Olenka Sayko
@osayko.bsky.social
Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
Reposted by Olenka Sayko
And if you fear that you will now be at higher risk of death and complications because you cannot stay up to date on vaccines, please consider for a moment that that is the burden you’ve been happy to put on disabled and vulnerable people for several years.
August 28, 2025 at 5:07 PM
And if you fear that you will now be at higher risk of death and complications because you cannot stay up to date on vaccines, please consider for a moment that that is the burden you’ve been happy to put on disabled and vulnerable people for several years.
Reposted by Olenka Sayko
If you are angry, as you should be, that restricting access to the vaccine will make covid worse and more dangerous, please start wearing a mask, which actually does a significantly better job of preventing transmission in the first place.
August 28, 2025 at 5:06 PM
If you are angry, as you should be, that restricting access to the vaccine will make covid worse and more dangerous, please start wearing a mask, which actually does a significantly better job of preventing transmission in the first place.
The compounding pharmacy that used to prepare my thymosin alpha-1 is no longer doing it and my usual compounding pharmacy doesn’t offer it. Anyone with #LongCOVID or #MECFS and at TA-1 script have a compounding pharmacy that offers it? If so, details pls!
July 11, 2025 at 1:52 PM
The compounding pharmacy that used to prepare my thymosin alpha-1 is no longer doing it and my usual compounding pharmacy doesn’t offer it. Anyone with #LongCOVID or #MECFS and at TA-1 script have a compounding pharmacy that offers it? If so, details pls!
Reposted by Olenka Sayko
#Disability is the only universal marginalisation, making up 1/5 to 1/4 of the world's population, yet so few of our stories are published!
Help me uplift disabled & chronically ill #writers by supporting & submitting to this #anthology ❤️🔥
Guidelines: shorturl.at/jges6
Deadline: July 31st 2025.
Help me uplift disabled & chronically ill #writers by supporting & submitting to this #anthology ❤️🔥
Guidelines: shorturl.at/jges6
Deadline: July 31st 2025.
June 29, 2025 at 2:47 AM
#Disability is the only universal marginalisation, making up 1/5 to 1/4 of the world's population, yet so few of our stories are published!
Help me uplift disabled & chronically ill #writers by supporting & submitting to this #anthology ❤️🔥
Guidelines: shorturl.at/jges6
Deadline: July 31st 2025.
Help me uplift disabled & chronically ill #writers by supporting & submitting to this #anthology ❤️🔥
Guidelines: shorturl.at/jges6
Deadline: July 31st 2025.
I’m always so tickled when people go “ugh when did [insert thing here] become political?” And it’s like, sorry babe, but as long as groups within society use the state as a cudgeol to decide who has what rights and how collective resources are allocated, most things will be political.
March 30, 2025 at 6:02 AM
I’m always so tickled when people go “ugh when did [insert thing here] become political?” And it’s like, sorry babe, but as long as groups within society use the state as a cudgeol to decide who has what rights and how collective resources are allocated, most things will be political.
🚨 🚨 🚨
Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!
This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!
This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
📣 #LongCOVID Community: With recent news, we're now hearing NIH RECOVER-TLC research & AHRQ Long COVID clinic funding could also be at risk. So LCC is launching a rapid-response campaign NOW to make it easier to call Congress & ask for #NoLongCOVIDCuts 1/x
bit.ly/NoLongCOVIDCutsCall
bit.ly/NoLongCOVIDCutsCall
March 26, 2025 at 2:38 AM
🚨 🚨 🚨
Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!
This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!
This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
Sprained my ankle. Time for all these peptides I’ve been shoving into my body to do something miraculous.
March 6, 2025 at 8:11 AM
Sprained my ankle. Time for all these peptides I’ve been shoving into my body to do something miraculous.
Reposted by Olenka Sayko
As we approach the 4th and 11th anniversaries of the war that Russia started, it is important to remember that this has always been a blatant land grab that turned genocidal as soon as they realized Ukrainians do not want to be Russians
February 22, 2025 at 6:42 PM
As we approach the 4th and 11th anniversaries of the war that Russia started, it is important to remember that this has always been a blatant land grab that turned genocidal as soon as they realized Ukrainians do not want to be Russians
Reposted by Olenka Sayko
New Lancet study shows extremely low, 2%, recovery rate from Long COVID.
However, those who considered their Long COVID resolved were still in worse health than those who never had Long COVID.
www.thelancet.com/journals/lan...
However, those who considered their Long COVID resolved were still in worse health than those who never had Long COVID.
www.thelancet.com/journals/lan...
February 20, 2025 at 12:48 PM
New Lancet study shows extremely low, 2%, recovery rate from Long COVID.
However, those who considered their Long COVID resolved were still in worse health than those who never had Long COVID.
www.thelancet.com/journals/lan...
However, those who considered their Long COVID resolved were still in worse health than those who never had Long COVID.
www.thelancet.com/journals/lan...
Anyone in the #LongCOVID or #MECFS universe tried the antimicrobial and antiviral peptide LL-37? Would love to touch base about folks’ experiences and dosages.
February 20, 2025 at 2:11 AM
Anyone in the #LongCOVID or #MECFS universe tried the antimicrobial and antiviral peptide LL-37? Would love to touch base about folks’ experiences and dosages.
Reposted by Olenka Sayko
Regeneron is recruiting for a phase 2 RCT of REGN7544 (an NPR1 antagonist mAb) for POTS. They’re seeking 81 patients in Pasadena, CA; Carlsbad, CA; Nashville, TN; and Clearwater, FL clinicaltrials.gov/study/NCT065...
ClinicalTrials.gov
clinicaltrials.gov
February 18, 2025 at 5:09 PM
Regeneron is recruiting for a phase 2 RCT of REGN7544 (an NPR1 antagonist mAb) for POTS. They’re seeking 81 patients in Pasadena, CA; Carlsbad, CA; Nashville, TN; and Clearwater, FL clinicaltrials.gov/study/NCT065...
It’s wild how much calmer my nervous system feels when I’m on my period. I wish I knew what was happening in my body that makes it so and how I can reproduce it the other three weeks of every month. 🤔 #LongCOVID
February 19, 2025 at 6:22 AM
It’s wild how much calmer my nervous system feels when I’m on my period. I wish I knew what was happening in my body that makes it so and how I can reproduce it the other three weeks of every month. 🤔 #LongCOVID
Reposted by Olenka Sayko
Unexpected niche beat for @melissagiragrant.com: Covering the myriad protests happening right now despite claims on social media that 'no one is protesting.'
Where Do You Protest Elon Musk? Everywhere, It Turns Out.
From Stonewall to Tesla dealerships, protesters are pioneering a form of opposition that doesn't necessarily center on Washington, D.C..
newrepublic.com
February 18, 2025 at 8:40 PM
Unexpected niche beat for @melissagiragrant.com: Covering the myriad protests happening right now despite claims on social media that 'no one is protesting.'
Anyone with #LongCOVID, #MECFS, or #ChronicLyme tried supportive oligonucleotide technique (SOT) for EBV, CMV, HHV-6, and Lyme and its co-infections? My functional medicine doc does it in his office and I’m considering it to try to shift symptoms. Would love personal anecdotes!
February 14, 2025 at 10:17 PM
Anyone with #LongCOVID, #MECFS, or #ChronicLyme tried supportive oligonucleotide technique (SOT) for EBV, CMV, HHV-6, and Lyme and its co-infections? My functional medicine doc does it in his office and I’m considering it to try to shift symptoms. Would love personal anecdotes!
Have a tonsil and sinus infection. Happy Valentines Day to me from AmoxClav. 😥
February 14, 2025 at 7:39 PM
Have a tonsil and sinus infection. Happy Valentines Day to me from AmoxClav. 😥
Reposted by Olenka Sayko
Incredible: Russ Vought’s daughter has cystic fibrosis and benefits from a “miracle drug” made possible by the National Institutes of Health—an agency Vought now aims to gut as part of the Project 2025 attack www.motherjones.com/politics/202... Scoop from @motherjones.com’s @metrauxjulia.bsky.social
Project 2025 is gutting medical funding that helped Russell Vought's own kid
Its architect's daughter has cystic fibrosis—and benefits from a "miracle drug" backed by an agency he's attacking.
www.motherjones.com
February 12, 2025 at 1:42 AM
Incredible: Russ Vought’s daughter has cystic fibrosis and benefits from a “miracle drug” made possible by the National Institutes of Health—an agency Vought now aims to gut as part of the Project 2025 attack www.motherjones.com/politics/202... Scoop from @motherjones.com’s @metrauxjulia.bsky.social
I’m on day 5 of Sofosbuvir. The first two days I only took one pill, but have been taking 2 the other two days. Very up and down but the ups are very up. My nervous system feels very calm on those days.
February 11, 2025 at 11:59 PM
I’m on day 5 of Sofosbuvir. The first two days I only took one pill, but have been taking 2 the other two days. Very up and down but the ups are very up. My nervous system feels very calm on those days.
Lmao at the idea that DOGE found fraud but an accounting firm didn’t. Like I don’t have that much faith in the Big 4, but I have enough faith that they’d be able to find fraudulent debt obligations…
*TRUMP SAYS DOGE EFFORT MAY HAVE FOUND FRAUD IN TREASURIES
*TRUMP SUGGESTS THAT MAY MEAN US DEBT OBLIGATIONS LOWER
GLWT
*TRUMP SUGGESTS THAT MAY MEAN US DEBT OBLIGATIONS LOWER
GLWT
February 9, 2025 at 9:58 PM
Lmao at the idea that DOGE found fraud but an accounting firm didn’t. Like I don’t have that much faith in the Big 4, but I have enough faith that they’d be able to find fraudulent debt obligations…
Reposted by Olenka Sayko
Reminder that protecting each other from illness and potential disability/death when the people in charge actively want us dead is actually punk as fuck.
Simple disease prevention is community care.
It is resistance.
Please mask up, especially at protests.
Simple disease prevention is community care.
It is resistance.
Please mask up, especially at protests.
February 7, 2025 at 10:25 AM
Reminder that protecting each other from illness and potential disability/death when the people in charge actively want us dead is actually punk as fuck.
Simple disease prevention is community care.
It is resistance.
Please mask up, especially at protests.
Simple disease prevention is community care.
It is resistance.
Please mask up, especially at protests.
Reposted by Olenka Sayko
If you work for the federal government and are tempted to take Musk’s “buyout” offer please know that you’re never going to see that money.
February 5, 2025 at 9:39 PM
If you work for the federal government and are tempted to take Musk’s “buyout” offer please know that you’re never going to see that money.
Reposted by Olenka Sayko
Thing you can do, action you can take:
Register for our Congressional Medicaid Advocacy Webinar on 2/10 @ 4PM ET
MAGA wants massive cuts to Medicaid, resulting in catastrophic coverage losses. Learn how to advocate for Medicaid with the legislative staff of a Congressperson or Senator. Reg link ⤵️
Register for our Congressional Medicaid Advocacy Webinar on 2/10 @ 4PM ET
MAGA wants massive cuts to Medicaid, resulting in catastrophic coverage losses. Learn how to advocate for Medicaid with the legislative staff of a Congressperson or Senator. Reg link ⤵️
2/10 at 4PM ET: Congressional Medicaid Advocacy Webinar | Matthew Cortland
Get more from Matthew Cortland on Patreon
www.patreon.com
February 4, 2025 at 11:56 PM
Thing you can do, action you can take:
Register for our Congressional Medicaid Advocacy Webinar on 2/10 @ 4PM ET
MAGA wants massive cuts to Medicaid, resulting in catastrophic coverage losses. Learn how to advocate for Medicaid with the legislative staff of a Congressperson or Senator. Reg link ⤵️
Register for our Congressional Medicaid Advocacy Webinar on 2/10 @ 4PM ET
MAGA wants massive cuts to Medicaid, resulting in catastrophic coverage losses. Learn how to advocate for Medicaid with the legislative staff of a Congressperson or Senator. Reg link ⤵️
Reposted by Olenka Sayko
Hey, guess what has suddenly disappeared from the HHS website?
Any mention of this $306M investment in pandemic flu preparedness that was approved in the last days of the Biden administration.
Not DEI. Not USAID. Our surveillance & response program around H5N1.
Any mention of this $306M investment in pandemic flu preparedness that was approved in the last days of the Biden administration.
Not DEI. Not USAID. Our surveillance & response program around H5N1.
Biden administration allocates $306m in its final days for bird flu response
‘Critical’ funding comes as H5N1 outbreak intensifies and will go toward developing a response to the virus
www.theguardian.com
February 5, 2025 at 2:42 AM
Hey, guess what has suddenly disappeared from the HHS website?
Any mention of this $306M investment in pandemic flu preparedness that was approved in the last days of the Biden administration.
Not DEI. Not USAID. Our surveillance & response program around H5N1.
Any mention of this $306M investment in pandemic flu preparedness that was approved in the last days of the Biden administration.
Not DEI. Not USAID. Our surveillance & response program around H5N1.
Reposted by Olenka Sayko
“These first two weeks of Trump’s new term and the extensive executive orders removing nearly every right I have as a trans American have been by far the worst in all my professional years.”
In The Handbasket’s first guest piece @katelynburns.com explains the toll on trans journalists right now:
In The Handbasket’s first guest piece @katelynburns.com explains the toll on trans journalists right now:
GUEST COLUMN: The current ‘mindf*ck’ of being a trans journalist
Katelyn Burns explains the personal and professional toll of Trump's anti-trans executive orders.
www.thehandbasket.co
February 5, 2025 at 12:18 AM
“These first two weeks of Trump’s new term and the extensive executive orders removing nearly every right I have as a trans American have been by far the worst in all my professional years.”
In The Handbasket’s first guest piece @katelynburns.com explains the toll on trans journalists right now:
In The Handbasket’s first guest piece @katelynburns.com explains the toll on trans journalists right now: