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meassociation.org.uk
ME Association
@meassociation.org.uk
720 followers 140 following 1.1K posts
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.

RPs do not necessarily mean endorsement.

https://linktr.ee/meassociation
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meassociation.org.uk
ME Association @meassociation.org.uk · 4d
ME Association’s Rosetta Stone study was featured on BBC Inside Science!

Our largest ever research project, was featured on BBC Radio 4 Inside Science on the 8/1/2026.

Listen or read transcript here: meassociation.org.uk/zttw

#MECFS #Research
ME Association's Rosetta Stone study was featured on BBC Inside Science! - The ME Association
The ME Association's Rosetta Stone study, our largest ever research […]
meassociation.org.uk
meassociation.org.uk
Mirror: DWP ending older benefits by March 31 as millions sent Universal Credit letter 

Read more: https://www.mirror.co.uk/money/dwp-ending-older-benefits-march-36532825 

#pwME #MECFS #LongCovid #UC #UniversalCredit
DWP ending older benefits by March 31 as millions sent Universal Credit letter
Income-related Employment and Support Allowance (ESA) is also being replaced by Universal Credit and the DWP wants everyone claiming this benefit to be transferred across by March 31, 2026
www.mirror.co.uk
January 13, 2026 at 2:56 PM
meassociation.org.uk
Medical Matters – TENS Machine

Q: What is a TENS machine and how might it be helpful for some people with ME/CFS in managing pain?
A: https://meassociation.org.uk/medical-matters/items/tens-machines-for-pain-management/

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #TENSMachine
IMAGE DESCRIPTION: Photo of Dr Charles Shepherd. Wording - What is a TENS machine and how might it be helpful for some people with ME/CFS in managing pain? Please click the link to read the answer in the Medical Matters database.
January 13, 2026 at 1:15 PM
meassociation.org.uk
Sign up for EasyFundraising in a few easy steps, and then you can raise money for the ME Association every time you shop online! 

Visit: https://meassociation.org.uk/easyf

#EasyFundraising #MEAssociation #OnlineShopping #pwME #MECFS #LongCovid
IMAGE DESCRIPTION: Photo of a hand holding a phone, browsing an online shop. Wording reads: You get great bargains, we get free donations! Sign up for EasyFundraising, and raise funds for The ME Association as you shop the January sales! MEA and EasyFundraising Logos.
January 13, 2026 at 11:40 AM
meassociation.org.uk
The ME Association – Post AGM Statement

The ME Association's AGM for members has now taken place. Please head to the blog to read our post-AGM statement.

https://meassociation.org.uk/fuon

#MECFS #pwME #MEAssociation #AGM
The ME Association – Post AGM Statement - The ME Association
Stage 3 Announcement Winter 2025 Following the December 2024 AGM, […]
meassociation.org.uk
January 12, 2026 at 3:41 PM
meassociation.org.uk
BBC News: Long waits for disability benefit claims unacceptable, MPs say

Read more: https://www.bbc.co.uk/news/articles/c931klw03yko 

#pwME #MECFS #LongCovid #DisabilityBenefits #PIP
Long waits for disability benefit claims unacceptable, MPs say
Some people are waiting more than a year to have their claims processed, the Public Accounts Committee says.
www.bbc.co.uk
January 12, 2026 at 1:31 PM
meassociation.org.uk
Please mark the following key dates in your diaries, and start to think about how you can get involved in raising awareness of ME/CFS and Long Covid, and funds for the ME Association to continue our vital work.

#pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #PostCovidSyndrome
IMAGE DESCRIPTION: Photo of a calendar to the left-hand side. Purple background. Wording reads: 2026 dates to save with an arrow pointing to the the right. MEA logo bottom right. IMAGE DESCRIPTION: Photo of a calendar to the right-hand side. Purple background. Wording reads: 15th March: Long Covid Day; 11th-17th May: ME Awareness Week; 12th May: ME Awareness Day; 17th May: Blue Sunday; 8th-14th June: Carers Week; 3rd-9th August: Severe ME Week; 8th August: Severe ME Awareness Day. MEA logo bottom right.
January 12, 2026 at 11:11 AM
meassociation.org.uk
Congratulations! PPIE Award Winners 2025: Dr Keith Geraghty and Prof Aneez Esmail

Dr Keith Geraghty has a long standing relationship with the ME Association, as we've helped fund many of his ME/CFS studies and continue to do so.

meassociation.org.uk/pppv
Congratulations! PPIE Award Winners 2025: Dr Keith Geraghty and Prof Aneez Esmail - The ME Association
We're pleased to hear about the winners of the Patient […]
meassociation.org.uk
January 12, 2026 at 9:36 AM
meassociation.org.uk
Journal of Translational Medicine: Diagnosis of [ME]CFS using beat-to-beat autonomic measurements (Kujawski et al 2025)

Background: An AI pipeline was used to differentiate patients suffering from [ME]CFS from healthy controls ….. (cont’d below)

link.springer.com/article/10.1...
IMAGE DESCRIPTION: An image of the body showing the heart. Title: Journal of Translational Medicine: Diagnosis of [ME]CFS using beat-to-beat autonomic measurements. The ME Association Logo (bottom right).
January 9, 2026 at 4:25 PM
meassociation.org.uk
Booklet: Cold Hands & Feet (Including Raynaud’s)

In this booklet, we explore problems with temperature control (also called disturbed thermoregulation) which are very common in ME/CFS and include sensitivity to both heat and cold.

meassociation.org.uk/jseb

#MECFS #RaynaudsDisease
Cold Hands & Feet (Including Raynaud's) - The ME Association
In this booklet, we explore problems with temperature control (also […]
meassociation.org.uk
January 9, 2026 at 3:17 PM
meassociation.org.uk
Medscape Multiple Abnormal Responses to Exertion Seen in #MECFS

"People with ME/CFS showed multiple maladaptive proteomic responses to exercise compared with matched sedentary controls, a new study found."

www.medscape.com/viewarticle/...

#Research
Multiple Abnormal Responses to Exertion Seen in ME/CFS
Findings underscore the risk for graded exercise in people with post-exertional malaise and point to careful activity pacing as a safer approach.
www.medscape.com
January 9, 2026 at 2:26 PM
meassociation.org.uk
ME Association’s Rosetta Stone study was featured on BBC Inside Science!

Our largest ever research project, was featured on BBC Radio 4 Inside Science on the 8/1/2026.

Listen or read transcript here: meassociation.org.uk/zttw

#MECFS #Research
ME Association's Rosetta Stone study was featured on BBC Inside Science! - The ME Association
The ME Association's Rosetta Stone study, our largest ever research […]
meassociation.org.uk
January 9, 2026 at 1:26 PM
meassociation.org.uk
1/3: **Sharing for Information**

Action for ME: Big Survey 2025/26 - Two separate surveys; one for Adults 18+ and one for Young people Under 17yrs.

"The Big Survey is open to people living in the UK with ME, whether or not they have a diagnosis."

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis
IMAGE DESCRIPTION: Big Survey - take part! Survey closes on Tues 27th January 2026 at 11:59pm. Tank part in The Big Survey. Action for ME Logo.
January 8, 2026 at 3:15 PM
meassociation.org.uk
Today on Radio 4 BBC Inside Science at 4.30 pm, the ME Association's Rosetta Stone study may be featured! 

You should be able to watch it via the link here after the 4:30pm broadcast on 8/01/2025: https://www.bbc.co.uk/programmes/w3ct8txt

#MECFS #RosettaStone
IMAGE DESCRIPTION: Photo of a science lab. Photo of Professor Danny Altman. Heading - MEA Rosetta Stone study featuring on BBC Inside Science tonight! ME Association logo.
January 8, 2026 at 2:10 PM
meassociation.org.uk
1/2: A new ME/CFS and Long Covid service has been issued for tender in Kent and Medway. £9.5million has been allocated to spend on this new specialist referral service over the next three years.

https://meassociation.org.uk/z51d

#MECFS #MyalgicEncephalomyelitis #LongCovid #SpecialistService
New Kent and Medway ME/CFS and Long Covid specialist referral service - The ME Association
A new ME/CFS and Long Covid service has been issued […]
meassociation.org.uk
January 8, 2026 at 9:41 AM
meassociation.org.uk
On the 15 Dec 2025, MP Jo Platt asked: To ask the Secretary of State for Health & Social Care, what plans his Department has to ensure the needs of patients with severe and very severe ME are fully addressed within future NHS service provision.

questions-statements.parliament.uk/written-ques...
January 7, 2026 at 12:43 PM
meassociation.org.uk
Parliamentary Questions (PQs) on ME/CFS & Long Covid: December 2025

We've listed the PQ's for December, including one from MP Jo Platt (Chair for the APPG on Long Covid & APPG on ME).

Please see the link below:

linktr.ee/MECFSLC.Parl...
IMAGE DESCRIPTION: An image of the Houses of Parliament. Title: Parliamentary Questions ME/CFS & LC. Dec 2025. The ME Association Logo (bottom left)
January 7, 2026 at 12:40 PM
meassociation.org.uk
Medical Matters – Coat-Hanger Pain

Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA.   

Q: What is coat-hanger pain?
A: https://meassociation.org.uk/medical-matters/items/what-is-coat-hanger-pain/

#MECFS #MyalgicEncephalomyelitis #CoatHangerPain
IMAGE DESCRIPTION: Photo of Dr Charles Shepherd, MEA Hon. Medical Adviser. Wording - What is coat-hanger pain? Please click the link to read the answer in the Medical Matters database. Medical Matters logo, bottom right.
January 7, 2026 at 10:55 AM
meassociation.org.uk
ME Connect (helpline & email service) is available via our freephone number to offer support and information.

** Freephone number - 0808 801 0484 **

You can also email us at meconnect
@meassociation.org.uk

#pwME #MECFS #MyalgicE #Helpline #MEConnect
January 6, 2026 at 3:45 PM
meassociation.org.uk
New years greetings! (in advance of this evening)

Wishing our members, followers and supporters all the best for 2026, from everyone here at the ME Association.

#pwME #MyalgicEncephalomyelitis #LongCovid #MEAssociation
IMAGE DESCRIPTION: Festive sequin background. Heading - New Years Greetings! Wishing you all the best for 2026
December 31, 2025 at 12:02 PM
meassociation.org.uk
Wishing you a restful Christmas from the ME Association!
 
For those who may not celebrate, we hope you have a comfortable festive season.
 
#MECFS #pwME #LongCovid #Christmas2026
IMAGE DESCRIPTION: Watercolour painting of a robin holding a twig of berries. Heading - Wishing you a comfortable festive season. ME Association logo.
December 25, 2025 at 10:02 AM
meassociation.org.uk
Follow us on all our social media channels to keep up-to-date with the latest ME/CFS and Long Covid news, research, and support.

Links to all our social media accounts can be found here: https://linktr.ee/measocials 

#MECFS #pwME #LongCovid #MEAssociation #FollowUs
December 23, 2025 at 2:10 PM
meassociation.org.uk
1/3: Please be aware that our main office will be closed for Christmas from 3pm on Tuesday 23rd December, and will reopen on 9:30am Monday 5th of January. Any enquiries received during this time will be replied to once the office reopens in the New Year.

#MECFS #MyalgicE #MyalgicEncephalomyelitis
Heading - Christmas Office Closure. The ME Association office will be closed from 3pm Tuesday 23rd Dec - 9:30am Monday 5th Jan ME Connect Christmas Opening Hours. Christmas Day: 10am-1pm, 6-8pm Boxing Day: 10am-2pm, 4-5pm New Years Eve: 1-6pm All other days should be our usual opening times (see website)
December 22, 2025 at 3:02 PM
meassociation.org.uk
MEA announces its largest-ever £1.1m investment in biomedical research: a landmark study exploring shared pathways between ME/CFS and Long Covid—the biggest project of its kind.

Watch the video or read the blog: https://meassociation.org.uk/5n3l

 #MECFS #LongCovid #pwME #MEAssociation
December 22, 2025 at 2:12 PM
meassociation.org.uk
BBC News: 'I want my album to help people understand my ME'

'[Harry Boulton] has released an album of classic Christmas tunes, called White Christmas, to raise money for people living with ME/CFS.'

Read more: https://www.bbc.co.uk/news/articles/cp891k8w51ko

#MECFS #pwME #MyalgicE
Bury boy, 17, releases charity Christmas album after ME diagnosis
After an ME diagnosis last year, Harry Boulton, 17, is using the power of music to raise awareness.
www.bbc.co.uk
December 22, 2025 at 11:31 AM
meassociation.org.uk
1/2: MEMBERS ONLY – Notice of Annual General Meeting of The ME Association

The ME Associations AGM will be held on the 12 January 2026 starting at 2:00 pm and finishing at 3:00 pm.

#MEAssociation #MEA #pwME #MECFS #LongCovid
IMAGE DESCRIPTION: Photo of someone in a video meeting. Heading - Members Only: ME Association AGM to take place on 12th Jan 2026, register to attend online
December 22, 2025 at 10:02 AM