Dr Jo Greer
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
Helping turn hope into action
Excited to share more beautiful One Red Leaf at a Time artwork and powerful lived experience narratives & our JustGiving page www.justgiving.com/page/one-red... for the ME/CFS research led by Professor Chris Ponting.
open.substack.com/pub/theredtr...
Excited to share more beautiful One Red Leaf at a Time artwork and powerful lived experience narratives & our JustGiving page www.justgiving.com/page/one-red... for the ME/CFS research led by Professor Chris Ponting.
open.substack.com/pub/theredtr...
Helping turn hope into action - One Red Leaf at a Time
It seems that many have been inspired by the arrival of Autumn here in the UK!
open.substack.com
October 31, 2025 at 4:53 PM
Helping turn hope into action
Excited to share more beautiful One Red Leaf at a Time artwork and powerful lived experience narratives & our JustGiving page www.justgiving.com/page/one-red... for the ME/CFS research led by Professor Chris Ponting.
open.substack.com/pub/theredtr...
Excited to share more beautiful One Red Leaf at a Time artwork and powerful lived experience narratives & our JustGiving page www.justgiving.com/page/one-red... for the ME/CFS research led by Professor Chris Ponting.
open.substack.com/pub/theredtr...
Reposted by Dr Jo Greer
Here's a short happy-go-lucky 🎶 parody about the way that
Robert F. Kennedy Jr. is now collapsing American healthcare - based off #PaulSimon's toe-tapping "Me and Julio Down by the Schoolyard".
youtu.be/FDiXrd-R68U
It's called: "Measles and Polio Down in the Schoolyard."
Robert F. Kennedy Jr. is now collapsing American healthcare - based off #PaulSimon's toe-tapping "Me and Julio Down by the Schoolyard".
youtu.be/FDiXrd-R68U
It's called: "Measles and Polio Down in the Schoolyard."
"Measles and Polio Down in the Schoolyard" - Marsh Family parody of Paul Simon "Me and Julio" on RFK
YouTube video by Marsh Family
youtu.be
September 7, 2025 at 10:54 PM
Here's a short happy-go-lucky 🎶 parody about the way that
Robert F. Kennedy Jr. is now collapsing American healthcare - based off #PaulSimon's toe-tapping "Me and Julio Down by the Schoolyard".
youtu.be/FDiXrd-R68U
It's called: "Measles and Polio Down in the Schoolyard."
Robert F. Kennedy Jr. is now collapsing American healthcare - based off #PaulSimon's toe-tapping "Me and Julio Down by the Schoolyard".
youtu.be/FDiXrd-R68U
It's called: "Measles and Polio Down in the Schoolyard."
So excited to share these stunning 'Red Leaves and Glimmers of Gold' open.substack.com/pub/theredtr... #Oneredleafatatime #TheRedTreeandME #MyalgicEncephalomyelitis #DecodeME
Red Leaves and Glimmers of Gold
The Red Leaf Creative Collaborative is deeply grateful to the growing community of artists who are helping to shape this project, quite literally ‘one red leaf at a time’.
open.substack.com
August 24, 2025 at 3:13 PM
So excited to share these stunning 'Red Leaves and Glimmers of Gold' open.substack.com/pub/theredtr... #Oneredleafatatime #TheRedTreeandME #MyalgicEncephalomyelitis #DecodeME
The most severely affected are too sick to appear on camera - way too much exertion. They live in the shadows, in dark rooms with closed doors & are the least able to advocate for themselves. They really need strong allies campaigning for research, better care & treatment. #SevereME
Severe ME Day – 8th August – is dedicated to raising awareness about severe ME and remembering those who have lost their lives to this disease. Estimates suggest that around 25% of individuals with ME suffer from the severe form.
Read more: bit.ly/SevereMEday25
#SevereME #SevereMEDay
Read more: bit.ly/SevereMEday25
#SevereME #SevereMEDay
August 10, 2025 at 3:32 PM
The most severely affected are too sick to appear on camera - way too much exertion. They live in the shadows, in dark rooms with closed doors & are the least able to advocate for themselves. They really need strong allies campaigning for research, better care & treatment. #SevereME
Reposted by Dr Jo Greer
Hero to #pwME Dr Nigel Speight is fundraising for @medicalaidpal.bsky.social & cycling from Lands End➡️John O'Groats
"With the terrible things that are happening in Gaza & the West Bank it's difficult to think of a more worthwhile charity than MAP" Dr Speight
🔗👇
www.justgiving.com/page/arthur-...
"With the terrible things that are happening in Gaza & the West Bank it's difficult to think of a more worthwhile charity than MAP" Dr Speight
🔗👇
www.justgiving.com/page/arthur-...
Nigel Speight's fundraiser for Medical Aid for Palestinians
Help Arthur Nigel Podmore Speight raise money to support Medical Aid for Palestinians
www.justgiving.com
July 20, 2025 at 3:42 PM
Hero to #pwME Dr Nigel Speight is fundraising for @medicalaidpal.bsky.social & cycling from Lands End➡️John O'Groats
"With the terrible things that are happening in Gaza & the West Bank it's difficult to think of a more worthwhile charity than MAP" Dr Speight
🔗👇
www.justgiving.com/page/arthur-...
"With the terrible things that are happening in Gaza & the West Bank it's difficult to think of a more worthwhile charity than MAP" Dr Speight
🔗👇
www.justgiving.com/page/arthur-...
Reposted by Dr Jo Greer
💙 Thank you to Dr Kane for highlighting this deeply problematic mandatory training for FII.
This broad model is embedded within healthcare yet is NOT backed by evidence.
Capturing highly vulnerable families whom the medical system is failing.
It is discriminatory & damaging. We need change.
This broad model is embedded within healthcare yet is NOT backed by evidence.
Capturing highly vulnerable families whom the medical system is failing.
It is discriminatory & damaging. We need change.
I did my safeguarding level 3 mandatory training this week on FII (Fabricated or induced illness - seen as a form of child abuse) and PP (perplexing presentations) i.e. symptoms that don’t make sense to paediatricians.
Look at the symptoms that these ‘abusive’ parents may report.
Look at the symptoms that these ‘abusive’ parents may report.
July 15, 2025 at 1:34 PM
💙 Thank you to Dr Kane for highlighting this deeply problematic mandatory training for FII.
This broad model is embedded within healthcare yet is NOT backed by evidence.
Capturing highly vulnerable families whom the medical system is failing.
It is discriminatory & damaging. We need change.
This broad model is embedded within healthcare yet is NOT backed by evidence.
Capturing highly vulnerable families whom the medical system is failing.
It is discriminatory & damaging. We need change.
Reposted by Dr Jo Greer
1/3
📢 The Times (paywalled): "Third delay to ME care plan prompts backlash from patients"
Full article (paywalled) 👇
www.thetimes.com/uk/healthcar...
⬇️
📢 The Times (paywalled): "Third delay to ME care plan prompts backlash from patients"
Full article (paywalled) 👇
www.thetimes.com/uk/healthcar...
⬇️
June 30, 2025 at 12:37 PM
1/3
📢 The Times (paywalled): "Third delay to ME care plan prompts backlash from patients"
Full article (paywalled) 👇
www.thetimes.com/uk/healthcar...
⬇️
📢 The Times (paywalled): "Third delay to ME care plan prompts backlash from patients"
Full article (paywalled) 👇
www.thetimes.com/uk/healthcar...
⬇️
Further evidence of more neglect, delay, broken promises, dismissal, inaction, lack of transparency / candour. People with #MyalgicEncephalomyelitis have had decades of this already. Some have died waiting for change. #whereistheplan #Fundtheplan #brokenpromise
It’s 30 June….the ME Delivery Plan is a no-show. It’s unacceptable.
#pwME have been left in darkness for too long. I’m with @HelenMorganLibDem.bsky.social:
‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’
#pwME have been left in darkness for too long. I’m with @HelenMorganLibDem.bsky.social:
‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’
June 30, 2025 at 6:36 PM
Further evidence of more neglect, delay, broken promises, dismissal, inaction, lack of transparency / candour. People with #MyalgicEncephalomyelitis have had decades of this already. Some have died waiting for change. #whereistheplan #Fundtheplan #brokenpromise
Reposted by Dr Jo Greer
This is a really important and brilliantly delivered presentation from @binitakane.bsky.social.
*please* watch, share, and urge your MP to get involved. We can and must make this change happen
#ME/CFS #LongCovid #GreatestMedicalScandal
*please* watch, share, and urge your MP to get involved. We can and must make this change happen
#ME/CFS #LongCovid #GreatestMedicalScandal
Excellent presentation made by Dr @binitakane.bsky.social
to the APPGs on ME and #LongCovid.
We are fortunate to have a Doctor who understands the problems, sees the need for change and can communicate so well.
Also some strong new thinking for #pwME.
(1 of 4 short vids)
to the APPGs on ME and #LongCovid.
We are fortunate to have a Doctor who understands the problems, sees the need for change and can communicate so well.
Also some strong new thinking for #pwME.
(1 of 4 short vids)
June 19, 2025 at 12:31 PM
This is a really important and brilliantly delivered presentation from @binitakane.bsky.social.
*please* watch, share, and urge your MP to get involved. We can and must make this change happen
#ME/CFS #LongCovid #GreatestMedicalScandal
*please* watch, share, and urge your MP to get involved. We can and must make this change happen
#ME/CFS #LongCovid #GreatestMedicalScandal
Reposted by Dr Jo Greer
Excellent presentation made by Dr @binitakane.bsky.social
to the APPGs on ME and #LongCovid.
We are fortunate to have a Doctor who understands the problems, sees the need for change and can communicate so well.
Also some strong new thinking for #pwME.
(1 of 4 short vids)
to the APPGs on ME and #LongCovid.
We are fortunate to have a Doctor who understands the problems, sees the need for change and can communicate so well.
Also some strong new thinking for #pwME.
(1 of 4 short vids)
June 20, 2025 at 6:21 AM
Reposted by Dr Jo Greer
Highlights from Prof Chris Ponting’s presentation to the joint APPG on ME & Long Covid: He made clear that graded exercise is harmful, and warned that despite rising numbers, there’s still no research strategy, no effective treatments, and almost no funding. #MECFS #LongCovid
June 18, 2025 at 5:31 AM
Highlights from Prof Chris Ponting’s presentation to the joint APPG on ME & Long Covid: He made clear that graded exercise is harmful, and warned that despite rising numbers, there’s still no research strategy, no effective treatments, and almost no funding. #MECFS #LongCovid
Reposted by Dr Jo Greer
speaking with such moral clarity, exposing the deep moral and political failure of mainstream media and politics and their dehumanizing disregard in the face of what is happening in Gaza
m.youtube.com/watch?v=Hk1W...
m.youtube.com/watch?v=Hk1W...
Greta Thunberg speaks to France 24 after her deportation from Israel • FRANCE 24 English
YouTube video by FRANCE 24 English
m.youtube.com
June 10, 2025 at 2:59 PM
speaking with such moral clarity, exposing the deep moral and political failure of mainstream media and politics and their dehumanizing disregard in the face of what is happening in Gaza
m.youtube.com/watch?v=Hk1W...
m.youtube.com/watch?v=Hk1W...
Reposted by Dr Jo Greer
The Freedom Flotilla sailing toward Gaza is not just carrying life-saving aid. It is carrying solidarity, hope and our shared humanity.
June 8, 2025 at 5:22 PM
The Freedom Flotilla sailing toward Gaza is not just carrying life-saving aid. It is carrying solidarity, hope and our shared humanity.
Reposted by Dr Jo Greer
La Freedom Flotilla s'approche de la bande de Gaza.
Ne les perdons pas de vue, ils et elles ont besoin de notre soutien !
Ne les perdons pas de vue, ils et elles ont besoin de notre soutien !
June 7, 2025 at 7:21 AM
La Freedom Flotilla s'approche de la bande de Gaza.
Ne les perdons pas de vue, ils et elles ont besoin de notre soutien !
Ne les perdons pas de vue, ils et elles ont besoin de notre soutien !
Reposted by Dr Jo Greer
Live tracker of the Madleen freedom flotilla: freedomflotilla.org/ffc-tracker/
June 8, 2025 at 2:20 PM
Live tracker of the Madleen freedom flotilla: freedomflotilla.org/ffc-tracker/
Reposted by Dr Jo Greer
Check out One Red Leaf at a Time: an international art project - launched by The Red Leaf Creative Collaborative.
Read more about it here: theredtreeandme.substack.com/p/one-red-le...
#PwME #MyalgicEncephalomyelitis #art
Read more about it here: theredtreeandme.substack.com/p/one-red-le...
#PwME #MyalgicEncephalomyelitis #art
June 3, 2025 at 3:12 PM
Check out One Red Leaf at a Time: an international art project - launched by The Red Leaf Creative Collaborative.
Read more about it here: theredtreeandme.substack.com/p/one-red-le...
#PwME #MyalgicEncephalomyelitis #art
Read more about it here: theredtreeandme.substack.com/p/one-red-le...
#PwME #MyalgicEncephalomyelitis #art
Reposted by Dr Jo Greer
Calling all chronically ill artists and allies to help @drjogreer.bsky.social with this beautiful project: 'One Red Leaf at a Time', bringing awareness about #ME Myalgic Encephalomyelitis, and the need for funding for research. More information here: theredtreeandme.substack.com/p/one-red-le...
One Red Leaf at a Time: an international art project
As we approach the end of ME Awareness month, The Red Leaf Creative Collaborative is excited to launch One Red Leaf at a Time: an international art project.
theredtreeandme.substack.com
June 3, 2025 at 5:11 PM
Calling all chronically ill artists and allies to help @drjogreer.bsky.social with this beautiful project: 'One Red Leaf at a Time', bringing awareness about #ME Myalgic Encephalomyelitis, and the need for funding for research. More information here: theredtreeandme.substack.com/p/one-red-le...
Reposted by Dr Jo Greer
1/3. On 14 May 2025, there will be a joint meeting for Parliamentarians between the APPG on #LongCovid and the APPG on ME.
A main focus will be on research, with several guest speakers.
Ask your MP to attend!
More details below ⬇️
#WorldMEDay
A main focus will be on research, with several guest speakers.
Ask your MP to attend!
More details below ⬇️
#WorldMEDay
May 12, 2025 at 10:46 AM
1/3. On 14 May 2025, there will be a joint meeting for Parliamentarians between the APPG on #LongCovid and the APPG on ME.
A main focus will be on research, with several guest speakers.
Ask your MP to attend!
More details below ⬇️
#WorldMEDay
A main focus will be on research, with several guest speakers.
Ask your MP to attend!
More details below ⬇️
#WorldMEDay
Reposted by Dr Jo Greer
Ahead of tomorrow's ME Awareness Day/Week - I wrote a piece about beachcombing as a guest post for @drjogreer.bsky.social #pwME #MECFS #MEAWARENESSDAY #Disability #ChronicIllness
- take a look at the link to next week's concert too -
substack.com/home/post/p-...
- take a look at the link to next week's concert too -
substack.com/home/post/p-...
Red Leaves and Moving Mountains
A huge thank you to Louise Kenward for this thoughtful piece for The Red Tree and ME.
substack.com
May 11, 2025 at 9:23 AM
Ahead of tomorrow's ME Awareness Day/Week - I wrote a piece about beachcombing as a guest post for @drjogreer.bsky.social #pwME #MECFS #MEAWARENESSDAY #Disability #ChronicIllness
- take a look at the link to next week's concert too -
substack.com/home/post/p-...
- take a look at the link to next week's concert too -
substack.com/home/post/p-...
Reposted by Dr Jo Greer
Really pleased to have contributed a guest post to @drjogreer.bsky.social 's The Red Tree & ME.
#Disability #Beachcombing #NatureWriting #LifeWriting #RedLeaves #MECFS
substack.com/home/post/p-...
#Disability #Beachcombing #NatureWriting #LifeWriting #RedLeaves #MECFS
substack.com/home/post/p-...
Red Leaves and Moving Mountains
A huge thank you to Louise Kenward for this thoughtful piece for The Red Tree and ME.
substack.com
May 4, 2025 at 4:20 PM
Really pleased to have contributed a guest post to @drjogreer.bsky.social 's The Red Tree & ME.
#Disability #Beachcombing #NatureWriting #LifeWriting #RedLeaves #MECFS
substack.com/home/post/p-...
#Disability #Beachcombing #NatureWriting #LifeWriting #RedLeaves #MECFS
substack.com/home/post/p-...
#BlueSunday The Tea Party for ME Online Concert Registration / Donation here:
bit.ly/bluesundayco...
#pwME #BlueSundayforME #MyalgicEncephalomyelitis #MECFS
@meresearchuk.bsky.social @smileformecharity.bsky.social
bit.ly/bluesundayco...
#pwME #BlueSundayforME #MyalgicEncephalomyelitis #MECFS
@meresearchuk.bsky.social @smileformecharity.bsky.social
April 17, 2025 at 8:05 AM
#BlueSunday The Tea Party for ME Online Concert Registration / Donation here:
bit.ly/bluesundayco...
#pwME #BlueSundayforME #MyalgicEncephalomyelitis #MECFS
@meresearchuk.bsky.social @smileformecharity.bsky.social
bit.ly/bluesundayco...
#pwME #BlueSundayforME #MyalgicEncephalomyelitis #MECFS
@meresearchuk.bsky.social @smileformecharity.bsky.social
theredtreeandme.substack.com/p/still-a-me... Elaine O’Neill, a founder member of The Red Leaf Creative Collaborative, presents ‘Still’. This captivating piece is part of her ‘Open Door’ series & offers a glimpse into a tiny corner of her lived experience as a carer for her daughter #TheRedTreeandME
Still: A Mesmerising Glimpse
By Elaine O’Neill
theredtreeandme.substack.com
April 13, 2025 at 3:38 PM
theredtreeandme.substack.com/p/still-a-me... Elaine O’Neill, a founder member of The Red Leaf Creative Collaborative, presents ‘Still’. This captivating piece is part of her ‘Open Door’ series & offers a glimpse into a tiny corner of her lived experience as a carer for her daughter #TheRedTreeandME