Lydia, 34
@lydiafd.bsky.social
Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022
@hselive.bsky.social @roinnslainte.bsky.social @oireachtasnews.bsky.social @social-protection.bsky.social @esri.ie @president.ie @dccbeta.bsky.social @irishmedicaltimes.bsky.social @hazelchu.bsky.social @simonharrisireland.bsky.social @fiannafailparty.bsky.social @fotoole.bsky.social @ec.europa.eu
November 22, 2025 at 4:58 PM
thank you! The link is paywalled so I can share screenshots if desired!
November 16, 2025 at 9:15 AM
thank you! The link is paywalled so I can share screenshots if desired!
Thank you for sharing my story and for all your advocacy work!
November 16, 2025 at 9:15 AM
Thank you for sharing my story and for all your advocacy work!
If someone would like to read the full article, please DM me as it is quite long!
November 11, 2025 at 7:41 PM
If someone would like to read the full article, please DM me as it is quite long!
@oxfordwomenshealth.bsky.social @sam-trevaskis.bsky.social @maritahennessy.bsky.social @rcsipophealth.bsky.social @rcsi-research.bsky.social @drjenirwin.bsky.social @drclairetaylor.bsky.social @immunofever.bsky.social @glenpyle.bsky.social @elisabethalicee.bsky.social @drrebeccaryan.bsky.social
November 11, 2025 at 7:40 PM
@irishmedicaltimes.bsky.social @irishmedicalorg.bsky.social @irishmecfsassoc.bsky.social @rte.ie @natashaloder.bsky.social @lizs1.bsky.social @lcaireland.bsky.social @thelancet.com @frontiersin.bsky.social @thecovidinfoguy.bsky.social @longcovidkids.bsky.social @longcovidphysio.bsky.social
November 11, 2025 at 7:32 PM
@longcovidadvoc.com @patientled.bsky.social @meassociation.org.uk @meactionuk.bsky.social @meactionscotland.bsky.social
@polybiorf.bsky.social @bihatcharite.bsky.social @berlin-buyers-club.bsky.social @longcovidsos.bsky.social @remissionbiome.bsky.social @longcovidjustice.org
@polybiorf.bsky.social @bihatcharite.bsky.social @berlin-buyers-club.bsky.social @longcovidsos.bsky.social @remissionbiome.bsky.social @longcovidjustice.org
November 11, 2025 at 7:27 PM
It's alright Mairead but thank you! It's me and millions of others!
July 22, 2025 at 3:03 PM
It's alright Mairead but thank you! It's me and millions of others!
Yes, it's very frustrating, I wish we would move away from a predominantly psychological model to a biomedical one!
June 21, 2025 at 12:49 PM
Yes, it's very frustrating, I wish we would move away from a predominantly psychological model to a biomedical one!
Honestly the ME/CFS community has been so kind to me and guided me so well. I'm sorry you've had to fight so long and so hard! I have joined the fight too and I just hope some day future ME/CFSers will be treated better - because your actions have paved the path for better treatment for me! Thank u
June 14, 2025 at 3:44 PM
Honestly the ME/CFS community has been so kind to me and guided me so well. I'm sorry you've had to fight so long and so hard! I have joined the fight too and I just hope some day future ME/CFSers will be treated better - because your actions have paved the path for better treatment for me! Thank u
Wilhelmina, I hope it's OK to say, but I checked your page and want to thank you for your ongoing advocacy. Falling ill with ME myself in 2022, I was shocked by the history of the condition and am so thankful to my ME/CFS elders who have campaigned endlessly. Thank you!
June 14, 2025 at 3:36 PM
Wilhelmina, I hope it's OK to say, but I checked your page and want to thank you for your ongoing advocacy. Falling ill with ME myself in 2022, I was shocked by the history of the condition and am so thankful to my ME/CFS elders who have campaigned endlessly. Thank you!
Very frustrating and completely unhelpful. All this effort should be put into biomedical research, not psychosocial pontification!
June 12, 2025 at 3:06 PM
Very frustrating and completely unhelpful. All this effort should be put into biomedical research, not psychosocial pontification!