@lavivianaleyva.bsky.social
Chronic illness. ME (Myalgic Encephalomyelitis) Dysautonomia.
And cats, always cats.
And cats, always cats.
Reposted
When the gov’t gave you permission to remove your mask & abandon immunocompromised people, it didn’t only harm us
It harmed EVERYONE
They told you that u were better than disabled / immunocompromised ppl & you believed their lie
Health supremacy is a lie
You went along bc you WANT to believe it
It harmed EVERYONE
They told you that u were better than disabled / immunocompromised ppl & you believed their lie
Health supremacy is a lie
You went along bc you WANT to believe it
April 29, 2025 at 2:08 PM
When the gov’t gave you permission to remove your mask & abandon immunocompromised people, it didn’t only harm us
It harmed EVERYONE
They told you that u were better than disabled / immunocompromised ppl & you believed their lie
Health supremacy is a lie
You went along bc you WANT to believe it
It harmed EVERYONE
They told you that u were better than disabled / immunocompromised ppl & you believed their lie
Health supremacy is a lie
You went along bc you WANT to believe it
Reposted
living through the rise of fascism lets me know how much of it occurs just because people don’t want to appear alarmist
April 15, 2025 at 5:37 PM
living through the rise of fascism lets me know how much of it occurs just because people don’t want to appear alarmist
Reposted
Please ignore tired pieces in publications like the Atlantic that are still trying to stigmatize mask wearing.
Wearing a mask to prevent sickness from airborne viruses is a science-informed position, and it has been that way for over 100 years.
Wearing a mask to prevent sickness from airborne viruses is a science-informed position, and it has been that way for over 100 years.
April 3, 2025 at 11:16 PM
Please ignore tired pieces in publications like the Atlantic that are still trying to stigmatize mask wearing.
Wearing a mask to prevent sickness from airborne viruses is a science-informed position, and it has been that way for over 100 years.
Wearing a mask to prevent sickness from airborne viruses is a science-informed position, and it has been that way for over 100 years.
Reposted
Hear, hear. People with #MECFS and #longCOVID are doing much of the hard work of advocacy and education, while trying to live our lives on scant leftover energy. And by living our lives, I'm talking about trying to take a shower, digest a meal, or reading a book without collapsing from fatigue.
An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases. Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up. bit.ly/42fSrue
April 5, 2025 at 5:46 PM
Hear, hear. People with #MECFS and #longCOVID are doing much of the hard work of advocacy and education, while trying to live our lives on scant leftover energy. And by living our lives, I'm talking about trying to take a shower, digest a meal, or reading a book without collapsing from fatigue.
Reposted
“Not only are Very Severe patients in crisis neglected by Long COVID and ME organizations who should be mobilizing to come to their aid, Severe advocates stepping into the breach are put at risk.”
An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases. Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up. bit.ly/42fSrue
April 5, 2025 at 4:06 PM
“Not only are Very Severe patients in crisis neglected by Long COVID and ME organizations who should be mobilizing to come to their aid, Severe advocates stepping into the breach are put at risk.”
Reposted
Not all “Hands Off” events were in-person. I attended two virtual events centering chronically ill and disabled people for @motherjones.com, who are terrified about attacks to Medicaid, Section 504, research funding, education and more. www.motherjones.com/politics/202...
For some disabled protestors, “Hands Off” went virtual
"We know we have to teach everyone how to include us."
www.motherjones.com
April 5, 2025 at 9:06 PM
Not all “Hands Off” events were in-person. I attended two virtual events centering chronically ill and disabled people for @motherjones.com, who are terrified about attacks to Medicaid, Section 504, research funding, education and more. www.motherjones.com/politics/202...
Reposted
“Our collective spoons are our greatest asset!” We each are limited but together we have power👇. Do what you can, rest, pace, and stay focused, friends.
Y’all are awesome! Keep it up!👏👏👏
/end
Y’all are awesome! Keep it up!👏👏👏
/end
March 28, 2025 at 4:22 PM
“Our collective spoons are our greatest asset!” We each are limited but together we have power👇. Do what you can, rest, pace, and stay focused, friends.
Y’all are awesome! Keep it up!👏👏👏
/end
Y’all are awesome! Keep it up!👏👏👏
/end
Reposted
Rule of thumb for shooting at a protest, capture the crowd, not the people.
April 5, 2025 at 7:19 PM
Rule of thumb for shooting at a protest, capture the crowd, not the people.
Reposted
Covid killed old & sick as well as young & healthy. A virus doesn't give a fuck. It kills with impunity. I was lucky it didn't kill me when I got hit with the Rona early on. Two weeks in bed. I had a Pfizer vaccine, thank my lucky stars. Vaccines save lives. Fuck RFKJ.
RFK Jr. also falsely claimed that “healthy Americans were not dying of Covid... It was a disease that attacked the sick, as with all infectious diseases.”"
1) Well, that's definitely not true.
2) Pretending it were, that would've made it okay that they'd died?
This is just monstrous.
1) Well, that's definitely not true.
2) Pretending it were, that would've made it okay that they'd died?
This is just monstrous.
March 30, 2025 at 3:30 PM
Covid killed old & sick as well as young & healthy. A virus doesn't give a fuck. It kills with impunity. I was lucky it didn't kill me when I got hit with the Rona early on. Two weeks in bed. I had a Pfizer vaccine, thank my lucky stars. Vaccines save lives. Fuck RFKJ.
Reposted
Twenty-three years ago today.
Jerome Burne and the obligatory appearance of Wessely.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
www.theguardian.com/society/2002...
Jerome Burne and the obligatory appearance of Wessely.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
www.theguardian.com/society/2002...
Battle fatigue
For ME sufferers, the bitter feud between the scientists as to whether it is a genuine physical complaint, or more a disease of the mind, has only added to the dispiriting nature of their ailment. Aft...
www.theguardian.com
March 30, 2025 at 4:29 PM
Twenty-three years ago today.
Jerome Burne and the obligatory appearance of Wessely.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
www.theguardian.com/society/2002...
Jerome Burne and the obligatory appearance of Wessely.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
www.theguardian.com/society/2002...
I really don’t advice opening a Churu with your teeth.
March 14, 2025 at 9:07 PM
I really don’t advice opening a Churu with your teeth.
Reposted
Some people need to stay in their own lanes. They're allowed to have biased and uninformed opinions, but when they air those publicly behind an aura of expertise, they become dangerous. There's too much evidence of the biological basis of #ME-CFS and #longCOVID. Willful ignorance is unforgivable.
2/
Extract from wild psychological speculation in the Irish Independent
"Dr Suzanne O’Sullivan examines the rise in recorded cases of autism, ADHD and long Covid, and how labels can bring new problems"
Paywall:
www.independent.ie/entertainmen...
#LongCovid #PASC
Extract from wild psychological speculation in the Irish Independent
"Dr Suzanne O’Sullivan examines the rise in recorded cases of autism, ADHD and long Covid, and how labels can bring new problems"
Paywall:
www.independent.ie/entertainmen...
#LongCovid #PASC
March 14, 2025 at 6:17 PM
Some people need to stay in their own lanes. They're allowed to have biased and uninformed opinions, but when they air those publicly behind an aura of expertise, they become dangerous. There's too much evidence of the biological basis of #ME-CFS and #longCOVID. Willful ignorance is unforgivable.
Reposted
Mike spotted this before the rest of us. 🫡
Publications from 2025 are shared more on Bluesky than on X/Twitter.
Publications from 2025 are shared more on Bluesky than on X/Twitter.
About to talk to medical affairs colleagues, with the news that Bluesky is carrying more posts about new journal publications than X #bluesky #altmetrics #x #xparrot
March 13, 2025 at 3:51 PM
Mike spotted this before the rest of us. 🫡
Publications from 2025 are shared more on Bluesky than on X/Twitter.
Publications from 2025 are shared more on Bluesky than on X/Twitter.
Reposted
When I’m fully disassociated and I put on my active listening face
March 13, 2025 at 7:15 AM
When I’m fully disassociated and I put on my active listening face
Reposted
Decolonizing mental health requires being open to understanding that spiritual forces require constant and careful attention.
crushingcolonialism.org/indigenous-s...
#indigisky #disability #mentalhealth #spirituality
crushingcolonialism.org/indigenous-s...
#indigisky #disability #mentalhealth #spirituality
Indigenous Spirituality: Resilience in Decolonizing Mental Health
As a psychologist and researcher working across Indian country for the past 15 years, notwithstanding significant historical trauma and ongoing systemic challenges, Indigenous people in the so-called ...
crushingcolonialism.org
March 7, 2025 at 11:16 PM
Decolonizing mental health requires being open to understanding that spiritual forces require constant and careful attention.
crushingcolonialism.org/indigenous-s...
#indigisky #disability #mentalhealth #spirituality
crushingcolonialism.org/indigenous-s...
#indigisky #disability #mentalhealth #spirituality
Reposted
![Artist: ChronicallyMeh on Insta
Two things can be TRUE at once
[main character(woman) putting hands out to person "I crave connection"]
[the person passes right by her as she kneels and holds her head in her hands "but I don't have the energy for it"]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreiga2c3o2b5tfspfuzomimiii6c4riv3vk5z46vhldqpq3sqfg6sbe@jpeg)
March 7, 2025 at 11:23 PM
Even when I try to go on other social media to distract myself, I keep reading about “healthy”young people, that have blood clots, or strokes, or a kidney disease, a vascular condition, a new cancer diagnosis… and their doctors are perplexed and can’t explain it…
*screams*
*screams*
March 7, 2025 at 2:04 AM
Even when I try to go on other social media to distract myself, I keep reading about “healthy”young people, that have blood clots, or strokes, or a kidney disease, a vascular condition, a new cancer diagnosis… and their doctors are perplexed and can’t explain it…
*screams*
*screams*
Me abrí una chelita por que me urgía.
Luna ama jugar con la corcholata.
Doble gozo que trae la cerveza.
Luna ama jugar con la corcholata.
Doble gozo que trae la cerveza.
March 4, 2025 at 11:56 PM
Me abrí una chelita por que me urgía.
Luna ama jugar con la corcholata.
Doble gozo que trae la cerveza.
Luna ama jugar con la corcholata.
Doble gozo que trae la cerveza.
Reposted
Thank you @scishow.bsky.social for putting this together.
#MECFS is probably the:
- most common (1 in 100)
- extremely disabling illness (worse quality of life than most conditions even cancer and chronic kidney disease)
- people know next to nothing about (only 6% of med schools teach it.)
#MECFS is probably the:
- most common (1 in 100)
- extremely disabling illness (worse quality of life than most conditions even cancer and chronic kidney disease)
- people know next to nothing about (only 6% of med schools teach it.)
Exercise Actually Makes Chronic Fatigue Syndrome Worse
YouTube video by SciShow
youtu.be
February 20, 2025 at 7:19 PM
Thank you @scishow.bsky.social for putting this together.
#MECFS is probably the:
- most common (1 in 100)
- extremely disabling illness (worse quality of life than most conditions even cancer and chronic kidney disease)
- people know next to nothing about (only 6% of med schools teach it.)
#MECFS is probably the:
- most common (1 in 100)
- extremely disabling illness (worse quality of life than most conditions even cancer and chronic kidney disease)
- people know next to nothing about (only 6% of med schools teach it.)
The very cruel paradox of being terrified when my baseline seems to improve and allows me to feel alive, allowd me to participate of the world somehow.
It is much simpler when I cannot do anything but rot alone in darkness and silence. I feel surrender is easier that way. #MECFS
It is much simpler when I cannot do anything but rot alone in darkness and silence. I feel surrender is easier that way. #MECFS
February 15, 2025 at 8:30 PM
The very cruel paradox of being terrified when my baseline seems to improve and allows me to feel alive, allowd me to participate of the world somehow.
It is much simpler when I cannot do anything but rot alone in darkness and silence. I feel surrender is easier that way. #MECFS
It is much simpler when I cannot do anything but rot alone in darkness and silence. I feel surrender is easier that way. #MECFS
I get so incredibly frustrated with the lack of any research in the very specific weight gain aspect of #ME/CFS , no, metabolic disfunction is not only for when you lose weight.
Funny how you lose due to illness but if you gain it’s entirely you fault.
*screams in lack of research*
Funny how you lose due to illness but if you gain it’s entirely you fault.
*screams in lack of research*
February 8, 2025 at 7:36 PM
I get so incredibly frustrated with the lack of any research in the very specific weight gain aspect of #ME/CFS , no, metabolic disfunction is not only for when you lose weight.
Funny how you lose due to illness but if you gain it’s entirely you fault.
*screams in lack of research*
Funny how you lose due to illness but if you gain it’s entirely you fault.
*screams in lack of research*
Reposted
A private citizen shutting down a government agency is a coup. Do not normalize this.
February 3, 2025 at 5:01 PM
A private citizen shutting down a government agency is a coup. Do not normalize this.
Reposted
what if we kissed under the constant imminent threat of societal collapse
January 31, 2025 at 5:45 PM
what if we kissed under the constant imminent threat of societal collapse