Oh yeah ended up in the hospital for 9 days after this.

Memmmorrries.....

I just checked. I am in one and will join a few others ♥️💚

Lastly... If you can't, tell Melinby my by long rambling... I'm in desperate need of highly technical thought partner and or medical advocate. Neither of which are available.

Can be more efficient and do it all in one shot?

I'm just not sure.

I'm also coming up to the two weeks of the month when I would normally be vertical less often anyway - I don't allow any appointments or outings during those two weeks to prevent a crash.

...and do the "right" thing and follow up with her, but also know it may not be productive

As of now, my plan is to let her know what happened and that I have this pain going across the right side. I may ask her for advice on where I can go for The best help, or even a place that...

She of course said to follow up if anything changes

The problem is that she will want me to go get an MRI that I feel very alone and adrift in saying I don't think I can physically do without worsening

That type of talk is perceived by them as anxious thinking......

So I'm trying to be smart

And meant to respond to her call note to let her know that I wasn't lying in bed to eat, I was completely flat lying in bed to eat and can't lift my head.

She considered my CSF leak to be pretty much resolved because I didn't have a headache, I'm not vomiting.

I spoke with Sarah, Dr. Klinger's NP, 2 weeks out. I let her know that I had to lie flat to eat and was only able to literally sit up to go to the commode and I needed help. Both said that was normal because of my comorbidities...

Thank you so much for responding.

I woke up and the fever broke...

Was almost hoping it would stay so I had a clear reason to go; now just CSF leak symptoms as I've had for weeks 💔 and presumably no infection?

Will rest and retake temp tomorrow.

I have absolutely no idea if my smoke County Hospital can even help. Or what would happen.

I may need to call on some me people or my neurosurgeon's office to try to get me somewhere expert, even if I go there. I have severe vestibular issues... And have effectively lost the ability to walk