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meassociation.org.uk
ME Association
@meassociation.org.uk
720 followers 140 following 1.1K posts
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.

RPs do not necessarily mean endorsement.

https://linktr.ee/meassociation
Posts Replies Media Videos
meassociation.org.uk
Medical Matters – TENS Machine

Q: What is a TENS machine and how might it be helpful for some people with ME/CFS in managing pain?
A: https://meassociation.org.uk/medical-matters/items/tens-machines-for-pain-management/

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #TENSMachine
IMAGE DESCRIPTION: Photo of Dr Charles Shepherd. Wording - What is a TENS machine and how might it be helpful for some people with ME/CFS in managing pain? Please click the link to read the answer in the Medical Matters database.
January 13, 2026 at 1:15 PM
meassociation.org.uk
Sign up for EasyFundraising in a few easy steps, and then you can raise money for the ME Association every time you shop online! 

Visit: https://meassociation.org.uk/easyf

#EasyFundraising #MEAssociation #OnlineShopping #pwME #MECFS #LongCovid
IMAGE DESCRIPTION: Photo of a hand holding a phone, browsing an online shop. Wording reads: You get great bargains, we get free donations! Sign up for EasyFundraising, and raise funds for The ME Association as you shop the January sales! MEA and EasyFundraising Logos.
January 13, 2026 at 11:40 AM
meassociation.org.uk
Please mark the following key dates in your diaries, and start to think about how you can get involved in raising awareness of ME/CFS and Long Covid, and funds for the ME Association to continue our vital work.

#pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #PostCovidSyndrome
IMAGE DESCRIPTION: Photo of a calendar to the left-hand side. Purple background. Wording reads: 2026 dates to save with an arrow pointing to the the right. MEA logo bottom right. IMAGE DESCRIPTION: Photo of a calendar to the right-hand side. Purple background. Wording reads: 15th March: Long Covid Day; 11th-17th May: ME Awareness Week; 12th May: ME Awareness Day; 17th May: Blue Sunday; 8th-14th June: Carers Week; 3rd-9th August: Severe ME Week; 8th August: Severe ME Awareness Day. MEA logo bottom right.
January 12, 2026 at 11:11 AM
meassociation.org.uk
Journal of Translational Medicine: Diagnosis of [ME]CFS using beat-to-beat autonomic measurements (Kujawski et al 2025)

Background: An AI pipeline was used to differentiate patients suffering from [ME]CFS from healthy controls ….. (cont’d below)

link.springer.com/article/10.1...
IMAGE DESCRIPTION: An image of the body showing the heart. Title: Journal of Translational Medicine: Diagnosis of [ME]CFS using beat-to-beat autonomic measurements. The ME Association Logo (bottom right).
January 9, 2026 at 4:25 PM
meassociation.org.uk
1/3: **Sharing for Information**

Action for ME: Big Survey 2025/26 - Two separate surveys; one for Adults 18+ and one for Young people Under 17yrs.

"The Big Survey is open to people living in the UK with ME, whether or not they have a diagnosis."

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis
IMAGE DESCRIPTION: Big Survey - take part! Survey closes on Tues 27th January 2026 at 11:59pm. Tank part in The Big Survey. Action for ME Logo.
January 8, 2026 at 3:15 PM
meassociation.org.uk
Today on Radio 4 BBC Inside Science at 4.30 pm, the ME Association's Rosetta Stone study may be featured! 

You should be able to watch it via the link here after the 4:30pm broadcast on 8/01/2025: https://www.bbc.co.uk/programmes/w3ct8txt

#MECFS #RosettaStone
IMAGE DESCRIPTION: Photo of a science lab. Photo of Professor Danny Altman. Heading - MEA Rosetta Stone study featuring on BBC Inside Science tonight! ME Association logo.
January 8, 2026 at 2:10 PM
meassociation.org.uk
Parliamentary Questions (PQs) on ME/CFS & Long Covid: December 2025

We've listed the PQ's for December, including one from MP Jo Platt (Chair for the APPG on Long Covid & APPG on ME).

Please see the link below:

linktr.ee/MECFSLC.Parl...
IMAGE DESCRIPTION: An image of the Houses of Parliament. Title: Parliamentary Questions ME/CFS & LC. Dec 2025. The ME Association Logo (bottom left)
January 7, 2026 at 12:40 PM
meassociation.org.uk
Medical Matters – Coat-Hanger Pain

Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA.   

Q: What is coat-hanger pain?
A: https://meassociation.org.uk/medical-matters/items/what-is-coat-hanger-pain/

#MECFS #MyalgicEncephalomyelitis #CoatHangerPain
IMAGE DESCRIPTION: Photo of Dr Charles Shepherd, MEA Hon. Medical Adviser. Wording - What is coat-hanger pain? Please click the link to read the answer in the Medical Matters database. Medical Matters logo, bottom right.
January 7, 2026 at 10:55 AM
meassociation.org.uk
ME Connect (helpline & email service) is available via our freephone number to offer support and information.

** Freephone number - 0808 801 0484 **

You can also email us at meconnect
@meassociation.org.uk

#pwME #MECFS #MyalgicE #Helpline #MEConnect
January 6, 2026 at 3:45 PM
meassociation.org.uk
New years greetings! (in advance of this evening)

Wishing our members, followers and supporters all the best for 2026, from everyone here at the ME Association.

#pwME #MyalgicEncephalomyelitis #LongCovid #MEAssociation
IMAGE DESCRIPTION: Festive sequin background. Heading - New Years Greetings! Wishing you all the best for 2026
December 31, 2025 at 12:02 PM
meassociation.org.uk
Wishing you a restful Christmas from the ME Association!
 
For those who may not celebrate, we hope you have a comfortable festive season.
 
#MECFS #pwME #LongCovid #Christmas2026
IMAGE DESCRIPTION: Watercolour painting of a robin holding a twig of berries. Heading - Wishing you a comfortable festive season. ME Association logo.
December 25, 2025 at 10:02 AM
meassociation.org.uk
Follow us on all our social media channels to keep up-to-date with the latest ME/CFS and Long Covid news, research, and support.

Links to all our social media accounts can be found here: https://linktr.ee/measocials 

#MECFS #pwME #LongCovid #MEAssociation #FollowUs
December 23, 2025 at 2:10 PM
meassociation.org.uk
1/3: Please be aware that our main office will be closed for Christmas from 3pm on Tuesday 23rd December, and will reopen on 9:30am Monday 5th of January. Any enquiries received during this time will be replied to once the office reopens in the New Year.

#MECFS #MyalgicE #MyalgicEncephalomyelitis
Heading - Christmas Office Closure. The ME Association office will be closed from 3pm Tuesday 23rd Dec - 9:30am Monday 5th Jan ME Connect Christmas Opening Hours. Christmas Day: 10am-1pm, 6-8pm Boxing Day: 10am-2pm, 4-5pm New Years Eve: 1-6pm All other days should be our usual opening times (see website)
December 22, 2025 at 3:02 PM
meassociation.org.uk
MEA announces its largest-ever £1.1m investment in biomedical research: a landmark study exploring shared pathways between ME/CFS and Long Covid—the biggest project of its kind.

Watch the video or read the blog: https://meassociation.org.uk/5n3l

 #MECFS #LongCovid #pwME #MEAssociation
December 22, 2025 at 2:12 PM
meassociation.org.uk
1/2: MEMBERS ONLY – Notice of Annual General Meeting of The ME Association

The ME Associations AGM will be held on the 12 January 2026 starting at 2:00 pm and finishing at 3:00 pm.

#MEAssociation #MEA #pwME #MECFS #LongCovid
IMAGE DESCRIPTION: Photo of someone in a video meeting. Heading - Members Only: ME Association AGM to take place on 12th Jan 2026, register to attend online
December 22, 2025 at 10:02 AM
meassociation.org.uk
Wishing all our members and supporters a restful, safe, and comfortable festive season, from everyone here at the ME Association.

Christmas Card: https://www.flipsnack.com/meassociation/seasons-greetings-from-the-mea

#pwME #MECFS #MyalgicE #SevereME #Christmas
IMAGE DESCRIPTION: Christmas Card cover with two robins holding up an ME Association logo. Wording - Seasons Greetings from the ME Association.
December 19, 2025 at 3:15 PM
meassociation.org.uk
New booklet: Vision and ME/CFS

This booklet aims to provide an overview of how ME/CFS can impact vision, offers information on potential ME/CFS-related and unrelated visual problems, and explores management strategies for specific visual symptoms.

https://meassociation.org.uk/yyod

#MECFS #Vision
IMAGE DESCRIPTION: A graphic of the cover of our Vision and ME/CFS booklet, which features a woman holding a pair of glasses. Heading - New Booklet: Vision and ME/CFS. ME Association logo.
December 19, 2025 at 1:30 PM
meassociation.org.uk
If you're looking for support, friendship, and community this time of year, then why not join ME Connected on Discord, an online community especially for those affected by ME/CFS and Long Covid?

Join here: https://meassociation.org.uk/discord 

#MECFS #pwME #LongCovid
December 19, 2025 at 10:52 AM
meassociation.org.uk
1/3: This is a reminder to ME Association members that the AGM will be held on 12 January 2026 starting at 2:00 pm and finishing at 3:00 pm. Read more about the AGM and how to attend: https://meassociation.org.uk/k6ff

#MEAssociation #MEA #AGM #MECFS #LongCovid
IMAGE DESCRIPTION: Photo of three wooden blocks saying AGM. Heading - Members only. ME Association AGM: Voting papers due by 20th December!
December 19, 2025 at 9:45 AM
meassociation.org.uk
Harry Boulton: White Christmas - a Fundraising Album with proceeds to the ME Association

Available now on Spotify and Amazon Music/Music Unlimited

open.spotify.com/album/5BDkA2...

music.amazon.com/artists/B001...
IMAGE DESCRIPTION: Two images of Harry Boulton; one selfie and one with a festive background. Wording: Harry Boulton: White Christmas - a Fundraising Album The ME Association Christmas Logo (bottom right) IMAGE DESCRIPTION: An image of the White Christmas Album Cover with an 'Available now' icon. The ME Association Christmas Logo (bottom right)
December 18, 2025 at 2:46 PM
meassociation.org.uk
It's not too late to send a card via Make a Difference, & raise money for the ME Association!

You can choose from a selection of beautiful designs, including some specific to the charity created by talented MEA supporter Yvonne from Perks of Art

https://meassociation.org.uk/MADC

#MECFS #LongCovid
December 18, 2025 at 12:10 PM
meassociation.org.uk
1/2 We're are so pleased to share that Ruby Evans-Gray has raised an amazing £696 through a pub quiz and raffle to support The ME Association!

Thank you Ruby for your support which will help us continue our vital work funding biomedical research and helping to support our community.
IMAGE DESCTIPTION: Ruby wearing an MEA T-shirt and supporting the charity and a poster that was used to advertise the Fundraising Pub Quiz IMAGE DESCRIPTION: Teams of people taking part in the Pub Quiz to raise money for the ME Association - with Ruby proudly supporting the charity. IMAGE DESCRIPTION: Teams of people taking part in the Pub Quiz to raise money for the ME Association IMAGE DESCRIPTION: Ruby proudly wearing the ME Association t-shirt to encourage people to donate to her fundraiser.
December 18, 2025 at 10:42 AM
meassociation.org.uk
Stamp Collection - Please don't forget to keep collecting stamps for the ME Association this Christmas!

Simply cut or gently rip used stamps from their envelopes, taking care not to damage the stamp.

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid
IMAGE DESCRIPTION: Stamp shape on a red, sparkly background. Small Christmas-themed stamps adorn the outside. Wording reads: Collect stamps and raise money for the ME Association. Any and all stamps wanted. Collect throughout the year and then send. MEA logo. IMAGE DESCRIPTION: Brown envelope on a red, sparkly background. Address on the envelope is: ME ASSOCIATION, PO Box 16992, Sutton Coldfield, B73 9YA. Wording reads: Please note that this is different to the ME Association's charity address. MEA logo.
December 17, 2025 at 2:10 PM
meassociation.org.uk
The office is currently experiencing a period where they are short staffed, and so they will endeavour to answer your call when they can. If you cannot get through, please can we ask you to call back another time.

Thank you for your understanding.

#MEAssociation #MEA #pwME #MECFS
Wording - Head Office Reduced Service The office is currently experiencing a period where they are short staffed, and so they will endeavour to answer your call when they can. If you cannot get through, please can we ask you to call back another time. Thank you for your understanding.
December 17, 2025 at 9:26 AM
meassociation.org.uk
📚 Make reading easier with Listening Books
 
A UK charity offering 10,000+ audiobooks, newspapers, magazines & more for anyone facing barriers to reading.

- Membership: £25/year (free if cost is a barrier).
- Find out more: https://www.listening-books.org.uk/join

#ListeningBooks #MEAssociation
Slide 1: Bold text “Listening Books” with tagline Make reading easier – explore our audiobook collection. Clean design with book and headphone icons. Slide 2: Invitation to Join Us. Text explains Listening Books is a UK charity giving people with print impairments access to over 10,000 audiobooks. Slide 6: Eligibility: Membership open to anyone facing barriers to reading, including dyslexia, autism, visual impairments, mobility challenges. Slide 7: Continuation: Support also for chronic illnesses and neurological conditions such as ME/CFS. Clear message: We make literacy accessible to all.
December 16, 2025 at 2:31 PM