Indigo Rose
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indigoroseb12.bsky.social
Indigo Rose
@indigoroseb12.bsky.social
Chronically ill and disabled writer.
She/they
Reposted by Indigo Rose
Once every 20 years or so, the director-general of the BBC is forced to resign for being insufficiently rightwing. Alastair Milne in 1987. Greg Dyke in 2004. Tim Davie in 2025. The great irony is that the BBC was in all cases profoundly biased towards established power. But just not biased enough …
November 10, 2025 at 5:44 AM
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Waning immunity. A significant Covid wave in England. No new variant.
Thanks Prof Pagel for highlighting and contextualizing
October 10, 2025 at 2:41 PM
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“You’re already sick so why not take the risk?”

Non disabled people act like because our level of functioning is reduced, we should be ok taking extra risks.

It’s the opposite. We know the pain of losing health & independence. We know help isn’t coming. We protect what we have left at all costs.
April 24, 2025 at 4:57 AM
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Medical misogyny exists beyond gynae conditions too. It is implicit & explicit bias. It is gendering of emotions so women’s pain is minimised & women are seen to be hysterical. It’s not trusting women’s testimonies about their own bodies. www.theguardian.com/society/2024...
‘Medical misogyny’ condemns women to years of gynaecological pain, MPs told
Damning parliamentary report blames lack of education by healthcare workers and ‘pervasive stigma’ for poor care
www.theguardian.com
December 11, 2024 at 10:47 AM
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So excited to finally see this study out in pre-print! This study is the largest of its kind to date: Using data from 4,244 people with #LongCOVID, #MECFS and other complex chronic illnesses, we took hundreds of thousands of data points across hundreds of
www.researchsquare.com/article/rs-5...
1/
Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations in people with complex chronic illness
Background: Complex chronic conditions like Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome involve energy limitations and changes in heart rate variability (HRV) and resting heart r...
www.researchsquare.com
December 2, 2024 at 9:00 PM
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“Kat” a disabled Canadian living with EDS - wanted access to palliative care or a family doctor.

She received approval for MAiD instead.

This is why we’re scared. Her suffering could be alleviated. Denying palliation but approving death is wrong:
'Easier to let go' without support: B.C. woman approved for medically assisted death speaks out
A B.C. woman is speaking out about her experience accessing 'death care' with more ease than health care at a time when federal policymakers are considering further expanding access to medical assista...
bc.ctvnews.ca
December 2, 2024 at 10:10 PM
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Every day I become more convinced that the blame laid on disabled people for not “getting better” stems from fear.

Its easier to believe we’re not trying hard enough - or not taking care of ourselves - than to recognize health is NOT a guarantee. You can lose it at ANY time.
November 11, 2024 at 5:17 AM
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October 24, 2024 at 3:26 PM
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Fake or superficial conversations can trigger the hell out of complex trauma survivors, who have had glib chitchat about stupid sh*t used as a way to distract us from what's actually happening or gaslight us into believing nothing's wrong in a f*cked up station.
September 28, 2024 at 5:16 PM
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💥BOOM💥
My question was rejected, but paraphrased. Leading to this!

Hallett "...the answer is, the more of them [air filters] you have about, even in normal times, the better ventilation you have, the better chances for patient and healthcare worker safety"
Beggs "Yes"

youtube.com/@ukcovid-19i...
September 11, 2024 at 9:45 PM
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No such luck in the UK. We only have promises of old vaccines for Clinically Vulnerable people unless you can afford to get vaccinated privately.

#TwoTierHealthcare
August 22, 2024 at 10:58 PM
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#WeekGForGreen coming out of the dark, entering the portal of light.💚

Have a beautiful day.😊
August 16, 2024 at 6:22 AM
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1. How and why did the racist riots happen, and what do they tell us about where we might be heading? This thread concerns one part of the answer, the formation of what the historian Arno Meyer called a “crisis stratum” of disillusioned young men. 🧵
August 17, 2024 at 6:13 AM
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If you're a young person, it might be hard to really understand this but the whole world used to smell like cigarettes.
August 1, 2024 at 9:50 PM
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Could we calm down, do we think
July 31, 2024 at 6:48 AM
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Trauma conditioning will try to convince you you don't know yourself; you don't remember or understand what happened to you; &/or it's wrong or pointless to try to describe your experience.

None of that's true. That is trauma conditioning trying to preserve its own existence.
July 29, 2024 at 6:18 PM
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"its the kiki bouba label! everyone loves the kiki bouba label!"

.....

"the kiki bouba label used ai"
June 24, 2024 at 6:41 AM
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Everybody who successfully worked a trauma or addiction recovery did so by becoming intensely protective & intentional about our time & attention.

Letting either slip away is a recipe for flashback and/or relapse. (Ask me how I know.)
June 24, 2024 at 1:09 AM
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A bad thing about car reviews is they're written by people who love cars and know a lot about them.

I need car reviews by people who hate cars and know nothing about them.
June 22, 2024 at 1:17 AM
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Our trauma conditioning will have us saying "I don't know," when we absolutely do know, or could take a very educated guess.

Trauma recovery will have us following up that "I don't know" w/ "You know what? Actually, I do know/think..."

Work your recovery habit by habit.
June 3, 2024 at 12:42 PM
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#OharaKoson (1877 – 1945)
Flowering Plum and Moon
May 27, 2024 at 5:13 AM
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Instead of hot girl summer, I will be participating in bog witch summer where you live in the woods, spend your days in the garden & befriend a toad.
May 23, 2024 at 8:04 PM
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When we've been shamed &/or punished for expressing fear or pain growing up, we don't stop experiencing fear or pain. We stop acknowledging it-- definitely to the world, but also often to ourselves.

Then we wonder why, when we get triggered, the fog starts rolling in.
May 23, 2024 at 2:07 AM
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This is an 18th-century political system, designed at a time when only the richest and most powerful people could vote. It is used in the 21st century to protect capital and established power from the challenges that real democracy would present.
May 23, 2024 at 6:46 AM