Lydia, 34
@lydiafd.bsky.social
Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022
I am sincerely thankful to @arleneharris.bsky.social and Yvonne Hogan @independent.ie for covering this story. I have had messages of relief from Long Coviders in Ireland and abroad - our voices are being heard. Thank you!
@newstalkfm.bsky.social @hselive.bsky.social @roinnslainte.bsky.social
@newstalkfm.bsky.social @hselive.bsky.social @roinnslainte.bsky.social
Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone
The country, and the rest of the world, was in the grip of a global pandemic, so when Lydia Fischer Dooley, developed a dry cough, fatigue, weakness and lack of appetite at the start of 2022, she righ...
www.independent.ie
November 11, 2025 at 7:24 PM
I am sincerely thankful to @arleneharris.bsky.social and Yvonne Hogan @independent.ie for covering this story. I have had messages of relief from Long Coviders in Ireland and abroad - our voices are being heard. Thank you!
@newstalkfm.bsky.social @hselive.bsky.social @roinnslainte.bsky.social
@newstalkfm.bsky.social @hselive.bsky.social @roinnslainte.bsky.social
Poor research article based on self-reported phone interviews and discussing the pandemic in the past tense. Do these types of articles do more harm or add to the understanding of the ongoing COVID-19 pandemic? @frontiersin.bsky.social
@meactnet.bsky.social @longcovidsos.bsky.social
@meactnet.bsky.social @longcovidsos.bsky.social
Frontiers | Prevalence of post COVID-19 condition and associations with risk factors among U.S. adults: 2023 Behavioral Risk Factor Surveillance System
IntroductionDuring the COVID-19 pandemic, between 12 and 20% of US adults were identified as having post-COVID-19 condition, commonly referred to as ‘Long CO...
www.frontiersin.org
October 16, 2025 at 3:53 PM
Poor research article based on self-reported phone interviews and discussing the pandemic in the past tense. Do these types of articles do more harm or add to the understanding of the ongoing COVID-19 pandemic? @frontiersin.bsky.social
@meactnet.bsky.social @longcovidsos.bsky.social
@meactnet.bsky.social @longcovidsos.bsky.social
Nevras gofundme attached for ease of access - please consider donating any pennies you might have! 🙏
The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME
www.gofundme.com/f/save-nevra
www.gofundme.com/f/save-nevra
September 8, 2025 at 10:22 AM
Nevras gofundme attached for ease of access - please consider donating any pennies you might have! 🙏
As support for Severe ME continues to be dire globally, please consider donating to Nevra's support fund.
Nevra is a polyglot, inquisitive, and creative young woman.
Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️
Nevra is a polyglot, inquisitive, and creative young woman.
Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️
gofundme.com/f/save-nevra
The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME #MutualAid #DisabilityJustice
#SevereME #VerySevereME #DomesticViolence
The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME #MutualAid #DisabilityJustice
#SevereME #VerySevereME #DomesticViolence
September 8, 2025 at 10:20 AM
As support for Severe ME continues to be dire globally, please consider donating to Nevra's support fund.
Nevra is a polyglot, inquisitive, and creative young woman.
Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️
Nevra is a polyglot, inquisitive, and creative young woman.
Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️
I am a living example of this!
Completely fine with my first infection, recovered and back to normal.
Second infection led to long term illness and disability.
The literature repeatedly backs this trend up: reinfections are a detriment to our health!
Completely fine with my first infection, recovered and back to normal.
Second infection led to long term illness and disability.
The literature repeatedly backs this trend up: reinfections are a detriment to our health!
“Although your immune system can take on [a COVID] infection, you want to avoid testing it as much as possible because your body is sustaining damage with each infection that it survives.”
This is one of the BEST short, sweet, and straightforward interviews I have ever heard about the consequences of covid infections and long covid.
Featuring @putrinolab.bsky.social obviously!!
If you need one radio interview to share with friends, family, etc. this is 💯
www.cbc.ca/radio/quirks...
Featuring @putrinolab.bsky.social obviously!!
If you need one radio interview to share with friends, family, etc. this is 💯
www.cbc.ca/radio/quirks...
August 2, 2025 at 9:14 PM
I am a living example of this!
Completely fine with my first infection, recovered and back to normal.
Second infection led to long term illness and disability.
The literature repeatedly backs this trend up: reinfections are a detriment to our health!
Completely fine with my first infection, recovered and back to normal.
Second infection led to long term illness and disability.
The literature repeatedly backs this trend up: reinfections are a detriment to our health!
And I am one of them!
2019 fully healthy and working.
2025 chronically ill, disabled and not able to work.
My last healthy year I was 29 years old. A second covid infection got me.
The question is, how many more will continue to fall ill?
2019 fully healthy and working.
2025 chronically ill, disabled and not able to work.
My last healthy year I was 29 years old. A second covid infection got me.
The question is, how many more will continue to fall ill?
Just look at how our health has changed in Ireland since COVID began to infect us.
The highlighted data is particularly alarming.
www.cso.ie/en/releasesa...
The highlighted data is particularly alarming.
www.cso.ie/en/releasesa...
July 21, 2025 at 12:39 PM
And I am one of them!
2019 fully healthy and working.
2025 chronically ill, disabled and not able to work.
My last healthy year I was 29 years old. A second covid infection got me.
The question is, how many more will continue to fall ill?
2019 fully healthy and working.
2025 chronically ill, disabled and not able to work.
My last healthy year I was 29 years old. A second covid infection got me.
The question is, how many more will continue to fall ill?
Interesting research outcomes - I wonder how this will impact treatment development?
3 Biological Neuroimmune Subtypes in Post-COVID & ME/CFS 🔬❕
We mapped our @amaticahealth post-COVID + ME patients into three distinct biological clusters using Neuroimmune markers
Cluster 1; mitochondrial stress
Cluster 2; Non inflammatory
Cluster 3; Neuro inflammatory
🧵 👇🏻
We mapped our @amaticahealth post-COVID + ME patients into three distinct biological clusters using Neuroimmune markers
Cluster 1; mitochondrial stress
Cluster 2; Non inflammatory
Cluster 3; Neuro inflammatory
🧵 👇🏻
June 29, 2025 at 4:40 PM
Interesting research outcomes - I wonder how this will impact treatment development?
Pop science articles like this do little to further the understanding of ME/CFS. The old adage that correlation is does not mean causation comes to mind.
#me/cfs #longcovid #biopsychosocial #postviralfatigue
#me/cfs #longcovid #biopsychosocial #postviralfatigue
ME/CFS, Long Covid, and Disconnection From the Self
Clinicians and researchers have observed certain personality traits in many people living with ME/CFS and long Covid. Could they help some people to unravel their illness?
www.psychologytoday.com
June 12, 2025 at 11:45 AM
Pop science articles like this do little to further the understanding of ME/CFS. The old adage that correlation is does not mean causation comes to mind.
#me/cfs #longcovid #biopsychosocial #postviralfatigue
#me/cfs #longcovid #biopsychosocial #postviralfatigue
Great article in the @irishtimes.com about upcoming drug Mitodicure for ME/CFS, which aims to stop PEM! Investors needed!
@meactnet.bsky.social @meassociation.bsky.social @longcovidadvoc.com @remissionbiome.bsky.social @openmedf.bsky.social @longcovidkids.bsky.social @longcovidjustice.org
@meactnet.bsky.social @meassociation.bsky.social @longcovidadvoc.com @remissionbiome.bsky.social @openmedf.bsky.social @longcovidkids.bsky.social @longcovidjustice.org
June 4, 2025 at 6:28 PM
Great article in the @irishtimes.com about upcoming drug Mitodicure for ME/CFS, which aims to stop PEM! Investors needed!
@meactnet.bsky.social @meassociation.bsky.social @longcovidadvoc.com @remissionbiome.bsky.social @openmedf.bsky.social @longcovidkids.bsky.social @longcovidjustice.org
@meactnet.bsky.social @meassociation.bsky.social @longcovidadvoc.com @remissionbiome.bsky.social @openmedf.bsky.social @longcovidkids.bsky.social @longcovidjustice.org
It's factors like this that need indepth analysis - and when unclean air has been proven to lead to the spread of pathogens, why do we expose our schools to that?
@intonews.bsky.social @earlychildhoodireland.ie @childreninhospital.bsky.social @thejournal.ie @irishexaminer.bsky.social
@intonews.bsky.social @earlychildhoodireland.ie @childreninhospital.bsky.social @thejournal.ie @irishexaminer.bsky.social
Two weeks ago, when reacting to the 2022/23 school attendance report, the Minister for Education was dismissive of illness as being a factor.
Today, a separate report shows that child admissions to adult ICU *more than doubled* in 2023.
Links in next post.
Today, a separate report shows that child admissions to adult ICU *more than doubled* in 2023.
Links in next post.
![Headline from the Journal newspaper: " Admissions of children to adult intensive care units in ireland more than doubled in a year [2023]."](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:xy6pzq73jzsyx743cejhrrly/bafkreihcdnq73zv6wmnhpctvu2ehfrispt2bvwrzrxavllqvxxpinpomee@jpeg)
June 4, 2025 at 11:18 AM
It's factors like this that need indepth analysis - and when unclean air has been proven to lead to the spread of pathogens, why do we expose our schools to that?
@intonews.bsky.social @earlychildhoodireland.ie @childreninhospital.bsky.social @thejournal.ie @irishexaminer.bsky.social
@intonews.bsky.social @earlychildhoodireland.ie @childreninhospital.bsky.social @thejournal.ie @irishexaminer.bsky.social
Clean Air protects both employees and their organisations! @hselive.bsky.social @intonews.bsky.social @roinnslainte.bsky.social @oireachtasnews.bsky.social @cleanairie.bsky.social @independent.ie @newstalkfm.bsky.social @rte.ie @thejournal.ie
Is your employer addressing clean air in the workspace?
If not, we are capturing details for air quality audits in the UK:
docs.google.com/forms/d/e/1F...
If not, we are capturing details for air quality audits in the UK:
docs.google.com/forms/d/e/1F...
June 3, 2025 at 8:46 AM
Clean Air protects both employees and their organisations! @hselive.bsky.social @intonews.bsky.social @roinnslainte.bsky.social @oireachtasnews.bsky.social @cleanairie.bsky.social @independent.ie @newstalkfm.bsky.social @rte.ie @thejournal.ie
Good advice on how to avoid covid during the upcoming surge - predicted to peak the end of June! @cleanairie.bsky.social @hselive.bsky.social @oireachtasnews.bsky.social @irishexaminer.bsky.social @irishtimes.com @intonews.bsky.social @lcaireland.bsky.social @meactnet.bsky.social
June 1, 2025 at 2:12 PM
Good advice on how to avoid covid during the upcoming surge - predicted to peak the end of June! @cleanairie.bsky.social @hselive.bsky.social @oireachtasnews.bsky.social @irishexaminer.bsky.social @irishtimes.com @intonews.bsky.social @lcaireland.bsky.social @meactnet.bsky.social
Why does the criteria for the covid booster change so arbitrarily @hselive.bsky.social ? I have Long Covid and am being denied everywhere because I am under 80. My neighbour who is 79 was denied. There is a big covid wave coming this summer with children already in hospital with it. Logic?
May 28, 2025 at 2:44 PM
Why does the criteria for the covid booster change so arbitrarily @hselive.bsky.social ? I have Long Covid and am being denied everywhere because I am under 80. My neighbour who is 79 was denied. There is a big covid wave coming this summer with children already in hospital with it. Logic?
Excellent interview on the dire need for #cleanairstrategies at schools by @cleanairie.bsky.social - and how this can reduce absences!
@hselive.bsky.social @childreninhospital.bsky.social @intonews.bsky.social @astiunion.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social
@hselive.bsky.social @childreninhospital.bsky.social @intonews.bsky.social @astiunion.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social
Clean Air Advocacy Ireland on Highland Radio, May 21st 2025
YouTube video by Clean Air Advocacy Ireland
www.youtube.com
May 25, 2025 at 3:28 PM
Excellent interview on the dire need for #cleanairstrategies at schools by @cleanairie.bsky.social - and how this can reduce absences!
@hselive.bsky.social @childreninhospital.bsky.social @intonews.bsky.social @astiunion.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social
@hselive.bsky.social @childreninhospital.bsky.social @intonews.bsky.social @astiunion.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social
Thank you @putrinolab.bsky.social for your work and continued advocacy 👏
Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has
www.bmj.com/content/389/...
1/
www.bmj.com/content/389/...
1/
Patients with severe ME/CFS need hope and expert multidisciplinary care
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen
Myalgic...
www.bmj.com
May 20, 2025 at 9:28 AM
Thank you @putrinolab.bsky.social for your work and continued advocacy 👏
Thank you to everyone at @bihatcharite.bsky.social who campaign for us, believe us and are researching to help us!
@paulgarnerwoof.bsky.social and the recent opinion piece publication by @bmj.com would benefit from taking a few lessons from contemporary pioneers in the ME/CFS field.
@paulgarnerwoof.bsky.social and the recent opinion piece publication by @bmj.com would benefit from taking a few lessons from contemporary pioneers in the ME/CFS field.
Wir sehen Euch.
Wir hören Euch.
Wir kämpfen mit Euch.
Wir kämpfen für Euch!
#MECFS #MillionsMissing #MEAwarenessMonth
#MEAwareness
#PEM #PACING
#NoGET
#PEMistnichtverhandelbar
#LiegendDemo #MEAwareness
#Stigmatisierung
#AufklärungJetzt #ForschungJetzt #VersorgungJetzt
Wir hören Euch.
Wir kämpfen mit Euch.
Wir kämpfen für Euch!
#MECFS #MillionsMissing #MEAwarenessMonth
#MEAwareness
#PEM #PACING
#NoGET
#PEMistnichtverhandelbar
#LiegendDemo #MEAwareness
#Stigmatisierung
#AufklärungJetzt #ForschungJetzt #VersorgungJetzt
May 19, 2025 at 10:02 AM
Thank you to everyone at @bihatcharite.bsky.social who campaign for us, believe us and are researching to help us!
@paulgarnerwoof.bsky.social and the recent opinion piece publication by @bmj.com would benefit from taking a few lessons from contemporary pioneers in the ME/CFS field.
@paulgarnerwoof.bsky.social and the recent opinion piece publication by @bmj.com would benefit from taking a few lessons from contemporary pioneers in the ME/CFS field.
An incredibly poor "opinion piece" that should not have been published by @bmj.com. Repackaging CBT and GET again as treatment is harmful and detrimental to ME/CFS patients. @paulgarnerwoof.bsky.social propagating his dubious beliefs does nothing but undermine the ME/CFS and Long Covid community.
Patients with severe ME/CFS need hope and expert multidisciplinary care
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen
Myalgic...
www.bmj.com
May 19, 2025 at 9:55 AM
An incredibly poor "opinion piece" that should not have been published by @bmj.com. Repackaging CBT and GET again as treatment is harmful and detrimental to ME/CFS patients. @paulgarnerwoof.bsky.social propagating his dubious beliefs does nothing but undermine the ME/CFS and Long Covid community.
Excellent article on the realities of airborne pathogens - again highlighting Carl Zimmer's must-read "Airborne"!
@cleanairie.bsky.social @carlzimmer.com @hselive.bsky.social @intonews.bsky.social @astiunion.bsky.social
@cleanairie.bsky.social @carlzimmer.com @hselive.bsky.social @intonews.bsky.social @astiunion.bsky.social
May 17, 2025 at 12:53 PM
Excellent article on the realities of airborne pathogens - again highlighting Carl Zimmer's must-read "Airborne"!
@cleanairie.bsky.social @carlzimmer.com @hselive.bsky.social @intonews.bsky.social @astiunion.bsky.social
@cleanairie.bsky.social @carlzimmer.com @hselive.bsky.social @intonews.bsky.social @astiunion.bsky.social
As someone who fell with ME/CFS in an education setting, the need for #cleanairstrategies in schools is pressing!
Please check out Anne McConway's article on this very issue!
@educatetogether.bsky.social @edmatters4all.bsky.social @neatoday.bsky.social @intonews.bsky.social @astiunion.bsky.social
Please check out Anne McConway's article on this very issue!
@educatetogether.bsky.social @edmatters4all.bsky.social @neatoday.bsky.social @intonews.bsky.social @astiunion.bsky.social
⭐Excited to share this article I wrote for @TeachPrimary magazine! ⭐
I ask WHY #Teachers and #Pupils are STILL left to repeatedly catch airborne diseases in schools when we KNOW that #HEPA filters would reduce sickness and improve #attendance?
Full magazine here: cdn.teachwire.net/e-mag/Teach-...
I ask WHY #Teachers and #Pupils are STILL left to repeatedly catch airborne diseases in schools when we KNOW that #HEPA filters would reduce sickness and improve #attendance?
Full magazine here: cdn.teachwire.net/e-mag/Teach-...
May 14, 2025 at 10:16 AM
As someone who fell with ME/CFS in an education setting, the need for #cleanairstrategies in schools is pressing!
Please check out Anne McConway's article on this very issue!
@educatetogether.bsky.social @edmatters4all.bsky.social @neatoday.bsky.social @intonews.bsky.social @astiunion.bsky.social
Please check out Anne McConway's article on this very issue!
@educatetogether.bsky.social @edmatters4all.bsky.social @neatoday.bsky.social @intonews.bsky.social @astiunion.bsky.social
Open windows, pathogen removing lights, and HEPA filters. An ME/CFSers dream ❤️
Aerosol-Scientists seem to know a thing about Aerosols and how to remove them 🙃 #WIAC2025
May 6, 2025 at 6:45 PM
Open windows, pathogen removing lights, and HEPA filters. An ME/CFSers dream ❤️
@cleanairie.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social @intonews.bsky.social @esai-irl.bsky.social @educatetogether.bsky.social @emernowlan.bsky.social @astiunion.bsky.social
We need clean air in schools! Great initiative shown below in the UK! #CleanAirForKids
We need clean air in schools! Great initiative shown below in the UK! #CleanAirForKids
Do you think we can get #CleanAirForKids trending?
Let’s try.
Share this image, say why you support clean air in schools, and include the link:
justgiving.com/campaign/cle...
Let’s make clean air a national priority—starting with schools.
Let’s try.
Share this image, say why you support clean air in schools, and include the link:
justgiving.com/campaign/cle...
Let’s make clean air a national priority—starting with schools.
May 3, 2025 at 1:53 PM
@cleanairie.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social @intonews.bsky.social @esai-irl.bsky.social @educatetogether.bsky.social @emernowlan.bsky.social @astiunion.bsky.social
We need clean air in schools! Great initiative shown below in the UK! #CleanAirForKids
We need clean air in schools! Great initiative shown below in the UK! #CleanAirForKids
www.thejournal.ie/long-covid-c...
We're here in our thousands, hidden behind closed doors
@hselive.bsky.social @lcaireland.bsky.social @cleanairie.bsky.social @earlychildhoodireland.ie @roinnslainte.bsky.social
We're here in our thousands, hidden behind closed doors
@hselive.bsky.social @lcaireland.bsky.social @cleanairie.bsky.social @earlychildhoodireland.ie @roinnslainte.bsky.social
May 2, 2025 at 4:47 PM
www.thejournal.ie/long-covid-c...
We're here in our thousands, hidden behind closed doors
@hselive.bsky.social @lcaireland.bsky.social @cleanairie.bsky.social @earlychildhoodireland.ie @roinnslainte.bsky.social
We're here in our thousands, hidden behind closed doors
@hselive.bsky.social @lcaireland.bsky.social @cleanairie.bsky.social @earlychildhoodireland.ie @roinnslainte.bsky.social
Reposted by Lydia, 34
Great new article about Indoor Air Quality in schools. www.thegrindmag.ca/airborne-dan...
Airborne Danger
Stuffy, crowded classrooms mean kids are breathing in viruses and pollution. Parents are trying to make the air safer, but hitting roadblocks.
www.thegrindmag.ca
April 4, 2025 at 11:05 PM
Great new article about Indoor Air Quality in schools. www.thegrindmag.ca/airborne-dan...
Reposted by Lydia, 34
The moral of the story is this: do not experiment on yourself by snorting airborne viruses into your brain. Stay in the control group.
April 15, 2025 at 3:06 AM
The moral of the story is this: do not experiment on yourself by snorting airborne viruses into your brain. Stay in the control group.
Great book on ME/CFS treatment and research by Patrick Ussher and Prof. Klaus Wirth 👏
Available now at your favorite digital store!
Understanding ME/CFS & Strategies for Healing by Patrick Ussher
books2read.com
April 15, 2025 at 9:08 AM
Great book on ME/CFS treatment and research by Patrick Ussher and Prof. Klaus Wirth 👏