Tania J. Spencer
@taniaspencer.bsky.social
🇨🇦🇿🇦 • writer • photographer • Long COVID first waver • vaxxer • masker • maker of Corsi-Rosenthals • Yukoner • Antifa
Pinned
Reposted by Tania J. Spencer
Everything wrong with the last almost 6 years right there.
November 23, 2025 at 12:39 AM
Everything wrong with the last almost 6 years right there.
"Maybe they know that, despite the strong case for upgrading air filtration & establishing indoor air quality requirements, this has not been done, & masks are an easy-to-implement, effective layer of protection against pathogens":
Via @bcschoolcovid.bsky.social
open.substack.com/pub/misfitme...
Via @bcschoolcovid.bsky.social
open.substack.com/pub/misfitme...
Why Are People Wearing Masks in 2025?
A Mental Health Professional’s Perspective
open.substack.com
November 22, 2025 at 6:21 PM
"Maybe they know that, despite the strong case for upgrading air filtration & establishing indoor air quality requirements, this has not been done, & masks are an easy-to-implement, effective layer of protection against pathogens":
Via @bcschoolcovid.bsky.social
open.substack.com/pub/misfitme...
Via @bcschoolcovid.bsky.social
open.substack.com/pub/misfitme...
1/
It would be useful to see the following examined through a lens of #EpistemicInjustice -
▶️ #PublicHealth co-opted by gov;
▶️ #COVID minimised by gov;
▶️ #LongCOVID ignored by gov;
▶️ & an #OngoingPandemic of an injurious #AirborneVirus, that excluded the expertise of aerosol scientists.
It would be useful to see the following examined through a lens of #EpistemicInjustice -
▶️ #PublicHealth co-opted by gov;
▶️ #COVID minimised by gov;
▶️ #LongCOVID ignored by gov;
▶️ & an #OngoingPandemic of an injurious #AirborneVirus, that excluded the expertise of aerosol scientists.
You can now preview the book, which means you can look and search inside, and I think read the acknowledgements (the most personal part of it by far) and the preface - there's a 'preview book' button below the cover:
Epistemic Injustice: An Introduction
Epistemic injustice is one of the most important yet complex subjects to have emerged in philosophy in recent years. It refers to the idea that a person can be wronged when they are not properly belie...
www.routledge.com
November 22, 2025 at 4:53 PM
1/
It would be useful to see the following examined through a lens of #EpistemicInjustice -
▶️ #PublicHealth co-opted by gov;
▶️ #COVID minimised by gov;
▶️ #LongCOVID ignored by gov;
▶️ & an #OngoingPandemic of an injurious #AirborneVirus, that excluded the expertise of aerosol scientists.
It would be useful to see the following examined through a lens of #EpistemicInjustice -
▶️ #PublicHealth co-opted by gov;
▶️ #COVID minimised by gov;
▶️ #LongCOVID ignored by gov;
▶️ & an #OngoingPandemic of an injurious #AirborneVirus, that excluded the expertise of aerosol scientists.
#ThePandemicIsNotOver, & #LongCOVID is real, whether governments like it or not.
It's time to #FollowTheScience, rather than politicians who don't read anything except opinion polls -
It's time to #FollowTheScience, rather than politicians who don't read anything except opinion polls -
November 22, 2025 at 3:56 PM
#ThePandemicIsNotOver, & #LongCOVID is real, whether governments like it or not.
It's time to #FollowTheScience, rather than politicians who don't read anything except opinion polls -
It's time to #FollowTheScience, rather than politicians who don't read anything except opinion polls -
The cumulative cost of ignoring #LongCOVID -
Economic burden of long COVID: macroeconomic, cost-of-illness and microeconomic impacts
Published: 21 November 2025
Long COVID affects an estimated 36% globally, creating a huge economic burden: about $1 trillion a year worldwide, roughly $9,000 per US patient and $170 billion in lost US earnings.
Published: 21 November 2025
Long COVID affects an estimated 36% globally, creating a huge economic burden: about $1 trillion a year worldwide, roughly $9,000 per US patient and $170 billion in lost US earnings.
November 22, 2025 at 3:28 PM
The cumulative cost of ignoring #LongCOVID -
Said all of us, now living with #LongCOVID -
I hear that. My doctors know nothing about COVID or long COVID, and I don't have the energy to educate them. They don't want to hear it anyway.
November 22, 2025 at 3:13 PM
Said all of us, now living with #LongCOVID -
Reposted by Tania J. Spencer
🖤 Rest in Peace, Eva Rodrigues Praia Walkey.
5 years fighting #LongCovid
You will be remembered, and we will not stay silent.
5 years fighting #LongCovid
You will be remembered, and we will not stay silent.
November 22, 2025 at 8:44 AM
🖤 Rest in Peace, Eva Rodrigues Praia Walkey.
5 years fighting #LongCovid
You will be remembered, and we will not stay silent.
5 years fighting #LongCovid
You will be remembered, and we will not stay silent.
"the mechanisms linking #LongCOVID peripheral neuropathy to Parkinson’s disease and dementia involve persistent neuroinflammation, immune-mediated peripheral and central nervous system damage, mitochondrial dysfunction, and possible direct viral effects on neural cells" -
#Medsky🧪 #IDsky #neurosky #neuroCovid #publichealth Common #longCOVID symptoms include memory disturbances and headaches, with neurophysiological methods potentially illuminating the mechanisms behind both central & peripheral components of these symptoms.
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
November 22, 2025 at 3:04 PM
"the mechanisms linking #LongCOVID peripheral neuropathy to Parkinson’s disease and dementia involve persistent neuroinflammation, immune-mediated peripheral and central nervous system damage, mitochondrial dysfunction, and possible direct viral effects on neural cells" -
Reposted by Tania J. Spencer
We were at 409 million estimate at 2023!
November 22, 2025 at 11:54 AM
We were at 409 million estimate at 2023!
1/
You may be disappointed in these 8 different ways people apparently experience #LongCOVID symptoms, according to a new study from the National Institutes of Health's research initiative":
So vague it can't miss. Can't land either -
www.axios.com/2025/11/22/l...
You may be disappointed in these 8 different ways people apparently experience #LongCOVID symptoms, according to a new study from the National Institutes of Health's research initiative":
So vague it can't miss. Can't land either -
www.axios.com/2025/11/22/l...
There are 8 patterns for long COVID symptoms. Here's what they are
Findings come from the NIH-backed RECOVER Initiative.
www.axios.com
November 22, 2025 at 2:49 PM
1/
You may be disappointed in these 8 different ways people apparently experience #LongCOVID symptoms, according to a new study from the National Institutes of Health's research initiative":
So vague it can't miss. Can't land either -
www.axios.com/2025/11/22/l...
You may be disappointed in these 8 different ways people apparently experience #LongCOVID symptoms, according to a new study from the National Institutes of Health's research initiative":
So vague it can't miss. Can't land either -
www.axios.com/2025/11/22/l...
Reposted by Tania J. Spencer
Meanwhile in Canada...
AFAICT the reason provinces are cutting back on COVID vaccines is that the economic models underlying national guidance 👉forgot to count COVID cases that don't require medical attention when projecting #longCOVID costs👈
This is RFK-level bullshit.
Amateur hour.
AFAICT the reason provinces are cutting back on COVID vaccines is that the economic models underlying national guidance 👉forgot to count COVID cases that don't require medical attention when projecting #longCOVID costs👈
This is RFK-level bullshit.
Amateur hour.
OK took a look at another one of the NACI references, #22: www.medrxiv.org/content/10.1...
I just have a minute but this looks seriously sketchy.
#1: 👉why can't I find an overall COVID incidence rate?👈 Did they really only count "medically attended" cases (p17) - so e.g. 7.5% annual incidence?
I just have a minute but this looks seriously sketchy.
#1: 👉why can't I find an overall COVID incidence rate?👈 Did they really only count "medically attended" cases (p17) - so e.g. 7.5% annual incidence?
November 22, 2025 at 8:36 AM
Meanwhile in Canada...
AFAICT the reason provinces are cutting back on COVID vaccines is that the economic models underlying national guidance 👉forgot to count COVID cases that don't require medical attention when projecting #longCOVID costs👈
This is RFK-level bullshit.
Amateur hour.
AFAICT the reason provinces are cutting back on COVID vaccines is that the economic models underlying national guidance 👉forgot to count COVID cases that don't require medical attention when projecting #longCOVID costs👈
This is RFK-level bullshit.
Amateur hour.
Reposted by Tania J. Spencer
"Canada has chosen not to lead, but to follow in the footsteps of other countries whose cuts to global health have already had deadly consequences. Such cuts will fuel the reversal of progress against HIV, TB & malaria,” says @healthlawadamh.bsky.social
www.thecanadianpressnews.ca/national/can...
www.thecanadianpressnews.ca/national/can...
Canada cuts back spending on fighting infectious diseases at G20 in South Africa
JOHANNESBURG - Prime Minister Mark Carney has made Canada's first-ever cut to funding for a major program for fighting infectious diseases in the world's poorest countries — a move that
www.thecanadianpressnews.ca
November 21, 2025 at 9:40 PM
"Canada has chosen not to lead, but to follow in the footsteps of other countries whose cuts to global health have already had deadly consequences. Such cuts will fuel the reversal of progress against HIV, TB & malaria,” says @healthlawadamh.bsky.social
www.thecanadianpressnews.ca/national/can...
www.thecanadianpressnews.ca/national/can...
Reposted by Tania J. Spencer
Covid has left behind many people, and it's still happening to this day. The forums of people with long Covid see new persons every week who have just developed the illness.
It could be anyone of us next. These cases are dramatic, but like every other illness, there are much milder ones.
It could be anyone of us next. These cases are dramatic, but like every other illness, there are much milder ones.
Best thing that could come from this is to better educate doctors, so they understand what Long COVID is possibly how to diagnose/treat features of the disorder (no clear diagnostic/treatment yet).
They need to trust people & actually try to help.
#N95inAllPublicIndoorSpaces
youtu.be/y1rSQIFr0fY?...
They need to trust people & actually try to help.
#N95inAllPublicIndoorSpaces
youtu.be/y1rSQIFr0fY?...
The First Feature-Length Documentary on ME/CFS and Long COVID (Now Crowdfunding)
YouTube video by What Doesn't Kill You
youtu.be
November 22, 2025 at 12:34 AM
Covid has left behind many people, and it's still happening to this day. The forums of people with long Covid see new persons every week who have just developed the illness.
It could be anyone of us next. These cases are dramatic, but like every other illness, there are much milder ones.
It could be anyone of us next. These cases are dramatic, but like every other illness, there are much milder ones.
This 👇
The fact that asymptomatic Covid cases can lead to Long Covid IMO probably leads to more people attributing illness to vaccine complications than what could actually occurring, when the underlying problem could be a Covid infection.
November 22, 2025 at 12:57 AM
This 👇
1/
For the last time - there is no white genocide in South Africa. But there certainly is a war of gender violence that has been waged on women & children for decades now -
For the last time - there is no white genocide in South Africa. But there certainly is a war of gender violence that has been waged on women & children for decades now -
As South African social media dons a regal purple in solidarity against gender-based violence, women are gearing up for a nationwide economic shutdown on November 21, demanding that the government recognize the crisis as a State of Disaster—because no economy can thrive while women's lives are ...
Women for Change calls for shutdown over GBV ahead of G20 Summit | Daily Maverick
www.dailymaverick.co.za
November 21, 2025 at 10:05 PM
1/
For the last time - there is no white genocide in South Africa. But there certainly is a war of gender violence that has been waged on women & children for decades now -
For the last time - there is no white genocide in South Africa. But there certainly is a war of gender violence that has been waged on women & children for decades now -
Reposted by Tania J. Spencer
Read the latest from the Covid-Is-Not-Over newsletter:
Neurological impact of Covid on children, Canada craps the measles bed, PPE prevents healthcare infections, and more
johndupuis.substack.com/p/neurologic...
Neurological impact of Covid on children, Canada craps the measles bed, PPE prevents healthcare infections, and more
johndupuis.substack.com/p/neurologic...
Neurological impact of Covid on children, Canada craps the measles bed, PPE prevents healthcare infections, and more
Bonus Thank you Alice Wong and Leslie Lee III
johndupuis.substack.com
November 21, 2025 at 5:15 AM
Read the latest from the Covid-Is-Not-Over newsletter:
Neurological impact of Covid on children, Canada craps the measles bed, PPE prevents healthcare infections, and more
johndupuis.substack.com/p/neurologic...
Neurological impact of Covid on children, Canada craps the measles bed, PPE prevents healthcare infections, and more
johndupuis.substack.com/p/neurologic...
@cmadocs.bsky.social - you might want to read this 👇
Or stay on the #WrongSideOfHistory, with your outdated #DropletDogma -
Or stay on the #WrongSideOfHistory, with your outdated #DropletDogma -
The second report of the UK COVID Inquiry is out. The two volumes are here: covid19.public-inquiry.uk/documents/mo...
The section on "The focus on handwashing over ventilation" begins in section 12.32 of the second volume (page 167 in the PDF of voume 2).
#itsairborne #COVID #longCOVID #aerosol
The section on "The focus on handwashing over ventilation" begins in section 12.32 of the second volume (page 167 in the PDF of voume 2).
#itsairborne #COVID #longCOVID #aerosol
Module 2, 2A, 2B, 2C Report - Core decision-making and political governance UK Covid-19 Inquiry Archives
A report by The Rt Hon the Baroness Hallett DBE, Chair of the UK Covid-19 Inquiry on the core decision-making and political governance, dated 20 November 2025.
covid19.public-inquiry.uk
November 21, 2025 at 7:28 PM
@cmadocs.bsky.social - you might want to read this 👇
Or stay on the #WrongSideOfHistory, with your outdated #DropletDogma -
Or stay on the #WrongSideOfHistory, with your outdated #DropletDogma -
If you believe in locally owned, independent, community media in 🇨🇦 Canada, please support the @halifaxexaminer.ca if you can -
The collective madness of ignoring the environmental costs of the AI industry
Morning File by @timbousquet.bsky.social
Morning File by @timbousquet.bsky.social
The collective madness of ignoring the environmental costs of the AI industry - Halifax Examiner
Just as humanity is facing the existential crisis of climate change, we're going to add enormous amounts of carbon to the atmosphere by burning more fossil fuels to power ChatFuckingGPT?
www.halifaxexaminer.ca
November 21, 2025 at 4:48 PM
If you believe in locally owned, independent, community media in 🇨🇦 Canada, please support the @halifaxexaminer.ca if you can -
1/
Everyone knew, as the pandemic unfolded, that government officials would be making these apologies years later.
Just as government officials knew they would.
And that the apologies would be hollow, would be excused with ignorance, & made with impunity -
www.bbc.com/news/article...
Everyone knew, as the pandemic unfolded, that government officials would be making these apologies years later.
Just as government officials knew they would.
And that the apologies would be hollow, would be excused with ignorance, & made with impunity -
www.bbc.com/news/article...
Michael Gove apologises after Covid report alleges 'toxic' culture - BBC News
The ex-senior minister apologises for mistakes in the pandemic, but defends some of the previous government's actions.
www.bbc.com
November 21, 2025 at 4:27 PM
1/
Everyone knew, as the pandemic unfolded, that government officials would be making these apologies years later.
Just as government officials knew they would.
And that the apologies would be hollow, would be excused with ignorance, & made with impunity -
www.bbc.com/news/article...
Everyone knew, as the pandemic unfolded, that government officials would be making these apologies years later.
Just as government officials knew they would.
And that the apologies would be hollow, would be excused with ignorance, & made with impunity -
www.bbc.com/news/article...
I don't doubt this is reflexively true - that structural inequities affect Long-COVID care.
If there was any care, that is.
But you do you know that in 🇨🇦 Canada there is absolutely zero care for anyone with #LongCOVID, right?
So arguing about who's getting it & who's not, is sadly, moot -
If there was any care, that is.
But you do you know that in 🇨🇦 Canada there is absolutely zero care for anyone with #LongCOVID, right?
So arguing about who's getting it & who's not, is sadly, moot -
📢 U of T researchers Andrea Rishworth & Kathi Wilson host a knowledge-sharing event: Understanding the Impacts of Structural Racism on Long-COVID Management. Taking place in-person on Dec 4, 10:00 AM – 1:30 PM.
✅ RSVP by Nov 24: andrea.rishworth@utoronto.ca
✅ RSVP by Nov 24: andrea.rishworth@utoronto.ca
November 21, 2025 at 4:06 PM
I don't doubt this is reflexively true - that structural inequities affect Long-COVID care.
If there was any care, that is.
But you do you know that in 🇨🇦 Canada there is absolutely zero care for anyone with #LongCOVID, right?
So arguing about who's getting it & who's not, is sadly, moot -
If there was any care, that is.
But you do you know that in 🇨🇦 Canada there is absolutely zero care for anyone with #LongCOVID, right?
So arguing about who's getting it & who's not, is sadly, moot -
Reposted by Tania J. Spencer
Long Covid is going to lead to economic disaster by ignoring this virus.
[10 Dec 2024] Opening Remarks from Dr Tedros at yesterday’s @who.int media briefing:
“We cannot talk about COVID in the past tense.
“It’s still with us, it still causes acute disease and Long COVID, and it still kills.
“The world might want to forget about COVID-19, but we cannot afford to.”
“We cannot talk about COVID in the past tense.
“It’s still with us, it still causes acute disease and Long COVID, and it still kills.
“The world might want to forget about COVID-19, but we cannot afford to.”
November 21, 2025 at 2:47 PM
Long Covid is going to lead to economic disaster by ignoring this virus.
Reposted by Tania J. Spencer
Today @thesicktimes.org: big story from @spichaksimon.bsky.social examining exercise trials for Long COVID. His analysis found that, among LC exercise trials registered on clinicaltrials.gov, less than 20% even *mention* PEM in their trial registration. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:02 PM
Today @thesicktimes.org: big story from @spichaksimon.bsky.social examining exercise trials for Long COVID. His analysis found that, among LC exercise trials registered on clinicaltrials.gov, less than 20% even *mention* PEM in their trial registration. thesicktimes.org/2025/11/21/l...
Reposted by Tania J. Spencer
One similarity: “HIV seems to hang out in the brain and gut, and we’re seeing the same patterns with long COVID.”
Important Long-COVID Lessons From AIDS Researchers
The search for long-COVID treatments echoes the previous struggles against HIV/AIDS. Now researchers are taking lessons from those breakthroughs to make new progress.
www.medscape.com
November 21, 2025 at 3:53 PM
One similarity: “HIV seems to hang out in the brain and gut, and we’re seeing the same patterns with long COVID.”
Reposted by Tania J. Spencer
Did you know that trans people are more likely to report having Long COVID than cis people are?
On this annual Transgender Day of Resilience (TDOR), we’re sharing our resource on Long COVID in trans people.
Created with @longcovidjustice.org
longcovidjustice.org/lc-in-trans-people
On this annual Transgender Day of Resilience (TDOR), we’re sharing our resource on Long COVID in trans people.
Created with @longcovidjustice.org
longcovidjustice.org/lc-in-trans-people
November 20, 2025 at 2:14 PM
Did you know that trans people are more likely to report having Long COVID than cis people are?
On this annual Transgender Day of Resilience (TDOR), we’re sharing our resource on Long COVID in trans people.
Created with @longcovidjustice.org
longcovidjustice.org/lc-in-trans-people
On this annual Transgender Day of Resilience (TDOR), we’re sharing our resource on Long COVID in trans people.
Created with @longcovidjustice.org
longcovidjustice.org/lc-in-trans-people
"In the context of the decades I may spend chronically ill, I am in my infancy. The question of who I will become remains" -
Jessie Chaffee on Ray Bradbury’s “All Summer in a Day” and living in the shadow of long COVID.
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
buff.ly
November 21, 2025 at 3:44 PM
"In the context of the decades I may spend chronically ill, I am in my infancy. The question of who I will become remains" -