Mike's Euro Maras for M.E.
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME.
34 countries so far. £52k raised.
Next race: #39 Sarajevo, Bosnia (26.04.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
34 countries so far. £52k raised.
Next race: #39 Sarajevo, Bosnia (26.04.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
Pinned
Thanks for following if you don't know me.
I've just passed the 10 year anniversary of when I began running marathons for ME research.
I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet
🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪
I've just passed the 10 year anniversary of when I began running marathons for ME research.
I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet
🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪
Race report for Skopje Marathon, Macedonia 🇲🇰
Marathon 38 for @investinmeresearch.bsky.social in European country 34.
www.mikeseumarathons.eu/skopje-maced...
Thanks for your support and sponsorship
Marathon 38 for @investinmeresearch.bsky.social in European country 34.
www.mikeseumarathons.eu/skopje-maced...
Thanks for your support and sponsorship
SKOPJE, MACEDONIA
Training for marathon 38 in Skopje was a little tough with injury and illness but after missing my flight connection from Turkey to Macedonia, I was very pleased to get to the start line. The day...
www.mikeseumarathons.eu
October 13, 2025 at 5:09 PM
Race report for Skopje Marathon, Macedonia 🇲🇰
Marathon 38 for @investinmeresearch.bsky.social in European country 34.
www.mikeseumarathons.eu/skopje-maced...
Thanks for your support and sponsorship
Marathon 38 for @investinmeresearch.bsky.social in European country 34.
www.mikeseumarathons.eu/skopje-maced...
Thanks for your support and sponsorship
Reposted by Mike's Euro Maras for M.E.
Thanks to Mike Harley for another outstanding effort to raise funds to facilitate biomedical research into #MECFS
at the Skopje Marathon 2025
www.justgiving.com/fundraising/...
#philanthropy #research #CofEforME #InvestinMEresearch @mikeseumarathons.bsky.social
at the Skopje Marathon 2025
www.justgiving.com/fundraising/...
#philanthropy #research #CofEforME #InvestinMEresearch @mikeseumarathons.bsky.social
October 5, 2025 at 2:52 PM
Thanks to Mike Harley for another outstanding effort to raise funds to facilitate biomedical research into #MECFS
at the Skopje Marathon 2025
www.justgiving.com/fundraising/...
#philanthropy #research #CofEforME #InvestinMEresearch @mikeseumarathons.bsky.social
at the Skopje Marathon 2025
www.justgiving.com/fundraising/...
#philanthropy #research #CofEforME #InvestinMEresearch @mikeseumarathons.bsky.social
Reposted by Mike's Euro Maras for M.E.
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
August 4, 2025 at 5:23 PM
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
Reposted by Mike's Euro Maras for M.E.
Merryn had Very Severe ME for 6 years. She was totally bedbound, tube fed intravenously (TPN) due to gastro intestinal failure, unable to bear light, noise, touch or movement She suffered with horrific pain but never lost her big beautiful smile.
Merryn died just 10 days after her 21st birthday.
Merryn died just 10 days after her 21st birthday.
August 5, 2025 at 9:10 PM
Reposted by Mike's Euro Maras for M.E.
Understanding severe ME by the world ME alliance
“Severe and very severe ME/CFS represents one of the most profound states of disability found in medicine.”
– @batemanhornecenter.bsky.social , USA
worldmealliance.org/what-is-me/s...
#ME/Cfs #pwME #SevereME #SevereMEDay #ICDG93.3 #ICDG93.32
“Severe and very severe ME/CFS represents one of the most profound states of disability found in medicine.”
– @batemanhornecenter.bsky.social , USA
worldmealliance.org/what-is-me/s...
#ME/Cfs #pwME #SevereME #SevereMEDay #ICDG93.3 #ICDG93.32
Severe ME - World ME Alliance
worldmealliance.org
August 4, 2025 at 6:35 PM
Understanding severe ME by the world ME alliance
“Severe and very severe ME/CFS represents one of the most profound states of disability found in medicine.”
– @batemanhornecenter.bsky.social , USA
worldmealliance.org/what-is-me/s...
#ME/Cfs #pwME #SevereME #SevereMEDay #ICDG93.3 #ICDG93.32
“Severe and very severe ME/CFS represents one of the most profound states of disability found in medicine.”
– @batemanhornecenter.bsky.social , USA
worldmealliance.org/what-is-me/s...
#ME/Cfs #pwME #SevereME #SevereMEDay #ICDG93.3 #ICDG93.32
2 months until Skopje Marathon 🇲🇰
I'm very undercooked. August and September are big months, hope my stupid legs will hold out!
If you'd like to sponsor me ad edge closer to a cure for M.E
www.justgiving.com/mikeseumarathons
I'm very undercooked. August and September are big months, hope my stupid legs will hold out!
If you'd like to sponsor me ad edge closer to a cure for M.E
www.justgiving.com/mikeseumarathons
August 5, 2025 at 6:38 PM
2 months until Skopje Marathon 🇲🇰
I'm very undercooked. August and September are big months, hope my stupid legs will hold out!
If you'd like to sponsor me ad edge closer to a cure for M.E
www.justgiving.com/mikeseumarathons
I'm very undercooked. August and September are big months, hope my stupid legs will hold out!
If you'd like to sponsor me ad edge closer to a cure for M.E
www.justgiving.com/mikeseumarathons
Reposted by Mike's Euro Maras for M.E.
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
July 2, 2025 at 7:01 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
Had a 2-3 week break and now back in training.
Next one for me is Skopje Marathon, North Macedonia 🇲🇰
Marathon 38, country 34 and I'm likely to reach 10,000 miles.
It looks like a beautiful country. If anybody knows of anyone with M.E there please let me know, I'd love to meet/interview them.
Next one for me is Skopje Marathon, North Macedonia 🇲🇰
Marathon 38, country 34 and I'm likely to reach 10,000 miles.
It looks like a beautiful country. If anybody knows of anyone with M.E there please let me know, I'd love to meet/interview them.
May 27, 2025 at 6:15 PM
Had a 2-3 week break and now back in training.
Next one for me is Skopje Marathon, North Macedonia 🇲🇰
Marathon 38, country 34 and I'm likely to reach 10,000 miles.
It looks like a beautiful country. If anybody knows of anyone with M.E there please let me know, I'd love to meet/interview them.
Next one for me is Skopje Marathon, North Macedonia 🇲🇰
Marathon 38, country 34 and I'm likely to reach 10,000 miles.
It looks like a beautiful country. If anybody knows of anyone with M.E there please let me know, I'd love to meet/interview them.
Race report for Belfast Marathon (European country 33)
£1300 raised for @investinmeresearch.bsky.social
www.mikeseumarathons.eu/belfast-nire...
£1300 raised for @investinmeresearch.bsky.social
www.mikeseumarathons.eu/belfast-nire...
Belfast, N.Ireland
Before European country no.33, I was able to interview 2 people with M.E; Richard and Aileen who told me all about their lives with M.E in Northern Ireland . After landing in Belfast I was met for...
www.mikeseumarathons.eu
May 19, 2025 at 5:54 AM
Race report for Belfast Marathon (European country 33)
£1300 raised for @investinmeresearch.bsky.social
www.mikeseumarathons.eu/belfast-nire...
£1300 raised for @investinmeresearch.bsky.social
www.mikeseumarathons.eu/belfast-nire...
Delighted to complete Belfast Marathon and support people with ME in Northern Ireland
£1051 raised so far for this race takes my total to £51.7k for @investinmeresearch.bsky.social
Race report coming soon. Mara 38 (Euro country 34) will be N.Macedonia, Oct 5
www.justgiving.com/mikeseumarathons
£1051 raised so far for this race takes my total to £51.7k for @investinmeresearch.bsky.social
Race report coming soon. Mara 38 (Euro country 34) will be N.Macedonia, Oct 5
www.justgiving.com/mikeseumarathons
May 6, 2025 at 5:00 PM
Delighted to complete Belfast Marathon and support people with ME in Northern Ireland
£1051 raised so far for this race takes my total to £51.7k for @investinmeresearch.bsky.social
Race report coming soon. Mara 38 (Euro country 34) will be N.Macedonia, Oct 5
www.justgiving.com/mikeseumarathons
£1051 raised so far for this race takes my total to £51.7k for @investinmeresearch.bsky.social
Race report coming soon. Mara 38 (Euro country 34) will be N.Macedonia, Oct 5
www.justgiving.com/mikeseumarathons
Great day exploring Belfast. Such an interesting place with super-friendly people. Looking forward to running for people with ME in Northern Ireland tomorrow.
May 3, 2025 at 8:28 PM
Great day exploring Belfast. Such an interesting place with super-friendly people. Looking forward to running for people with ME in Northern Ireland tomorrow.
Flying out to Northern Ireland today for Belfast Marathon. Looking forward to meeting Joan from the ME association there for dinner
Country 33, £51,189 raised so far @investinmeresearch.bsky.social
Weather looks good for the run, just hope my knee holds up.
www.justgiving.com/mikeseumarathons
Country 33, £51,189 raised so far @investinmeresearch.bsky.social
Weather looks good for the run, just hope my knee holds up.
www.justgiving.com/mikeseumarathons
May 2, 2025 at 6:40 AM
Flying out to Northern Ireland today for Belfast Marathon. Looking forward to meeting Joan from the ME association there for dinner
Country 33, £51,189 raised so far @investinmeresearch.bsky.social
Weather looks good for the run, just hope my knee holds up.
www.justgiving.com/mikeseumarathons
Country 33, £51,189 raised so far @investinmeresearch.bsky.social
Weather looks good for the run, just hope my knee holds up.
www.justgiving.com/mikeseumarathons
Delighted that there's now a more accurate figure of people with ME in the UK (404,000) for the media to use.
Obviously bittersweet, as that is still a huge number of people in daily pain, ignored and with no treatments to recover.
Obviously bittersweet, as that is still a huge number of people in daily pain, ignored and with no treatments to recover.
April 23, 2025 at 8:04 PM
Delighted that there's now a more accurate figure of people with ME in the UK (404,000) for the media to use.
Obviously bittersweet, as that is still a huge number of people in daily pain, ignored and with no treatments to recover.
Obviously bittersweet, as that is still a huge number of people in daily pain, ignored and with no treatments to recover.
M.E in Northern Ireland
'Too many people have already suffered disastrous consequences from harmful and outdated advice. Patients in the UK have died of malnutrition as a result of inadequate care and services'
www.mikeseumarathons.eu/northern-ire...
'Too many people have already suffered disastrous consequences from harmful and outdated advice. Patients in the UK have died of malnutrition as a result of inadequate care and services'
www.mikeseumarathons.eu/northern-ire...
Northern Ireland
14.04.2025
www.mikeseumarathons.eu
April 22, 2025 at 6:43 PM
M.E in Northern Ireland
'Too many people have already suffered disastrous consequences from harmful and outdated advice. Patients in the UK have died of malnutrition as a result of inadequate care and services'
www.mikeseumarathons.eu/northern-ire...
'Too many people have already suffered disastrous consequences from harmful and outdated advice. Patients in the UK have died of malnutrition as a result of inadequate care and services'
www.mikeseumarathons.eu/northern-ire...
M.E in Northern Ireland
'There's no ME specialist, no ME clinics, no care pathway for severe ME... It is incomprehensible that so many patients are left without anything'
I'll be running for Richard and Aileen at Belfast Marathon on May 4th.
www.mikeseumarathons.eu/northern-ire...
'There's no ME specialist, no ME clinics, no care pathway for severe ME... It is incomprehensible that so many patients are left without anything'
I'll be running for Richard and Aileen at Belfast Marathon on May 4th.
www.mikeseumarathons.eu/northern-ire...
Northern Ireland
14.04.2025
www.mikeseumarathons.eu
April 15, 2025 at 12:23 PM
M.E in Northern Ireland
'There's no ME specialist, no ME clinics, no care pathway for severe ME... It is incomprehensible that so many patients are left without anything'
I'll be running for Richard and Aileen at Belfast Marathon on May 4th.
www.mikeseumarathons.eu/northern-ire...
'There's no ME specialist, no ME clinics, no care pathway for severe ME... It is incomprehensible that so many patients are left without anything'
I'll be running for Richard and Aileen at Belfast Marathon on May 4th.
www.mikeseumarathons.eu/northern-ire...
3 years since completing a marathon race in all 27 EU nations for @investinmeresearch.bsky.social
£42k raised at the time.
Gone on to run in another 5 new countries since then, adding £9k.
It was a life changing experience. Am still here representing my ME pals until we get a cure.
£42k raised at the time.
Gone on to run in another 5 new countries since then, adding £9k.
It was a life changing experience. Am still here representing my ME pals until we get a cure.
March 27, 2025 at 7:21 PM
3 years since completing a marathon race in all 27 EU nations for @investinmeresearch.bsky.social
£42k raised at the time.
Gone on to run in another 5 new countries since then, adding £9k.
It was a life changing experience. Am still here representing my ME pals until we get a cure.
£42k raised at the time.
Gone on to run in another 5 new countries since then, adding £9k.
It was a life changing experience. Am still here representing my ME pals until we get a cure.
If the government actually committed proper funding for ME and Long Covid research they wouldn't need to target disabled people.
There'd be hundreds of thousands of people actively in the workforce.
There'd be hundreds of thousands of people actively in the workforce.
March 18, 2025 at 6:47 PM
If the government actually committed proper funding for ME and Long Covid research they wouldn't need to target disabled people.
There'd be hundreds of thousands of people actively in the workforce.
There'd be hundreds of thousands of people actively in the workforce.
8 years since I ran Barcelona Marathon and met so many amazing people with ME. Hot race but iconic and beautiful. £800 raised.
March 12, 2025 at 3:15 PM
8 years since I ran Barcelona Marathon and met so many amazing people with ME. Hot race but iconic and beautiful. £800 raised.
February 28, 2025 at 10:50 PM
Reposted by Mike's Euro Maras for M.E.
I've had #ME for 38 years, nothing has changed in that time, no care, treatments or funding for biomedical research
It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades
#FundThePlan @ashleydaltonmp.bsky.social &
@rthonwesstreeting.bsky.social
It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades
#FundThePlan @ashleydaltonmp.bsky.social &
@rthonwesstreeting.bsky.social
February 25, 2025 at 2:24 PM
I've had #ME for 38 years, nothing has changed in that time, no care, treatments or funding for biomedical research
It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades
#FundThePlan @ashleydaltonmp.bsky.social &
@rthonwesstreeting.bsky.social
It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades
#FundThePlan @ashleydaltonmp.bsky.social &
@rthonwesstreeting.bsky.social
Reposted by Mike's Euro Maras for M.E.
Registration for our 17th International ME Conference is open
investinme.org/IIMEC17.shtml
#mecfs #IIMEC17 #BRMEC14 #IMECW2025 #research #CPD
investinme.org/IIMEC17.shtml
#mecfs #IIMEC17 #BRMEC14 #IMECW2025 #research #CPD
February 25, 2025 at 5:07 PM
Registration for our 17th International ME Conference is open
investinme.org/IIMEC17.shtml
#mecfs #IIMEC17 #BRMEC14 #IMECW2025 #research #CPD
investinme.org/IIMEC17.shtml
#mecfs #IIMEC17 #BRMEC14 #IMECW2025 #research #CPD
Reposted by Mike's Euro Maras for M.E.
Loving reminder that when you read posts from me or anyone w/ #MyalgicEncephalomyelitis:
We're among those #pwME (persons w/ M.E.) who have the strength to post.
People w/ #SevereME mostly exist in dark rooms, unable to move or to tolerate light or sound.
It's a hellish existence.
We need help
We're among those #pwME (persons w/ M.E.) who have the strength to post.
People w/ #SevereME mostly exist in dark rooms, unable to move or to tolerate light or sound.
It's a hellish existence.
We need help
February 25, 2025 at 6:46 PM
Loving reminder that when you read posts from me or anyone w/ #MyalgicEncephalomyelitis:
We're among those #pwME (persons w/ M.E.) who have the strength to post.
People w/ #SevereME mostly exist in dark rooms, unable to move or to tolerate light or sound.
It's a hellish existence.
We need help
We're among those #pwME (persons w/ M.E.) who have the strength to post.
People w/ #SevereME mostly exist in dark rooms, unable to move or to tolerate light or sound.
It's a hellish existence.
We need help
200 miles done, 250 to go until Belfast Marathon (May 4th).
Am creaking but ready to attack the training plan.
£50,948 raised so far for @investinmeresearch.bsky.social
www.justgiving.com/mikeseumarathons
Am creaking but ready to attack the training plan.
£50,948 raised so far for @investinmeresearch.bsky.social
www.justgiving.com/mikeseumarathons
February 25, 2025 at 10:25 PM
200 miles done, 250 to go until Belfast Marathon (May 4th).
Am creaking but ready to attack the training plan.
£50,948 raised so far for @investinmeresearch.bsky.social
www.justgiving.com/mikeseumarathons
Am creaking but ready to attack the training plan.
£50,948 raised so far for @investinmeresearch.bsky.social
www.justgiving.com/mikeseumarathons
Reposted by Mike's Euro Maras for M.E.
A paper resulting from the work of IiMER-funded research at the #CofEforME in Norwich Research Park
Cognitive Dysfunction in #MECFS — Aetiology and Potential Treatments
www.mdpi.com/1422-0067/26...
#research
Cognitive Dysfunction in #MECFS — Aetiology and Potential Treatments
www.mdpi.com/1422-0067/26...
#research
Cognitive Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome—Aetiology and Potential Treatments
Systemic infection and inflammation impair mental function through a combination of altered attention and cognition. Here, we comprehensively review the relevant literature and report personal clinica...
www.mdpi.com
February 23, 2025 at 1:19 PM
A paper resulting from the work of IiMER-funded research at the #CofEforME in Norwich Research Park
Cognitive Dysfunction in #MECFS — Aetiology and Potential Treatments
www.mdpi.com/1422-0067/26...
#research
Cognitive Dysfunction in #MECFS — Aetiology and Potential Treatments
www.mdpi.com/1422-0067/26...
#research
Reposted by Mike's Euro Maras for M.E.
Quadram Institute & Invest in ME Research announce #LunaNova Research Fellowship
“...builds on foundations established in Norwich in partnership with the charity to facilitate/support fundamental research in #mecfs for patient benefit"
quadram.ac.uk/quadram-inst... #research
“...builds on foundations established in Norwich in partnership with the charity to facilitate/support fundamental research in #mecfs for patient benefit"
quadram.ac.uk/quadram-inst... #research
Quadram Institute and Invest in ME Research announce new Research Fellowship for Myalgic Encephalomyelitis - Quadram Institute
The Quadram Institute will host a new LunaNova research fellowship into the underlying causes of Myalgic Encephalomyelitis, thanks to Invest in ME Research and LunaNova.
quadram.ac.uk
February 23, 2025 at 9:16 PM
Quadram Institute & Invest in ME Research announce #LunaNova Research Fellowship
“...builds on foundations established in Norwich in partnership with the charity to facilitate/support fundamental research in #mecfs for patient benefit"
quadram.ac.uk/quadram-inst... #research
“...builds on foundations established in Norwich in partnership with the charity to facilitate/support fundamental research in #mecfs for patient benefit"
quadram.ac.uk/quadram-inst... #research