Sarah O'Connell
@sarahoc1.bsky.social
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Pinned
Sarah O'Connell
@sarahoc1.bsky.social
· Jun 26
As predicated;.
Ppl no longer test for #Covid ➡️
Ppl develop #LongCovid but don't know that's what it is ➡️
Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement.
If they're 'lucky' will get diagnosis of PVFS..
Ppl no longer test for #Covid ➡️
Ppl develop #LongCovid but don't know that's what it is ➡️
Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement.
If they're 'lucky' will get diagnosis of PVFS..
As predicated;.
Ppl no longer test for #Covid ➡️
Ppl develop #LongCovid but don't know that's what it is ➡️
Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement.
If they're 'lucky' will get diagnosis of PVFS..
Ppl no longer test for #Covid ➡️
Ppl develop #LongCovid but don't know that's what it is ➡️
Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement.
If they're 'lucky' will get diagnosis of PVFS..
June 26, 2025 at 3:46 AM
As predicated;.
Ppl no longer test for #Covid ➡️
Ppl develop #LongCovid but don't know that's what it is ➡️
Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement.
If they're 'lucky' will get diagnosis of PVFS..
Ppl no longer test for #Covid ➡️
Ppl develop #LongCovid but don't know that's what it is ➡️
Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement.
If they're 'lucky' will get diagnosis of PVFS..
Reposted by Sarah O'Connell
JAMA Pediatrics published a patient info page about Long COVID in children… “Long COVID is common, affecting up to 10 to 20 per cent of children with a history of COVID-19. … this is higher than the number of children with asthma…”
TY @blakemurdoch.bsky.social !
edmontonjournal.com/opinion/colu...
TY @blakemurdoch.bsky.social !
edmontonjournal.com/opinion/colu...
Opinion: UCP's COVID vaccine cuts put children at serious risk
A policy of ending pediatric COVID vaccination will disable, hospitalize and even kill Albertan children, leaving blood on Smith’s hands.
edmontonjournal.com
June 16, 2025 at 8:21 PM
JAMA Pediatrics published a patient info page about Long COVID in children… “Long COVID is common, affecting up to 10 to 20 per cent of children with a history of COVID-19. … this is higher than the number of children with asthma…”
TY @blakemurdoch.bsky.social !
edmontonjournal.com/opinion/colu...
TY @blakemurdoch.bsky.social !
edmontonjournal.com/opinion/colu...
Reposted by Sarah O'Connell
📣 1/2. Minutes available from joint meeting of APPG on #LongCovid & APPG on #ME!
🔴 Stephen Timms MP (DWP) spoke on proposed welfare reforms, with APPGs raising concerns
🔴 Research talks from Prof. Danny Altmann, Dr. Binita Kane, Prof. Chris Ponting & Prof. David Strain
Link ⬇️
🔴 Stephen Timms MP (DWP) spoke on proposed welfare reforms, with APPGs raising concerns
🔴 Research talks from Prof. Danny Altmann, Dr. Binita Kane, Prof. Chris Ponting & Prof. David Strain
Link ⬇️
June 17, 2025 at 12:07 PM
📣 1/2. Minutes available from joint meeting of APPG on #LongCovid & APPG on #ME!
🔴 Stephen Timms MP (DWP) spoke on proposed welfare reforms, with APPGs raising concerns
🔴 Research talks from Prof. Danny Altmann, Dr. Binita Kane, Prof. Chris Ponting & Prof. David Strain
Link ⬇️
🔴 Stephen Timms MP (DWP) spoke on proposed welfare reforms, with APPGs raising concerns
🔴 Research talks from Prof. Danny Altmann, Dr. Binita Kane, Prof. Chris Ponting & Prof. David Strain
Link ⬇️
Join us this Sunday for our monthly support meeting online for spouses/partners and carers.
#LongCovid
#LongCovid
June 19, 2025 at 9:55 AM
Reposted by Sarah O'Connell
1/4 📢 The official minutes from the first joint ME and Long Covid APPG meeting are now available!
🔗 appgme.co.uk/meetings/min...
🔗 appgme.co.uk/meetings/min...
June 17, 2025 at 12:14 PM
1/4 📢 The official minutes from the first joint ME and Long Covid APPG meeting are now available!
🔗 appgme.co.uk/meetings/min...
🔗 appgme.co.uk/meetings/min...
Reposted by Sarah O'Connell
The Trump Organization's newly-announced T1 smartphone will likely be made in China, experts said, despite claims the device will be manufactured in the U.S.
Trump's $499 smartphone will likely be made in China
The Trump Organization's newly-announced T1 smartphone will likely be made in China, experts said, despite claims the device will be manufactured in the U.S.
cnb.cx
June 17, 2025 at 12:00 PM
The Trump Organization's newly-announced T1 smartphone will likely be made in China, experts said, despite claims the device will be manufactured in the U.S.
Reposted by Sarah O'Connell
The SAVE ACT suppresses the votes of married women. The GOP veils this horrific bill saying it prevents non-citizens from voting. That’s a lie. Non-citizens are already barred from voting.
This bill is intended to strip away a married woman’s rights.
#Pinks #OneV1
⬇️
www.forbes.com/sites/hollyc...
This bill is intended to strip away a married woman’s rights.
#Pinks #OneV1
⬇️
www.forbes.com/sites/hollyc...
How The SAVE Act Could Impact Married Women And Other Voters
Congress is potentially voting this week on a bill that would make it harder for millions of Americans to exercise their right to vote.
www.forbes.com
June 17, 2025 at 11:55 AM
The SAVE ACT suppresses the votes of married women. The GOP veils this horrific bill saying it prevents non-citizens from voting. That’s a lie. Non-citizens are already barred from voting.
This bill is intended to strip away a married woman’s rights.
#Pinks #OneV1
⬇️
www.forbes.com/sites/hollyc...
This bill is intended to strip away a married woman’s rights.
#Pinks #OneV1
⬇️
www.forbes.com/sites/hollyc...
Reposted by Sarah O'Connell
Reposted by Sarah O'Connell
PAGING RFK Jr— “The assumption that children and teens recover completely from COVID has been shattered by mounting evidence that their developing respiratory systems are uniquely vulnerable to long-term damage.”
rollingout.com/2025/06/03/l...
rollingout.com/2025/06/03/l...
Long COVID destroys teenage lungs in ways doctors never saw
Long COVID destroys teenage lungs in ways doctors never saw - silent damage persists months after mild infections in developing adolescents.
rollingout.com
June 4, 2025 at 7:06 AM
PAGING RFK Jr— “The assumption that children and teens recover completely from COVID has been shattered by mounting evidence that their developing respiratory systems are uniquely vulnerable to long-term damage.”
rollingout.com/2025/06/03/l...
rollingout.com/2025/06/03/l...
Reposted by Sarah O'Connell
Long COVID is now the most prevalent chronic disease in American kids, surpassing ASTHMA. Children/ teens are NOT immune to damage from covid.
"Long COVID is common, affecting up to 10% to 20% of children with a history of COVID-19."
That means ANY covid infection.
jamanetwork.com/journals/jam...
"Long COVID is common, affecting up to 10% to 20% of children with a history of COVID-19."
That means ANY covid infection.
jamanetwork.com/journals/jam...
Long COVID in Young Children, School-Aged Children, and Teens
This JAMA Pediatrics Patient Page describes the symptoms of long COVID in children.
jamanetwork.com
June 3, 2025 at 3:30 AM
Long COVID is now the most prevalent chronic disease in American kids, surpassing ASTHMA. Children/ teens are NOT immune to damage from covid.
"Long COVID is common, affecting up to 10% to 20% of children with a history of COVID-19."
That means ANY covid infection.
jamanetwork.com/journals/jam...
"Long COVID is common, affecting up to 10% to 20% of children with a history of COVID-19."
That means ANY covid infection.
jamanetwork.com/journals/jam...
Reposted by Sarah O'Connell
“3 of the study’s authors write that almost 6 million US children could be affected by long COVID, which is greater than number of kids with asthma”
6 million chronically ill kids
How many will be gaslit? Pushed to play through the pain? Told they’re “fine”?
What a great time to restrict vaccines
6 million chronically ill kids
How many will be gaslit? Pushed to play through the pain? Told they’re “fine”?
What a great time to restrict vaccines
Study Reveals Symptoms Of Long COVID In Young Kids – Here's What To Look Out For
The authors say it’s proof a “one-size-fits-all” approach doesn’t work with this condition.
www.iflscience.com
May 28, 2025 at 3:37 AM
“3 of the study’s authors write that almost 6 million US children could be affected by long COVID, which is greater than number of kids with asthma”
6 million chronically ill kids
How many will be gaslit? Pushed to play through the pain? Told they’re “fine”?
What a great time to restrict vaccines
6 million chronically ill kids
How many will be gaslit? Pushed to play through the pain? Told they’re “fine”?
What a great time to restrict vaccines
Reposted by Sarah O'Connell
What about pregnant woman? #COVID infection in pregnancy is shown to impact fetal brain development via maternal and placental immune activation. Several adverse neurodevelopmental outcomes have been reported. #NeuroCovid #LongCovidKids
www.cell.com/trends/molec...
www.cell.com/trends/molec...
May 28, 2025 at 1:24 AM
What about pregnant woman? #COVID infection in pregnancy is shown to impact fetal brain development via maternal and placental immune activation. Several adverse neurodevelopmental outcomes have been reported. #NeuroCovid #LongCovidKids
www.cell.com/trends/molec...
www.cell.com/trends/molec...
Reposted by Sarah O'Connell
👏👏👏 to LCAI’s co-founder @sarahoc1.bsky.social and the other mothers of children with #LongCovid in this excellent article
‘Between 5% and 10% of children and adolescents who get covid develop long covid.’
#TreatLongCovid #speirgorm #LongCovidKids #LongCovidAwareness #LongCovidIreland
‘Between 5% and 10% of children and adolescents who get covid develop long covid.’
#TreatLongCovid #speirgorm #LongCovidKids #LongCovidAwareness #LongCovidIreland
April 29, 2025 at 8:46 PM
👏👏👏 to LCAI’s co-founder @sarahoc1.bsky.social and the other mothers of children with #LongCovid in this excellent article
‘Between 5% and 10% of children and adolescents who get covid develop long covid.’
#TreatLongCovid #speirgorm #LongCovidKids #LongCovidAwareness #LongCovidIreland
‘Between 5% and 10% of children and adolescents who get covid develop long covid.’
#TreatLongCovid #speirgorm #LongCovidKids #LongCovidAwareness #LongCovidIreland
Reposted by Sarah O'Connell
Every work place, every classroom, every pub a d every event space should have HEPA filters.
They can be fitted to most air con systems.
They can be fitted to most air con systems.
New #hospital study:
‘Air cleaners showed an effective reduction of air viral load, reaching 98.1 %.’ ‼️
www.sciencedirect.com/science/arti...
#CleanAir #SpeirGorm #LongCovid #PublicHealthIreland @cleanairie.bsky.social
‘Air cleaners showed an effective reduction of air viral load, reaching 98.1 %.’ ‼️
www.sciencedirect.com/science/arti...
#CleanAir #SpeirGorm #LongCovid #PublicHealthIreland @cleanairie.bsky.social
“SARS-CoV-2 airborne detection within different departments of a COVID-19 hospital building and evaluation of air cleaners in air viral load reduction”
The pandemic of COVID-19 has brought in light the necessity for the development of novel detection methods for airborne transmitted pathogens, and the…
www.sciencedirect.com
April 25, 2025 at 3:32 PM
Every work place, every classroom, every pub a d every event space should have HEPA filters.
They can be fitted to most air con systems.
They can be fitted to most air con systems.
Our monthly online support meeting (at LCAI) for spouses/partners and carers is tomorrow, Sunday at 7pm Irish time.
Follow LCAI at @lcaireland.bsky.social
Reposts much appreciated
#LongCovid
#pwME #pwLC
#MECFS #LongCovidKids #Ireland #Irish #ChronicIllness
Follow LCAI at @lcaireland.bsky.social
Reposts much appreciated
#LongCovid
#pwME #pwLC
#MECFS #LongCovidKids #Ireland #Irish #ChronicIllness
‼️Reminder‼️
📆 Zoom support meeting for spouses/carers this Sunday 28th April at 7pm.
If you're already on our email list you will have received the link
Otherwise you can request link by emailing us at longcovidadvocacyireland@gmail.com
#LongCovid #SpeirGorm #pwLC #peersupport
📆 Zoom support meeting for spouses/carers this Sunday 28th April at 7pm.
If you're already on our email list you will have received the link
Otherwise you can request link by emailing us at longcovidadvocacyireland@gmail.com
#LongCovid #SpeirGorm #pwLC #peersupport
April 26, 2025 at 7:47 AM
Our monthly online support meeting (at LCAI) for spouses/partners and carers is tomorrow, Sunday at 7pm Irish time.
Follow LCAI at @lcaireland.bsky.social
Reposts much appreciated
#LongCovid
#pwME #pwLC
#MECFS #LongCovidKids #Ireland #Irish #ChronicIllness
Follow LCAI at @lcaireland.bsky.social
Reposts much appreciated
#LongCovid
#pwME #pwLC
#MECFS #LongCovidKids #Ireland #Irish #ChronicIllness
#LongCovid
Free event Q&A
Free event Q&A
Still some places left for this session on Monday ⤵️
🔔REMINDER 🔔
FREE ONLINE EVENT
Monday 28th April ⏰ 7pm
Q&A session with @ciarawrightphd.bsky.social of Positive Nutrition, on Functional Medicine testing re. #LongCovid
Note - attendees limited to 100
Register at..
us06web.zoom.us/meeting/regist…#speirgormrm
FREE ONLINE EVENT
Monday 28th April ⏰ 7pm
Q&A session with @ciarawrightphd.bsky.social of Positive Nutrition, on Functional Medicine testing re. #LongCovid
Note - attendees limited to 100
Register at..
us06web.zoom.us/meeting/regist…#speirgormrm
April 26, 2025 at 7:44 AM
#LongCovid
Free event Q&A
Free event Q&A
🔔 Reminder 🔔
Our next online support meeting for patients (& parents) is this coming Monday 14th April at 7pm via zoom.
If you're on our mailing list you'll automatically receive the link.
If not, pls contact us at longcovidadvocacyireland@gmail.com
#LongCovid #Support #pwLC #Ireland
#SpeirGorm
Our next online support meeting for patients (& parents) is this coming Monday 14th April at 7pm via zoom.
If you're on our mailing list you'll automatically receive the link.
If not, pls contact us at longcovidadvocacyireland@gmail.com
#LongCovid #Support #pwLC #Ireland
#SpeirGorm
April 10, 2025 at 8:20 PM
Reposted by Sarah O'Connell
“A study in Finland found air purifiers in day cares reduced children’s illnesses by 30%”
Clean air in schools & childcare is a no brainer to prevent airborne diseases.. so that children are in school & parents are at work. And it’s the law now in Ireland
www.irishexaminer.com/opinion/comm...
Clean air in schools & childcare is a no brainer to prevent airborne diseases.. so that children are in school & parents are at work. And it’s the law now in Ireland
www.irishexaminer.com/opinion/comm...
Dáil air is filtered while our children continue to get sick at school
The ongoing impact of covid infection is very real, but we still haven't managed the simplest mitigation for our children
www.irishexaminer.com
April 3, 2025 at 2:54 PM
“A study in Finland found air purifiers in day cares reduced children’s illnesses by 30%”
Clean air in schools & childcare is a no brainer to prevent airborne diseases.. so that children are in school & parents are at work. And it’s the law now in Ireland
www.irishexaminer.com/opinion/comm...
Clean air in schools & childcare is a no brainer to prevent airborne diseases.. so that children are in school & parents are at work. And it’s the law now in Ireland
www.irishexaminer.com/opinion/comm...
Reposted by Sarah O'Connell
Breast cancer survival rate in 1920: 5%
Survival rate in 1960: 25%
Survival rate in 1990: 64-80%
Survival rate in 2025: 91%
Research did this. Cutting funds to the NIH, cutting HHS staff, and freezing federal funds to academic institutions will take us back to 1920. Genocide for billionaire tax cuts
Survival rate in 1960: 25%
Survival rate in 1990: 64-80%
Survival rate in 2025: 91%
Research did this. Cutting funds to the NIH, cutting HHS staff, and freezing federal funds to academic institutions will take us back to 1920. Genocide for billionaire tax cuts
April 3, 2025 at 7:52 PM
Breast cancer survival rate in 1920: 5%
Survival rate in 1960: 25%
Survival rate in 1990: 64-80%
Survival rate in 2025: 91%
Research did this. Cutting funds to the NIH, cutting HHS staff, and freezing federal funds to academic institutions will take us back to 1920. Genocide for billionaire tax cuts
Survival rate in 1960: 25%
Survival rate in 1990: 64-80%
Survival rate in 2025: 91%
Research did this. Cutting funds to the NIH, cutting HHS staff, and freezing federal funds to academic institutions will take us back to 1920. Genocide for billionaire tax cuts
Reposted by Sarah O'Connell
🧵
Good to see this article with some interesting people from the field quoted (e.g. Lipkin, Pollack, Sieverts, @exceedhergrasp1.bsky.social):
"Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again"
www.salon.com/2025/04/01/a...
#MEcfs #LongCovid
1/
Good to see this article with some interesting people from the field quoted (e.g. Lipkin, Pollack, Sieverts, @exceedhergrasp1.bsky.social):
"Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again"
www.salon.com/2025/04/01/a...
#MEcfs #LongCovid
1/
April 2, 2025 at 4:59 PM
🧵
Good to see this article with some interesting people from the field quoted (e.g. Lipkin, Pollack, Sieverts, @exceedhergrasp1.bsky.social):
"Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again"
www.salon.com/2025/04/01/a...
#MEcfs #LongCovid
1/
Good to see this article with some interesting people from the field quoted (e.g. Lipkin, Pollack, Sieverts, @exceedhergrasp1.bsky.social):
"Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again"
www.salon.com/2025/04/01/a...
#MEcfs #LongCovid
1/
Reposted by Sarah O'Connell
Great piece in @washingtonpost.com:
“The risk of #LongCovid remains:
@erictopol.bsky.social.. said he knows people who have been infected within the last three to four months who have long covid. ‘It’s nonstop. People are still getting it,’ he said.”
“The risk of #LongCovid remains:
@erictopol.bsky.social.. said he knows people who have been infected within the last three to four months who have long covid. ‘It’s nonstop. People are still getting it,’ he said.”
April 1, 2025 at 6:48 PM
Great piece in @washingtonpost.com:
“The risk of #LongCovid remains:
@erictopol.bsky.social.. said he knows people who have been infected within the last three to four months who have long covid. ‘It’s nonstop. People are still getting it,’ he said.”
“The risk of #LongCovid remains:
@erictopol.bsky.social.. said he knows people who have been infected within the last three to four months who have long covid. ‘It’s nonstop. People are still getting it,’ he said.”
Reposted by Sarah O'Connell
Reducing the Risk of Long COVID in Kids: Why Reinfection Matters and What We Can Do.
By The John Snow Project @johnsnowproject.bsky.social
johnsnowproject.org/primers/redu...
By The John Snow Project @johnsnowproject.bsky.social
johnsnowproject.org/primers/redu...
Reducing the Risk of Long COVID in Kids: Why Reinfection Matters and What We Can Do
Children who get COVID-19 again are more likely to experience long-term issues.
johnsnowproject.org
April 3, 2025 at 11:03 PM
Reducing the Risk of Long COVID in Kids: Why Reinfection Matters and What We Can Do.
By The John Snow Project @johnsnowproject.bsky.social
johnsnowproject.org/primers/redu...
By The John Snow Project @johnsnowproject.bsky.social
johnsnowproject.org/primers/redu...
Reposted by Sarah O'Connell
(1/4) Long COVID showed me the bottom of American healthcare. My reporting for The Atlantic is out today.
www.theatlantic.com/health/archi...
www.theatlantic.com/health/archi...
Long COVID Showed Me the Bottom of American Health Care
Access to clinics has only gotten patchier as attention to the disease has faded.
www.theatlantic.com
April 1, 2025 at 9:29 PM
(1/4) Long COVID showed me the bottom of American healthcare. My reporting for The Atlantic is out today.
www.theatlantic.com/health/archi...
www.theatlantic.com/health/archi...
Reposted by Sarah O'Connell
Important to also remember that getting Covid once a year is common, so this effect may be essentially continuous. Add in the risk of Long Covid with each infection, and it's clear that global population health will inexorably decrease as time passes.
www.cidrap.umn.edu/covid-19/cov...
www.cidrap.umn.edu/covid-19/cov...
COVID-19 may put patients at risk for other infections for at least 1 year
www.cidrap.umn.edu
April 2, 2025 at 10:34 PM
Important to also remember that getting Covid once a year is common, so this effect may be essentially continuous. Add in the risk of Long Covid with each infection, and it's clear that global population health will inexorably decrease as time passes.
www.cidrap.umn.edu/covid-19/cov...
www.cidrap.umn.edu/covid-19/cov...