J. Evelyn
@evitorialpage.bsky.social
I live in a house. #MECFS #CCI #hEDS former global health/comms/tech
CSF leak symptoms 4 wks since #SFT surgery; worsened ME/CFS & CCI - bedbound.
Now running a fever on max Advil.
Potential infection.
Any normal person would be at the ER. I have the horrible task of balancing potential spine/brain infection w worsening other conditions.
Now running a fever on max Advil.
Potential infection.
Any normal person would be at the ER. I have the horrible task of balancing potential spine/brain infection w worsening other conditions.
April 27, 2025 at 3:13 AM
CSF leak symptoms 4 wks since #SFT surgery; worsened ME/CFS & CCI - bedbound.
Now running a fever on max Advil.
Potential infection.
Any normal person would be at the ER. I have the horrible task of balancing potential spine/brain infection w worsening other conditions.
Now running a fever on max Advil.
Potential infection.
Any normal person would be at the ER. I have the horrible task of balancing potential spine/brain infection w worsening other conditions.
January 31, 2025 at 4:17 AM
Bot alert.
Was recently followed by this profile & the bio felt off. Profile photo shows up in search as being from a dating app.
Was recently followed by this profile & the bio felt off. Profile photo shows up in search as being from a dating app.
January 28, 2025 at 9:15 PM
Bot alert.
Was recently followed by this profile & the bio felt off. Profile photo shows up in search as being from a dating app.
Was recently followed by this profile & the bio felt off. Profile photo shows up in search as being from a dating app.
Allyship means wearing a mask.
In public when you can, but especially at doctor's offices.
Immune compromised people don't have a choice to sit out that trip to the hospital or doctor's office.
Thank you 🙏🏻
In public when you can, but especially at doctor's offices.
Immune compromised people don't have a choice to sit out that trip to the hospital or doctor's office.
Thank you 🙏🏻
January 27, 2025 at 10:29 PM
Allyship means wearing a mask.
In public when you can, but especially at doctor's offices.
Immune compromised people don't have a choice to sit out that trip to the hospital or doctor's office.
Thank you 🙏🏻
In public when you can, but especially at doctor's offices.
Immune compromised people don't have a choice to sit out that trip to the hospital or doctor's office.
Thank you 🙏🏻
Our family dog passed away today. 19 years old.
My parents got him the day I moved to Washington, DC for my first job.
He was an excellent companion many times when I could hardly move. I don't think we could ask for more kindness, or for more years, from a pup.
He was the best.
My parents got him the day I moved to Washington, DC for my first job.
He was an excellent companion many times when I could hardly move. I don't think we could ask for more kindness, or for more years, from a pup.
He was the best.
November 15, 2024 at 12:06 AM
Our family dog passed away today. 19 years old.
My parents got him the day I moved to Washington, DC for my first job.
He was an excellent companion many times when I could hardly move. I don't think we could ask for more kindness, or for more years, from a pup.
He was the best.
My parents got him the day I moved to Washington, DC for my first job.
He was an excellent companion many times when I could hardly move. I don't think we could ask for more kindness, or for more years, from a pup.
He was the best.
#hearingImpaired friends
If you're available for a focus group on accessibility in Penn Station on 10/19, be in touch! They're still seeking folks for a focus group.
If you're available for a focus group on accessibility in Penn Station on 10/19, be in touch! They're still seeking folks for a focus group.
October 15, 2023 at 10:19 PM
#hearingImpaired friends
If you're available for a focus group on accessibility in Penn Station on 10/19, be in touch! They're still seeking folks for a focus group.
If you're available for a focus group on accessibility in Penn Station on 10/19, be in touch! They're still seeking folks for a focus group.