Lisa Was Here
@lisa-was-here.bsky.social
Formula 1 🏎️ Geek sidelined by Long COVID/ ME & POTS 😷
Winner of the 8th grade Geography Bee 🏆🌎
Winner of the 8th grade Geography Bee 🏆🌎
Reposted by Lisa Was Here
I am thinking of bringing Dr. Perrin to Des Moines, IA to do a Perrin training on 3/17/26 to 3/19/26. I will need 10 healthcare providers (MD, DO, NP, PA), PT, OT, massage and craniosacral therapists to show interests before this will work out. Let me know if you know someone is interested.
November 3, 2025 at 8:11 PM
I am thinking of bringing Dr. Perrin to Des Moines, IA to do a Perrin training on 3/17/26 to 3/19/26. I will need 10 healthcare providers (MD, DO, NP, PA), PT, OT, massage and craniosacral therapists to show interests before this will work out. Let me know if you know someone is interested.
Reposted by Lisa Was Here
Reposted by Lisa Was Here
Help needed for young adult with rapidly worsening ME/CFS in Temecula, CA. Bedbound with increasingly very severe symptoms, needs compassionate hospital care or skilled nursing support. Any Southern CA lived experience, hospital, supportive, or nursing home recommendations? info@mecfsSanDiego.com.
June 28, 2025 at 8:18 PM
Help needed for young adult with rapidly worsening ME/CFS in Temecula, CA. Bedbound with increasingly very severe symptoms, needs compassionate hospital care or skilled nursing support. Any Southern CA lived experience, hospital, supportive, or nursing home recommendations? info@mecfsSanDiego.com.
Reposted by Lisa Was Here
After abandoning every mitigation and infecting kids repeatedly, our media wants to know: why do so many children have Long COVID?
My latest looks at the newest research, the comforting lies that just won't die, and how we got here:
www.thegauntlet.news/p/long-covid...
My latest looks at the newest research, the comforting lies that just won't die, and how we got here:
www.thegauntlet.news/p/long-covid...
Long COVID is Now the Number One Chronic Illness in Children
Repeatedly mass infecting kids with COVID is not a public health strategy. It's a fast pass to declining population health
www.thegauntlet.news
June 16, 2025 at 2:20 AM
After abandoning every mitigation and infecting kids repeatedly, our media wants to know: why do so many children have Long COVID?
My latest looks at the newest research, the comforting lies that just won't die, and how we got here:
www.thegauntlet.news/p/long-covid...
My latest looks at the newest research, the comforting lies that just won't die, and how we got here:
www.thegauntlet.news/p/long-covid...
Reposted by Lisa Was Here
Long Covid has surpassed asthma as the most common chronic illness in kids.
The most heartbreaking part? Those are just the cases who’ve managed to be diagnosed.
Many kids suffer in silence. They’re just learning what their “normal” is, so they may not even know they’re sick.
The most heartbreaking part? Those are just the cases who’ve managed to be diagnosed.
Many kids suffer in silence. They’re just learning what their “normal” is, so they may not even know they’re sick.
After abandoning every mitigation and infecting kids repeatedly, our media wants to know: why do so many children have Long COVID?
My latest looks at the newest research, the comforting lies that just won't die, and how we got here:
www.thegauntlet.news/p/long-covid...
My latest looks at the newest research, the comforting lies that just won't die, and how we got here:
www.thegauntlet.news/p/long-covid...
Long COVID is Now the Number One Chronic Illness in Children
Repeatedly mass infecting kids with COVID is not a public health strategy. It's a fast pass to declining population health
www.thegauntlet.news
June 16, 2025 at 3:18 AM
Long Covid has surpassed asthma as the most common chronic illness in kids.
The most heartbreaking part? Those are just the cases who’ve managed to be diagnosed.
Many kids suffer in silence. They’re just learning what their “normal” is, so they may not even know they’re sick.
The most heartbreaking part? Those are just the cases who’ve managed to be diagnosed.
Many kids suffer in silence. They’re just learning what their “normal” is, so they may not even know they’re sick.
Reposted by Lisa Was Here
Register today for EmPOWER M.E: "Pacing: Power in Slowing Down." Experts & #MECFS patient leaders will discuss strategies for pacing in public spaces and at home.
Join us on Friday, June 27th @ 10 am PT / 1 pm ET by registering here:
ow.ly/a2T850W4c4H
Join us on Friday, June 27th @ 10 am PT / 1 pm ET by registering here:
ow.ly/a2T850W4c4H
June 4, 2025 at 3:35 PM
Register today for EmPOWER M.E: "Pacing: Power in Slowing Down." Experts & #MECFS patient leaders will discuss strategies for pacing in public spaces and at home.
Join us on Friday, June 27th @ 10 am PT / 1 pm ET by registering here:
ow.ly/a2T850W4c4H
Join us on Friday, June 27th @ 10 am PT / 1 pm ET by registering here:
ow.ly/a2T850W4c4H
Reposted by Lisa Was Here
From @tomkindlon.bsky.social:
New in the Irish Times: Patrick Ussher explores the science behind ME/CFS to understand and cope with his illness.
“Is there a comprehensive explanation for this long-misunderstood illness?”
www.irishtimes.com/health/your-...
New in the Irish Times: Patrick Ussher explores the science behind ME/CFS to understand and cope with his illness.
“Is there a comprehensive explanation for this long-misunderstood illness?”
www.irishtimes.com/health/your-...
ME/CFS: Is there a comprehensive explanation for this long-misunderstood illness?
Author Patrick Ussher undertook to understand the latest research in order to cope with his daunting health challenge
www.irishtimes.com
June 5, 2025 at 7:14 AM
From @tomkindlon.bsky.social:
New in the Irish Times: Patrick Ussher explores the science behind ME/CFS to understand and cope with his illness.
“Is there a comprehensive explanation for this long-misunderstood illness?”
www.irishtimes.com/health/your-...
New in the Irish Times: Patrick Ussher explores the science behind ME/CFS to understand and cope with his illness.
“Is there a comprehensive explanation for this long-misunderstood illness?”
www.irishtimes.com/health/your-...
Reposted by Lisa Was Here
I wrote about this when the California wildfires happened & disabled people died.
We aren’t factored into emergency planning.
We aren’t considered in pandemic preparedness.
The expectation is we will simply “fall by the wayside”.
We can do better. Including us would make things safer for all
We aren’t factored into emergency planning.
We aren’t considered in pandemic preparedness.
The expectation is we will simply “fall by the wayside”.
We can do better. Including us would make things safer for all
Disabled People are the Canaries in the Coal Mine
When it comes to natural disasters, pandemics, or disruptions to "normal" life, disabled people are proverbial canaries. We get hit harder and faster than others. Why aren't we factored into plans?
www.disabledginger.com
June 3, 2025 at 1:49 AM
I wrote about this when the California wildfires happened & disabled people died.
We aren’t factored into emergency planning.
We aren’t considered in pandemic preparedness.
The expectation is we will simply “fall by the wayside”.
We can do better. Including us would make things safer for all
We aren’t factored into emergency planning.
We aren’t considered in pandemic preparedness.
The expectation is we will simply “fall by the wayside”.
We can do better. Including us would make things safer for all
Reposted by Lisa Was Here
MedPage Today: 'Health Groups Concerned About Cuts in Trump's Proposed 2026 Budget'
— Some cuts "will set this nation back dramatically in our ability to reduce death and suffering"
www.medpagetoday.com/publichealth...
— Some cuts "will set this nation back dramatically in our ability to reduce death and suffering"
www.medpagetoday.com/publichealth...
Health Groups Concerned About Cuts in Trump's Proposed 2026 Budget
Some cuts 'will set this nation back dramatically in our ability to reduce death and suffering'
www.medpagetoday.com
June 3, 2025 at 1:59 AM
MedPage Today: 'Health Groups Concerned About Cuts in Trump's Proposed 2026 Budget'
— Some cuts "will set this nation back dramatically in our ability to reduce death and suffering"
www.medpagetoday.com/publichealth...
— Some cuts "will set this nation back dramatically in our ability to reduce death and suffering"
www.medpagetoday.com/publichealth...
Reposted by Lisa Was Here
Such an informative #LongCOVID ‘Questions and Answers’ presentation by Prof. Akiko Iwasaki, @virusesimmunity.bsky.social
It’s so important to recognise the airborne nature of this dreadful disease and its implications, for us all, particularly those most vulnerable.
www.youtube.com/watch?v=ilIO...
It’s so important to recognise the airborne nature of this dreadful disease and its implications, for us all, particularly those most vulnerable.
www.youtube.com/watch?v=ilIO...
Long COVID 2025: Symptoms, diagnosis, post-COVID treatments and the latest long COVID research
YouTube video by American Medical Association (AMA)
www.youtube.com
May 12, 2025 at 9:24 AM
Such an informative #LongCOVID ‘Questions and Answers’ presentation by Prof. Akiko Iwasaki, @virusesimmunity.bsky.social
It’s so important to recognise the airborne nature of this dreadful disease and its implications, for us all, particularly those most vulnerable.
www.youtube.com/watch?v=ilIO...
It’s so important to recognise the airborne nature of this dreadful disease and its implications, for us all, particularly those most vulnerable.
www.youtube.com/watch?v=ilIO...
Reposted by Lisa Was Here
From Alberta, Canada, researchers analyzed 69 studies and found SARS-CoV-2 infection probably raises the risk of new chronic conditions in adults and older adults, especially for heart, kidney, and respiratory diseases.
www.medrxiv.org/content/10.1...
www.medrxiv.org/content/10.1...
Risk of new diagnoses and exacerbations of chronic conditions after SARS-CoV-2 infection: a systematic review update
The large number of individuals infected by severe acute respiratory syndrome-coronavirus-2 (SARS-CoV-2) necessitate estimation of the future healthcare burdens. We updated a systematic review examini...
www.medrxiv.org
May 16, 2025 at 12:50 AM
From Alberta, Canada, researchers analyzed 69 studies and found SARS-CoV-2 infection probably raises the risk of new chronic conditions in adults and older adults, especially for heart, kidney, and respiratory diseases.
www.medrxiv.org/content/10.1...
www.medrxiv.org/content/10.1...
Reposted by Lisa Was Here
Welcome immigrants from X interested in science to the friendlier skies of @bsky.app, as documented by a new @nature.com survey (but you already knew that 😉)
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
January 24, 2025 at 3:22 PM
Welcome immigrants from X interested in science to the friendlier skies of @bsky.app, as documented by a new @nature.com survey (but you already knew that 😉)
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
"Bluesky is much better for science. There is much less toxicity, misinformation, and distractions."
www.nature.com/articles/d41...
Reposted by Lisa Was Here
Obviously this is more extreme & overt, but it was also deeply immoral & eugenicist for Biden to claim the pandemic was over & to publicly downplay wearing masks for politics. Even now, we’re still years away from seeing all of the effects of COVID. Fascism occurs on a spectrum—not overnight.
Now it's your fault if you get sick?
Dr. Oz: 'It's your patriotic duty to take care of yourself. Healthy people don't consume healthcare resources.'
Dr. Oz: 'It's your patriotic duty to take care of yourself. Healthy people don't consume healthcare resources.'
April 19, 2025 at 11:02 PM
Obviously this is more extreme & overt, but it was also deeply immoral & eugenicist for Biden to claim the pandemic was over & to publicly downplay wearing masks for politics. Even now, we’re still years away from seeing all of the effects of COVID. Fascism occurs on a spectrum—not overnight.
Reposted by Lisa Was Here
NEW: One million children will go untreated for severe malnutrition, up to 166,000 people will die from malaria and 200,000 more children will be paralyzed by polio over the next decade, internal memos estimated.
The USAID programs were cut anyway.
By Brett Murphy and @annamaria.bsky.social
The USAID programs were cut anyway.
By Brett Murphy and @annamaria.bsky.social
Internal Memos: Senior USAID Leaders Warned Trump Appointees of Hundreds of Thousands of Deaths From Closing Agency
One million children will go untreated for severe malnutrition, up to 166,000 people will die from malaria and 200,000 more children will be paralyzed by polio over the next decade, the memos estimate...
propub.li
March 3, 2025 at 10:07 PM
NEW: One million children will go untreated for severe malnutrition, up to 166,000 people will die from malaria and 200,000 more children will be paralyzed by polio over the next decade, internal memos estimated.
The USAID programs were cut anyway.
By Brett Murphy and @annamaria.bsky.social
The USAID programs were cut anyway.
By Brett Murphy and @annamaria.bsky.social
Reposted by Lisa Was Here
Last week, SciShow, with over 8M subscribers, released a video on #MECFS. It covers ME/CFS symptoms, diagnosis, the impact of #PEM, and more.
Watch it here: www.youtube.com/watch?v=wxSw...
Watch it here: www.youtube.com/watch?v=wxSw...
March 3, 2025 at 6:09 PM
Last week, SciShow, with over 8M subscribers, released a video on #MECFS. It covers ME/CFS symptoms, diagnosis, the impact of #PEM, and more.
Watch it here: www.youtube.com/watch?v=wxSw...
Watch it here: www.youtube.com/watch?v=wxSw...
Reposted by Lisa Was Here
🩺 ME/CFS 101: Many people with ME/CFS have orthostatic intolerance—worsened symptoms like dizziness, nausea, & brain fog from sitting/standing too long. It’s linked to heart rate, BP changes & reduced blood flow to the brain.
🎥 loom.ly/tl5nrbQ
#MECFS #InvisibleIllness @openmedf.bsky.social
🎥 loom.ly/tl5nrbQ
#MECFS #InvisibleIllness @openmedf.bsky.social
February 27, 2025 at 4:32 PM
🩺 ME/CFS 101: Many people with ME/CFS have orthostatic intolerance—worsened symptoms like dizziness, nausea, & brain fog from sitting/standing too long. It’s linked to heart rate, BP changes & reduced blood flow to the brain.
🎥 loom.ly/tl5nrbQ
#MECFS #InvisibleIllness @openmedf.bsky.social
🎥 loom.ly/tl5nrbQ
#MECFS #InvisibleIllness @openmedf.bsky.social
Reposted by Lisa Was Here
A vote to cut Medicaid by $880 billion is basically a vote in favor of mass death.
February 26, 2025 at 3:55 AM
A vote to cut Medicaid by $880 billion is basically a vote in favor of mass death.
Reposted by Lisa Was Here
Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.
February 1, 2025 at 8:59 AM
Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.
Reposted by Lisa Was Here
#50501 coverage
www.newsweek.com/anti-donald-...
www.newsweek.com/anti-donald-...
50501 movement fuels anti-Trump rallies across the US: Live Updates
Protests against Trump's actions are planned across all 50 states Wednesday, with organizers rallying under #buildtheresistance. Follow Newsweek's live blog.
www.newsweek.com
February 5, 2025 at 6:13 PM
#50501 coverage
www.newsweek.com/anti-donald-...
www.newsweek.com/anti-donald-...
Reposted by Lisa Was Here
I don’t want my friends to keep getting sicker
🖤❤️🩹🖤
Words on existing in the severe ME community, TW severe illness ⬇️
🖤❤️🩹🖤
Words on existing in the severe ME community, TW severe illness ⬇️
January 28, 2025 at 4:50 PM
I don’t want my friends to keep getting sicker
🖤❤️🩹🖤
Words on existing in the severe ME community, TW severe illness ⬇️
🖤❤️🩹🖤
Words on existing in the severe ME community, TW severe illness ⬇️
Reposted by Lisa Was Here
Don’t forget if you can’t alt text, tag #alt4me and there are volunteers who will help.
We want to keep Bluesky accessible, and with each influx we see less and less alt text.
It’s a quick and easy way to say you care about disabled people and their experience on the app.
We want to keep Bluesky accessible, and with each influx we see less and less alt text.
It’s a quick and easy way to say you care about disabled people and their experience on the app.
I'm not liking or sharing stuff w/o alt text. Disabled people are on the chopping block, show a little solidarity.
February 1, 2025 at 2:36 AM
Don’t forget if you can’t alt text, tag #alt4me and there are volunteers who will help.
We want to keep Bluesky accessible, and with each influx we see less and less alt text.
It’s a quick and easy way to say you care about disabled people and their experience on the app.
We want to keep Bluesky accessible, and with each influx we see less and less alt text.
It’s a quick and easy way to say you care about disabled people and their experience on the app.
Reposted by Lisa Was Here
Tomorrow evening myself & @mjnabuurs.bsky.social @theresisters.bsky.social are finally going to have a sit down with @juliadoubleday.bsky.social to chat about some of her latest substack posts.
us06web.zoom.us/meeting/regi...
us06web.zoom.us/meeting/regi...
Welcome! You are invited to join a meeting: ReSisters Ep 101 w Julia Doubleday. After registering, you will receive a confirmation email about joining the meeting.
If there's anyone Christine and MJ know will be a great conversationalist, it's writer of The Gauntlet (thegauntlet.news), Julia Doubleday. Julia's thought-provoking pieces on the Covid pandemic, publ...
us06web.zoom.us
February 4, 2025 at 11:05 PM
Tomorrow evening myself & @mjnabuurs.bsky.social @theresisters.bsky.social are finally going to have a sit down with @juliadoubleday.bsky.social to chat about some of her latest substack posts.
us06web.zoom.us/meeting/regi...
us06web.zoom.us/meeting/regi...
Reposted by Lisa Was Here
“One scientist, who has been at NIH for more than 20 years, said he had never seen anything like this before. “It feels more like a government shutdown,” he said.”
CNN: “Scientists at NIH can’t purchase supplies for their studies after Trump administration pauses outside communications”
‘Researchers..at Clinical Trial Center..they weren’t able to order test tubes to draw blood as well as other key study components’
www.cnn.com/2025/01/24/h...
‘Researchers..at Clinical Trial Center..they weren’t able to order test tubes to draw blood as well as other key study components’
www.cnn.com/2025/01/24/h...
Scientists at NIH can’t purchase supplies for their studies after Trump administration pauses outside communications | CNN
Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on all purchasing, including supplies f...
www.cnn.com
January 24, 2025 at 9:59 PM
“One scientist, who has been at NIH for more than 20 years, said he had never seen anything like this before. “It feels more like a government shutdown,” he said.”
Reposted by Lisa Was Here
Hello to all human beings in the Bluesky cosmos. I heard it's pleasant vibes over here. I like to yell good morning off my front porch to my neighbors so maybe I will holler at you sometimes. No interest in hate and disinformation though sorry to say, though beauty and creation do interest me. -III
January 24, 2025 at 10:04 PM
Hello to all human beings in the Bluesky cosmos. I heard it's pleasant vibes over here. I like to yell good morning off my front porch to my neighbors so maybe I will holler at you sometimes. No interest in hate and disinformation though sorry to say, though beauty and creation do interest me. -III