Claire Sam
@londonlorelei.bsky.social
#CIDP
#ChronicInflammatoryDemyelinatingPolyneuropathy #AutoimmuneDisease
#ChronicInflammatoryDemyelinatingPolyneuropathy #AutoimmuneDisease
Reposted by Claire Sam
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
November 15, 2025 at 7:52 AM
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
Got my new official @inflamneurouk.bsky.social t-shirt and it's great! Available now from the website in quality stretchy cotton. Only trouble is, it clashes with my hair 😂 Maybe pink is the way ahead... 🤔
www.inflammatoryneuropathies.uk/shop
www.inflammatoryneuropathies.uk/shop
September 17, 2025 at 1:02 PM
Got my new official @inflamneurouk.bsky.social t-shirt and it's great! Available now from the website in quality stretchy cotton. Only trouble is, it clashes with my hair 😂 Maybe pink is the way ahead... 🤔
www.inflammatoryneuropathies.uk/shop
www.inflammatoryneuropathies.uk/shop
The Everything in Everything
Josie George, once again expressing my own feelings of how to navigate brutal times in a beautiful world SO much better than I am able to.
Josie George, once again expressing my own feelings of how to navigate brutal times in a beautiful world SO much better than I am able to.
The Everything in Everything
The biggest puzzle of all right now - what on earth to do about it all?
open.substack.com
July 22, 2025 at 7:19 AM
The Everything in Everything
Josie George, once again expressing my own feelings of how to navigate brutal times in a beautiful world SO much better than I am able to.
Josie George, once again expressing my own feelings of how to navigate brutal times in a beautiful world SO much better than I am able to.
Reposted by Claire Sam
Nearly 18k cis women have signed this petition. If you are cis and haven't signed it already and support the trans+ community, please sign and share this.
If you are trans, remember you are supported; however, the transphobes try to make it look. Please share this.
www.change.org/p/not-in-our...
If you are trans, remember you are supported; however, the transphobes try to make it look. Please share this.
www.change.org/p/not-in-our...
Sign the Petition
Not in our name: Women in support of the trans+ community
www.change.org
May 31, 2025 at 5:54 PM
Nearly 18k cis women have signed this petition. If you are cis and haven't signed it already and support the trans+ community, please sign and share this.
If you are trans, remember you are supported; however, the transphobes try to make it look. Please share this.
www.change.org/p/not-in-our...
If you are trans, remember you are supported; however, the transphobes try to make it look. Please share this.
www.change.org/p/not-in-our...
Reposted by Claire Sam
Well this couldn’t have come at a better time www.bbc.com/news/article...
Scientists at Loughborough University create 'world's smallest violin'
The violin is smaller than a human hair and has "laid the groundwork" for future research.
www.bbc.com
June 5, 2025 at 9:08 PM
Well this couldn’t have come at a better time www.bbc.com/news/article...
Reposted by Claire Sam
a friend of mine shared this ai-generated "emotion wheel" and unfortunately i have been laughing my ass off at it for like 15 minutes now. today i am feeling Fnliinneon
June 5, 2025 at 2:46 PM
a friend of mine shared this ai-generated "emotion wheel" and unfortunately i have been laughing my ass off at it for like 15 minutes now. today i am feeling Fnliinneon
Reposted by Claire Sam
Thanks to trustee, Lora, for organising this display for the #GBS and #CIDP community in #GBSCIDPAwarenessMonth.
#Kilmarnock, in #EastAyrshire may only have a handful of people impacted by these rare conditions. For someone feeling isolated, this display may be when they realise they’re not alone.
#Kilmarnock, in #EastAyrshire may only have a handful of people impacted by these rare conditions. For someone feeling isolated, this display may be when they realise they’re not alone.
May 22, 2025 at 4:54 PM
Thanks to trustee, Lora, for organising this display for the #GBS and #CIDP community in #GBSCIDPAwarenessMonth.
#Kilmarnock, in #EastAyrshire may only have a handful of people impacted by these rare conditions. For someone feeling isolated, this display may be when they realise they’re not alone.
#Kilmarnock, in #EastAyrshire may only have a handful of people impacted by these rare conditions. For someone feeling isolated, this display may be when they realise they’re not alone.
Reposted by Claire Sam
🤖 AI firms have strip mined creative work to train their models. We’re looking into mounting a legal challenge.
✍️ If big tech has stolen your writing, art, photos, music – we’d love to hear from you. Together we can stand up for human creativity.
✍️ If big tech has stolen your writing, art, photos, music – we’d love to hear from you. Together we can stand up for human creativity.
Stop AI giants stealing our work | Good Law Project
Use the form and let us know the nature of your enquiry, so we can pass it to the relevant team as quickly as possible.
goodlawproject.org
April 27, 2025 at 5:01 PM
🤖 AI firms have strip mined creative work to train their models. We’re looking into mounting a legal challenge.
✍️ If big tech has stolen your writing, art, photos, music – we’d love to hear from you. Together we can stand up for human creativity.
✍️ If big tech has stolen your writing, art, photos, music – we’d love to hear from you. Together we can stand up for human creativity.
Reposted by Claire Sam
Reposted by Claire Sam
When someone's unwell, it's natural that we want to say something positive. When you're living with a chronic condition, even with the best of intentions those remarks may come off as unhelpful. Help us share what not to say by leaving your 'please don't say's' in the replies.
April 1, 2025 at 4:30 PM
When someone's unwell, it's natural that we want to say something positive. When you're living with a chronic condition, even with the best of intentions those remarks may come off as unhelpful. Help us share what not to say by leaving your 'please don't say's' in the replies.
Reposted by Claire Sam
Brian James RIP
Sorry to hear of the passing of the genius guitar player who formed The Damned and created punk rock. louderthanwar.com/brian-james-... via @louderthanwar
Sorry to hear of the passing of the genius guitar player who formed The Damned and created punk rock. louderthanwar.com/brian-james-... via @louderthanwar
Brian James RIP
Brian James RIP
louderthanwar.com
March 6, 2025 at 9:17 PM
Brian James RIP
Sorry to hear of the passing of the genius guitar player who formed The Damned and created punk rock. louderthanwar.com/brian-james-... via @louderthanwar
Sorry to hear of the passing of the genius guitar player who formed The Damned and created punk rock. louderthanwar.com/brian-james-... via @louderthanwar
Marked my own #RareDisease #CIDP #NF155 at the National Hospital for Neurology & Neurosurgery. Things are still on track & I've regained virtually all of the losses caused by my broken elbow last Summer. Sending biggest love & solidarity to all the Zebras out there 🦓 @gaincharity
#RareDiseaseDay
#RareDiseaseDay
March 1, 2025 at 7:18 AM
Marked my own #RareDisease #CIDP #NF155 at the National Hospital for Neurology & Neurosurgery. Things are still on track & I've regained virtually all of the losses caused by my broken elbow last Summer. Sending biggest love & solidarity to all the Zebras out there 🦓 @gaincharity
#RareDiseaseDay
#RareDiseaseDay
‘No one is born knowing how to chop an onion’
www.vittlesmagazine.com/p/no-is-born...
www.vittlesmagazine.com/p/no-is-born...
‘No one is born knowing how to chop an onion’
An essay on living with autism and chopping onions. Plus an announcement. Words and photograph by Charlie Benjamin.
www.vittlesmagazine.com
February 24, 2025 at 11:51 AM
‘No one is born knowing how to chop an onion’
www.vittlesmagazine.com/p/no-is-born...
www.vittlesmagazine.com/p/no-is-born...
Reposted by Claire Sam
An extract from Light Rains Sometimes Fall is on Melissa Harrison’s excellent nature journaling app Encounter right now. The app launches officially in April but is already beautiful and free to download. www.encounter-nature.com
February 15, 2025 at 9:12 AM
An extract from Light Rains Sometimes Fall is on Melissa Harrison’s excellent nature journaling app Encounter right now. The app launches officially in April but is already beautiful and free to download. www.encounter-nature.com
Reposted by Claire Sam
QueerAF, the UK’s beloved queer newsletter and largest advocate of queer creatives, needs your help to stay strong and fighting for you.
We need you to support our critical crowdfunder 👇
This is what we're up against 🧵
www.crowdfunder.co.uk/p/queeraf2025
We need you to support our critical crowdfunder 👇
This is what we're up against 🧵
www.crowdfunder.co.uk/p/queeraf2025
February 4, 2025 at 4:10 PM
QueerAF, the UK’s beloved queer newsletter and largest advocate of queer creatives, needs your help to stay strong and fighting for you.
We need you to support our critical crowdfunder 👇
This is what we're up against 🧵
www.crowdfunder.co.uk/p/queeraf2025
We need you to support our critical crowdfunder 👇
This is what we're up against 🧵
www.crowdfunder.co.uk/p/queeraf2025
Reposted by Claire Sam
Good morning, if you're visiting the Southbank, alongside the London Eye with a view towards Big Ben, there's an exhibition sponsored by TripAdvisor showcasing the photographs of Moroccan artists 🇲🇦👏
Best of all, free tea all weekend ☕
#MoroccoThroughTheLens #LoveAndExploreMorocco
Best of all, free tea all weekend ☕
#MoroccoThroughTheLens #LoveAndExploreMorocco
February 15, 2025 at 9:08 AM
Good morning, if you're visiting the Southbank, alongside the London Eye with a view towards Big Ben, there's an exhibition sponsored by TripAdvisor showcasing the photographs of Moroccan artists 🇲🇦👏
Best of all, free tea all weekend ☕
#MoroccoThroughTheLens #LoveAndExploreMorocco
Best of all, free tea all weekend ☕
#MoroccoThroughTheLens #LoveAndExploreMorocco
Reposted by Claire Sam
It costs money for GB News to pump hate into Britain's homes. Much of that money comes from Sky, which also makes much play of being a force for good. We've made it so easy for you to write and politely ask Sky's Chief Executive to stop funding hate. action.goodlawproject.org/sky-stop-fun...
Sky must stop funding hate speech
CW: Homophobia, hate speech Sky launched its programme for Pride 2024 with a ringing declaration the company was “proud to celebrate LGBTQ+ stories”. But while it was posting shiny videos claiming to ...
action.goodlawproject.org
February 15, 2025 at 6:50 AM
It costs money for GB News to pump hate into Britain's homes. Much of that money comes from Sky, which also makes much play of being a force for good. We've made it so easy for you to write and politely ask Sky's Chief Executive to stop funding hate. action.goodlawproject.org/sky-stop-fun...
Reposted by Claire Sam
🧵 Last night, Work and Pensions Secretary Liz Kendall suggested some people are "taking the mickey" by claiming benefits instead of working.
Given many on disability benefits have mental health problems, comments like this trivialise the realities of mental illness. It’s deeply disheartening. 1/5
Given many on disability benefits have mental health problems, comments like this trivialise the realities of mental illness. It’s deeply disheartening. 1/5
February 7, 2025 at 3:58 PM
🧵 Last night, Work and Pensions Secretary Liz Kendall suggested some people are "taking the mickey" by claiming benefits instead of working.
Given many on disability benefits have mental health problems, comments like this trivialise the realities of mental illness. It’s deeply disheartening. 1/5
Given many on disability benefits have mental health problems, comments like this trivialise the realities of mental illness. It’s deeply disheartening. 1/5
Reposted by Claire Sam
January 23, 2025 at 8:03 AM
Reposted by Claire Sam
Safe Inside - helping people find safer dentists, therapists, hairdressers & more, promoting COVID awareness and clean air. Please help spread awareness, please follow, check out safeinside.co.uk 🙏🙏🙏 #safeinside #cleantheair
Safe Inside
safeinside.co.uk
November 13, 2024 at 10:58 PM
Safe Inside - helping people find safer dentists, therapists, hairdressers & more, promoting COVID awareness and clean air. Please help spread awareness, please follow, check out safeinside.co.uk 🙏🙏🙏 #safeinside #cleantheair
Reposted by Claire Sam
Jimmy fucking Somerville 💪
I hadn't realised the LGBA had done this. Absolute snakes. Quite right, Jimmy.
November 24, 2024 at 11:36 AM
Jimmy fucking Somerville 💪
Reposted by Claire Sam
Hello! If you oppose NHS privatisation please could you repost this and follow me? I need to know who to follow next (it’ll be you!) ⭐️💙
November 20, 2024 at 1:44 PM
Hello! If you oppose NHS privatisation please could you repost this and follow me? I need to know who to follow next (it’ll be you!) ⭐️💙
Good morning 🦋
Mark E Smith reads the football results
YouTube video by m0ggieboy
youtu.be
November 18, 2024 at 7:25 AM
Good morning 🦋
Reposted by Claire Sam
Following you.
7 articles explaining Bluesky stuffs. That I wrote up.
7 articles explaining Bluesky stuffs. That I wrote up.
Bluesky for EXiters
Knowing how things work can be helpful. 🤪
amicite.co.uk
November 17, 2024 at 1:44 PM
Following you.
7 articles explaining Bluesky stuffs. That I wrote up.
7 articles explaining Bluesky stuffs. That I wrote up.
Reposted by Claire Sam
