BlueZebra
@bluezebra30.bsky.social
M.E. since 1976. In the golden rolling hills of California.
Looking at screens sets my eyeballs on fire so there will be pauses.
Looking at screens sets my eyeballs on fire so there will be pauses.
Reposted by BlueZebra
HOLD UP. George Santos is the lead story on the @nytimes.com website on Saturday night? Not the millions of Americans protesting Donald Trump today at 2,700 events in all 50 states? Come on.
www.nytimes.com/2025/10/18/n...
www.nytimes.com/2025/10/18/n...
October 19, 2025 at 2:42 AM
HOLD UP. George Santos is the lead story on the @nytimes.com website on Saturday night? Not the millions of Americans protesting Donald Trump today at 2,700 events in all 50 states? Come on.
www.nytimes.com/2025/10/18/n...
www.nytimes.com/2025/10/18/n...
Currently watching Bullitt from 1968. Steve McQueen in a fast car? Whatever. Steve McQueen in a turtle neck sweater holding a glass of milk?👍🏻👍🏻👍🏻
October 14, 2025 at 11:52 PM
Currently watching Bullitt from 1968. Steve McQueen in a fast car? Whatever. Steve McQueen in a turtle neck sweater holding a glass of milk?👍🏻👍🏻👍🏻
Reposted by BlueZebra
The toll of climate disasters is a direct consequence of decades of disinvestment in the communities most vulnerable to crises. @zacariasm.bsky.social reports on how many disabled & elderly residents were abandoned during California wildfires.
prismreports.org/2025/02/19/d...
prismreports.org/2025/02/19/d...
Disabled and elderly residents were abandoned during LA fires
The majority of those who died were disabled and elderly residents, laying bare the intersections of ableism and climate injustice
prismreports.org
February 19, 2025 at 11:06 PM
The toll of climate disasters is a direct consequence of decades of disinvestment in the communities most vulnerable to crises. @zacariasm.bsky.social reports on how many disabled & elderly residents were abandoned during California wildfires.
prismreports.org/2025/02/19/d...
prismreports.org/2025/02/19/d...
Reposted by BlueZebra
There are a lot of ppl who won’t engage w/ your stuff if it doesn’t have alt text. Change your accessibility settings to remind yourself! Copy-pasting text from an image is easy in the alt text window. If you don’t have capacity, ask for help & someone will hop in—just don’t ignore it as unnecessary
I'm not liking or sharing stuff w/o alt text. Disabled people are on the chopping block, show a little solidarity.
January 31, 2025 at 10:25 PM
There are a lot of ppl who won’t engage w/ your stuff if it doesn’t have alt text. Change your accessibility settings to remind yourself! Copy-pasting text from an image is easy in the alt text window. If you don’t have capacity, ask for help & someone will hop in—just don’t ignore it as unnecessary
Reposted by BlueZebra
I'd probably only trust someone like Jamie Ducharme to write this one. The psychologization of severe-presenting #MECFS and #LongCOVID. Worth a read. 🧪
Props to Rivka Solomon, and other people with lived experience who spoke.
time.com/7206080/long...
Props to Rivka Solomon, and other people with lived experience who spoke.
time.com/7206080/long...
Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards
The chronic illnesses that make doctors doubt their patients often start after what “should” be a short-lived sickness—like COVID-19.
time.com
January 14, 2025 at 4:56 PM
I'd probably only trust someone like Jamie Ducharme to write this one. The psychologization of severe-presenting #MECFS and #LongCOVID. Worth a read. 🧪
Props to Rivka Solomon, and other people with lived experience who spoke.
time.com/7206080/long...
Props to Rivka Solomon, and other people with lived experience who spoke.
time.com/7206080/long...
Reposted by BlueZebra
Please do me a favor, clothes resellers: unscented detergent. PLEASE. The scent just lingers forever even after washing
December 27, 2024 at 8:41 PM
Please do me a favor, clothes resellers: unscented detergent. PLEASE. The scent just lingers forever even after washing
Reposted by BlueZebra
Unless Congress acts in the next three weeks, Medicare will stop covering telehealth.
For people too sick to leave home for months, including millions who have been disabled by Covid, this will mean losing all access to healthcare.
Please sign this petition urging your representatives to act
For people too sick to leave home for months, including millions who have been disabled by Covid, this will mean losing all access to healthcare.
Please sign this petition urging your representatives to act
Preserving Telehealth
Preserving Telehealth Many U.S. telehealth benefits are set to expire shortly at the end of this year (December 31, 2024). With this email campaign, you can simply fill out your information and it wi...
actionnetwork.org
December 4, 2024 at 4:35 AM
Unless Congress acts in the next three weeks, Medicare will stop covering telehealth.
For people too sick to leave home for months, including millions who have been disabled by Covid, this will mean losing all access to healthcare.
Please sign this petition urging your representatives to act
For people too sick to leave home for months, including millions who have been disabled by Covid, this will mean losing all access to healthcare.
Please sign this petition urging your representatives to act
Reposted by BlueZebra
Omg 😭😭😭
Zeynep has never been more right in her life: @patientled.bsky.social is an incredible investment.
Zeynep has never been more right in her life: @patientled.bsky.social is an incredible investment.
New York Times: 'A Great Idea for People With a Terrible Disease: Let’s Find a Cure Ourselves'
'For people with debilitating long Covid, the new year heralds a cruel anniversary: Some are experiencing their fifth year with the agonizing illness...'
www.nytimes.com/2024/11/26/o...
'For people with debilitating long Covid, the new year heralds a cruel anniversary: Some are experiencing their fifth year with the agonizing illness...'
www.nytimes.com/2024/11/26/o...
Opinion | Donate This Holiday Season: Long Covid Research Need Your Help
A group of long Covid patients is financing research, and making progress.
www.nytimes.com
November 26, 2024 at 7:47 PM
Omg 😭😭😭
Zeynep has never been more right in her life: @patientled.bsky.social is an incredible investment.
Zeynep has never been more right in her life: @patientled.bsky.social is an incredible investment.
Reposted by BlueZebra
Ed Yong is a tremendous, erudite writer who has made it his business to really understand #ME # MECFS
November 8, 2023 at 9:11 AM
Ed Yong is a tremendous, erudite writer who has made it his business to really understand #ME # MECFS
Reposted by BlueZebra
#NEISvoid... let's say I accept that I'm going to be working mostly from bed through the winter and have awhile before complete collapse to plan that.
What are some things I can do/buy that will make that easier & more pleasant?
Re-post if you pls ✨
What are some things I can do/buy that will make that easier & more pleasant?
Re-post if you pls ✨
October 25, 2023 at 10:34 PM
#NEISvoid... let's say I accept that I'm going to be working mostly from bed through the winter and have awhile before complete collapse to plan that.
What are some things I can do/buy that will make that easier & more pleasant?
Re-post if you pls ✨
What are some things I can do/buy that will make that easier & more pleasant?
Re-post if you pls ✨
Reposted by BlueZebra
Sadly there's been no response from the CEO of the NHS Trust. "Karen is continuing to struggle and is still getting thinner and thinner." Her family ask the community to continue signing & sharing the petition. Update 👇.
#VerySevereME #EndMalnutritioninME #MECFS
www.change.org/p/save-karen...
#VerySevereME #EndMalnutritioninME #MECFS
www.change.org/p/save-karen...
October 10, 2023 at 1:52 AM
Sadly there's been no response from the CEO of the NHS Trust. "Karen is continuing to struggle and is still getting thinner and thinner." Her family ask the community to continue signing & sharing the petition. Update 👇.
#VerySevereME #EndMalnutritioninME #MECFS
www.change.org/p/save-karen...
#VerySevereME #EndMalnutritioninME #MECFS
www.change.org/p/save-karen...
Reposted by BlueZebra
It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications.
It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.
It’s in the ✨top 0.2%✨ most shared research products of all time.
It’s been live less than a week.
tinyurl.com/ywd3kmjs
It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.
It’s in the ✨top 0.2%✨ most shared research products of all time.
It’s been live less than a week.
tinyurl.com/ywd3kmjs
October 9, 2023 at 2:00 AM
It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications.
It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.
It’s in the ✨top 0.2%✨ most shared research products of all time.
It’s been live less than a week.
tinyurl.com/ywd3kmjs
It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.
It’s in the ✨top 0.2%✨ most shared research products of all time.
It’s been live less than a week.
tinyurl.com/ywd3kmjs
Get to know your mutuals. List 10 things you're into! (My access to these is very limited now.)
Songwriting, playing instruments, singing
Concerts
Photography
Dogs
Organic gardening/landscapes
Hiking/camping
Environmental & social justice
Religious literacy
Art museums/street art
Slow food
Songwriting, playing instruments, singing
Concerts
Photography
Dogs
Organic gardening/landscapes
Hiking/camping
Environmental & social justice
Religious literacy
Art museums/street art
Slow food
Get to know your mutuals. List 10 things you're into! (Due to disability I can't do all)
Writing and drawing
Clouds
Disability justice
Reading/ Audiobooks
Being by the sea
Photography
Succulents
Wildlife
Humour
Apple crumble and custard
Writing and drawing
Clouds
Disability justice
Reading/ Audiobooks
Being by the sea
Photography
Succulents
Wildlife
Humour
Apple crumble and custard
“Get to know your mutuals— list 10 things you’re into!”
[Note: many interests are inactive because no energy]
- native wildflower garden
- sweat bees (adorable)
- JAFF
- Star Trek
- visible repair
- babywearing
- climate action
- hiking
- thinking historically
- Big Brother (TV)
[Note: many interests are inactive because no energy]
- native wildflower garden
- sweat bees (adorable)
- JAFF
- Star Trek
- visible repair
- babywearing
- climate action
- hiking
- thinking historically
- Big Brother (TV)
October 7, 2023 at 8:53 PM
Get to know your mutuals. List 10 things you're into! (My access to these is very limited now.)
Songwriting, playing instruments, singing
Concerts
Photography
Dogs
Organic gardening/landscapes
Hiking/camping
Environmental & social justice
Religious literacy
Art museums/street art
Slow food
Songwriting, playing instruments, singing
Concerts
Photography
Dogs
Organic gardening/landscapes
Hiking/camping
Environmental & social justice
Religious literacy
Art museums/street art
Slow food
Reposted by BlueZebra
We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)
October 7, 2023 at 4:07 PM
We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)
Reposted by BlueZebra
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
October 7, 2023 at 4:03 PM
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Reposted by BlueZebra
Excellent new #mecfs paper by Mayo Clinic & #MEAction. Includes this brilliant graphic, which clearly shows that PEM is not just fatigue. Well done, Jaime! @exceedhergrasp1.bsky.social
www.mayoclinicproceedings.org/article/S002...
www.mayoclinicproceedings.org/article/S002...
October 5, 2023 at 8:49 PM
Excellent new #mecfs paper by Mayo Clinic & #MEAction. Includes this brilliant graphic, which clearly shows that PEM is not just fatigue. Well done, Jaime! @exceedhergrasp1.bsky.social
www.mayoclinicproceedings.org/article/S002...
www.mayoclinicproceedings.org/article/S002...
Seeing so many fab bird photos on my feed. Shout out to #pwME, chronic illness, etc like me who can no longer get out in nature, or even hold up a camera. Here's my photo from 2012, appropriately a California Gull
October 3, 2023 at 7:07 PM
Seeing so many fab bird photos on my feed. Shout out to #pwME, chronic illness, etc like me who can no longer get out in nature, or even hold up a camera. Here's my photo from 2012, appropriately a California Gull
Reposted by BlueZebra
I created this form to help distribute codes so the chronic illness community can congregate on Blue Sky. Please fill it out if you have codes to donate, and spread the link far and wide. forms.gle/LGVPYz8i3U8e... Let's protect our community from platform collapse!
September 30, 2023 at 1:07 AM
I created this form to help distribute codes so the chronic illness community can congregate on Blue Sky. Please fill it out if you have codes to donate, and spread the link far and wide. forms.gle/LGVPYz8i3U8e... Let's protect our community from platform collapse!
My first post here. Getting my bearings, welcoming friends & chronic illness comrades. A haiku:
So this world of dew
Is a world of dew
And yet … and yet …
(18th-century Japanese poet Kobayashi Issa)
So this world of dew
Is a world of dew
And yet … and yet …
(18th-century Japanese poet Kobayashi Issa)
September 29, 2023 at 11:22 PM
My first post here. Getting my bearings, welcoming friends & chronic illness comrades. A haiku:
So this world of dew
Is a world of dew
And yet … and yet …
(18th-century Japanese poet Kobayashi Issa)
So this world of dew
Is a world of dew
And yet … and yet …
(18th-century Japanese poet Kobayashi Issa)