf.