Yvonne
@emoyvonne.bsky.social
Navigating life with Long Covid.
Dreaming about disability justice, anti-ageism, poetry, policy, the sky & the sea.
🖤🖤🖤
Dreaming about disability justice, anti-ageism, poetry, policy, the sky & the sea.
🖤🖤🖤
Reposted by Yvonne
There is a lot of good research and amazing people working on #LongCovid in Europe! Yes, the road is long, but after today, I feel my hope is restored. Some of my favorite moments from today's meeting at the National Institute for Infectious Diseases Lazzaro Spallanzani in Rome:
November 21, 2025 at 12:52 AM
There is a lot of good research and amazing people working on #LongCovid in Europe! Yes, the road is long, but after today, I feel my hope is restored. Some of my favorite moments from today's meeting at the National Institute for Infectious Diseases Lazzaro Spallanzani in Rome:
For all of us LC Omicron babes: This research was completed during Omicron era (after 12/2021). “Overall, 10.3% of patients had long COVID symptoms three months after infection, and 81% of these patients continued to experience persistent or intermittent symptoms a year later.” …
“Long COVID can take eight different trajectories, study finds”
“New research led by Mass General Brigham followed more than 3,500 patients..”
medicalxpress.com/news/2025-11...
“New research led by Mass General Brigham followed more than 3,500 patients..”
medicalxpress.com/news/2025-11...
Long COVID can take eight different trajectories, study finds
New research led by Mass General Brigham followed more than 3,500 patients, finding that 10.3% had symptoms consistent with long COVID three months after infection, 81% of whom continued to experience...
medicalxpress.com
November 19, 2025 at 5:23 AM
For all of us LC Omicron babes: This research was completed during Omicron era (after 12/2021). “Overall, 10.3% of patients had long COVID symptoms three months after infection, and 81% of these patients continued to experience persistent or intermittent symptoms a year later.” …
Reposted by Yvonne
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
November 15, 2025 at 7:52 AM
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
Reposted by Yvonne
It is officially November 1 and the start of Native American Heritage Month as well as National Indigenous Disability Awareness Month.
I highly suggest you follow these folks because they are brilliant and just some of the coolest folks ever.
go.bsky.app/MEaiVa9
I highly suggest you follow these folks because they are brilliant and just some of the coolest folks ever.
go.bsky.app/MEaiVa9
November 1, 2025 at 7:56 AM
It is officially November 1 and the start of Native American Heritage Month as well as National Indigenous Disability Awareness Month.
I highly suggest you follow these folks because they are brilliant and just some of the coolest folks ever.
go.bsky.app/MEaiVa9
I highly suggest you follow these folks because they are brilliant and just some of the coolest folks ever.
go.bsky.app/MEaiVa9
Reposted by Yvonne
It's the time of year again -- time to do your holiday shopping from independent artists. It's more important than ever to support people actually making stuff!
If you're an artist or craftsperson of any kind, please reply to this with what you make and a link to your store and I'll share it!
If you're an artist or craftsperson of any kind, please reply to this with what you make and a link to your store and I'll share it!
October 31, 2025 at 1:31 PM
It's the time of year again -- time to do your holiday shopping from independent artists. It's more important than ever to support people actually making stuff!
If you're an artist or craftsperson of any kind, please reply to this with what you make and a link to your store and I'll share it!
If you're an artist or craftsperson of any kind, please reply to this with what you make and a link to your store and I'll share it!
Reposted by Yvonne
I was a (paid) test user for this trial and am thrilled w/the accommodations it makes to include people as severely ill as I am!
If you’re in the US and have Long Covid, check it out and share w/friends!
Also: if you don’t see your state yet, you can sign up to be alerted when yours is added!
If you’re in the US and have Long Covid, check it out and share w/friends!
Also: if you don’t see your state yet, you can sign up to be alerted when yours is added!
The Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is officially open for enrollment for people with Long COVID in:
Alabama, Alaska, California, Florida, Illinois, Indiana, Michigan, Ohio, Pennsylvania, Texas, Utah
longcovid.scripps.edu/locitt-t/?ut...
1/16
Alabama, Alaska, California, Florida, Illinois, Indiana, Michigan, Ohio, Pennsylvania, Texas, Utah
longcovid.scripps.edu/locitt-t/?ut...
1/16
LoCITT-T - Long COVID Treatment Trial
longcovid.scripps.edu
October 30, 2025 at 6:50 PM
I was a (paid) test user for this trial and am thrilled w/the accommodations it makes to include people as severely ill as I am!
If you’re in the US and have Long Covid, check it out and share w/friends!
Also: if you don’t see your state yet, you can sign up to be alerted when yours is added!
If you’re in the US and have Long Covid, check it out and share w/friends!
Also: if you don’t see your state yet, you can sign up to be alerted when yours is added!
Reposted by Yvonne
Long COVID Underdiagnosed in Seniors: What Doctors Need to Know
Long COVID More Common in Seniors: What Doctors Need to Know
Many long-COVID symptoms in people older than 65 years mimic signs of early aging, particularly cognitive, cardiac, and kidney issues.
www.medscape.com
October 25, 2025 at 12:04 AM
Long COVID Underdiagnosed in Seniors: What Doctors Need to Know
Reposted by Yvonne
Now more than ever we need to be amplifying mutual aid.
Donate to local food banks and community fridges.
Check on the people in your life who may be struggling. Offer to drop off some groceries or a home made meal.
Without November SNAP there will be many people going hungry.
Help where you can
Donate to local food banks and community fridges.
Check on the people in your life who may be struggling. Offer to drop off some groceries or a home made meal.
Without November SNAP there will be many people going hungry.
Help where you can
October 18, 2025 at 4:31 AM
Now more than ever we need to be amplifying mutual aid.
Donate to local food banks and community fridges.
Check on the people in your life who may be struggling. Offer to drop off some groceries or a home made meal.
Without November SNAP there will be many people going hungry.
Help where you can
Donate to local food banks and community fridges.
Check on the people in your life who may be struggling. Offer to drop off some groceries or a home made meal.
Without November SNAP there will be many people going hungry.
Help where you can
Reposted by Yvonne
SNAP benefits are going to be paused on November 1. If you are able, now is a good time to give to food banks, food pantries, or local mutual aid groups.
October 20, 2025 at 2:10 PM
SNAP benefits are going to be paused on November 1. If you are able, now is a good time to give to food banks, food pantries, or local mutual aid groups.
Important awareness-raising piece about children with Long Covid, its impact on student absenteeism, and the struggle for accommodations.
(Side note: U.S.-based pwLC can tell you there are not “400 adult [Long Covid] clinics” in the country as the article states! We wish! 💀)
(Side note: U.S.-based pwLC can tell you there are not “400 adult [Long Covid] clinics” in the country as the article states! We wish! 💀)
Rolling Stone: 'Long Covid Is Real — And It’s Changing an Entire Generation'
'Hundreds of thousands of kids in America are struggling with an illness that many doctors and schools refuse to recognize'
www.rollingstone.com/culture/cult...
'Hundreds of thousands of kids in America are struggling with an illness that many doctors and schools refuse to recognize'
www.rollingstone.com/culture/cult...
Long Covid Is Real -- And It's Changing an Entire Generation
Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.
www.rollingstone.com
October 16, 2025 at 8:57 PM
Important awareness-raising piece about children with Long Covid, its impact on student absenteeism, and the struggle for accommodations.
(Side note: U.S.-based pwLC can tell you there are not “400 adult [Long Covid] clinics” in the country as the article states! We wish! 💀)
(Side note: U.S.-based pwLC can tell you there are not “400 adult [Long Covid] clinics” in the country as the article states! We wish! 💀)
Reposted by Yvonne
Every anniversary, those of us living with #LongCOVID make a bargain with ourselves: next year I'm going to get better, we say quietly.
We are the "lucky" ones, not bedridden, still dwelling in possibility.
And every year, another year trundles past, & we still aren't better.
#KeepOnKeepingOn
We are the "lucky" ones, not bedridden, still dwelling in possibility.
And every year, another year trundles past, & we still aren't better.
#KeepOnKeepingOn
today is the three-year anniversary of the covid infection that turned into long covid. it has completely rewritten the course of my life. it has brought me untold levels of physical suffering. it has devastated my mental health.
September 26, 2025 at 10:44 PM
Every anniversary, those of us living with #LongCOVID make a bargain with ourselves: next year I'm going to get better, we say quietly.
We are the "lucky" ones, not bedridden, still dwelling in possibility.
And every year, another year trundles past, & we still aren't better.
#KeepOnKeepingOn
We are the "lucky" ones, not bedridden, still dwelling in possibility.
And every year, another year trundles past, & we still aren't better.
#KeepOnKeepingOn
Reposted by Yvonne
The fact the US lost over 1.2 million people to COVID-19, a larger population than some states, and some people still claim we did too much to try to save people’s lives.
Millions of people became disabled by COVID-19 and Long COVID and the numbers continue to rise.
Millions of people became disabled by COVID-19 and Long COVID and the numbers continue to rise.
September 1, 2025 at 5:50 PM
The fact the US lost over 1.2 million people to COVID-19, a larger population than some states, and some people still claim we did too much to try to save people’s lives.
Millions of people became disabled by COVID-19 and Long COVID and the numbers continue to rise.
Millions of people became disabled by COVID-19 and Long COVID and the numbers continue to rise.
Reposted by Yvonne
I was 8 years old when the ADA became law. As a disabled woman, I celebrate its promise—but also know how fragile our rights remain. 35 years later, we’re still fighting for true equality.
www.damemagazine.com/2025/07/25/t...
#ADA35
www.damemagazine.com/2025/07/25/t...
#ADA35
The Promise, and Failure, of the Americans With Disabilities Act - Dame Magazine
I was 8 years old when the Americans with Disabilities Act (ADA) became law. I didn’t yet understand legislation, or what “civil rights” meant. But I already knew there were places I couldn’t go — res...
www.damemagazine.com
July 26, 2025 at 5:40 PM
I was 8 years old when the ADA became law. As a disabled woman, I celebrate its promise—but also know how fragile our rights remain. 35 years later, we’re still fighting for true equality.
www.damemagazine.com/2025/07/25/t...
#ADA35
www.damemagazine.com/2025/07/25/t...
#ADA35
Reposted by Yvonne
Today it’s time to launch a big project I’ve had the privilege of working on: A Quiet Storm—an online art gallery showcasing the artwork of people living with severe ME/CFS. 1/7
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
a quiet storm - an online gallery
An online art gallery showcasing the artwork of people living with severe ME/CFS
www.aquietstorm.me
April 11, 2025 at 3:19 PM
Today it’s time to launch a big project I’ve had the privilege of working on: A Quiet Storm—an online art gallery showcasing the artwork of people living with severe ME/CFS. 1/7
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
“Slumbery agitation” may be my new favourite descriptor, along with the relatable “fateful scrub of the crockery” (iykyk). Glad I got to read this telling of living with Long Covid on #LongCovidAwarenessDay
For us the pandemic never finished. We watch on in slumbery agitation as an amnesiac world carries on. We see, in W.H. Auden’s words, ‘how everything turns away / Quite leisurely from the disaster’.
www.the-fence.com/a-failure-to...
My article for @thefence.bsky.social on #longcovid.
www.the-fence.com/a-failure-to...
My article for @thefence.bsky.social on #longcovid.
A Failure to Convalesce
An interminable struggle to put on a jumper.
www.the-fence.com
March 15, 2025 at 10:21 PM
“Slumbery agitation” may be my new favourite descriptor, along with the relatable “fateful scrub of the crockery” (iykyk). Glad I got to read this telling of living with Long Covid on #LongCovidAwarenessDay
Reposted by Yvonne
Rolling Stone: 'Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid'
'We've been discounted for half a decade, still sick from a pandemic the rest of the world would rather forget'
www.rollingstone.com/culture/cult...
'We've been discounted for half a decade, still sick from a pandemic the rest of the world would rather forget'
www.rollingstone.com/culture/cult...
Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid
People with Long Covid are still sick from a pandemic the rest of the world would rather forget.
www.rollingstone.com
March 15, 2025 at 4:15 PM
Rolling Stone: 'Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid'
'We've been discounted for half a decade, still sick from a pandemic the rest of the world would rather forget'
www.rollingstone.com/culture/cult...
'We've been discounted for half a decade, still sick from a pandemic the rest of the world would rather forget'
www.rollingstone.com/culture/cult...
Reposted by Yvonne
A heartfelt thanks on Long Covid Awareness Day to the incredible myalgic encephalomyelitis community who've used their precious energy to provide crucial information and validation to desperate Long Covid sufferers like myself. Five years ago, you were the only ones who understood.
March 15, 2025 at 6:40 AM
A heartfelt thanks on Long Covid Awareness Day to the incredible myalgic encephalomyelitis community who've used their precious energy to provide crucial information and validation to desperate Long Covid sufferers like myself. Five years ago, you were the only ones who understood.
Reposted by Yvonne
“I don’t know anyone with Long Covid!”
I promise you that you do.
Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you.
Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
I promise you that you do.
Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you.
Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
March 8, 2025 at 3:47 AM
“I don’t know anyone with Long Covid!”
I promise you that you do.
Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you.
Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
I promise you that you do.
Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you.
Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
Reposted by Yvonne
Please don’t co-opt the term Long COVID—it’s a medical diagnosis, not a catch-all for pandemic-related struggles. Using it incorrectly harms those living with this condition. Be accurate and respect the community fighting for recognition, research, and care. #LongCovid #HealthAdvocacy
March 4, 2025 at 2:08 PM
Please don’t co-opt the term Long COVID—it’s a medical diagnosis, not a catch-all for pandemic-related struggles. Using it incorrectly harms those living with this condition. Be accurate and respect the community fighting for recognition, research, and care. #LongCovid #HealthAdvocacy
Reposted by Yvonne
"It may be tempting to try to put that time behind us, to pretend it never happened. But for the sake of those who didn’t get better, we need to keep talking about long Covid,"
www.theguardian.com/...
www.theguardian.com/...
‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten
Five years on from March 2020, millions of people still face debilitating symptoms, with huge repercussions on public health and productivity. But politicians are starting to pretend the pandemic never happened
www.theguardian.com
March 3, 2025 at 8:03 AM
"It may be tempting to try to put that time behind us, to pretend it never happened. But for the sake of those who didn’t get better, we need to keep talking about long Covid,"
www.theguardian.com/...
www.theguardian.com/...
Long Covid support of the day is following the owls on #SuperbOwlSunday to regulate my nervous system 🦉
#Connect2Nature
It's #SuperbOwlSunday !!!
I love this day because I can combine my love of #Wildlife and #Puns
Here's my superb Owl - A Great Horned Owl photo I took at the Canadian Raptor Conservancy.
#Nature #Birds #Photography
It's #SuperbOwlSunday !!!
I love this day because I can combine my love of #Wildlife and #Puns
Here's my superb Owl - A Great Horned Owl photo I took at the Canadian Raptor Conservancy.
#Nature #Birds #Photography
February 9, 2025 at 8:22 PM
Long Covid support of the day is following the owls on #SuperbOwlSunday to regulate my nervous system 🦉
Reposted by Yvonne
#Connect2Nature - Another Superb Owl
Revisiting this shot of a Eurasian Eagle Owl taken at the Canadian Raptor Conservancy in honour of #SuperbOwlSunday
It's also a bit of a timeline cleanse from the turmoil. This is a magnificent bird.
#Nature #Birds #Owls #Photography
Revisiting this shot of a Eurasian Eagle Owl taken at the Canadian Raptor Conservancy in honour of #SuperbOwlSunday
It's also a bit of a timeline cleanse from the turmoil. This is a magnificent bird.
#Nature #Birds #Owls #Photography
February 6, 2025 at 8:42 PM
#Connect2Nature - Another Superb Owl
Revisiting this shot of a Eurasian Eagle Owl taken at the Canadian Raptor Conservancy in honour of #SuperbOwlSunday
It's also a bit of a timeline cleanse from the turmoil. This is a magnificent bird.
#Nature #Birds #Owls #Photography
Revisiting this shot of a Eurasian Eagle Owl taken at the Canadian Raptor Conservancy in honour of #SuperbOwlSunday
It's also a bit of a timeline cleanse from the turmoil. This is a magnificent bird.
#Nature #Birds #Owls #Photography
🇨🇦🤍
February 2, 2025 at 10:28 AM
🇨🇦🤍
Reposted by Yvonne
My friends at AAPD had to release this statement today:
"Leading Disability Organizations: President Trump’s Blame of Deadly Plane Crash on Disabled Federal Workers Is Baseless, Irresponsible"
www.aapd.com/disability-o...
"Leading Disability Organizations: President Trump’s Blame of Deadly Plane Crash on Disabled Federal Workers Is Baseless, Irresponsible"
www.aapd.com/disability-o...
Leading Disability Organizations: President Trump’s Blame of Deadly Plane Crash on Disabled Federal Workers Is Baseless, Irresponsible - AAPD
For Immediate Release: January 30, 2025 Contact: Jess Davidson, jdavidson@aapd.com; 202-465-5528 WASHINGTON D.C. – In remarks today at the White House, President Trump cast potential blame for the tra...
www.aapd.com
January 31, 2025 at 2:31 AM
My friends at AAPD had to release this statement today:
"Leading Disability Organizations: President Trump’s Blame of Deadly Plane Crash on Disabled Federal Workers Is Baseless, Irresponsible"
www.aapd.com/disability-o...
"Leading Disability Organizations: President Trump’s Blame of Deadly Plane Crash on Disabled Federal Workers Is Baseless, Irresponsible"
www.aapd.com/disability-o...
Reposted by Yvonne
I’d like to crowdsource a poem, if you all are willing:
If you have #LongCovid, please name your worst 3-5 symptoms.
I’m gonna track responses and make a word cloud. The more the better so please share!
If you have #LongCovid, please name your worst 3-5 symptoms.
I’m gonna track responses and make a word cloud. The more the better so please share!
January 4, 2025 at 6:52 AM
I’d like to crowdsource a poem, if you all are willing:
If you have #LongCovid, please name your worst 3-5 symptoms.
I’m gonna track responses and make a word cloud. The more the better so please share!
If you have #LongCovid, please name your worst 3-5 symptoms.
I’m gonna track responses and make a word cloud. The more the better so please share!