J. Evelyn
evitorialpage.bsky.social
J. Evelyn
@evitorialpage.bsky.social
I live in a house. #MECFS #CCI #hEDS former global health/comms/tech
Reposted by J. Evelyn
CNN put together a supercut of Pam Bondi being for releasing Epstein files before she suddenly turned against it
July 27, 2025 at 1:12 PM
CSF leak symptoms 4 wks since #SFT surgery; worsened ME/CFS & CCI - bedbound.

Now running a fever on max Advil.

Potential infection.

Any normal person would be at the ER. I have the horrible task of balancing potential spine/brain infection w worsening other conditions.
April 27, 2025 at 3:13 AM
Reposted by J. Evelyn
NEW: “Persistent leaks” and “unaddressed contamination issues” are among the problems workers say they witnessed at one of the nation’s largest baby formula plants.

“I can’t have this on my conscience,” one told ProPublica.

By @heathervogell.bsky.social
Unsanitary Practices Persist at Baby Formula Factory Whose Shutdown Led to Mass Shortages, Workers Say
“Persistent leaks” and “unaddressed contamination issues” are among the problems workers say they witnessed at one of the nation’s largest baby formula plants. “I can’t have this on my conscience,”…
propub.li
April 4, 2025 at 11:01 AM
Reposted by J. Evelyn
Gen Z and Millennials: In ten years when we’re still without a cure and you’re caring for your parents, remember what he did.
April 4, 2025 at 9:00 PM
SFT recovery is difficult; compounded by neurosurgery dept (as world leading as they are) with zero knowledge of ME. They told me to walk 15-20 min every 3 hrs...

The hospital stay itself did a number on my baseline. I am upright very little.

Just need prayers and miracles. Doing my best.
April 5, 2025 at 4:57 AM
Reposted by J. Evelyn
Even among the darkest recesses of the human condition, there is no more paralyzing, bladder-loosening fear than conservative men’s fear of subways.
Sean Duffy: "The truth is, transit across America is dangerous. And these liberals -- liberal mayors -- they want everybody out of cars and into trains but they made the trains unsafe so nobody really wants to ride them ... even big men don't want to ride the subway at those times of night."
April 5, 2025 at 12:41 AM
Reposted by J. Evelyn
Check out my latest column for Teen Vogue about my chronic pain journey and what might hold regarding research in this Administration. Many thanks to Kate Nicholson of the Natl Pain Advocacy Center for talking with me

www.teenvogue.com/story/living...
I Lived With Pain My Entire Life and Didn’t Even Know It
I thought being in pain and discomfort was just part of being disabled.
www.teenvogue.com
April 5, 2025 at 1:46 AM
Reposted by J. Evelyn
Mark Kelly: "This is not surprising. Here's a guy who told Americans to inject bleach into their bodies, who sent a mob to Capitol Hill. And now I think it's fair to say he stands out as singlehandedly destroying more wealth with his bad decisions than anybody else who has ever lived on this planet"
April 5, 2025 at 1:49 AM
Reposted by J. Evelyn
🚨DC Protest Tomorrow - Community Warning🚨

Bryan Betancur says he will be infiltrating the protest tomorrow to collect phone numbers and turn people into the FBI. His claim is silly, but he is dangerous; he almost got in a fight when he attended the veterans protest on March 15th. #HandsOff 1/
April 5, 2025 at 1:56 AM
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Excited for all the new American banana and coffee factories.
April 5, 2025 at 2:45 AM
Reposted by J. Evelyn
These fucking pussies. I ride transit every day. I ride transit alone and drunk at 3AM and I've never had a problem worse than problems I have while not riding transit (a guy was creepy to me once)
Sean Duffy: "The truth is, transit across America is dangerous. And these liberals -- liberal mayors -- they want everybody out of cars and into trains but they made the trains unsafe so nobody really wants to ride them ... even big men don't want to ride the subway at those times of night."
April 5, 2025 at 4:20 AM
Reposted by J. Evelyn
Just a straight-up, brazen, demonstrable lie from the Vice-President of the United States. They have no shame and they seem to be able to get away with it too.

Abrego Garcia is not a ‘convicted MS-13 gang member.’ This is flat false from Vance.
April 1, 2025 at 6:01 AM
Reposted by J. Evelyn
The morning has arrived and he’s still speaking.

Headed to the Senate floor to join Senator Booker in his marathon speech to stand up for people of this country. Thanks Cory!
April 1, 2025 at 12:19 PM
Reposted by J. Evelyn
Fri Apr 11, 1p EDT US: Clinician's Roundtable on Orthostatic Flow Syndromes w SJ Smith, MD, Interventional Radiologist. #medSky
Could symptoms in migraine, POTS, MECFS, LC, IC, IBS, vulvodynia, FMS be from distressed veins & reduced w stents/embolization?
Register
us06web.zoom.us/webinar/regi...
Welcome! You are invited to join a webinar: Clinician's Roundtable: Orthostatic Flow Syndromes. After registering, you will receive a confirmation email about joining the webinar.
Presenter Steven J. Smith, MD, will speak and share some slides. A long Q&A/discussion session is planned. Clinician questions will be prioritized. Please put MD, PT, or other identifying info in your...
us06web.zoom.us
March 28, 2025 at 7:58 PM
My ME/CFS doctor just wrote me back within 5 minutes begging for help speaking with hospitalists at Brown U hospital

1020pm at night

That's magic and I hope we can swing things in the right direction. Prayers for all ME warriors and #MEspine warriors
March 28, 2025 at 2:30 AM
Reposted by J. Evelyn
Folks, very bad news for #LongCOVID. Deep breath.

29 awarded grants to do with COVID and Long COVID have been rescinded by NIH. 🧪

www.science.org/content/arti...
March 25, 2025 at 11:13 PM
Reposted by J. Evelyn
We learned so much about airborne transmission in the last 5 years, yet have done little with that knowledge.

We could have clean air benchmarks in public spaces. Free respirators to anyone who needs them. PSAs about masking.

We could have greatly reduced ALL airborne disease.
March 25, 2025 at 5:15 AM
Reposted by J. Evelyn
Trump’s Justice Department is now arguing that the president can deport people to a prison in El Salvador without giving them a chance to object or prove their innocence…

AND that the “mandate of the electorate” shields the operation from judicial scrutiny.

Dictator shit. slate.com/news-and-pol...
March 25, 2025 at 8:23 PM
Reposted by J. Evelyn
I am BEGGING people to frame this properly. The issue here is not one colossal blunder where a reporter got info. The issue is it’s clear these people are all routinely ignoring the most absolutely basic security protocols, and WE HAVE NO IDEA what breaches this has already enabled.
I am glad that Senators are grilling DNI Gabbard and CIA Director Ratcliffe today.

Today should be the start of a 4-year drum beat on Trump's team putting US troops in jeopardy by sharing operational war plans with a reporter before undertaking the operation.

Too much is not enough.
March 25, 2025 at 3:36 PM
Reposted by J. Evelyn
DOGE is crippling the Social Security Administration.

SSA’s website crashed four times in 10 days and Americans who depend on Social Security have flooded congressional offices with angry phone calls. The AARP says it has been getting 2,000 calls a week.
Social Security Is Falling Apart Thanks to Elon Musk’s DOGE Cuts
DOGE cuts have sent the Social Security Administration crashing.
newrepublic.com
March 25, 2025 at 4:39 PM
Reposted by J. Evelyn
Gabbard claims "there was no classified materials that was shared in that Signal chat."
March 25, 2025 at 2:54 PM
Pre-prep @ Brown Hospital has been fantastic.

In tomorrow for tethered cord release #SFT #MEspine
March 25, 2025 at 5:52 PM
Reposted by J. Evelyn
HHS's Office of Long COVID Research and Practice has been DOGEd. Closing this week.
March 24, 2025 at 9:23 PM