Simone
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.
Boonwurrung country, Australia
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.
Boonwurrung country, Australia
Pinned
Simone
@phoenixme.bsky.social
· Nov 8
Someone once suggested a new name for #mecfs:
Post-Exertional Neuro Immune Syndrome.
After all, it is a bit of a d**k.
Post-Exertional Neuro Immune Syndrome.
After all, it is a bit of a d**k.
Reposted by Simone
A List of Things Said to Have Been Ruined by Women
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November 6, 2025 at 8:43 PM
A List of Things Said to Have Been Ruined by Women
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Reposted by Simone
Some healthcare providers are still referring to #mecfs and #longcovid as psychological or "functional" despite considerable research to the contrary. Here, I review the latest findings and expert thinking, with potential for treatment: www.medscape.com/viewarticle/...
Research Into ME/CFS Pathology Points to Possible Treatments
With greater understanding of the complex pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome, researchers aim to target treatments.
www.medscape.com
November 8, 2025 at 4:33 PM
Some healthcare providers are still referring to #mecfs and #longcovid as psychological or "functional" despite considerable research to the contrary. Here, I review the latest findings and expert thinking, with potential for treatment: www.medscape.com/viewarticle/...
Reposted by Simone
Gift horse.
My @smh @theage cartoon.
My @smh @theage cartoon.
November 4, 2025 at 9:10 PM
Gift horse.
My @smh @theage cartoon.
My @smh @theage cartoon.
Reposted by Simone
Remember during oral argument on the presidential immunity case when conservative justices scoffed at and mocked the hypothetical that a president with immunity could just start killing whoever he wanted and there was nothing that could be done if he has immunity?
October 30, 2025 at 7:19 PM
Remember during oral argument on the presidential immunity case when conservative justices scoffed at and mocked the hypothetical that a president with immunity could just start killing whoever he wanted and there was nothing that could be done if he has immunity?
Reposted by Simone
This announcement leaves so many unanswered questions:
- Why is Brereton still a Major-General in the ADF?
- What happens to all the defence referrals he has been working on, and making decisions on, until now?
- Why is he paid over $800k a year not to work on defence referrals?
- Why is Brereton still a Major-General in the ADF?
- What happens to all the defence referrals he has been working on, and making decisions on, until now?
- Why is he paid over $800k a year not to work on defence referrals?
October 31, 2025 at 8:13 AM
This announcement leaves so many unanswered questions:
- Why is Brereton still a Major-General in the ADF?
- What happens to all the defence referrals he has been working on, and making decisions on, until now?
- Why is he paid over $800k a year not to work on defence referrals?
- Why is Brereton still a Major-General in the ADF?
- What happens to all the defence referrals he has been working on, and making decisions on, until now?
- Why is he paid over $800k a year not to work on defence referrals?
If you missed Emerge Australia’s Action Forum at Parliament House today, you can read the thread below. #mecfs #longCOVID
Welcome to Emerge Australia’s #mecfs and #longCOVID Action Forum event in Parliament House, Canberra, today. Our event, “From stigma to science: educating for change” is live streamed. You can register here: us02web.zoom.us/meeting/regi...
We will be live posting on this thread. 🧵
We will be live posting on this thread. 🧵
October 30, 2025 at 6:45 AM
If you missed Emerge Australia’s Action Forum at Parliament House today, you can read the thread below. #mecfs #longCOVID
The USA has a President who is breaking laws, abusing human rights and behaving like a King. He got lost three times walking around a room in Japan. Surely Sarah Ferguson could find more pertinent questions to ask Kamala Harris about than Joe Biden’s competence as President. #abc730
October 29, 2025 at 8:52 AM
The USA has a President who is breaking laws, abusing human rights and behaving like a King. He got lost three times walking around a room in Japan. Surely Sarah Ferguson could find more pertinent questions to ask Kamala Harris about than Joe Biden’s competence as President. #abc730
Reposted by Simone
The government sending their "we're not complicit, but..." talking points to APAN is fucking hilarious
www.deepcutnews.com/p/exclusive-...
www.deepcutnews.com/p/exclusive-...
Exclusive: Australian government’s full talking points on Gaza accidentally sent to Palestinian advocacy group
Government notes reveal they won’t back Gaza hospital proposed by Dr Mohammed Mustafa
www.deepcutnews.com
October 26, 2025 at 9:24 PM
The government sending their "we're not complicit, but..." talking points to APAN is fucking hilarious
www.deepcutnews.com/p/exclusive-...
www.deepcutnews.com/p/exclusive-...
Reposted by Simone
I call on the Australian government to #RaiseTheRate of all support payments to a living wage.
This would be the single most effective way to lift the productivity, quality of life, and well-being of the whole country.
#CommitToALivingWage
This would be the single most effective way to lift the productivity, quality of life, and well-being of the whole country.
#CommitToALivingWage
October 15, 2025 at 12:26 AM
I call on the Australian government to #RaiseTheRate of all support payments to a living wage.
This would be the single most effective way to lift the productivity, quality of life, and well-being of the whole country.
#CommitToALivingWage
This would be the single most effective way to lift the productivity, quality of life, and well-being of the whole country.
#CommitToALivingWage
Reposted by Simone
The biggest problem with the ALP right now is it is led by someone who irrationally hates the Greens.
He doesn't really like to "fight Tories"; he loves to fight the party that reveals his actual lack of "left-wing" positions.
Someone needs to tell him to get over his uni politics crap.
He doesn't really like to "fight Tories"; he loves to fight the party that reveals his actual lack of "left-wing" positions.
Someone needs to tell him to get over his uni politics crap.
June 5, 2025 at 2:23 AM
The biggest problem with the ALP right now is it is led by someone who irrationally hates the Greens.
He doesn't really like to "fight Tories"; he loves to fight the party that reveals his actual lack of "left-wing" positions.
Someone needs to tell him to get over his uni politics crap.
He doesn't really like to "fight Tories"; he loves to fight the party that reveals his actual lack of "left-wing" positions.
Someone needs to tell him to get over his uni politics crap.
Reposted by Simone
Covid is not over.
People are still dying and becoming disabled every day.
We rushed “back to normal” for the economy, not because the threat had passed.
When you wear a mask, you’re not only protecting your health, you’re saying you don’t believe anyone is expendable.
People are still dying and becoming disabled every day.
We rushed “back to normal” for the economy, not because the threat had passed.
When you wear a mask, you’re not only protecting your health, you’re saying you don’t believe anyone is expendable.
October 6, 2025 at 5:04 AM
Covid is not over.
People are still dying and becoming disabled every day.
We rushed “back to normal” for the economy, not because the threat had passed.
When you wear a mask, you’re not only protecting your health, you’re saying you don’t believe anyone is expendable.
People are still dying and becoming disabled every day.
We rushed “back to normal” for the economy, not because the threat had passed.
When you wear a mask, you’re not only protecting your health, you’re saying you don’t believe anyone is expendable.
Reposted by Simone
So some companies defrauded Centrepay users and now companies are sad that they can’t access Centrepay?
Business owners worry major changes to a buy now, pay later system used by about 500,000 social security recipients will cause a raft of issues when it begins next month.
Outback businesses fear 'trouble at the till' as Centrepay changes loom
Business owners worry major changes to a buy now, pay later system used by about 500,000 social security recipients will cause a raft of issues when it begins next month.
www.abc.net.au
October 5, 2025 at 11:10 PM
So some companies defrauded Centrepay users and now companies are sad that they can’t access Centrepay?
Reposted by Simone
hey @nytimes.com: there is no counterpoint here. There are no credible legal experts who would EVER say that the US military has any right or authority to blow civilian craft out of the Caribbean and kill their crews from afar without any provocation. There is no other side to this question.
September 30, 2025 at 1:43 AM
hey @nytimes.com: there is no counterpoint here. There are no credible legal experts who would EVER say that the US military has any right or authority to blow civilian craft out of the Caribbean and kill their crews from afar without any provocation. There is no other side to this question.
Reposted by Simone
Sidenote: Did you know that the NACC employs over 200 people, spends over $50m per year, has 5 offices, and in over two years of operations hasn't landed a single major corruption finding?
September 26, 2025 at 4:19 AM
Sidenote: Did you know that the NACC employs over 200 people, spends over $50m per year, has 5 offices, and in over two years of operations hasn't landed a single major corruption finding?
Reposted by Simone
Students told by teachers Gazans ‘deserved what they got’. Sentiments like this have been stated by teachers in ACT public schools. I know of reading content set that displayed shocking bias.
Totally agree, this is widespread.
www.abc.net.au/news/2025-09...
Totally agree, this is widespread.
www.abc.net.au/news/2025-09...
Anti-Palestinian racism 'unbelievably prominent' in schools, report says
The Australia Palestine Advocacy Network releases its first national register report to examine "the climate of fear, censorship, intimidation and punishment" experienced by students, teachers and mem...
www.abc.net.au
September 25, 2025 at 11:08 PM
Students told by teachers Gazans ‘deserved what they got’. Sentiments like this have been stated by teachers in ACT public schools. I know of reading content set that displayed shocking bias.
Totally agree, this is widespread.
www.abc.net.au/news/2025-09...
Totally agree, this is widespread.
www.abc.net.au/news/2025-09...
Reposted by Simone
"the autism problem"
"the migration problem"
"the trans problem"
Never the fucking "rich white guy problem"
"the migration problem"
"the trans problem"
Never the fucking "rich white guy problem"
September 23, 2025 at 8:05 PM
"the autism problem"
"the migration problem"
"the trans problem"
Never the fucking "rich white guy problem"
"the migration problem"
"the trans problem"
Never the fucking "rich white guy problem"
Reposted by Simone
The AUKUS deal is a sinking ship in all ways except for the one we want.
American experts are telling us "accept the fact that you're not going to get those submarines" but the Aus Gov is still giving America billions to make their own subs.
Ditch AUKUS while we can still salvage some dignity.
American experts are telling us "accept the fact that you're not going to get those submarines" but the Aus Gov is still giving America billions to make their own subs.
Ditch AUKUS while we can still salvage some dignity.
September 23, 2025 at 12:39 AM
The AUKUS deal is a sinking ship in all ways except for the one we want.
American experts are telling us "accept the fact that you're not going to get those submarines" but the Aus Gov is still giving America billions to make their own subs.
Ditch AUKUS while we can still salvage some dignity.
American experts are telling us "accept the fact that you're not going to get those submarines" but the Aus Gov is still giving America billions to make their own subs.
Ditch AUKUS while we can still salvage some dignity.
Reposted by Simone
Since 2022, Australia’s screen industry has shrunk by 60%. Streamers make $4B here, pay less than 1% tax, and invest little in local stories. I’ve launched a petition urging the govt to mandate investment in Aussie content by 30 June 2026.
www.change.org/p/save-austr...
www.change.org/p/save-austr...
September 23, 2025 at 1:22 AM
Since 2022, Australia’s screen industry has shrunk by 60%. Streamers make $4B here, pay less than 1% tax, and invest little in local stories. I’ve launched a petition urging the govt to mandate investment in Aussie content by 30 June 2026.
www.change.org/p/save-austr...
www.change.org/p/save-austr...
Reposted by Simone
Where the separate divisions of ANTIFA landed on the beaches of Normandy on June 6, 1944:
September 18, 2025 at 11:19 PM
Where the separate divisions of ANTIFA landed on the beaches of Normandy on June 6, 1944:
Reposted by Simone
Okay, to put an even sharper point on this: they are not even 9 months in and they are openly censoring *Jimmy fucking Kimmel* because he poked fun at the president for lack of empathy.
These are desperate moves.
They are desperate because they are weak and people are naming it.
These are desperate moves.
They are desperate because they are weak and people are naming it.
These guys are unpopular and dumb as rocks, they did not discover a secret 'I win' button at the heart of all politics labeled 'mean tweets' or 'cancel elections.'
Keep speaking, keep writing, keep marching, keep voting, force them to show the country what they are.
Keep speaking, keep writing, keep marching, keep voting, force them to show the country what they are.
September 18, 2025 at 4:21 AM
Okay, to put an even sharper point on this: they are not even 9 months in and they are openly censoring *Jimmy fucking Kimmel* because he poked fun at the president for lack of empathy.
These are desperate moves.
They are desperate because they are weak and people are naming it.
These are desperate moves.
They are desperate because they are weak and people are naming it.
Reposted by Simone
Union members at the ABC and across the media industry stand with John Lyons and reject the US President’s unfounded attacks on our colleague.
#MEAAmedia
#MEAAmedia
September 17, 2025 at 3:02 AM
Union members at the ABC and across the media industry stand with John Lyons and reject the US President’s unfounded attacks on our colleague.
#MEAAmedia
#MEAAmedia
Reposted by Simone
reposting with alt text because this feels incredibly significant. the right-wing disinfo machine means a lot of the people grieving Charlie Kirk never heard any of the things he said that would have tarnished his brand as Guy Who Just Wants to Have Dialogue Across the Aisle
September 13, 2025 at 9:24 PM
reposting with alt text because this feels incredibly significant. the right-wing disinfo machine means a lot of the people grieving Charlie Kirk never heard any of the things he said that would have tarnished his brand as Guy Who Just Wants to Have Dialogue Across the Aisle
Reposted by Simone
Saw someone note that if Tyler Robinson had killed anyone else on the Utah campus (even if it had been multiple people) Kirk and his supporters would not have given one damn about them.
We know this because not one of them gives a damn about the school shooting that happened the same day.
We know this because not one of them gives a damn about the school shooting that happened the same day.
September 13, 2025 at 10:29 PM
Saw someone note that if Tyler Robinson had killed anyone else on the Utah campus (even if it had been multiple people) Kirk and his supporters would not have given one damn about them.
We know this because not one of them gives a damn about the school shooting that happened the same day.
We know this because not one of them gives a damn about the school shooting that happened the same day.
Reposted by Simone
Maybe the people who baselessly blamed transgender people for Kirk's murder and spread disinformation and hate should apologize.
Folks like Nancy Mace, Don Trump Jr and WSJ
Folks like Nancy Mace, Don Trump Jr and WSJ
September 12, 2025 at 5:36 PM
Maybe the people who baselessly blamed transgender people for Kirk's murder and spread disinformation and hate should apologize.
Folks like Nancy Mace, Don Trump Jr and WSJ
Folks like Nancy Mace, Don Trump Jr and WSJ
Reposted by Simone
Australia’s proposed FOI amendments add layers of secrecy, says Professor Gabrielle Appleby from UNSW Faculty of Law & Justice, and Head of Research for the Centre for Public Integrity www.governmentnews.com.au/foi-amendmen...
FOI amendments add layers of secrecy - Government News
The federal government’s proposal to amend Australia’s freedom of information laws is taking the legislation in a more secretive direction, says an expert.
www.governmentnews.com.au
September 11, 2025 at 8:20 AM
Australia’s proposed FOI amendments add layers of secrecy, says Professor Gabrielle Appleby from UNSW Faculty of Law & Justice, and Head of Research for the Centre for Public Integrity www.governmentnews.com.au/foi-amendmen...