Rosanna
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rosannawregor.bsky.social
Rosanna
@rosannawregor.bsky.social
110 followers 210 following 20 posts
Cosmopolitan, DVM, caregiver for soulmate with very severe ME, the barbell keeps me sane.
Posts Replies Media Videos
Reposted by Rosanna
cgatist.bsky.social
Available to buy now: One Red Leaf at a Time Greetings Cards.

All proceeds go to our #MEcfs research @uoe-igc.bsky.social.

Thank you @drjogreer.bsky.social & Dr Clare Raynor!

theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
One Red Leaf at a Time Greetings Cards - Raising funds for research into Myalgic Encephalomyelitis
Since so many of you have asked, greetings cards featuring images from the Red Leaf Creative Collaborative are now available to purchase.
theredtreeandme.substack.com
November 16, 2025 at 12:36 PM
Reposted by Rosanna
thereforme.bsky.social
Who do you think is behind door number 5?
#ThereForMEAdventCalendar
The image shows 3 baubles. One is fairly gaudy, one has a big question mark in it, and one contains a very blurry photo with the number 1. The caption reads "Guess who's #ThereForME!" Here's a clue for alt-texters: gold
December 4, 2024 at 5:00 PM
Reposted by Rosanna
drjogreer.bsky.social
Thank you @rory-stewart.bsky.social l for your advocacy for people with #LongCovid & #MyalgicEncephalomyelitis My 17 yo daughter had Covid Pneumonia in Sept 21. V. sick since & now bedbound & tubefed #SevereME. She needs an NHS #ThereForME Please invite @binitakane.bsky.social on your podcast.
karenlhargrave.bsky.social Karen Hargrave @karenlhargrave.bsky.social · Dec 4
Fantastic to have @rory-stewart.bsky.social on board for the #ThereForME Christmas campaign! 🎄

@restispolitics.bsky.social covered Long Covid this year and we’d love to see them come back to it in 2025 (+ links to ME!) 🙏
thereforme.bsky.social ThereForME @thereforme.bsky.social · Dec 4
It’s Rory Stewart! @rory-stewart.bsky.social is one half of @restispolitics.bsky.social podcast, which covered Long Covid earlier this year.

His message: “My Christmas wish for people with Long Covid is that you are able to feel welcome, accepted and cherished over the holiday season.”
#ThereForME
December 4, 2024 at 10:30 AM
Reposted by Rosanna
thereforme.bsky.social
Who do you think is behind door number 4?
#ThereForMEAdventCalendar
The image shows 3 baubles. One is fairly gaudy, one has a big question mark in it, and one contains a very blurry photo with the number 4. The caption reads "Guess who's #ThereForME!" Here's a clue for alt-texters: pod
December 3, 2024 at 5:00 PM
Reposted by Rosanna
karenlhargrave.bsky.social
Big thanks to @natashadevon.bsky.social for her advocacy and for her Christmas message 👏👏👏👏
thereforme.bsky.social ThereForME @thereforme.bsky.social · Dec 3
@lbc.co.uk presenter @natashadevon.bsky.social is #ThereForME!

Her message: “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”

#pwME #pwLC
A pretend polaroid shows Natasha Devon posing for a photo holding a #ThereForME Christmas card. The image on the card shows two presents, one labelled "patient safety", the other "research". The photo is labelled "X". The design is in the #ThereForME colours. This second image displays Natasha Devon’s handwritten message. It reads “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”
December 3, 2024 at 9:26 AM
Reposted by Rosanna
thereforme.bsky.social
@lbc.co.uk presenter @natashadevon.bsky.social is #ThereForME!

Her message: “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”

#pwME #pwLC
A pretend polaroid shows Natasha Devon posing for a photo holding a #ThereForME Christmas card. The image on the card shows two presents, one labelled "patient safety", the other "research". The photo is labelled "X". The design is in the #ThereForME colours. This second image displays Natasha Devon’s handwritten message. It reads “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”
December 3, 2024 at 9:00 AM
Reposted by Rosanna
cabruce.bsky.social
Up and running again for #ME people!
I have sent an amended version of the template letter to my MP, it would be great if we had as many MPs as possible attending.

💥APPG Inaugural Meeting - 17 December 2024 - All-Party Parliamentary Group on ME
actionforme.bsky.social Action for ME @actionforme.bsky.social · Dec 2
📢 APPG on ME

We're delighted to announce Jo Platt MP has agreed to be put forward to Chair the APPG on ME! 🤝

📆 Inaugural meeting: Tue 17 Dec, 5pm - 6.30pm

Invite your local MP 👇

appgme.co.uk/meetings/app...

@thereforme.bsky.social will assist Action for ME in sharing APPG updates!

#pwME #MECFS
Image of the UK Houses of Parliament with logos for APPG on ME, Action for ME, and the ME Association. Text reads: 'An update on the All-Party Parliamentary (APPG) Group on ME Chair & inaugural meeting.'
December 2, 2024 at 10:58 AM
Reposted by Rosanna
thereforme.bsky.social
Here's the clue for tomorrow's #ThereForMEAdventCalendar. Can you guess who it is? Find out tomorrow at noon.
The image shows 3 baubles. One is fairly gaudy, one has a big question mark in it, and one contains a very blurry photo. The caption reads "Guess who's #ThereForME!" Here's a clue for alt-texters: Leigh
December 1, 2024 at 5:01 PM
Reposted by Rosanna
emmagl.bsky.social
Can you guess, can you guess?
thereforme.bsky.social ThereForME @thereforme.bsky.social · Nov 30
As promised, here's a clue for tomorrow's #ThereForMEAdventCalendar. Can you guess who it is?
The image shows 3 baubles. One is fairly gaudy, one has a big question mark in it, and one contains a very blurry photo. The caption reads "Guess who's #ThereForME!" Here's a clue for alt-texters: Doctor
November 30, 2024 at 7:01 PM
Reposted by Rosanna
karenlhargrave.bsky.social
And the fun begins… 😍

Can you guess who’s #ThereForME for 1 December?
thereforme.bsky.social ThereForME @thereforme.bsky.social · Nov 30
As promised, here's a clue for tomorrow's #ThereForMEAdventCalendar. Can you guess who it is?
The image shows 3 baubles. One is fairly gaudy, one has a big question mark in it, and one contains a very blurry photo. The caption reads "Guess who's #ThereForME!" Here's a clue for alt-texters: Doctor
November 30, 2024 at 5:08 PM
Reposted by Rosanna
chillslincoln79.bsky.social
Atlas of the plasma proteome in health and disease in 53,026 adults 👩‍🔬🥼👨‍🔬🧪. #proteomics #proteome #plasma #MedSky 👇👇

www.cell.com/cell/fulltex...
Atlas of the plasma proteome in health and disease in 53,026 adults
A large-scale proteomics study involving 53,026 individuals maps 2,920 plasma proteins to 406 prevalent diseases, 660 incident diseases, and 986 health-related traits, identifying promising biomarkers...
www.cell.com
November 23, 2024 at 7:49 AM
Reposted by Rosanna
karenlhargrave.bsky.social
We are sad to announce that #ThereForME has suspended our collaboration with the ME Association.

We feel that concerns from the community must be heard. The door remains open to continue our collaboration once action is taken and concerns addressed.

More here 👇
We are very sad to announce that the #ThereForME campaign has suspended our collaboration with the ME Association. Like others in the ME community, we have deep concerns about a recent editorial published by the ME Association and authored by the ME Association’s Chairman (‘Animals need to move’). We wrote to the ME Association today expressing concerns about the editorial and asking for an update on the actions that the ME Association would be taking to address them. We did not feel that the response we received was adequate and so we have taken the decision to suspend our collaboration with immediate effect. We are very proud of how we have managed to bring the ME and Long Covid communities together under a shared advocacy message since launching the campaign four months ago. We believe our community is strongest when we can work together and so this is not a decision that we have taken lightly. However, we are also very grateful for the trust we have built with the ME community. We therefore feel that we cannot in good conscience continue our collaboration with the ME Association until the very valid concerns from the community have been sufficiently addressed. We have made clear to the ME Association the actions we believe are necessary from their side in order to resume our collaboration. The door remains open to continue working together once we feel sufficient action has been taken. We very much hope that this will be the case. In the meantime, we will be focusing our time and energy on what we feel our campaign does best: speaking up for people with ME and Long Covid, who will always be at the heart of our campaign. Karen, Emma and Oonagh
November 18, 2024 at 8:43 PM
Reposted by Rosanna
brownecfm.bsky.social
Canadian H5 patient: sequencing confirms Influenza A (H5N1), clade 2.3.4.4b, genotype D.1.1.

Not the same genotype that is infecting dairy cattle and dairy workers in the US. Responsible for poultry outbreaks in Canada.

How the patient was infected remains unknown

www.canada.ca/en/public-he...
Statement from the Public Health Agency of Canada: Update on Avian Influenza and Risk to Canadians
The Public Health Agency of Canada (PHAC) today confirmed a human case of avian influenza (also known as bird flu) caused by influenza A(H5N1) virus in Canada.
www.canada.ca
November 13, 2024 at 8:36 PM
Reposted by Rosanna
flowermad.bsky.social
Please sign and share this petition to help Karen a severe ME patient who is not getting the help she so desperately needs from the hospital! It is so close to the 10,000 signatures!
www.change.org/p/save-karen...
October 16, 2023 at 4:36 PM
Reposted by Rosanna
openmedf.bsky.social
OMF's Annual Directors Gathering brings together all our CRC directors and the esteemed SAB member, Dr. Maureen Hanson. 🤝 During these three days, this group discusses the state of research within OMF and in the broader research community. 👉 Stay tuned for more details.
October 13, 2023 at 4:24 PM
Reposted by Rosanna
tomkindlon.bsky.social
New from Scotland:

"People With #LongCOVID and #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (ME/CFS) Exhibit Similarly Impaired Vascular Function"

Free fulltext:
www.amjmed.com/article/S000...

#MEcfs #CFS #PwME #MyalgicE #PwLC #postcovid  #postcovid19 #LC
Screenshot of abstract
October 12, 2023 at 12:17 PM
Reposted by Rosanna
emec.bsky.social
We have a dedicated page for #MECFS scientists who are looking for ways to fund their biomedical research. We hope this will be a useful collection of resources to those who are studying ME and also #LongCOVID

europeanmecoalition.com/resources-fo...
October 5, 2023 at 2:55 PM
Reposted by Rosanna
osayko.bsky.social
Well it’s spooky szn! And nothing is spookier than having a LDN incurable and disabling complex chronic illness like #MECFS. That’s why all month long I’m fundraising for Open Medicine Foundation. Donate/share/etc so we can raise as much money as possible! openmedicinefoundation.crowdchange.co/35021
Open Medicine Foundation | Fundraisers
Open Medicine Foundation (OMF) envisions improved health care for people with chronic complex diseases.
openmedicinefoundation.crowdchange.co
October 1, 2023 at 3:10 PM