Reposted by Brian Porter
Same for engineering, especially on large complex projects. You aren’t Tony Stark in your robot garage, you are on a team, as leader or follower. Your success or failure will be about the people, especially as a leader. They did it, you just gave them the opportunity.
February 22, 2025 at 3:03 PM
Same for engineering, especially on large complex projects. You aren’t Tony Stark in your robot garage, you are on a team, as leader or follower. Your success or failure will be about the people, especially as a leader. They did it, you just gave them the opportunity.
Reposted by Brian Porter
I just did my 2024 taxes. I had over $13,000 of unreimbursed medical expenses despite low deductible platinum-level insurance. Being chronically ill in the United States is really fucking expensive.
I have a good job with a good salary so, for now, I can afford this. Millions of people cannot.
I have a good job with a good salary so, for now, I can afford this. Millions of people cannot.
February 16, 2025 at 6:41 PM
I just did my 2024 taxes. I had over $13,000 of unreimbursed medical expenses despite low deductible platinum-level insurance. Being chronically ill in the United States is really fucking expensive.
I have a good job with a good salary so, for now, I can afford this. Millions of people cannot.
I have a good job with a good salary so, for now, I can afford this. Millions of people cannot.
Reposted by Brian Porter
WHOA! New users, alt text is standard here. You can remind yourself to add alt by going to settings -> accessibility.
Alt text describes images & text; you can also add context & humor.
Many won't share w/o it, and will even block & mute users who've been here awhile & don't/won't use it.
Alt text describes images & text; you can also add context & humor.
Many won't share w/o it, and will even block & mute users who've been here awhile & don't/won't use it.
November 11, 2024 at 3:27 PM
WHOA! New users, alt text is standard here. You can remind yourself to add alt by going to settings -> accessibility.
Alt text describes images & text; you can also add context & humor.
Many won't share w/o it, and will even block & mute users who've been here awhile & don't/won't use it.
Alt text describes images & text; you can also add context & humor.
Many won't share w/o it, and will even block & mute users who've been here awhile & don't/won't use it.
Reposted by Brian Porter
Cis men truly need to understand the power of saying “that’s fucked up bro why would you say that” to another cis man
The responsibility for resisting and correcting this behavior shouldn’t fall solely on a specific gender. If you’re a man of conscience and you see another man mimicking Nick Fuentes, fuck him up on sight before the women even get a chance. I mean that.
November 8, 2024 at 8:41 PM
Cis men truly need to understand the power of saying “that’s fucked up bro why would you say that” to another cis man
Reposted by Brian Porter
An early study claiming that the risk of long COVID in kids is "strikingly low" has been retracted. New research shows that 10-20% of kids, or about 6 million in the U.S., have long COVID symptoms after infection. www.scientificamerican.com/article/long...
Long COVID Is Harming Too Many Kids. They Need Help.
Pediatric long COVID is more common than many thought, and we keep letting kids be reinfected with new variants
www.scientificamerican.com
October 20, 2024 at 8:08 PM
An early study claiming that the risk of long COVID in kids is "strikingly low" has been retracted. New research shows that 10-20% of kids, or about 6 million in the U.S., have long COVID symptoms after infection. www.scientificamerican.com/article/long...
Reposted by Brian Porter
Normalize telling people what they mean to you.
Big things or small. The person that helps you think about things differently or the pet posts that make you smile for a minute.
You won’t loose cool points for being sincere. I promise.
Big things or small. The person that helps you think about things differently or the pet posts that make you smile for a minute.
You won’t loose cool points for being sincere. I promise.
October 11, 2024 at 5:42 PM
Normalize telling people what they mean to you.
Big things or small. The person that helps you think about things differently or the pet posts that make you smile for a minute.
You won’t loose cool points for being sincere. I promise.
Big things or small. The person that helps you think about things differently or the pet posts that make you smile for a minute.
You won’t loose cool points for being sincere. I promise.
Reposted by Brian Porter
Today is Int’l ME/CFS Awareness Day. It is…a fucking garbage disease lol. If this is the first you’re hearing of it, I so much recommend the Sundance-premiered, Oscar-shortlisted doc UNREST (free on YouTube!)
ME affects more people than MS, incl half of all ppl w/Long Covid. Worth knowing about!
ME affects more people than MS, incl half of all ppl w/Long Covid. Worth knowing about!
UNREST Feature Documentary (With Captions and Multilingual Subtitles)
Jennifer Brea is working on her PhD at Harvard and about to marry the love of her life when she’s struck down by a mysterious fever that leaves her bedridden...
www.youtube.com
May 13, 2024 at 3:42 AM
Today is Int’l ME/CFS Awareness Day. It is…a fucking garbage disease lol. If this is the first you’re hearing of it, I so much recommend the Sundance-premiered, Oscar-shortlisted doc UNREST (free on YouTube!)
ME affects more people than MS, incl half of all ppl w/Long Covid. Worth knowing about!
ME affects more people than MS, incl half of all ppl w/Long Covid. Worth knowing about!
Reposted by Brian Porter
How #MyalgicEncephalomyelitis shrinks your world...
Illustration by Kornelia Paulsen
#pwME
#MillionsMissing
#WorldMEDay
#MEAwarenessDay
Illustration by Kornelia Paulsen
#pwME
#MillionsMissing
#WorldMEDay
#MEAwarenessDay
May 12, 2024 at 4:37 AM
How #MyalgicEncephalomyelitis shrinks your world...
Illustration by Kornelia Paulsen
#pwME
#MillionsMissing
#WorldMEDay
#MEAwarenessDay
Illustration by Kornelia Paulsen
#pwME
#MillionsMissing
#WorldMEDay
#MEAwarenessDay
Reposted by Brian Porter
As usual, this piece from Julia is filled with excellent quotes, including:
"We are the adults. We need to address this situation, protect kids, and clean the air, not laugh it off or act like airborne viral infections are some sort of inevitable act of God."
A-fucking-men.
"We are the adults. We need to address this situation, protect kids, and clean the air, not laugh it off or act like airborne viral infections are some sort of inevitable act of God."
A-fucking-men.
As the true impact of normalizing constant viral infections becomes obvious in school absence data, things are getting weird at the @nytimes
My latest: NYTimes invents increasingly bizarre explanations for pandemic-era student absence crisis
t.co/fNOftrJWbt
My latest: NYTimes invents increasingly bizarre explanations for pandemic-era student absence crisis
t.co/fNOftrJWbt
NYTimes invents increasingly bizarre explanations for pandemic-era student absence crisis
Major media outlets continue laundering Biden's failed pandemic response by attempting to hide student illness behind nonsensical explanations.
t.co
April 4, 2024 at 3:33 AM
As usual, this piece from Julia is filled with excellent quotes, including:
"We are the adults. We need to address this situation, protect kids, and clean the air, not laugh it off or act like airborne viral infections are some sort of inevitable act of God."
A-fucking-men.
"We are the adults. We need to address this situation, protect kids, and clean the air, not laugh it off or act like airborne viral infections are some sort of inevitable act of God."
A-fucking-men.
Reposted by Brian Porter
If you want to know my biggest covid trauma, it's still happening today. Every day. For now four years.
Watching people willfully ignore objective fact and allow themselves to be swayed into pretending reality doesn't exist or is less severe than it actually is.
Watching people willfully ignore objective fact and allow themselves to be swayed into pretending reality doesn't exist or is less severe than it actually is.
March 1, 2024 at 6:55 PM
If you want to know my biggest covid trauma, it's still happening today. Every day. For now four years.
Watching people willfully ignore objective fact and allow themselves to be swayed into pretending reality doesn't exist or is less severe than it actually is.
Watching people willfully ignore objective fact and allow themselves to be swayed into pretending reality doesn't exist or is less severe than it actually is.
Reposted by Brian Porter
Abled people, it’s time to take this battle up for yourselves. The disabled population is too exhausted, too sick, and too dead to keep warning everyone.
January 22, 2024 at 3:43 PM
Abled people, it’s time to take this battle up for yourselves. The disabled population is too exhausted, too sick, and too dead to keep warning everyone.
Reposted by Brian Porter
➡️ Even if you do not currently have LC you 💯 want there to be treatments by the time you do have it! ⬅️
This is an everybody issue!
Please visit longcovidmoonshot.com where you can find a call guide, what Senators are on the committee that we want to encourage to attend, and a script if you like!
This is an everybody issue!
Please visit longcovidmoonshot.com where you can find a call guide, what Senators are on the committee that we want to encourage to attend, and a script if you like!
Long Covid Moonshot
longcovidmoonshot.com
January 16, 2024 at 12:51 AM
➡️ Even if you do not currently have LC you 💯 want there to be treatments by the time you do have it! ⬅️
This is an everybody issue!
Please visit longcovidmoonshot.com where you can find a call guide, what Senators are on the committee that we want to encourage to attend, and a script if you like!
This is an everybody issue!
Please visit longcovidmoonshot.com where you can find a call guide, what Senators are on the committee that we want to encourage to attend, and a script if you like!
You’ve been kidnapped. The characters from the last tv show you watched are trying to rescue you. Who is coming to save you?
Yep, I’m definitely going to be okay. 😅 (Good thing I wasn’t watching _Stargate: Universe_ last! They definitely aren’t coming to get me any time soon.)
Yep, I’m definitely going to be okay. 😅 (Good thing I wasn’t watching _Stargate: Universe_ last! They definitely aren’t coming to get me any time soon.)
January 13, 2024 at 12:46 AM
You’ve been kidnapped. The characters from the last tv show you watched are trying to rescue you. Who is coming to save you?
Yep, I’m definitely going to be okay. 😅 (Good thing I wasn’t watching _Stargate: Universe_ last! They definitely aren’t coming to get me any time soon.)
Yep, I’m definitely going to be okay. 😅 (Good thing I wasn’t watching _Stargate: Universe_ last! They definitely aren’t coming to get me any time soon.)
Reposted by Brian Porter
Don't miss this beautiful obituary of #BethMazur that her life partner Brian Vastag wrote. I guarantee you'll learn things about her you didn't know, and that you'll come away with more appreciation and love for her. Scroll down a bit. www.meaction.net/2024/01/10/b...
January 11, 2024 at 8:26 PM
Don't miss this beautiful obituary of #BethMazur that her life partner Brian Vastag wrote. I guarantee you'll learn things about her you didn't know, and that you'll come away with more appreciation and love for her. Scroll down a bit. www.meaction.net/2024/01/10/b...
Reposted by Brian Porter
As many of you know, Beth Mazur passed away after battling ME for 15 years. She was a co-founder of #MEAction and a selfless beacon of hope and light for so many in our community. The service will be held on January 13th at 2 pm PT/ 5 pm ET. Virtual link: bit.ly/BethMazur
January 10, 2024 at 7:15 PM
As many of you know, Beth Mazur passed away after battling ME for 15 years. She was a co-founder of #MEAction and a selfless beacon of hope and light for so many in our community. The service will be held on January 13th at 2 pm PT/ 5 pm ET. Virtual link: bit.ly/BethMazur
Reposted by Brian Porter
20 years ago we were suing teenagers for millions of dollars because they were torrenting a single Metallica album and now billionaires are demanding the free right to every work in history, so that they can re-sell it.
The law only ever serves capital.
The law only ever serves capital.
‘Impossible’ to create AI tools like ChatGPT without copyrighted material, OpenAI says
‘Impossible’ to create AI tools like ChatGPT without copyrighted material, OpenAI says
Pressure grows on artificial intelligence firms over the content used to train their productsBusiness live – latest updatesThe developer OpenAI has said it would be impossible to create tools like its groundbreaking chatbot ChatGPT without access to copyrighted material, as pressure grows on artificial intelligence firms over the content used to train their products.Chatbots such as ChatGPT and image generators like Stable Diffusion are “trained” on a vast trove of data taken from the internet, with much of it covered by copyright – a legal protection against someone’s work being used without permission. Continue reading...
www.theguardian.com
January 8, 2024 at 4:34 PM
20 years ago we were suing teenagers for millions of dollars because they were torrenting a single Metallica album and now billionaires are demanding the free right to every work in history, so that they can re-sell it.
The law only ever serves capital.
The law only ever serves capital.
Reposted by Brian Porter
A whole lot of people on this thread showing how little attention they've paid to Long COVID.
It's a simple explanation--
Many LC patients are too sick to advocate for themselves.
Whereas with HIV, there's a delay between becoming sick and becoming incapacitated, (1/n)
It's a simple explanation--
Many LC patients are too sick to advocate for themselves.
Whereas with HIV, there's a delay between becoming sick and becoming incapacitated, (1/n)
As someone who reached adulthood just as the AIDS epidemic began, and joined ACT-UP, I cannot figure out why COVID survivors, the sick & the next-of-kin, never started a comparable movement.
January 8, 2024 at 5:22 PM
A whole lot of people on this thread showing how little attention they've paid to Long COVID.
It's a simple explanation--
Many LC patients are too sick to advocate for themselves.
Whereas with HIV, there's a delay between becoming sick and becoming incapacitated, (1/n)
It's a simple explanation--
Many LC patients are too sick to advocate for themselves.
Whereas with HIV, there's a delay between becoming sick and becoming incapacitated, (1/n)
Reposted by Brian Porter
This is why LC activists have been calling repeatedly for abled allies to get in the fight with them.
And why ME/CFS advocates have been calling for the same even before the pandemic!
And why ME/CFS advocates have been calling for the same even before the pandemic!
January 8, 2024 at 5:59 PM
This is why LC activists have been calling repeatedly for abled allies to get in the fight with them.
And why ME/CFS advocates have been calling for the same even before the pandemic!
And why ME/CFS advocates have been calling for the same even before the pandemic!
Reposted by Brian Porter
"I don't know how to be more clear about how much of an existential threat this is, but it doesn't seem to be getting through — we still seem to be in this denial phase of 'othering' the illness.” www.abc.net.au/news/2023-12...
'This is the end of the relationship': The marriages under strain from long COVID
Long COVID is not just destroying people's health. Behind closed doors, in homes across Australia and abroad, it is irreversibly changing relationships — sometimes for the better, too often for wor...
www.abc.net.au
December 27, 2023 at 7:57 AM
"I don't know how to be more clear about how much of an existential threat this is, but it doesn't seem to be getting through — we still seem to be in this denial phase of 'othering' the illness.” www.abc.net.au/news/2023-12...
Reposted by Brian Porter
😔 for those of us who are paying attention, when you try to hold in your head all of the cool dreams and goals that will go unrealized because of Long COVID, the weight of it is soul-crushing.
I will never not be mad about this, that we didn't collectively do more.
I will never not be mad about this, that we didn't collectively do more.
December 24, 2023 at 10:56 PM
😔 for those of us who are paying attention, when you try to hold in your head all of the cool dreams and goals that will go unrealized because of Long COVID, the weight of it is soul-crushing.
I will never not be mad about this, that we didn't collectively do more.
I will never not be mad about this, that we didn't collectively do more.
Reposted by Brian Porter
I was lucky to share the last couple of weeks of #BethMazur's life with her. I want you to know: She felt loved when she died. She died because her ME was unbearable. There's nothing more any of us could have done. Effective treatment is the only thing that could have saved her.
December 24, 2023 at 2:09 PM
I was lucky to share the last couple of weeks of #BethMazur's life with her. I want you to know: She felt loved when she died. She died because her ME was unbearable. There's nothing more any of us could have done. Effective treatment is the only thing that could have saved her.
Reposted by Brian Porter
It's extremely frustrating that Substack is finally getting shit on *now* for explicitly supporting Nazi views when trans people have been telling y'all for *years* that they repeatedly actively funnelled money towards bigots.
December 22, 2023 at 6:53 PM
It's extremely frustrating that Substack is finally getting shit on *now* for explicitly supporting Nazi views when trans people have been telling y'all for *years* that they repeatedly actively funnelled money towards bigots.
Reposted by Brian Porter
Civic duty looks different for folks who look different. It costs them more.
Think about that when a marginalized person steps up to run for something, they put a lot more at stake than some of their opponents.
Think about that when a marginalized person steps up to run for something, they put a lot more at stake than some of their opponents.
This is really top of mind for me when I see folks call for everyone to run for office and help their community.
Like??? Some ppl can’t afford to paint a target on their own backs and sacrifice themselves to save a democracy that doesn’t care about them
Like??? Some ppl can’t afford to paint a target on their own backs and sacrifice themselves to save a democracy that doesn’t care about them
December 21, 2023 at 3:21 PM
Civic duty looks different for folks who look different. It costs them more.
Think about that when a marginalized person steps up to run for something, they put a lot more at stake than some of their opponents.
Think about that when a marginalized person steps up to run for something, they put a lot more at stake than some of their opponents.
Reposted by Brian Porter
If you want to know how bad things are with COVID right now, just be aware that the CDC Director is recommending that people wear masks in public again.
December 7, 2023 at 4:22 PM
If you want to know how bad things are with COVID right now, just be aware that the CDC Director is recommending that people wear masks in public again.
Reposted by Brian Porter
I wrote an op-ed for the NYT about what reporting on long COVID has meant to me—how I approached it, the impact it had, and how it taught me to be a better journalist.
This piece is sort of a manifesto for a journalism grounded in compassion, rigor, and care.
www.nytimes.com/2023/12/11/o...
This piece is sort of a manifesto for a journalism grounded in compassion, rigor, and care.
www.nytimes.com/2023/12/11/o...
Opinion | Reporting on Long Covid Taught Me to Be a Better Journalist
Covering long Covid solidified my view that science is not the objective, neutral force that it is often caricatured to be.
www.nytimes.com
December 11, 2023 at 3:06 PM
I wrote an op-ed for the NYT about what reporting on long COVID has meant to me—how I approached it, the impact it had, and how it taught me to be a better journalist.
This piece is sort of a manifesto for a journalism grounded in compassion, rigor, and care.
www.nytimes.com/2023/12/11/o...
This piece is sort of a manifesto for a journalism grounded in compassion, rigor, and care.
www.nytimes.com/2023/12/11/o...