24yrs ME, POTS, TN
#pwME #millionsmissing #MEScience
Location: Australia
absolutelymaybe.plos.org/2025/01/24/w...
Long, thoughtful blog on the Cochrane Exercise Therapy for CFS review saga.
Nice to get a couple of mentions
#MEcfs #CFS
absolutelymaybe.plos.org/2025/01/24/w...
Long, thoughtful blog on the Cochrane Exercise Therapy for CFS review saga.
Nice to get a couple of mentions
#MEcfs #CFS
absolutelymaybe.plos.org/2025/01/24/w...
absolutelymaybe.plos.org/2025/01/24/w...
- How is it impacting your life?
- Do you feel that you are receiving appropriate supports?
- Have you come out the other side of it?"
www.thejournal.ie/long-covid-r...
#LongCovid
- How is it impacting your life?
- Do you feel that you are receiving appropriate supports?
- Have you come out the other side of it?"
www.thejournal.ie/long-covid-r...
#LongCovid
www.thecanary.co/global/world...
Image is from Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.thecanary.co/global/world...
Image is from Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
“My Christmas wish for people with ME and Long Covid is: Many scientific breakthroughs – a ‘True Dawn’ bringing us much closer to effective therapies. Chris xx”
“My Christmas wish for people with ME and Long Covid is: Many scientific breakthroughs – a ‘True Dawn’ bringing us much closer to effective therapies. Chris xx”
If you missed it, it's up in full on their youtube channel, with uniformely briliiant speakers and presentations. Well worth a watch if you have the spoons.
These experts are our true allies!
youtube.com/@unitetofigh...
Suscribe to YouTube Channel
@Unite2Fight2024
Talks from 40 plus world experts
explaining the state of research on #LongCovid & #MECFS in May 2024
Including @Sunny_Rae1 @resiapretorius @PutrinoLab
@KraterMartin @VirusesImmunity @Daltmann10
If you missed it, it's up in full on their youtube channel, with uniformely briliiant speakers and presentations. Well worth a watch if you have the spoons.
These experts are our true allies!
www.researchsquare.com/article/rs-5...
1/
www.researchsquare.com/article/rs-5...
1/
www.pnas.org/doi/epub/10.... @pnas.org
www.pnas.org/doi/epub/10.... @pnas.org
🤩c. 4000 patients involved
Top treatments
🔹Maraviroc
🔹IVIG
Shows Pacing is vital 1/3
www.medrxiv.org/content/10.1...
🤩c. 4000 patients involved
Top treatments
🔹Maraviroc
🔹IVIG
Shows Pacing is vital 1/3
www.medrxiv.org/content/10.1...
Her message: “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”
#pwME #pwLC
Her message: “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”
#pwME #pwLC
His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
A reminder that the next Parliamentary Friends of ME/CFS meeting will be held in Canberra tomorrow, 11am-1pm AEDT. The Minister for Health will open the meeting, which is a huge coup!
It’s not too late to register to watch: https://www.emerge.org.au/parliamentary-friends
A reminder that the next Parliamentary Friends of ME/CFS meeting will be held in Canberra tomorrow, 11am-1pm AEDT. The Minister for Health will open the meeting, which is a huge coup!
It’s not too late to register to watch: https://www.emerge.org.au/parliamentary-friends
I've just passed the 10 year anniversary of when I began running marathons for ME research.
I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet
🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪
I've just passed the 10 year anniversary of when I began running marathons for ME research.
I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet
🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪
Keep those signatures coming!
TODAY is the last day add your name. Let's speak with a strong unified voice!
US signers: bit.ly/FundRoadmapUS
International signers: bit.ly/FundRoadmapG...
#pwME #MECFS
Open Medicine Foundation
Solve ME
Patient-Led Research Collaborative
ACT UP New York
Strategies for High Impact
Long COVID Justice
Body Politic
Long COVID Moonshot
Mass ME
Bateman Horne Center
ME International
CFS/ME Associazione Italiana od
World ME Alliance
Keep those signatures coming!
TODAY is the last day add your name. Let's speak with a strong unified voice!
US signers: bit.ly/FundRoadmapUS
International signers: bit.ly/FundRoadmapG...
#pwME #MECFS
go.bsky.app/VPRy2ML
go.bsky.app/VPRy2ML
Finds keywords of #mecfs #cfs #MEScience ME/CFS and #MEAwareness
bsky.app/profile/did:...
Finds keywords of #mecfs #cfs #MEScience ME/CFS and #MEAwareness
bsky.app/profile/did:...
US: bit.ly/FundRoadmapUS
International: bit.ly/FundRoadmapGlobal
#pwME #MECFS #LongCovid
US: bit.ly/FundRoadmapUS
International: bit.ly/FundRoadmapGlobal
#pwME #MECFS #LongCovid
The next Parliamentary Friends of ME/CFS meeting will be held in Canberra on Monday (11am-1pm AEDT). The focus of the meeting will be: clinical guidelines and education, access to the NDIS, research funding, and chronic illness items under Medicare.
Register to watch via Zoom
The next Parliamentary Friends of ME/CFS meeting will be held in Canberra on Monday (11am-1pm AEDT). The focus of the meeting will be: clinical guidelines and education, access to the NDIS, research funding, and chronic illness items under Medicare.
Register to watch via Zoom
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
📘🩺Updated Medscape #CME on #MECFS in the age of #LC with Drs. Bateman, Komaroff, and Systrom.
Share especially with #physician and #nurse colleagues who may obtain CME for watching the webinar!
www.medscape.org/viewarticle/...
A wonderfully intelligent and compassionate advocate for #LongCovid, #MECFS and associated illnesses.
Follow 100%!
A wonderfully intelligent and compassionate advocate for #LongCovid, #MECFS and associated illnesses.
Follow 100%!