loscharlos
@loscharlos.bsky.social
😎🌁🎷 #LongCovid March 2020 😵💫
Reposted by loscharlos
Today is the last day to support our matching gift campaign — a few generous donors are doubling all donations up to $100,000!
Check out the highlights of our 2025 work in the thread below, and help us keep our work rolling through 2026.
Support: patientresearchcovid19.com?form=FUNYUWT...
Check out the highlights of our 2025 work in the thread below, and help us keep our work rolling through 2026.
Support: patientresearchcovid19.com?form=FUNYUWT...
December 31, 2025 at 10:01 PM
Today is the last day to support our matching gift campaign — a few generous donors are doubling all donations up to $100,000!
Check out the highlights of our 2025 work in the thread below, and help us keep our work rolling through 2026.
Support: patientresearchcovid19.com?form=FUNYUWT...
Check out the highlights of our 2025 work in the thread below, and help us keep our work rolling through 2026.
Support: patientresearchcovid19.com?form=FUNYUWT...
Reposted by loscharlos
This thread shows the extraordinary work that the Patient-Led Research Collaborative (working on Long COVID and other infection-associated chronic conditions) has done, incl. scientific work that has challenged and massively improved the research that people without Long COVID do on the disease 1/
Thank you to everyone who made our work possible this year! Here's a thread on some of the highlights from PLRC's research, advocacy and education efforts in 2025.
All of this work is carried out by a team living with #LongCovid 🧵 /1
All of this work is carried out by a team living with #LongCovid 🧵 /1
December 30, 2025 at 11:08 PM
This thread shows the extraordinary work that the Patient-Led Research Collaborative (working on Long COVID and other infection-associated chronic conditions) has done, incl. scientific work that has challenged and massively improved the research that people without Long COVID do on the disease 1/
Reposted by loscharlos
Thank you to everyone who made our work possible this year! Here's a thread on some of the highlights from PLRC's research, advocacy and education efforts in 2025.
All of this work is carried out by a team living with #LongCovid 🧵 /1
All of this work is carried out by a team living with #LongCovid 🧵 /1
December 30, 2025 at 10:33 PM
Thank you to everyone who made our work possible this year! Here's a thread on some of the highlights from PLRC's research, advocacy and education efforts in 2025.
All of this work is carried out by a team living with #LongCovid 🧵 /1
All of this work is carried out by a team living with #LongCovid 🧵 /1
Reposted by loscharlos
🆘No other outlet is reporting on the Long COVID crisis with the compassion or veracity of @thesicktimes.org.
💰But they need your help to continue this work - please consider donating or, even better, becoming a monthly supporter. Some of my favourite work from this year includes...
💰But they need your help to continue this work - please consider donating or, even better, becoming a monthly supporter. Some of my favourite work from this year includes...
We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters.
The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
December 21, 2025 at 4:46 PM
🆘No other outlet is reporting on the Long COVID crisis with the compassion or veracity of @thesicktimes.org.
💰But they need your help to continue this work - please consider donating or, even better, becoming a monthly supporter. Some of my favourite work from this year includes...
💰But they need your help to continue this work - please consider donating or, even better, becoming a monthly supporter. Some of my favourite work from this year includes...
Reposted by loscharlos
@thesicktimes.org is one of the only newsrooms dedicated to widescale coverage of #LongCOVID. They need our support in their end of year fundraiser.
Through their support, I published two major stories this year.
1/🧵
bsky.app/profile/thes...
Through their support, I published two major stories this year.
1/🧵
bsky.app/profile/thes...
The Sick Times (@thesicktimes.org)
We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters.…
bsky.app
December 22, 2025 at 2:00 PM
@thesicktimes.org is one of the only newsrooms dedicated to widescale coverage of #LongCOVID. They need our support in their end of year fundraiser.
Through their support, I published two major stories this year.
1/🧵
bsky.app/profile/thes...
Through their support, I published two major stories this year.
1/🧵
bsky.app/profile/thes...
Reposted by loscharlos
I contributed to @thesicktimes.org as a holiday gift to myself.
@thesicktimes.org is one of the only newsrooms dedicated to widescale coverage of #LongCOVID. They need our support in their end of year fundraiser.
Through their support, I published two major stories this year.
1/🧵
bsky.app/profile/thes...
Through their support, I published two major stories this year.
1/🧵
bsky.app/profile/thes...
The Sick Times (@thesicktimes.org)
We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters.…
bsky.app
December 22, 2025 at 2:25 PM
I contributed to @thesicktimes.org as a holiday gift to myself.
Reposted by loscharlos
Covid isn’t mild & Long Covid isn’t a decreasing threat
A new RECOVER study of 6.4M health records shows Long COVID risk has not decreased from 2020–2024. Incidence stayed stable across variants, reinforcing Long COVID as an ongoing public health priority.
Read the study: doi.org/10.1093/cid/...
Read the study: doi.org/10.1093/cid/...
December 11, 2025 at 8:03 AM
Covid isn’t mild & Long Covid isn’t a decreasing threat
Reposted by loscharlos
This is our last news feature of the year. Help us publish more stories like it in 2026 by contributing to or sharing our end-of-year fundraiser! the-sick-times.fundjournalism.org/donate/
Join | The Sick Times
The Sick Times is supported by people like you. Support The Sick Times today.
the-sick-times.fundjournalism.org
December 23, 2025 at 3:39 PM
This is our last news feature of the year. Help us publish more stories like it in 2026 by contributing to or sharing our end-of-year fundraiser! the-sick-times.fundjournalism.org/donate/
Reposted by loscharlos
Today @thesicktimes.org: Two companies recently debuted AI tools for people with Long COVID. Some people find them helpful for managing symptoms and following research; others are concerned about the technology.
By @ravindranize.bsky.social: thesicktimes.org/2025/12/23/n...
By @ravindranize.bsky.social: thesicktimes.org/2025/12/23/n...
New AI tools are helping some people manage Long COVID - The Sick Times
RTHM and TurnTo recently debuted Long COVID intelligence platforms. Some have found them helpful, but others are concerned about AI.
thesicktimes.org
December 23, 2025 at 3:38 PM
Today @thesicktimes.org: Two companies recently debuted AI tools for people with Long COVID. Some people find them helpful for managing symptoms and following research; others are concerned about the technology.
By @ravindranize.bsky.social: thesicktimes.org/2025/12/23/n...
By @ravindranize.bsky.social: thesicktimes.org/2025/12/23/n...
Reposted by loscharlos
Bochum researchers studied 123 children and found that up to 1 in 5 had impaired taste or smell after respiratory infections, including COVID.
Kids with long COVID more often reported food as disgusting, even when standard tests showed nothing.
journals.lww.com/pidj/fulltex...
Kids with long COVID more often reported food as disgusting, even when standard tests showed nothing.
journals.lww.com/pidj/fulltex...
journals.lww.com
December 23, 2025 at 4:06 PM
Bochum researchers studied 123 children and found that up to 1 in 5 had impaired taste or smell after respiratory infections, including COVID.
Kids with long COVID more often reported food as disgusting, even when standard tests showed nothing.
journals.lww.com/pidj/fulltex...
Kids with long COVID more often reported food as disgusting, even when standard tests showed nothing.
journals.lww.com/pidj/fulltex...
Reposted by loscharlos
There’s a difficult irony that many people would really rather not have to think about this (ie what started in 2020 that’s clearly still happening)… but willingness to confront it is also the best way to reduce your odds of ending up on this chart + having to think about it all the fucking time.
December 21, 2025 at 10:54 PM
There’s a difficult irony that many people would really rather not have to think about this (ie what started in 2020 that’s clearly still happening)… but willingness to confront it is also the best way to reduce your odds of ending up on this chart + having to think about it all the fucking time.
Reposted by loscharlos
I dealt with my undiagnosed ME/CFS during grad school by arriving to class at least 30 minutes early so I could stare at a wall and hopefully recover a bit.
2/
“You might think you know what tired feels like. But this is different. Research suggests [ME/CFS] creates a wall. A brick wall. Even simple mental exertion or physical or mental activity hits you hard. It is called post exertional malaise. It feels like your battery is not just empty but broken”
“You might think you know what tired feels like. But this is different. Research suggests [ME/CFS] creates a wall. A brick wall. Even simple mental exertion or physical or mental activity hits you hard. It is called post exertional malaise. It feels like your battery is not just empty but broken”
December 23, 2025 at 4:05 PM
I dealt with my undiagnosed ME/CFS during grad school by arriving to class at least 30 minutes early so I could stare at a wall and hopefully recover a bit.
Reposted by loscharlos
A new RECOVER study of 6.4M health records shows Long COVID risk has not decreased from 2020–2024. Incidence stayed stable across variants, reinforcing Long COVID as an ongoing public health priority.
Read the study: doi.org/10.1093/cid/...
Read the study: doi.org/10.1093/cid/...
December 10, 2025 at 10:01 PM
A new RECOVER study of 6.4M health records shows Long COVID risk has not decreased from 2020–2024. Incidence stayed stable across variants, reinforcing Long COVID as an ongoing public health priority.
Read the study: doi.org/10.1093/cid/...
Read the study: doi.org/10.1093/cid/...
Reposted by loscharlos
1-min action item!
At the end of 2026, Medicaid recipients will be subject to work requirements unless deemed “medically frail”. This is very dangerous for people w/ME (including those w/Long Covid ME) who get sicker from exertion.
Tell HHS to exempt pwME and LC: actionnetwork.org/petitions/fr...
At the end of 2026, Medicaid recipients will be subject to work requirements unless deemed “medically frail”. This is very dangerous for people w/ME (including those w/Long Covid ME) who get sicker from exertion.
Tell HHS to exempt pwME and LC: actionnetwork.org/petitions/fr...
December 8, 2025 at 11:55 PM
1-min action item!
At the end of 2026, Medicaid recipients will be subject to work requirements unless deemed “medically frail”. This is very dangerous for people w/ME (including those w/Long Covid ME) who get sicker from exertion.
Tell HHS to exempt pwME and LC: actionnetwork.org/petitions/fr...
At the end of 2026, Medicaid recipients will be subject to work requirements unless deemed “medically frail”. This is very dangerous for people w/ME (including those w/Long Covid ME) who get sicker from exertion.
Tell HHS to exempt pwME and LC: actionnetwork.org/petitions/fr...
Reposted by loscharlos
KQED: 'After Alice Wong’s Death, Her Friends Vow to Keep Fighting for Disability Justice'
"..McCone said, adding that folks living with long COVID need to keep sharing their stories — now more than ever"
www.kqed.org/news/1206519...
"..McCone said, adding that folks living with long COVID need to keep sharing their stories — now more than ever"
www.kqed.org/news/1206519...
After Alice Wong’s Death, Her Friends Vow to Keep Fighting for Disability Justice | KQED
Friends, activists and policy experts reflect on Alice Wong’s legacy as looming Medicaid cuts threaten critical services for disabled people in California and nationwide.
www.kqed.org
December 8, 2025 at 6:01 PM
KQED: 'After Alice Wong’s Death, Her Friends Vow to Keep Fighting for Disability Justice'
"..McCone said, adding that folks living with long COVID need to keep sharing their stories — now more than ever"
www.kqed.org/news/1206519...
"..McCone said, adding that folks living with long COVID need to keep sharing their stories — now more than ever"
www.kqed.org/news/1206519...
Reposted by loscharlos
"Patient-Led Research Collaborative, an organization that has elevated the voice and expertise of those who experience this illness, has been raising funds & directing them to promising research projects — & punching far above its weight." — NY Times
patientresearchcovid19.com/donate/
patientresearchcovid19.com/donate/
December 2, 2025 at 8:56 PM
"Patient-Led Research Collaborative, an organization that has elevated the voice and expertise of those who experience this illness, has been raising funds & directing them to promising research projects — & punching far above its weight." — NY Times
patientresearchcovid19.com/donate/
patientresearchcovid19.com/donate/
Reposted by loscharlos
Since 2020, PLRC has been at the forefront of #LongCovid science & advocacy. Our work integrates patient expertise to advance research & data-driven policy that can improve the lives of people with LC. While our understanding continues to grow, much crucial work still lies ahead.
December 2, 2025 at 8:56 PM
Since 2020, PLRC has been at the forefront of #LongCovid science & advocacy. Our work integrates patient expertise to advance research & data-driven policy that can improve the lives of people with LC. While our understanding continues to grow, much crucial work still lies ahead.
Reposted by loscharlos
By meeting this goal PLRC will be able to sustain some of our vital day-to-day work through 2026. Please consider donating & sharing this campaign so we can keep advancing research to improve the lives of people with #LongCovid.
December 2, 2025 at 8:56 PM
By meeting this goal PLRC will be able to sustain some of our vital day-to-day work through 2026. Please consider donating & sharing this campaign so we can keep advancing research to improve the lives of people with #LongCovid.
Reposted by loscharlos
We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year!
Support our work: patientresearchcovid19.com/donate/
Support our work: patientresearchcovid19.com/donate/
December 2, 2025 at 8:56 PM
We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year!
Support our work: patientresearchcovid19.com/donate/
Support our work: patientresearchcovid19.com/donate/
Reposted by loscharlos
TEDx Talks: "How persistent pathogens could accelerate the aging process by Amy Proal"
'..gut tissue collected from a person with long COVID almost 2 years after..here's the thing, these chronic pathogens are the closest thing there are to hackers of the human body"
www.youtube.com/watch?v=XMcV...
'..gut tissue collected from a person with long COVID almost 2 years after..here's the thing, these chronic pathogens are the closest thing there are to hackers of the human body"
www.youtube.com/watch?v=XMcV...
How persistent pathogens could accelerate the aging process | Amy Proal | TEDxBoston
YouTube video by TEDx Talks
www.youtube.com
November 30, 2025 at 5:39 PM
TEDx Talks: "How persistent pathogens could accelerate the aging process by Amy Proal"
'..gut tissue collected from a person with long COVID almost 2 years after..here's the thing, these chronic pathogens are the closest thing there are to hackers of the human body"
www.youtube.com/watch?v=XMcV...
'..gut tissue collected from a person with long COVID almost 2 years after..here's the thing, these chronic pathogens are the closest thing there are to hackers of the human body"
www.youtube.com/watch?v=XMcV...
Reposted by loscharlos
“When people asked, Why do you think it hit you so hard? it seemed to carry a tinge of suspicion. I must have done something wrong to bring #LongCovid upon myself as opposed to it being the cosmic car accident that illness so often is”
@philipandrewhoover.bsky.social thesicktimes.org/2025/11/28/y...
@philipandrewhoover.bsky.social thesicktimes.org/2025/11/28/y...
You know someone with Long COVID. They need you to ask about it genuinely. - The Sick Times
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
thesicktimes.org
November 28, 2025 at 7:06 PM
“When people asked, Why do you think it hit you so hard? it seemed to carry a tinge of suspicion. I must have done something wrong to bring #LongCovid upon myself as opposed to it being the cosmic car accident that illness so often is”
@philipandrewhoover.bsky.social thesicktimes.org/2025/11/28/y...
@philipandrewhoover.bsky.social thesicktimes.org/2025/11/28/y...
Reposted by loscharlos
For the 50th anniversary of the Individuals with Disabilities Education Act, I spoke with advocates about how this law is crucial–and the ways in which disability education can be made better as its under attack from the Trump administration at @motherjones.com. www.motherjones.com/politics/202...
This disability education law turned 50 today. Disability advocates want more.
"Our civil rights are not up for negotiations," Rep. Lateefah Simon said.
www.motherjones.com
November 29, 2025 at 5:56 PM
For the 50th anniversary of the Individuals with Disabilities Education Act, I spoke with advocates about how this law is crucial–and the ways in which disability education can be made better as its under attack from the Trump administration at @motherjones.com. www.motherjones.com/politics/202...
Reposted by loscharlos
“I felt like I lived a double life. How could this sick side of me be so central, so enormous, yet so unseen by those who knew and loved me?”please read this beautiful essay in @thesicktimes.org: thesicktimes.org/2025/11/28/y...
You know someone with Long COVID. They need you to ask about it genuinely. - The Sick Times
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
thesicktimes.org
November 29, 2025 at 2:41 PM
“I felt like I lived a double life. How could this sick side of me be so central, so enormous, yet so unseen by those who knew and loved me?”please read this beautiful essay in @thesicktimes.org: thesicktimes.org/2025/11/28/y...
Reposted by loscharlos
"The problem with Long COVID is that most of society would rather not see it. We want to believe the pandemic was just a bad dream we awoke from years ago. (When I hear someone say during COVID, in the past tense, I want to flip a table.)"
#LongCOVID
Source: archive.md/7Rer1
#LongCOVID
Source: archive.md/7Rer1
November 29, 2025 at 5:56 AM
"The problem with Long COVID is that most of society would rather not see it. We want to believe the pandemic was just a bad dream we awoke from years ago. (When I hear someone say during COVID, in the past tense, I want to flip a table.)"
#LongCOVID
Source: archive.md/7Rer1
#LongCOVID
Source: archive.md/7Rer1