Mom of a kid with POTS
@momofakidwithpots.bsky.social
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Reposted by Mom of a kid with POTS
Yale scientists reviewed 100 years of records and found that Long COVID is part of a larger pattern.
Viruses like polio, SARS, and EBV have long caused lasting illness in some people, often through immune dysfunction
www.cell.com/trends/immun...
Viruses like polio, SARS, and EBV have long caused lasting illness in some people, often through immune dysfunction
www.cell.com/trends/immun...
The lingering shadow of epidemics: post-acute sequelae across history
The SARS-CoV-2 pandemic has drawn global attention to post-acute infection syndromes
(PAIS), with millions affected by post-acute sequelae of COVID-19 (PASC, or Long COVID).
While Long COVID is newly ...
www.cell.com
December 4, 2025 at 4:07 PM
Yale scientists reviewed 100 years of records and found that Long COVID is part of a larger pattern.
Viruses like polio, SARS, and EBV have long caused lasting illness in some people, often through immune dysfunction
www.cell.com/trends/immun...
Viruses like polio, SARS, and EBV have long caused lasting illness in some people, often through immune dysfunction
www.cell.com/trends/immun...
Reposted by Mom of a kid with POTS
Experts Urge Long COVID Study of Historical Illnesses
In a paper publishing in the Cell Press journal..on December 4, scientists & doctors highlight the importance of studying long COVID in the context of other post-acute infection syndromes or chronic illnesses
www.miragenews.com/experts-urge...
In a paper publishing in the Cell Press journal..on December 4, scientists & doctors highlight the importance of studying long COVID in the context of other post-acute infection syndromes or chronic illnesses
www.miragenews.com/experts-urge...
Experts Urge Long COVID Study of Historical Illnesses
In a paper publishing in the Cell Press journal Trends in Immunology on December 4, scientists and doctors highlight the importance of studying long
www.miragenews.com
December 4, 2025 at 4:58 PM
Experts Urge Long COVID Study of Historical Illnesses
In a paper publishing in the Cell Press journal..on December 4, scientists & doctors highlight the importance of studying long COVID in the context of other post-acute infection syndromes or chronic illnesses
www.miragenews.com/experts-urge...
In a paper publishing in the Cell Press journal..on December 4, scientists & doctors highlight the importance of studying long COVID in the context of other post-acute infection syndromes or chronic illnesses
www.miragenews.com/experts-urge...
Reposted by Mom of a kid with POTS
The Diamondback: 'UMD student, former Olympic-level gymnast hopes to raise awareness about POTS'
'Avery Beason, a freshman at the University of Maryland and former gymnast who trained at the Olympic level, lives with a condition that is often misunderstood: POTS'
dbknews.com/2025/12/04/u...
'Avery Beason, a freshman at the University of Maryland and former gymnast who trained at the Olympic level, lives with a condition that is often misunderstood: POTS'
dbknews.com/2025/12/04/u...
UMD student, former Olympic-level gymnast hopes to raise awareness about POTS
POTS can be difficult to diagnose and its symptoms are frequently overlooked, according to the National Institute of Neurological Disorders and Stroke.
dbknews.com
December 4, 2025 at 2:23 PM
The Diamondback: 'UMD student, former Olympic-level gymnast hopes to raise awareness about POTS'
'Avery Beason, a freshman at the University of Maryland and former gymnast who trained at the Olympic level, lives with a condition that is often misunderstood: POTS'
dbknews.com/2025/12/04/u...
'Avery Beason, a freshman at the University of Maryland and former gymnast who trained at the Olympic level, lives with a condition that is often misunderstood: POTS'
dbknews.com/2025/12/04/u...
Reposted by Mom of a kid with POTS
In this 🧵 I describe a study that shows that Epstein-Barr virus, the virus that causes mono, is also a risk factor for lupus.
Also at virology blog. 1/
virology.ws/2025/12/04/a...
Also at virology blog. 1/
virology.ws/2025/12/04/a...
A Viral Risk Factor for Lupus | Virology Blog
by Gertrud U. Rey Characteristic butterfly rash associated with lupus flares. Photo credit: Vecteezy. Epstein-Barr virus (EBV) is a common human herpesvirus ...
virology.ws
December 4, 2025 at 2:04 PM
In this 🧵 I describe a study that shows that Epstein-Barr virus, the virus that causes mono, is also a risk factor for lupus.
Also at virology blog. 1/
virology.ws/2025/12/04/a...
Also at virology blog. 1/
virology.ws/2025/12/04/a...
Reposted by Mom of a kid with POTS
“The problem with Long COVID is that most of society would rather not see it.”
@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
December 1, 2025 at 6:04 PM
“The problem with Long COVID is that most of society would rather not see it.”
@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
Reposted by Mom of a kid with POTS
Remarkable story of a Georgia high school team who used CRISPR to make a rapid diagnostic test strip for Lyme disease, speeding dx from 2 weeks to days
www.cbsnews.com/news/teens-m...
www.cbsnews.com/news/teens-m...
Teens may have come up with a new way to detect, treat Lyme disease using CRISPR gene editing
To compete at iGEM, a sort of science Olympics, teens at a Georgia high school set their sights on finding a better way to detect and treat Lyme disease. Their approach uses CRISPR gene editing.
www.cbsnews.com
December 1, 2025 at 4:06 AM
Remarkable story of a Georgia high school team who used CRISPR to make a rapid diagnostic test strip for Lyme disease, speeding dx from 2 weeks to days
www.cbsnews.com/news/teens-m...
www.cbsnews.com/news/teens-m...
Reposted by Mom of a kid with POTS
‘They don’t have symptoms’: CAR-T therapies send autoimmune diseases into remission www.nature.com/articles/d41...
‘They don’t have symptoms’: CAR-T therapies send autoimmune diseases into remission
Engineered T cells that have been used to treat ulcerative colitis, rheumatoid arthritis and lupus show promising results.
www.nature.com
November 27, 2025 at 12:03 PM
‘They don’t have symptoms’: CAR-T therapies send autoimmune diseases into remission www.nature.com/articles/d41...
Reposted by Mom of a kid with POTS
SciTech Daily: 'Scientists Uncover Hidden Blood Pattern in Long COVID'
'Researchers found persistent microclot and NET structures in Long COVID blood that may explain long-lasting symptoms.'
scitechdaily.com/scientists-u...
'Researchers found persistent microclot and NET structures in Long COVID blood that may explain long-lasting symptoms.'
scitechdaily.com/scientists-u...
Scientists Uncover Hidden Blood Pattern in Long COVID
Researchers found persistent microclot and NET structures in Long COVID blood that may explain long-lasting symptoms.
scitechdaily.com
November 28, 2025 at 6:49 PM
SciTech Daily: 'Scientists Uncover Hidden Blood Pattern in Long COVID'
'Researchers found persistent microclot and NET structures in Long COVID blood that may explain long-lasting symptoms.'
scitechdaily.com/scientists-u...
'Researchers found persistent microclot and NET structures in Long COVID blood that may explain long-lasting symptoms.'
scitechdaily.com/scientists-u...
Reposted by Mom of a kid with POTS
Nice review from Tim Henrich et al laying out a framework for thinking about how the complex landscape of prior, concurrent, and subsequent microbial infection (viral, microbial, fungal) may interact w Covid infection and whether that might play a role in Long Covid elifesciences.org/articles/106...
The role of co-infection in the pathogenesis of acute SARS-CoV-2 infection and development of post-acute sequelae: A perspective
Unraveling mechanisms underlying post-acute SARS-CoV-2 sequelae (long COVID) and finding therapeutic solutions require a full understanding of the causative role of SARS-CoV-2 persistence and/or infec...
elifesciences.org
November 27, 2025 at 11:36 PM
Nice review from Tim Henrich et al laying out a framework for thinking about how the complex landscape of prior, concurrent, and subsequent microbial infection (viral, microbial, fungal) may interact w Covid infection and whether that might play a role in Long Covid elifesciences.org/articles/106...
Reposted by Mom of a kid with POTS
RTE: 'Long Covid turned my life upside down, says scientist'
'Medical scientist Rebecca Broni is still living with its effects and now faces a cut in financial support. "My main problem is really, really intense, crippling fatigue"
"You can't think straight..."
www.rte.ie/news/2025/11...
'Medical scientist Rebecca Broni is still living with its effects and now faces a cut in financial support. "My main problem is really, really intense, crippling fatigue"
"You can't think straight..."
www.rte.ie/news/2025/11...
Long Covid turned my life upside down, says scientist
Five years on from contracting Covid, medical scientist Rebecca Broni is still living with its effects and now faces a cut in financial support.
www.rte.ie
November 28, 2025 at 4:15 PM
RTE: 'Long Covid turned my life upside down, says scientist'
'Medical scientist Rebecca Broni is still living with its effects and now faces a cut in financial support. "My main problem is really, really intense, crippling fatigue"
"You can't think straight..."
www.rte.ie/news/2025/11...
'Medical scientist Rebecca Broni is still living with its effects and now faces a cut in financial support. "My main problem is really, really intense, crippling fatigue"
"You can't think straight..."
www.rte.ie/news/2025/11...
Reposted by Mom of a kid with POTS
'Clinician–researcher David Simon (...) says the CAR-T therapies have since entered phase I and II clinical trials for autoimmune conditions including systemic sclerosis, myositis and rheumatoid arthritis. Phase III trials are also under way for lupus and myasthenia gravis'
‘They don’t have symptoms’: CAR-T therapies send autoimmune diseases into remission
Engineered T cells that have been used to treat ulcerative colitis, rheumatoid arthritis and lupus show promising results.
www.nature.com
November 26, 2025 at 5:37 PM
'Clinician–researcher David Simon (...) says the CAR-T therapies have since entered phase I and II clinical trials for autoimmune conditions including systemic sclerosis, myositis and rheumatoid arthritis. Phase III trials are also under way for lupus and myasthenia gravis'
Reposted by Mom of a kid with POTS
Postural orthostatic tachycardia syndrome (POTS) is a condition that causes your blood pressure to drop when you go from sitting to standing.
What Is POTS?
Postural orthostatic tachycardia syndrome (POTS) is a condition that causes your blood pressure to drop when you go from sitting to standing.
bit.ly
November 26, 2025 at 4:00 AM
Postural orthostatic tachycardia syndrome (POTS) is a condition that causes your blood pressure to drop when you go from sitting to standing.
Reposted by Mom of a kid with POTS
3) In addition to that, there might be a lot of bodily processes that ME/CFS patients can't control that use up a lot of ATP, such as immune activation or inappropriate release of adrenaline for POTS.
November 26, 2025 at 9:33 AM
3) In addition to that, there might be a lot of bodily processes that ME/CFS patients can't control that use up a lot of ATP, such as immune activation or inappropriate release of adrenaline for POTS.
Reposted by Mom of a kid with POTS
STAT News: 'I have long Covid. Don’t call my chronic disease a ‘journey’
By Peter Swenson, professor emeritus, Yale University
'Like an estimated 20 million Americans, I have an incurable post-acute infection syndrome that goes by the name of long Covid...'
www.statnews.com/2025/11/25/c...
By Peter Swenson, professor emeritus, Yale University
'Like an estimated 20 million Americans, I have an incurable post-acute infection syndrome that goes by the name of long Covid...'
www.statnews.com/2025/11/25/c...
I have long Covid. Don’t call my chronic disease a ‘journey’
A “journey” is something you choose. No one chooses chronic illness.
www.statnews.com
November 25, 2025 at 2:15 PM
STAT News: 'I have long Covid. Don’t call my chronic disease a ‘journey’
By Peter Swenson, professor emeritus, Yale University
'Like an estimated 20 million Americans, I have an incurable post-acute infection syndrome that goes by the name of long Covid...'
www.statnews.com/2025/11/25/c...
By Peter Swenson, professor emeritus, Yale University
'Like an estimated 20 million Americans, I have an incurable post-acute infection syndrome that goes by the name of long Covid...'
www.statnews.com/2025/11/25/c...
Reposted by Mom of a kid with POTS
At the Medical University of Innsbruck, researchers reviewed 120 cases and found that postural orthostatic tachycardia syndrome, or POTS, was the most frequent cardiovascular autonomic disorder diagnosed after COVID-19 infection or vaccination.
link.springer.com/article/10.1...
link.springer.com/article/10.1...
Postural orthostatic tachycardia syndrome is the most frequent cardiovascular autonomic disorder following COVID-19 infection or vaccination - Journal of Neurology
Background Cardiovascular autonomic disorders (CAD) were described following COVID-19 infection and vaccination, but previous reports were limited in size and follow-up. Here, we aimed to investigate ...
link.springer.com
November 24, 2025 at 5:43 PM
At the Medical University of Innsbruck, researchers reviewed 120 cases and found that postural orthostatic tachycardia syndrome, or POTS, was the most frequent cardiovascular autonomic disorder diagnosed after COVID-19 infection or vaccination.
link.springer.com/article/10.1...
link.springer.com/article/10.1...
Reposted by Mom of a kid with POTS
I wrote recently about my experience with post-exertional malaise #PEM. Last year, I tried graded exercise therapy and it put me into a #PEMCrash that lasted for months. The physical therapist that “has worked with many #LongCovid #MECFS patients” had this mindset.
substack.com/home/post/p-...
substack.com/home/post/p-...
November 24, 2025 at 11:30 PM
I wrote recently about my experience with post-exertional malaise #PEM. Last year, I tried graded exercise therapy and it put me into a #PEMCrash that lasted for months. The physical therapist that “has worked with many #LongCovid #MECFS patients” had this mindset.
substack.com/home/post/p-...
substack.com/home/post/p-...
Reposted by Mom of a kid with POTS
#MicroSky: Clinical Treatments: In Crohn’s disease, gut bacteria may shape response to biologic therapy. Patients with more Fusobacterium were less likely to improve on ustekinumab, hinting that the microbiome could help predict who benefits most. Read Wang et al. doi.org/10.1111/1751...
November 17, 2025 at 11:01 AM
#MicroSky: Clinical Treatments: In Crohn’s disease, gut bacteria may shape response to biologic therapy. Patients with more Fusobacterium were less likely to improve on ustekinumab, hinting that the microbiome could help predict who benefits most. Read Wang et al. doi.org/10.1111/1751...
Reposted by Mom of a kid with POTS
At Université de Namur, researchers transferred IgG from 13 long COVID patients with neurological symptoms into mice.
The mice showed temporary pain sensitivity but no cognitive or mood changes, suggesting autoantibodies may drive long COVID pain.
www.biorxiv.org/content/10.1...
The mice showed temporary pain sensitivity but no cognitive or mood changes, suggesting autoantibodies may drive long COVID pain.
www.biorxiv.org/content/10.1...
Pathogenic IgG from long COVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice
Approximately 30% of long COVID patients still experience neurological symptoms (brain fog, pain, chronic fatigue) more than 4 months after the onset of COVID-19. This condition, known as neurological...
www.biorxiv.org
November 21, 2025 at 5:11 AM
At Université de Namur, researchers transferred IgG from 13 long COVID patients with neurological symptoms into mice.
The mice showed temporary pain sensitivity but no cognitive or mood changes, suggesting autoantibodies may drive long COVID pain.
www.biorxiv.org/content/10.1...
The mice showed temporary pain sensitivity but no cognitive or mood changes, suggesting autoantibodies may drive long COVID pain.
www.biorxiv.org/content/10.1...
Reposted by Mom of a kid with POTS
Groundbreaking research suggests that food allergies might actually begin with the skin, not the stomach. Those messy meals, the drool rashes, the eczema patches that so many babies develop—they could be secret doorways for creating lifelong allergies.
Plot Twist: Food Allergies Might Not Start with Food
Skin as Ground Zero: How a Broken Barrier Sparks Food Allergies
open.substack.com
November 19, 2025 at 9:08 PM
Groundbreaking research suggests that food allergies might actually begin with the skin, not the stomach. Those messy meals, the drool rashes, the eczema patches that so many babies develop—they could be secret doorways for creating lifelong allergies.
Reposted by Mom of a kid with POTS
Virginia Tech News: 'A graduate program for future biomedical research leaders'
'As a young athlete, she was diagnosed with POTS... now, Dunkenberger joins Virginia Tech as part of the Translational Biology, Medicine, and Health Graduate Program..'
news.vt.edu/articles/202...
'As a young athlete, she was diagnosed with POTS... now, Dunkenberger joins Virginia Tech as part of the Translational Biology, Medicine, and Health Graduate Program..'
news.vt.edu/articles/202...
A graduate program for future biomedical research leaders
This fall’s entering class is one of the largest for the Translational Biology, Medicine, and Health Graduate Program, which is also expanding from Roanoke to the greater Washington, D.C., area.
news.vt.edu
November 19, 2025 at 2:19 PM
Virginia Tech News: 'A graduate program for future biomedical research leaders'
'As a young athlete, she was diagnosed with POTS... now, Dunkenberger joins Virginia Tech as part of the Translational Biology, Medicine, and Health Graduate Program..'
news.vt.edu/articles/202...
'As a young athlete, she was diagnosed with POTS... now, Dunkenberger joins Virginia Tech as part of the Translational Biology, Medicine, and Health Graduate Program..'
news.vt.edu/articles/202...
Reposted by Mom of a kid with POTS
✨Please share! My newsletter is out.✨
💉Flu strain mismatch to vaccine this yr, but should help some
📈RSV, Flu starting to ⬆️
🔬 Long COVID research update from PolyBio symposium
🦆 1st human case of H5N5 Bird Flu in WA state
🦋 EBV link to Lupus
& much more buff.ly/DS8XnhH
#medsky #pedsky #IDsky 🛟😷🧪
💉Flu strain mismatch to vaccine this yr, but should help some
📈RSV, Flu starting to ⬆️
🔬 Long COVID research update from PolyBio symposium
🦆 1st human case of H5N5 Bird Flu in WA state
🦋 EBV link to Lupus
& much more buff.ly/DS8XnhH
#medsky #pedsky #IDsky 🛟😷🧪
November 17, 2025 at 5:08 AM
✨Please share! My newsletter is out.✨
💉Flu strain mismatch to vaccine this yr, but should help some
📈RSV, Flu starting to ⬆️
🔬 Long COVID research update from PolyBio symposium
🦆 1st human case of H5N5 Bird Flu in WA state
🦋 EBV link to Lupus
& much more buff.ly/DS8XnhH
#medsky #pedsky #IDsky 🛟😷🧪
💉Flu strain mismatch to vaccine this yr, but should help some
📈RSV, Flu starting to ⬆️
🔬 Long COVID research update from PolyBio symposium
🦆 1st human case of H5N5 Bird Flu in WA state
🦋 EBV link to Lupus
& much more buff.ly/DS8XnhH
#medsky #pedsky #IDsky 🛟😷🧪
Reposted by Mom of a kid with POTS
GLP-1s are being studied for a wide range of conditions. Now, scientists will test whether their anti-inflammatory properties can help alleviate symptoms of #LongCovid. @wired.com @emilymullin.bsky.social
www.wired.com/story/weight...
www.wired.com/story/weight...
Weight-Loss Drug Zepbound Is Being Tested as a Treatment for Long Covid
GLP-1s are being studied for a wide range of conditions. Now, scientists will test whether their anti-inflammatory properties can help alleviate symptoms of long Covid.
www.wired.com
November 14, 2025 at 6:22 PM
GLP-1s are being studied for a wide range of conditions. Now, scientists will test whether their anti-inflammatory properties can help alleviate symptoms of #LongCovid. @wired.com @emilymullin.bsky.social
www.wired.com/story/weight...
www.wired.com/story/weight...
Reposted by Mom of a kid with POTS
Previous multiple sclerosis, now the potential role of Epstein Barr virus for driving lupus (SLE)
science.org/doi/10.1126/...
science.org/doi/10.1126/...
November 12, 2025 at 7:56 PM
Previous multiple sclerosis, now the potential role of Epstein Barr virus for driving lupus (SLE)
science.org/doi/10.1126/...
science.org/doi/10.1126/...
Reposted by Mom of a kid with POTS
Scientists are exploring how cancer-derived cell therapies like CAR-T could reprogram immune cells and help people with autoimmune diseases like lupus.
Researchers try bold new approach in a race to better treat autoimmune diseases
There's a new frontier in treating autoimmune diseases. Today's treatments tamp down the friendly fire but don't fix what's causing it.
bit.ly
November 13, 2025 at 10:00 PM
Scientists are exploring how cancer-derived cell therapies like CAR-T could reprogram immune cells and help people with autoimmune diseases like lupus.
Reposted by Mom of a kid with POTS
Epstein-Barr virus is linked to development of the autoimmune disease lupus in new research
www.scientificamerican.com/article/the-...
www.scientificamerican.com/article/the-...
The Virus That Causes Mono May Also Cause Lupus
Early findings indicate that Epstein-Barr Virus may also cause the autoimmune disease lupus
www.scientificamerican.com
November 13, 2025 at 2:22 PM
Epstein-Barr virus is linked to development of the autoimmune disease lupus in new research
www.scientificamerican.com/article/the-...
www.scientificamerican.com/article/the-...