Ezra S
@ezra.zone
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Pinned
Ezra S
@ezra.zone
· Sep 26
today is the three-year anniversary of the covid infection that turned into long covid. it has completely rewritten the course of my life. it has brought me untold levels of physical suffering. it has devastated my mental health.
Reposted by Ezra S
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
November 15, 2025 at 6:09 AM
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
Devastating. Rest in power, @sfdirewolf.bsky.social www.instagram.com/p/DREMDNBjnqk/
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
146 likes, 27 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 5:39 AM
Devastating. Rest in power, @sfdirewolf.bsky.social www.instagram.com/p/DREMDNBjnqk/
really cool trial of Larazotide at Mass General now expanded and open to both pediatric AND adult participants. rally.massgeneralbrigham.org/study/pediat...
Rally | Long COVID Clinical Trial (7 to 50 year-olds)
Do you or your child have Long COVID? We are studying to see if Larazotide improves symptoms in 7-50 years old. There will be 2 visits at MGH and 4 virtual visits over 8 weeks. Compensation for blood ...
rally.massgeneralbrigham.org
November 14, 2025 at 7:29 PM
really cool trial of Larazotide at Mass General now expanded and open to both pediatric AND adult participants. rally.massgeneralbrigham.org/study/pediat...
Reposted by Ezra S
GLP-1s are being studied for a wide range of conditions. Now, scientists will test whether their anti-inflammatory properties can help alleviate symptoms of #LongCovid. @wired.com @emilymullin.bsky.social
www.wired.com/story/weight...
www.wired.com/story/weight...
Weight-Loss Drug Zepbound Is Being Tested as a Treatment for Long Covid
GLP-1s are being studied for a wide range of conditions. Now, scientists will test whether their anti-inflammatory properties can help alleviate symptoms of long Covid.
www.wired.com
November 14, 2025 at 6:22 PM
GLP-1s are being studied for a wide range of conditions. Now, scientists will test whether their anti-inflammatory properties can help alleviate symptoms of #LongCovid. @wired.com @emilymullin.bsky.social
www.wired.com/story/weight...
www.wired.com/story/weight...
petition for a zoom feature that allows organizers to have a persistent text message at the top of the window that says "this will be recorded and posted online afterwards"
November 14, 2025 at 5:59 PM
petition for a zoom feature that allows organizers to have a persistent text message at the top of the window that says "this will be recorded and posted online afterwards"
Reposted by Ezra S
No one leaving New York City because of Mamdani, say two top real estate CEOs
No one leaving New York City because of Mamdani, say two top real estate CEOs
New York City Mayor-elect Zohran Mamdani's democratic socialist views spark fears companies and capital will flee, but top real estate CEOs say it's not true.
cnb.cx
November 14, 2025 at 4:06 PM
No one leaving New York City because of Mamdani, say two top real estate CEOs
happy long covid superbowl (polybio symposium day) to all who celebrate
November 14, 2025 at 3:57 PM
happy long covid superbowl (polybio symposium day) to all who celebrate
why are so many researchers so dead-set on wasting money on poorly designed and executed clinical trials? feel free to reach out to me to avoid this. ezra@longcovidstudies.net
This exemplifies a poorly conceived and executed trial for a potential #LongCovid treatment
58 total participants
51% dropout rate in the intervention group (NR, to raise NAD+ levels)
Negative, woefully underpowered trial
www.thelancet.com/journals/ecl...
58 total participants
51% dropout rate in the intervention group (NR, to raise NAD+ levels)
Negative, woefully underpowered trial
www.thelancet.com/journals/ecl...
Effects of nicotinamide riboside on NAD+ levels, cognition, and symptom recovery in long-COVID: a randomized controlled trial
In long-COVID, NR increased NAD+ within 5 weeks but did not significantly improve
cognition, fatigue, sleep, or mood vs. PBO. Exploratory analyses suggested within-group
benefits after 10 weeks of NR,...
www.thelancet.com
November 13, 2025 at 9:41 PM
why are so many researchers so dead-set on wasting money on poorly designed and executed clinical trials? feel free to reach out to me to avoid this. ezra@longcovidstudies.net
Copper's leadership are personal friends of mine and it's been amazing to see this project come together. I rent, but if I didn't I would buy one of these immediately
This is so cool: Copper, which makes induction stoves with li-ion batteries integrated, is going to build *10,000* of these suckers for use in New York public housing.
Better cooking, easier cleaning, grid resiliency built in. Win win win.
Better cooking, easier cleaning, grid resiliency built in. Win win win.
$32 Million Commitment Announced to Electrify Cooking Appliances in NYCHA Buildings Through Induction Stove Challenge - NYSERDA
The New York Power Authority (NYPA), the New York State Energy Research and Development Authority (NYSERDA), and the New York City Housing Authority (NYCHA) today announced that the next phase of the ...
www.nyserda.ny.gov
November 13, 2025 at 8:08 PM
Copper's leadership are personal friends of mine and it's been amazing to see this project come together. I rent, but if I didn't I would buy one of these immediately
Reposted by Ezra S
Somewhere out there someone who’s the best at what they do is terrified that they have imposter syndrome while a bunch of barely literate pedophiles are very calmly running the world
November 13, 2025 at 4:26 PM
Somewhere out there someone who’s the best at what they do is terrified that they have imposter syndrome while a bunch of barely literate pedophiles are very calmly running the world
One Battle After Another (2025)
NEW: @propublica.org investigated the Chicago apartment raid where kids were zip-tied and citizens detained for hours. They find:
- NONE of the arrested were criminally charged
- NO evidence the building was "filled with TdA terrorists."
- ZERO legitimate reason for DHS to rappel from a Blackhawk.
- NONE of the arrested were criminally charged
- NO evidence the building was "filled with TdA terrorists."
- ZERO legitimate reason for DHS to rappel from a Blackhawk.
November 13, 2025 at 5:36 PM
One Battle After Another (2025)
Reposted by Ezra S
This was a fun one - we talked through each step of my career from grad school to LoCITT-T, as well as my hope for the future of accessibility & inclusion in clinical trials & health research.
Progress, Potential, and Possibilities: 'Dr. Julia Moore Vogel - Scripps Research - Visionary, Patient-Centric Health Research For All'
'..Vogel..Assistant Professor & Senior Program Director at Scripps Research..including The Long COVID Treatment Trial..'
www.youtube.com/watch?v=iH_j...
'..Vogel..Assistant Professor & Senior Program Director at Scripps Research..including The Long COVID Treatment Trial..'
www.youtube.com/watch?v=iH_j...
Dr. Julia Moore Vogel - Scripps Research - Visionary, Patient-Centric Health Research For All
YouTube video by Progress, Potential, and Possibilities
www.youtube.com
November 13, 2025 at 5:01 PM
This was a fun one - we talked through each step of my career from grad school to LoCITT-T, as well as my hope for the future of accessibility & inclusion in clinical trials & health research.
Reposted by Ezra S
In the light of this, it's important to establish the relationship between reactivation of EBV (which, of course, can be triggered by SARS-CoV-2 infection) and the development of new-onset lupus.
www.scientificamerican.com/article/the-...
www.scientificamerican.com/article/the-...
The Virus That Causes Mono May Also Cause Lupus
Early findings indicate that Epstein-Barr Virus may also cause the autoimmune disease lupus
www.scientificamerican.com
November 12, 2025 at 9:21 PM
In the light of this, it's important to establish the relationship between reactivation of EBV (which, of course, can be triggered by SARS-CoV-2 infection) and the development of new-onset lupus.
www.scientificamerican.com/article/the-...
www.scientificamerican.com/article/the-...
Reposted by Ezra S
excuse me while I slip into something more comfortable
November 13, 2025 at 5:23 AM
excuse me while I slip into something more comfortable
Reposted by Ezra S
I really do think The Sick Times is doing some of the most important journalism of our generation. And I can tell you firsthand that Miles and Betsy are the real deal. They care so, so much about getting it right. They’re incredible humans in addition to being such good journalists.
Our #LongCOVID journalism requires reader support — with your help, we can prepare our non-profit newsroom for whatever 2026 brings.
Will you donate today and help us keep this vital work going? the-sick-times.fundjournalism.org/donate/
Will you donate today and help us keep this vital work going? the-sick-times.fundjournalism.org/donate/
November 7, 2025 at 8:50 PM
I really do think The Sick Times is doing some of the most important journalism of our generation. And I can tell you firsthand that Miles and Betsy are the real deal. They care so, so much about getting it right. They’re incredible humans in addition to being such good journalists.
Reposted by Ezra S
There are LoCITT-T participants across 46 states & DC!
We currently do not have participants from:
North Dakota
South Dakota
Mississippi
Puerto Rico
Can you spread the word to anyone with LC there (or in any other, more generally underrepresented community):
longcovid.scripps.edu/locitt-t/?ut...
We currently do not have participants from:
North Dakota
South Dakota
Mississippi
Puerto Rico
Can you spread the word to anyone with LC there (or in any other, more generally underrepresented community):
longcovid.scripps.edu/locitt-t/?ut...
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 12, 2025 at 6:46 PM
There are LoCITT-T participants across 46 states & DC!
We currently do not have participants from:
North Dakota
South Dakota
Mississippi
Puerto Rico
Can you spread the word to anyone with LC there (or in any other, more generally underrepresented community):
longcovid.scripps.edu/locitt-t/?ut...
We currently do not have participants from:
North Dakota
South Dakota
Mississippi
Puerto Rico
Can you spread the word to anyone with LC there (or in any other, more generally underrepresented community):
longcovid.scripps.edu/locitt-t/?ut...
The Christmas Adventurers Club
CLAIM: The government is run by a secret society of pedophiles
RATING: FALSE. This society is in no way a secret
RATING: FALSE. This society is in no way a secret
November 13, 2025 at 2:15 AM
The Christmas Adventurers Club
Reposted by Ezra S
The was a mixup at the empire factory. Introducing OOPS! All Decadence!
November 13, 2025 at 1:56 AM
The was a mixup at the empire factory. Introducing OOPS! All Decadence!
Reposted by Ezra S
One horrific thing to me is that the president- a man who has gotten away with everything including literal murder up to this point- seems extremely nervous about anything regarding Epstein coming out. Like how bad does it have to be
November 12, 2025 at 7:24 PM
One horrific thing to me is that the president- a man who has gotten away with everything including literal murder up to this point- seems extremely nervous about anything regarding Epstein coming out. Like how bad does it have to be
so i called the KP release of medical information office to ask why they keep sending me empty imaging files, and finally i got a knowledgable rep who told me that this happened because the provider had not released the images.
questions:
1) why didn't anyone tell me this previously
2) WHAT
questions:
1) why didn't anyone tell me this previously
2) WHAT
November 12, 2025 at 7:08 PM
so i called the KP release of medical information office to ask why they keep sending me empty imaging files, and finally i got a knowledgable rep who told me that this happened because the provider had not released the images.
questions:
1) why didn't anyone tell me this previously
2) WHAT
questions:
1) why didn't anyone tell me this previously
2) WHAT
current gripe is hold music that constantly pauses in the middle to remind me that I can go online, in such a way that every time this happens I think someone has picked up the phone
November 12, 2025 at 6:23 PM
current gripe is hold music that constantly pauses in the middle to remind me that I can go online, in such a way that every time this happens I think someone has picked up the phone
MAHA
We gotta have a clear term for people so cynical they become gullible.
November 12, 2025 at 6:09 PM
MAHA
i think it's important to pay attention to what leaders *are* doing while we continue to advocate for resources to be devoted to things they are not, but should be doing.
There's an exclusive, closed-to-media MAHA summit tomorrow. Here's the full agenda I was leaked
In attendance will be JD Vance, RFK Jr, Bhattacharya, Makary, actor Russell Brand (who is facing rape and sexual assault charges), and dozens of other MAHA influencers and people in Trump's orbit
In attendance will be JD Vance, RFK Jr, Bhattacharya, Makary, actor Russell Brand (who is facing rape and sexual assault charges), and dozens of other MAHA influencers and people in Trump's orbit
November 11, 2025 at 11:10 PM
i think it's important to pay attention to what leaders *are* doing while we continue to advocate for resources to be devoted to things they are not, but should be doing.
happy birthday to me, i woke up with a splitting headache, people with long covid deserve treatment and care
November 11, 2025 at 6:20 PM
happy birthday to me, i woke up with a splitting headache, people with long covid deserve treatment and care