Elly Brosius, MS
@ellybrosius.bsky.social
Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
Pinned
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Reposted by Elly Brosius, MS
I have lots of stuff with viruses and bacteria for all your microbiology friends artologica.etsy.com #sciart 🦠
November 12, 2025 at 2:36 PM
I have lots of stuff with viruses and bacteria for all your microbiology friends artologica.etsy.com #sciart 🦠
Reposted by Elly Brosius, MS
![>>Satire - insurance company introduces new "maybe we'll pay...but probably not" coverage option
[pic of doctor talking to patient]
mybodyistryingtokillme.com](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreih535rv32uk4r7kwx3urokd2iewrn75ev72e2lsjwoujj6ggzhtxy@jpeg)
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
November 11, 2025 at 3:10 PM
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Follow these folks for uplifting and caring vibes. Love their strategy of 5️⃣ areas volunteering has the power to make the biggest difference:
- tackling loneliness and isolation,
- improving health and wellbeing,
- breaking down barriers,
- equipping communities, and
- creating social cohesion.
- tackling loneliness and isolation,
- improving health and wellbeing,
- breaking down barriers,
- equipping communities, and
- creating social cohesion.
To mark our new strategy, we're celebrating Colin – a volunteer of 25+ years whose journey shows the true power of volunteering.
💬 “It’s about making sure no one feels forgotten.”
Read more: https://volunteeringmatters.org.uk/celebrating-colin/
#VolunteeringMatters #PowerOfVolunteering
💬 “It’s about making sure no one feels forgotten.”
Read more: https://volunteeringmatters.org.uk/celebrating-colin/
#VolunteeringMatters #PowerOfVolunteering
November 11, 2025 at 2:58 PM
Follow these folks for uplifting and caring vibes. Love their strategy of 5️⃣ areas volunteering has the power to make the biggest difference:
- tackling loneliness and isolation,
- improving health and wellbeing,
- breaking down barriers,
- equipping communities, and
- creating social cohesion.
- tackling loneliness and isolation,
- improving health and wellbeing,
- breaking down barriers,
- equipping communities, and
- creating social cohesion.
Reposted by Elly Brosius, MS
November 2, 2025 at 4:44 PM
Reposted by Elly Brosius, MS
See see/take our polls on #TheAnesthesiaQuestion on X about anesthesia / sedation / numbing (including dental) responses for pw ME/CFS (CCCriteria)(linked in this post), for people with hyper-mobile connective tissue issues, & for people with neither (coming soon).
x.com/RenegadeRes/...
x.com/RenegadeRes/...
Renegade Research on X: "1/16 This is a thread with 14 polls about responses in patients with ME/CFS (from any trigger, including COVID-19) to anesthesia / sedation / numbing (including dental). Please ONLY fill this one out if you meet the Canadian Consensus Criteria for ME/CFS. We appreciate people https://t.co/Nwu8pTggd3" / X
1/16 This is a thread with 14 polls about responses in patients with ME/CFS (from any trigger, including COVID-19) to anesthesia / sedation / numbing (including dental). Please ONLY fill this one out if you meet the Canadian Consensus Criteria for ME/CFS. We appreciate people https://t.co/Nwu8pTggd3
x.com
November 2, 2025 at 4:46 PM
See see/take our polls on #TheAnesthesiaQuestion on X about anesthesia / sedation / numbing (including dental) responses for pw ME/CFS (CCCriteria)(linked in this post), for people with hyper-mobile connective tissue issues, & for people with neither (coming soon).
x.com/RenegadeRes/...
x.com/RenegadeRes/...
Reposted by Elly Brosius, MS
Reminder - the Long COVID Treatment Trial - Tirzepatide (LoCITT-T) is open in 49 US states (all but Hawaii), DC, & PR.
More info & eligibility survey here:
longcovid.scripps.edu/locitt-t/?ut...
We're hosting a webinar w/ Q&A on 11/5, register here:
scrippsresearch.zoom.us/webinar/regi...
More info & eligibility survey here:
longcovid.scripps.edu/locitt-t/?ut...
We're hosting a webinar w/ Q&A on 11/5, register here:
scrippsresearch.zoom.us/webinar/regi...
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 3, 2025 at 4:37 PM
Reminder - the Long COVID Treatment Trial - Tirzepatide (LoCITT-T) is open in 49 US states (all but Hawaii), DC, & PR.
More info & eligibility survey here:
longcovid.scripps.edu/locitt-t/?ut...
We're hosting a webinar w/ Q&A on 11/5, register here:
scrippsresearch.zoom.us/webinar/regi...
More info & eligibility survey here:
longcovid.scripps.edu/locitt-t/?ut...
We're hosting a webinar w/ Q&A on 11/5, register here:
scrippsresearch.zoom.us/webinar/regi...
2 of 3 polls of #TheAnesthesiaQuestion by @renegaderesearch.bsky.social are up on X.
This 1 is for people with (pw) connective tissue issues.
Another is for pwME/CFS or LC who meet CCC def.
Both open for a few more days.
The 3rd one will be for people with neither.
x.com/RenegadeRes/...
This 1 is for people with (pw) connective tissue issues.
Another is for pwME/CFS or LC who meet CCC def.
Both open for a few more days.
The 3rd one will be for people with neither.
x.com/RenegadeRes/...
Renegade Research on X: "1/16 This is a thread with 14 polls about responses in patients with diagnosed or suspected hypermobile connective tissue issues (e.g. Ehlers-Danlos syndrome (EDS), Hypermobility Spectrum Disorder (HSD), Marfan syndrome, or issues that are likely related to connective tissue," / X
1/16 This is a thread with 14 polls about responses in patients with diagnosed or suspected hypermobile connective tissue issues (e.g. Ehlers-Danlos syndrome (EDS), Hypermobility Spectrum Disorder (HSD), Marfan syndrome, or issues that are likely related to connective tissue,
x.com
November 2, 2025 at 4:25 PM
2 of 3 polls of #TheAnesthesiaQuestion by @renegaderesearch.bsky.social are up on X.
This 1 is for people with (pw) connective tissue issues.
Another is for pwME/CFS or LC who meet CCC def.
Both open for a few more days.
The 3rd one will be for people with neither.
x.com/RenegadeRes/...
This 1 is for people with (pw) connective tissue issues.
Another is for pwME/CFS or LC who meet CCC def.
Both open for a few more days.
The 3rd one will be for people with neither.
x.com/RenegadeRes/...
Reposted by Elly Brosius, MS
When using Microsoft Word or Google Docs, don't just make text bigger and bolder to make it a heading. That will work for sighted users, but screen reader users will miss that and just hear it as normal paragraph text. Use actual heading styles, like level 1 through 6.
November 2, 2025 at 12:55 AM
When using Microsoft Word or Google Docs, don't just make text bigger and bolder to make it a heading. That will work for sighted users, but screen reader users will miss that and just hear it as normal paragraph text. Use actual heading styles, like level 1 through 6.
Reposted by Elly Brosius, MS
Join us once again for an informal
@renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.
@renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.
October 29, 2025 at 9:12 PM
Join us once again for an informal
@renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.
@renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.
Reminder
Sat Oct 25 2 pm ET US
Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social
Live Space on the bird / ex site.
Sat Oct 25 2 pm ET US
Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social
Live Space on the bird / ex site.
October 24, 2025 at 11:46 PM
Reminder
Sat Oct 25 2 pm ET US
Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social
Live Space on the bird / ex site.
Sat Oct 25 2 pm ET US
Dysautonomia /POTS Awareness Day / Month by @renegaderesearch.bsky.social
Live Space on the bird / ex site.
Reposted by Elly Brosius, MS
Tomorrow
Tuesday, October 21st @ 4pm ET
Community Support Zoom #MEAction Maryland
"Come As You Are"
We've got new zoom links, so email us or check or link tree (in bio).
#MECFS #LongCovid #CommunitySupport
Tuesday, October 21st @ 4pm ET
Community Support Zoom #MEAction Maryland
"Come As You Are"
We've got new zoom links, so email us or check or link tree (in bio).
#MECFS #LongCovid #CommunitySupport
October 20, 2025 at 5:31 PM
Tomorrow
Tuesday, October 21st @ 4pm ET
Community Support Zoom #MEAction Maryland
"Come As You Are"
We've got new zoom links, so email us or check or link tree (in bio).
#MECFS #LongCovid #CommunitySupport
Tuesday, October 21st @ 4pm ET
Community Support Zoom #MEAction Maryland
"Come As You Are"
We've got new zoom links, so email us or check or link tree (in bio).
#MECFS #LongCovid #CommunitySupport
Reposted by Elly Brosius, MS
Vestibular disorders affect people's balance as well as their visual perception of their world around them. Don't make animations, sliders, videos, or rapid movement start automatically, as autoplaying elements could trigger a bad reaction in people who have vestibular disorders.
October 20, 2025 at 2:18 PM
Vestibular disorders affect people's balance as well as their visual perception of their world around them. Don't make animations, sliders, videos, or rapid movement start automatically, as autoplaying elements could trigger a bad reaction in people who have vestibular disorders.
Reposted by Elly Brosius, MS
A bench with a view. Photo taken in the field at the base of Glastonbury Tor
October 20, 2025 at 7:57 AM
A bench with a view. Photo taken in the field at the base of Glastonbury Tor
Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
Welcome! You are invited to join a webinar: Clinician's Roundtable: Microdosing GLP-1/GIP Receptor Agonists in MECFS and Long Covid. After registering, you will receive a confirmation email about join...
Presenters
Ilene Ruhoy, MD, PhD,
David Kaufman, MD
Tania Dempsey, MD
Drs Ruhoy, Dempsey and Kauffman will be discussing how they are using this medication off label in their respective practices an...
us06web.zoom.us
October 16, 2025 at 3:51 PM
Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.
2 pm ET USA, Friday, Oct 17, 2025
A Clinician's Roundtable by @renegaderesearch.bsky.social
Recording posted to YouTube soon.
us06web.zoom.us/webinar/regi...
#MedSky
Reposted by Elly Brosius, MS
October Meeting Day Today 🗓️
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 10/15/25, (3rd Wed every month)
12:30 PM ET USA
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.
www.meaction.net/event-detail...
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 10/15/25, (3rd Wed every month)
12:30 PM ET USA
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.
www.meaction.net/event-detail...
#MEAction North Carolina Support Call | #MEAction
Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...
www.meaction.net
October 15, 2025 at 11:46 AM
October Meeting Day Today 🗓️
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 10/15/25, (3rd Wed every month)
12:30 PM ET USA
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.
www.meaction.net/event-detail...
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 10/15/25, (3rd Wed every month)
12:30 PM ET USA
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.
www.meaction.net/event-detail...
Reposted by Elly Brosius, MS
We've had another study published 🥳
"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"
Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"
Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
Taylor & Francis Online: Peer-reviewed Journals
Search and explore the millions of quality, peer-reviewed journal articles published under the Taylor & Francis, Routledge and Dove Medical Press imprints.
tandfonline.com
October 15, 2025 at 11:46 AM
We've had another study published 🥳
"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"
Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"
Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
Reposted by Elly Brosius, MS
Meeting Day Today 🗓️
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 9/17/25, (3rd Wed every month)
12:30 PM ET.
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.
www.meactions.org/event-detail...
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 9/17/25, (3rd Wed every month)
12:30 PM ET.
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.
www.meactions.org/event-detail...
#MEAction North Carolina Support Call | Me Actions
Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...
www.meactions.org
September 17, 2025 at 3:18 PM
Meeting Day Today 🗓️
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 9/17/25, (3rd Wed every month)
12:30 PM ET.
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.
www.meactions.org/event-detail...
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 9/17/25, (3rd Wed every month)
12:30 PM ET.
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.
www.meactions.org/event-detail...
Reposted by Elly Brosius, MS
👋 Meet young EMERG and get to know us!
1/3
#youngEMERG is part of European ME Research Group (EMERG), a network of researchers from across Europe focused on advancing knowledge and understanding in #MECFS.
youngemerg.com/aboutus.shtml
1/3
#youngEMERG is part of European ME Research Group (EMERG), a network of researchers from across Europe focused on advancing knowledge and understanding in #MECFS.
youngemerg.com/aboutus.shtml
youngemerg.com
September 10, 2025 at 10:55 AM
👋 Meet young EMERG and get to know us!
1/3
#youngEMERG is part of European ME Research Group (EMERG), a network of researchers from across Europe focused on advancing knowledge and understanding in #MECFS.
youngemerg.com/aboutus.shtml
1/3
#youngEMERG is part of European ME Research Group (EMERG), a network of researchers from across Europe focused on advancing knowledge and understanding in #MECFS.
youngemerg.com/aboutus.shtml
Reposted by Elly Brosius, MS
The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi
September 10, 2025 at 7:41 PM
The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi
Live X Space about PEM, crashing, PENE, PESE language. by @renegaderesearch.bsky.social
Has about 80 people on it at the moment.
Monday, Sept 8, at 5pm ET
x.com/RenegadeRes/...
Has about 80 people on it at the moment.
Monday, Sept 8, at 5pm ET
x.com/RenegadeRes/...
Renegade Research on X: "It's on! Monday, Sept 8, at 5pm ET Join @IsabelRamirezRD @tessfalor @sunsopeningband @Sabrina_Poirier for a community discussion about PEM, PENE, PESE, & crashes. (Link to space in next post) Patients, come & share how you use these terms & talk about your lived experience." / X
It's on! Monday, Sept 8, at 5pm ET Join @IsabelRamirezRD @tessfalor @sunsopeningband @Sabrina_Poirier for a community discussion about PEM, PENE, PESE, & crashes. (Link to space in next post) Patients, come & share how you use these terms & talk about your lived experience.
x.com
September 8, 2025 at 9:41 PM
Live X Space about PEM, crashing, PENE, PESE language. by @renegaderesearch.bsky.social
Has about 80 people on it at the moment.
Monday, Sept 8, at 5pm ET
x.com/RenegadeRes/...
Has about 80 people on it at the moment.
Monday, Sept 8, at 5pm ET
x.com/RenegadeRes/...
Reposted by Elly Brosius, MS
August 29, 2025 at 4:17 PM
Reposted by Elly Brosius, MS
The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...
The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM and Long COVID? - Health Rising
GLP-1 agonists like Ozempic could be surprisingly helpful in diseases like chronic fatigue syndrome, fibromyalgia and long COVID.
www.healthrising.org
June 1, 2025 at 6:03 PM
The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...
Reposted by Elly Brosius, MS
This 30+ minute zoom starts in 50 minutes. ME/CFS Program to look at symptoms, treatments, your previous tests, history, genes, and make more sense of it and find targeted aides.
Announcement!!
1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows!
We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC
1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows!
We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC
July 25, 2025 at 4:07 PM
This 30+ minute zoom starts in 50 minutes. ME/CFS Program to look at symptoms, treatments, your previous tests, history, genes, and make more sense of it and find targeted aides.