Emmi Skyten
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
Here to connect with other sick people and for science stuff.
Reposted by Emmi Skyten
Love Ed’s work! A gap I see in covid coverage is a need to hear from the organizers responding to the crisis. There are mask blocs, people organizing for funding & legislation like Long Covid Justice Network. People’s
cDC. Berlin Buyers Club. The public needs to hear how they can fight covid.
cDC. Berlin Buyers Club. The public needs to hear how they can fight covid.
December 11, 2023 at 5:01 PM
Love Ed’s work! A gap I see in covid coverage is a need to hear from the organizers responding to the crisis. There are mask blocs, people organizing for funding & legislation like Long Covid Justice Network. People’s
cDC. Berlin Buyers Club. The public needs to hear how they can fight covid.
cDC. Berlin Buyers Club. The public needs to hear how they can fight covid.
Hi @edyong209.bsky.social I just shared your opinion piece on Twitter quoting the poem you also quoted. A fellow patient from Finland asked me to pass on her thanks because she is not on Bluesky. I think she felt seen.
December 11, 2023 at 7:07 PM
Hi @edyong209.bsky.social I just shared your opinion piece on Twitter quoting the poem you also quoted. A fellow patient from Finland asked me to pass on her thanks because she is not on Bluesky. I think she felt seen.
Reposted by Emmi Skyten
I love the idea that maybe sleep is the purpose of your life and being awake is the inconvenient but necessary disturbance.
November 30, 2023 at 10:32 PM
I love the idea that maybe sleep is the purpose of your life and being awake is the inconvenient but necessary disturbance.
Reposted by Emmi Skyten
Alarming thread/convo.
A high-profile paper on #LongCovid contains a mystery section apparently written by AI that perpetuates unfounded ablist stereotypes, presumably skewed by LLM verbiage.
One of the authors is even listed as affiliated to an "AI lab"!
Great sleuthing by @lucibee.bsky.social
A high-profile paper on #LongCovid contains a mystery section apparently written by AI that perpetuates unfounded ablist stereotypes, presumably skewed by LLM verbiage.
One of the authors is even listed as affiliated to an "AI lab"!
Great sleuthing by @lucibee.bsky.social
There's something bothering me about this review.
Something about it is very odd.
🤔
Something about it is very odd.
🤔
A new, very good review on Long Covid
www.nature.com/articles/s41...
www.nature.com/articles/s41...
November 2, 2023 at 12:21 PM
Alarming thread/convo.
A high-profile paper on #LongCovid contains a mystery section apparently written by AI that perpetuates unfounded ablist stereotypes, presumably skewed by LLM verbiage.
One of the authors is even listed as affiliated to an "AI lab"!
Great sleuthing by @lucibee.bsky.social
A high-profile paper on #LongCovid contains a mystery section apparently written by AI that perpetuates unfounded ablist stereotypes, presumably skewed by LLM verbiage.
One of the authors is even listed as affiliated to an "AI lab"!
Great sleuthing by @lucibee.bsky.social
Reposted by Emmi Skyten
'The long COVID figure for those at the lowest income levels was a staggering 50%, versus a 29% average for all adults and 22% for those at the highest income levels.'
Class had tremendous influence on who got COVID in the first place, and now it's long-term outcomes. Best health care in the world!
Class had tremendous influence on who got COVID in the first place, and now it's long-term outcomes. Best health care in the world!
Poverty and Long COVID Go Together
The lowest income Californians are more likely to have lingering symptoms, and more likely to lose jobs.
capitalandmain.com
November 2, 2023 at 5:02 PM
'The long COVID figure for those at the lowest income levels was a staggering 50%, versus a 29% average for all adults and 22% for those at the highest income levels.'
Class had tremendous influence on who got COVID in the first place, and now it's long-term outcomes. Best health care in the world!
Class had tremendous influence on who got COVID in the first place, and now it's long-term outcomes. Best health care in the world!
Reposted by Emmi Skyten
🔬Wondering how OMF selects treatments used for clinical trials? Let us illuminate our process for you. Learn more 👉 www.omf.ngo/treatment-trials.
Join us on this complex journey towards understanding the intricacies of ME/CFS. 🌟
Join us on this complex journey towards understanding the intricacies of ME/CFS. 🌟
November 7, 2023 at 4:48 PM
🔬Wondering how OMF selects treatments used for clinical trials? Let us illuminate our process for you. Learn more 👉 www.omf.ngo/treatment-trials.
Join us on this complex journey towards understanding the intricacies of ME/CFS. 🌟
Join us on this complex journey towards understanding the intricacies of ME/CFS. 🌟
Reposted by Emmi Skyten
The UK's Covid inquiry has heard that a major imperfection of standard issue PPE was that, although marketed as 'gender neutral', it was designed for male bodies.
This included masks, which even now fail to take account of female-male differences in facial dimensions
#Covid #MedicalSexism
This included masks, which even now fail to take account of female-male differences in facial dimensions
#Covid #MedicalSexism
Another truth from the Covid inquiry: women were being ignored over ill-fitting PPE long before the ...
NHS England denied there was a problem with unisex equipment. But it was well known that most neither fits nor protects female healthcare workers, says feminist campaigner Caroline Criado Perez
www.theguardian.com
November 3, 2023 at 3:40 PM
The UK's Covid inquiry has heard that a major imperfection of standard issue PPE was that, although marketed as 'gender neutral', it was designed for male bodies.
This included masks, which even now fail to take account of female-male differences in facial dimensions
#Covid #MedicalSexism
This included masks, which even now fail to take account of female-male differences in facial dimensions
#Covid #MedicalSexism
Reposted by Emmi Skyten
Unfortunately, the authors' conclusion of "some evidence" is contradicted by their conclusion that *all* studies had "unclear or high" risk of bias.
There was "no" evidence here, not "some".
This is the same as for CBT/GET in #MECFS treatment: lots of studies; all bad; ergo, no evidence.
#pwME
There was "no" evidence here, not "some".
This is the same as for CBT/GET in #MECFS treatment: lots of studies; all bad; ergo, no evidence.
#pwME
Is there a role for traditional & complementary medicines in managing chronic fatigue [#CFS]? a systematic review of RCTs
Full text now available here:
www.frontiersin.org/articles/10....
"future studies should employ more objective diagnosis standards and outcome measurements ..."
#MEcfs #PwME
Full text now available here:
www.frontiersin.org/articles/10....
"future studies should employ more objective diagnosis standards and outcome measurements ..."
#MEcfs #PwME
October 25, 2023 at 12:59 PM
Reposted by Emmi Skyten
With several recent advances and funding, Covid nasal vaccines now have momentum. Really needed and exciting to see!
erictopol.substack.com/p/covid-nasa...
erictopol.substack.com/p/covid-nasa...
October 14, 2023 at 9:23 PM
With several recent advances and funding, Covid nasal vaccines now have momentum. Really needed and exciting to see!
erictopol.substack.com/p/covid-nasa...
erictopol.substack.com/p/covid-nasa...
Reposted by Emmi Skyten
The latest weekly Science for ME news in brief is online with items on ME/CFS and Long Covid research, advocacy and coming events.
You don't need to be a forum member to read the news. To suggest an item for future bulletins, join the forum and start a discussion.
www.s4me.info/threads/news...
You don't need to be a forum member to read the news. To suggest an item for future bulletins, join the forum and start a discussion.
www.s4me.info/threads/news...
News in Brief - October 2023
This thread has a Science for ME 'News in Brief' post for each week in October 2023 by a team including @Trish, @Kalliope and @ahimsa. Scroll down to...
www.s4me.info
October 22, 2023 at 9:25 AM
The latest weekly Science for ME news in brief is online with items on ME/CFS and Long Covid research, advocacy and coming events.
You don't need to be a forum member to read the news. To suggest an item for future bulletins, join the forum and start a discussion.
www.s4me.info/threads/news...
You don't need to be a forum member to read the news. To suggest an item for future bulletins, join the forum and start a discussion.
www.s4me.info/threads/news...
Reposted by Emmi Skyten
They can be various hormones, chemicals that have far-reaching effects locally and systemically. They're inflammatory. That's the bottom line. They cause inflammation.“ #MCAS 2/2
#MasteringMastcellActivation
mastcellmastering.byhealthmeans.com?idev_id=26037
#MasteringMastcellActivation
mastcellmastering.byhealthmeans.com?idev_id=26037
Join Mastering Mast Cell Activation, online and free from October 16-22, 2023!
Have you been struggling for years with mystery symptoms, feeling exhausted and misunderstood? Does it feel like you’re trying to convince multiple specialists that you’re not making this up? Mast...
mastcellmastering.byhealthmeans.com
October 20, 2023 at 3:35 PM
They can be various hormones, chemicals that have far-reaching effects locally and systemically. They're inflammatory. That's the bottom line. They cause inflammation.“ #MCAS 2/2
#MasteringMastcellActivation
mastcellmastering.byhealthmeans.com?idev_id=26037
#MasteringMastcellActivation
mastcellmastering.byhealthmeans.com?idev_id=26037
Reposted by Emmi Skyten
Today the PolyBio research foundation will host a webinar on infection-associated chronic diseases. ME/CFS and Long Covid will be discussed.
It's open to the public. Join here polybio.org/polybio-fall...
It's open to the public. Join here polybio.org/polybio-fall...
October 20, 2023 at 7:11 AM
Today the PolyBio research foundation will host a webinar on infection-associated chronic diseases. ME/CFS and Long Covid will be discussed.
It's open to the public. Join here polybio.org/polybio-fall...
It's open to the public. Join here polybio.org/polybio-fall...
Reposted by Emmi Skyten
Amalia Fleming was an amazing person but her cat was clearly not impressed. 1971. press-ert-gr.translate.goog/grafeio-typo...
October 20, 2023 at 4:09 AM
Amalia Fleming was an amazing person but her cat was clearly not impressed. 1971. press-ert-gr.translate.goog/grafeio-typo...
Reposted by Emmi Skyten
It's that time of year again! Today I look at the history of so-called "Medically Unexplained Symptoms" with my students (part of our #pseudoscience class).
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid
October 18, 2023 at 11:14 AM
It's that time of year again! Today I look at the history of so-called "Medically Unexplained Symptoms" with my students (part of our #pseudoscience class).
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid
Reposted by Emmi Skyten
www.tandfonline.com/doi/full/10.... I believe this is it.
www.tandfonline.com
October 17, 2023 at 6:00 PM
www.tandfonline.com/doi/full/10.... I believe this is it.
Reposted by Emmi Skyten
My doctor has agreed to give me a try on LDN for my ME/CFS which might also be Long Covid. She's had advice from someone who runs the only ME clinic in my province and they recommend a starting dose of 0.5 mg.
I have seen others mention starting doses of 0.1mg. Is 0.5 too high? Will I regret it?
I have seen others mention starting doses of 0.1mg. Is 0.5 too high? Will I regret it?
October 16, 2023 at 7:08 PM
My doctor has agreed to give me a try on LDN for my ME/CFS which might also be Long Covid. She's had advice from someone who runs the only ME clinic in my province and they recommend a starting dose of 0.5 mg.
I have seen others mention starting doses of 0.1mg. Is 0.5 too high? Will I regret it?
I have seen others mention starting doses of 0.1mg. Is 0.5 too high? Will I regret it?
Reposted by Emmi Skyten
My column this week is about how even the most basic Covid precautions have been stood down, leaving clinically vulnerable people trapped in their homes and accelerating what threatens to become a major surge this autumn. TL;DR: they couldn't give a damn about us. www.theguardian.com/commentisfre...
October 16, 2023 at 5:45 AM
My column this week is about how even the most basic Covid precautions have been stood down, leaving clinically vulnerable people trapped in their homes and accelerating what threatens to become a major surge this autumn. TL;DR: they couldn't give a damn about us. www.theguardian.com/commentisfre...
Reposted by Emmi Skyten
Brain fog in long COVID: A glutamatergic hypothesis with astrocyte dysfunction. Katrin Boniface did an amazing presentation on glutamate at the @remissionbiome.bsky.social science round table. She’s been up to this for a while.
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Brain fog in long COVID: A glutamatergic hypothesis with astrocyte dysfunction accounting for brain ...
Brain [18F]FDG-PET scans have revealed a glucose hypometabolic pattern in patients with long COVID. This hypometabolism might reflect primary astrocyt…
www.sciencedirect.com
October 15, 2023 at 2:04 PM
Brain fog in long COVID: A glutamatergic hypothesis with astrocyte dysfunction. Katrin Boniface did an amazing presentation on glutamate at the @remissionbiome.bsky.social science round table. She’s been up to this for a while.
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Reposted by Emmi Skyten
Another reminder that before the 1990s it was well-known by the medical profession that rest was essential for managing ME.
October 9, 2023 at 3:39 PM
Another reminder that before the 1990s it was well-known by the medical profession that rest was essential for managing ME.
Reposted by Emmi Skyten
The power of placebo is frequently exaggerated in non-specialist media. Placebo effects are at best ephemeral and only affect transitory symptoms. Real effects on survival or proper physiological markers are illusory.
This comes up because even Harvard profs in the NYT can get these basics wrong
This comes up because even Harvard profs in the NYT can get these basics wrong
Placebo Effect Revisited
The New York Times and Ted Kaptchuk feed into more confusion about placebo effects.
sciencebasedmedicine.org
October 13, 2023 at 3:32 PM
The power of placebo is frequently exaggerated in non-specialist media. Placebo effects are at best ephemeral and only affect transitory symptoms. Real effects on survival or proper physiological markers are illusory.
This comes up because even Harvard profs in the NYT can get these basics wrong
This comes up because even Harvard profs in the NYT can get these basics wrong
Reposted by Emmi Skyten
And here’s a list of over 150 science-related feeds from #AcademicSky to #WomenInSTEM 🧪
BlueSky Science-Related Feeds
Sheet1
Likes,Name (Click to visit feed),Tags,Contact to ask to be added to contributor list
11,<a href="https://bsky.app/profile/did:plc:ftnzzw4cnon2pzpw7i5m2xu7/feed/aaaiqnkwsgsz6">#AI&HCI</a>,#HCI,...
docs.google.com
October 12, 2023 at 9:52 PM
And here’s a list of over 150 science-related feeds from #AcademicSky to #WomenInSTEM 🧪
Reposted by Emmi Skyten
From ME Research UK:
Dr Karl Morten & colleagues' search of a diagnostic test for ME/ #CFS is to be welcomed. Using advanced analytical tools & AI, researchers were reportedly able to differentiate individuals with #MECFS from healthy controls & those with MS with 91% accuracy
meres.uk/WBCtest
#PwME
Dr Karl Morten & colleagues' search of a diagnostic test for ME/ #CFS is to be welcomed. Using advanced analytical tools & AI, researchers were reportedly able to differentiate individuals with #MECFS from healthy controls & those with MS with 91% accuracy
meres.uk/WBCtest
#PwME
Potential diagnostic test for ME/CFS based on white blood cell analysis
meres.uk
October 12, 2023 at 11:54 PM
From ME Research UK:
Dr Karl Morten & colleagues' search of a diagnostic test for ME/ #CFS is to be welcomed. Using advanced analytical tools & AI, researchers were reportedly able to differentiate individuals with #MECFS from healthy controls & those with MS with 91% accuracy
meres.uk/WBCtest
#PwME
Dr Karl Morten & colleagues' search of a diagnostic test for ME/ #CFS is to be welcomed. Using advanced analytical tools & AI, researchers were reportedly able to differentiate individuals with #MECFS from healthy controls & those with MS with 91% accuracy
meres.uk/WBCtest
#PwME