Isabel Ramirez-Burnett
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
NBC-HWC, AIP-C
@remissionbiome.bsky.social
Reposted by Isabel Ramirez-Burnett
The recording for our clinician’s roundtable on GLP1/GIP RA with doctors Kaufman and Dempsey is now available on our YT chanel. youtu.be/lC3caaV7WP0?...
October 18, 2025 at 12:24 PM
The recording for our clinician’s roundtable on GLP1/GIP RA with doctors Kaufman and Dempsey is now available on our YT chanel. youtu.be/lC3caaV7WP0?...
Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
October 17, 2025 at 3:39 PM
Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
1. This is difficult to do on an standard poll but curious where everyone sits if you are willing to answer the following questions in the comments.
Please specify if your numbers are with it without medication that stabilize your HR.
Please specify if your numbers are with it without medication that stabilize your HR.
September 22, 2025 at 3:44 PM
1. This is difficult to do on an standard poll but curious where everyone sits if you are willing to answer the following questions in the comments.
Please specify if your numbers are with it without medication that stabilize your HR.
Please specify if your numbers are with it without medication that stabilize your HR.
Reposted by Isabel Ramirez-Burnett
The petition for appropriate care for Sanne is past 2,500 sig. Let’s join #pwME #MEAwareness #MECFS #GreatestMEdicalScandal forces 🙏🏻.
We can sign from anywhere in the 🌎
@meactnet.bsky.social @openmedf.bsky.social @patientled.bsky.social
The text reads “University hospitals refuse ..
We can sign from anywhere in the 🌎
@meactnet.bsky.social @openmedf.bsky.social @patientled.bsky.social
The text reads “University hospitals refuse ..
August 21, 2025 at 10:33 PM
The petition for appropriate care for Sanne is past 2,500 sig. Let’s join #pwME #MEAwareness #MECFS #GreatestMEdicalScandal forces 🙏🏻.
We can sign from anywhere in the 🌎
@meactnet.bsky.social @openmedf.bsky.social @patientled.bsky.social
The text reads “University hospitals refuse ..
We can sign from anywhere in the 🌎
@meactnet.bsky.social @openmedf.bsky.social @patientled.bsky.social
The text reads “University hospitals refuse ..
1. Have you seen our
New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social
Links in
comment
New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social
Links in
comment
August 22, 2025 at 11:20 AM
1. Have you seen our
New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social
Links in
comment
New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social
Links in
comment
About to season my shoulder like I season my lamb chops 🤣
Making an oil based poultice with Rosemary, thyme, calendula and peppermint from the garden.
Will add castor oil to the finished product.
These are culinary, bug repellent, antimicrobial, anti-inflammatory, aromatic.
Making an oil based poultice with Rosemary, thyme, calendula and peppermint from the garden.
Will add castor oil to the finished product.
These are culinary, bug repellent, antimicrobial, anti-inflammatory, aromatic.
August 13, 2025 at 12:37 AM
About to season my shoulder like I season my lamb chops 🤣
Making an oil based poultice with Rosemary, thyme, calendula and peppermint from the garden.
Will add castor oil to the finished product.
These are culinary, bug repellent, antimicrobial, anti-inflammatory, aromatic.
Making an oil based poultice with Rosemary, thyme, calendula and peppermint from the garden.
Will add castor oil to the finished product.
These are culinary, bug repellent, antimicrobial, anti-inflammatory, aromatic.
1. Has anyone tracked their body temps in different parts of the body with infrared thermometers and correlated with dysautonomia symptoms over time? If so, have you found patterns on better/worse days? If no one has. We should start #thetemptest
August 12, 2025 at 11:55 AM
1. Has anyone tracked their body temps in different parts of the body with infrared thermometers and correlated with dysautonomia symptoms over time? If so, have you found patterns on better/worse days? If no one has. We should start #thetemptest
@renegaderesearch.bsky.social medical coaching and consulting for MECFS and Long Covid patients is now open
Announcement!!
1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows!
We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC
1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows!
We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC
July 22, 2025 at 5:27 PM
@renegaderesearch.bsky.social medical coaching and consulting for MECFS and Long Covid patients is now open
Helps us work to advance MECFS and Long Covid research and care.
My birthday is tomorrow and I am 5% to the goal. If everyone who can, donates just $5 & shares so others can do the same, I’m sure we can raise this by the end of the day.
www.zeffy.com/en-US/fundra...
My birthday is tomorrow and I am 5% to the goal. If everyone who can, donates just $5 & shares so others can do the same, I’m sure we can raise this by the end of the day.
www.zeffy.com/en-US/fundra...
Isabel Ramírez-Burnett
Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...
www.zeffy.com
July 1, 2025 at 3:56 PM
Helps us work to advance MECFS and Long Covid research and care.
My birthday is tomorrow and I am 5% to the goal. If everyone who can, donates just $5 & shares so others can do the same, I’m sure we can raise this by the end of the day.
www.zeffy.com/en-US/fundra...
My birthday is tomorrow and I am 5% to the goal. If everyone who can, donates just $5 & shares so others can do the same, I’m sure we can raise this by the end of the day.
www.zeffy.com/en-US/fundra...
My birthday is in 2 days. Help me celebrate by helping me do the work to advance research and care of MECFS and Long Covid at @renegaderesearch.bsky.social
Donate to my birthday fundraiser if you are able. Any amount helps
tinyurl.com/Renegage-Res...
Donate to my birthday fundraiser if you are able. Any amount helps
tinyurl.com/Renegage-Res...
Isabel Ramírez-Burnett
Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...
tinyurl.com
June 30, 2025 at 11:47 AM
My birthday is in 2 days. Help me celebrate by helping me do the work to advance research and care of MECFS and Long Covid at @renegaderesearch.bsky.social
Donate to my birthday fundraiser if you are able. Any amount helps
tinyurl.com/Renegage-Res...
Donate to my birthday fundraiser if you are able. Any amount helps
tinyurl.com/Renegage-Res...
Help me celebrate my birthday next week by donating to @renegaderesearch.bsky.social and help us do this much needed work
www.zeffy.com/en-US/fundra...
www.zeffy.com/en-US/fundra...
Isabel Ramírez-Burnett
Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...
www.zeffy.com
June 27, 2025 at 12:54 PM
Help me celebrate my birthday next week by donating to @renegaderesearch.bsky.social and help us do this much needed work
www.zeffy.com/en-US/fundra...
www.zeffy.com/en-US/fundra...
Reposted by Isabel Ramirez-Burnett
Check out the amazing presentation today from Todd Davenport and Ciara Wright on the details of The Acid Test.
youtu.be/6BUZtcC1Ezc
youtu.be/6BUZtcC1Ezc
March 28, 2025 at 8:16 PM
Check out the amazing presentation today from Todd Davenport and Ciara Wright on the details of The Acid Test.
youtu.be/6BUZtcC1Ezc
youtu.be/6BUZtcC1Ezc
Almost done with the PEM cocktail study design. Next step is IRB application and recruitment.
This has had a major impact on decreasing PEM for me and a few early testers.
Will differentiate if severity level affects impact among other things.
Stay tuned!
This has had a major impact on decreasing PEM for me and a few early testers.
Will differentiate if severity level affects impact among other things.
Stay tuned!
March 27, 2025 at 10:41 PM
Almost done with the PEM cocktail study design. Next step is IRB application and recruitment.
This has had a major impact on decreasing PEM for me and a few early testers.
Will differentiate if severity level affects impact among other things.
Stay tuned!
This has had a major impact on decreasing PEM for me and a few early testers.
Will differentiate if severity level affects impact among other things.
Stay tuned!
Reposted by Isabel Ramirez-Burnett
Genome editing success for the first time in nine patients with alpha-1 antitrypsin deficiency, a heritable disease which can cause cirrhosis and emphysema, affecting ~100,000 Americans, which is similar to the prevalence of sickle cell disease
www.nytimes.com/2025/03/10/h...
www.nytimes.com/2025/03/10/h...
Mutated DNA Restored to Normal in Gene Therapy Advance
The small study in patients with a rare disorder that causes liver and lung damage showed the potential for precisely targeted infusions.
www.nytimes.com
March 11, 2025 at 1:59 AM
Genome editing success for the first time in nine patients with alpha-1 antitrypsin deficiency, a heritable disease which can cause cirrhosis and emphysema, affecting ~100,000 Americans, which is similar to the prevalence of sickle cell disease
www.nytimes.com/2025/03/10/h...
www.nytimes.com/2025/03/10/h...
A little harvest from last summer.
This year I started early & have over 500 seedlings in my bedroom
Last year my kids fenced a big chunk of the garden (sorry groundhogs)
It is going to be a mini farm year
This year I started early & have over 500 seedlings in my bedroom
Last year my kids fenced a big chunk of the garden (sorry groundhogs)
It is going to be a mini farm year
March 7, 2025 at 9:55 PM
A little harvest from last summer.
This year I started early & have over 500 seedlings in my bedroom
Last year my kids fenced a big chunk of the garden (sorry groundhogs)
It is going to be a mini farm year
This year I started early & have over 500 seedlings in my bedroom
Last year my kids fenced a big chunk of the garden (sorry groundhogs)
It is going to be a mini farm year
1. I’m growing chicory this year as part of my medicinal garden.
This herb has many benefits, but metabolic and digestive health in particular, have been supported in clinical studies.
I’ll be growing several plants in containers to harvest the tap root.
This herb has many benefits, but metabolic and digestive health in particular, have been supported in clinical studies.
I’ll be growing several plants in containers to harvest the tap root.
March 7, 2025 at 1:04 PM
1. I’m growing chicory this year as part of my medicinal garden.
This herb has many benefits, but metabolic and digestive health in particular, have been supported in clinical studies.
I’ll be growing several plants in containers to harvest the tap root.
This herb has many benefits, but metabolic and digestive health in particular, have been supported in clinical studies.
I’ll be growing several plants in containers to harvest the tap root.
My other happy place. As they say “gardening is therapy and you get to eat the tomatoes” 🍅
March 2, 2025 at 9:49 PM
My other happy place. As they say “gardening is therapy and you get to eat the tomatoes” 🍅
Mitochondrial transfer with mitophagy inhibiting factors for immune evasion in cancer (as clever as microbes)
scitechdaily.com/scientists-u...
scitechdaily.com/scientists-u...
Scientists Uncover New Way Cancer Evades the Body’s Defenses
Researchers identify mitochondrial transfer between cancer and immune cells as a crucial mechanism for immune evasion. The immune system is essential for identifying and eliminating cancer cells. Canc...
scitechdaily.com
March 1, 2025 at 1:20 PM
Mitochondrial transfer with mitophagy inhibiting factors for immune evasion in cancer (as clever as microbes)
scitechdaily.com/scientists-u...
scitechdaily.com/scientists-u...
I keep repeating this till I’m blue in the face. Being able to function allows people to integrate everything else.
Pharma’s profit motive & providers stopping at Sx control are both an issue, yet medications helping to increase function are all true at the same time.
Pharma’s profit motive & providers stopping at Sx control are both an issue, yet medications helping to increase function are all true at the same time.
There is nothing wrong with that, and there is no shame in that.
These medications are also what allow people to work on other interventions alongside the medication. Therapy, exercise, dietary changes if clinically indicated, etc.
The goal should be making people more functional,
These medications are also what allow people to work on other interventions alongside the medication. Therapy, exercise, dietary changes if clinically indicated, etc.
The goal should be making people more functional,
February 21, 2025 at 1:43 PM
I keep repeating this till I’m blue in the face. Being able to function allows people to integrate everything else.
Pharma’s profit motive & providers stopping at Sx control are both an issue, yet medications helping to increase function are all true at the same time.
Pharma’s profit motive & providers stopping at Sx control are both an issue, yet medications helping to increase function are all true at the same time.
Reposted by Isabel Ramirez-Burnett
Betsy is a trustworthy investigative health journalist, please forward this far and wide.
I'd like to talk to federal workers with Long COVID and related chronic diseases/disabilities about how they're being impacted by the Trump administration's actions, for a story @thesicktimes.bsky.social. Sources can absolutely be anonymous. Message me on Signal at betsyladyzhets.25.
February 14, 2025 at 5:55 PM
Betsy is a trustworthy investigative health journalist, please forward this far and wide.
I feel vindicated with my 50k IU dose
High-dose vitamin D supplementation may benefit patients with post-COVID syndrome by reducing fatigue, alleviating anxiety, and improving cognitive symptoms, wi…
pubmed.ncbi.nlm.nih.gov/39072958/
High-dose vitamin D supplementation may benefit patients with post-COVID syndrome by reducing fatigue, alleviating anxiety, and improving cognitive symptoms, wi…
pubmed.ncbi.nlm.nih.gov/39072958/
Effects of an 8-week high-dose vitamin D supplementation on fatigue and neuropsychiatric manifestations in post-COVID syndrome: A randomized controlled trial - PubMed
High-dose vitamin D supplementation may benefit patients with post-COVID syndrome by reducing fatigue, alleviating anxiety, and improving cognitive symptoms, with minimal side effects.
pubmed.ncbi.nlm.nih.gov
February 14, 2025 at 5:33 PM
I feel vindicated with my 50k IU dose
High-dose vitamin D supplementation may benefit patients with post-COVID syndrome by reducing fatigue, alleviating anxiety, and improving cognitive symptoms, wi…
pubmed.ncbi.nlm.nih.gov/39072958/
High-dose vitamin D supplementation may benefit patients with post-COVID syndrome by reducing fatigue, alleviating anxiety, and improving cognitive symptoms, wi…
pubmed.ncbi.nlm.nih.gov/39072958/
By combining MERFISH imaging with expansion microscopy, researchers have unlocked a new way to study bacteria at the single-cell level.
scitechdaily.com/scientists-j...
scitechdaily.com/scientists-j...
Scientists Just Made Bacteria 1000x Bigger – And Discovered Something Incredible
By combining MERFISH imaging with expansion microscopy, researchers have unlocked a new way to study bacteria at the single-cell level. This allows them to see how bacteria activate different genes in...
scitechdaily.com
February 10, 2025 at 11:09 PM
By combining MERFISH imaging with expansion microscopy, researchers have unlocked a new way to study bacteria at the single-cell level.
scitechdaily.com/scientists-j...
scitechdaily.com/scientists-j...
Just started this list. Please add to it those sharing info on H5N1 developments
bsky.app/profile/did:...
bsky.app/profile/did:...
February 10, 2025 at 12:26 AM
Just started this list. Please add to it those sharing info on H5N1 developments
bsky.app/profile/did:...
bsky.app/profile/did:...