Elly Brosius, MS
@ellybrosius.bsky.social
Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
Pinned
Elly Brosius, MS
@ellybrosius.bsky.social
· Nov 11
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Reposted by Elly Brosius, MS
Can you sign & share our letter to HHS? freakinfrail.org
Thank you to the 1600 who have signed!
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.
Thank you to the 1600 who have signed!
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.
December 22, 2025 at 5:01 PM
Can you sign & share our letter to HHS? freakinfrail.org
Thank you to the 1600 who have signed!
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.
Thank you to the 1600 who have signed!
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.
Great stuff. Print on demand items like this might arrive after the New Year so give or ask for Bonfire e-cards if you need something soon. Love the Renegade Chef apron!
Greetings, holiday shoppers! 🛍️
Our Renegade Research Merch Store is live! You can buy shirts, hats, scarves, ornaments, mugs, water bottles, bags, pajamas, pants, gift cards, more
You can also donate while checking out! Happy Holidays and thanks for supporting us ❄️
www.bonfire.com/store/renega...
Our Renegade Research Merch Store is live! You can buy shirts, hats, scarves, ornaments, mugs, water bottles, bags, pajamas, pants, gift cards, more
You can also donate while checking out! Happy Holidays and thanks for supporting us ❄️
www.bonfire.com/store/renega...
Renegade Research | Official Merchandise | Bonfire
Renegade Research is a decentralized science, clinical education, & practical advocacy organization for IACI, emphasizing ME/CFS and Long Covid.
www.bonfire.com
December 19, 2025 at 10:08 PM
Great stuff. Print on demand items like this might arrive after the New Year so give or ask for Bonfire e-cards if you need something soon. Love the Renegade Chef apron!
Reposted by Elly Brosius, MS
Many #MECFS #pwME #LongCovid patients are discussing the #BornFreeProtocol by Joshua Leisk, which some have used to improve symptoms
It's complex and many clinicians/researchers wonder where to start - watch our roundtable with Leisk and @doc4care.bsky.social www.youtube.com/watch?v=4_a2...
1/2 🧵
It's complex and many clinicians/researchers wonder where to start - watch our roundtable with Leisk and @doc4care.bsky.social www.youtube.com/watch?v=4_a2...
1/2 🧵
Understanding ME/CFS: From Metabolic Collapse to Recovery, John Haughton, MD, Josh Leisk, Roundtable
YouTube video by Renegade Research
www.youtube.com
December 19, 2025 at 9:19 PM
Many #MECFS #pwME #LongCovid patients are discussing the #BornFreeProtocol by Joshua Leisk, which some have used to improve symptoms
It's complex and many clinicians/researchers wonder where to start - watch our roundtable with Leisk and @doc4care.bsky.social www.youtube.com/watch?v=4_a2...
1/2 🧵
It's complex and many clinicians/researchers wonder where to start - watch our roundtable with Leisk and @doc4care.bsky.social www.youtube.com/watch?v=4_a2...
1/2 🧵
Reposted by Elly Brosius, MS
🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. Healthy volunteers are needed too!
👉 Sign up today: www.omf.ngo/studyme/
#UnitedForME #MECFSresearch #POTS #pwME #pwLC
👉 Sign up today: www.omf.ngo/studyme/
#UnitedForME #MECFSresearch #POTS #pwME #pwLC
December 9, 2025 at 2:10 PM
🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. Healthy volunteers are needed too!
👉 Sign up today: www.omf.ngo/studyme/
#UnitedForME #MECFSresearch #POTS #pwME #pwLC
👉 Sign up today: www.omf.ngo/studyme/
#UnitedForME #MECFSresearch #POTS #pwME #pwLC
Reposted by Elly Brosius, MS
The holidays can be tough when you’re living with a chronic illness. 💙
Join our Support Group on Dec 9 at 1:00 pm MST as we talk about what this season is like, what makes it challenging, and what helps us get through it with more ease.
🔗 https://bit.ly/4npZ4Ud #BHCSupportGroup
Join our Support Group on Dec 9 at 1:00 pm MST as we talk about what this season is like, what makes it challenging, and what helps us get through it with more ease.
🔗 https://bit.ly/4npZ4Ud #BHCSupportGroup
bit.ly
December 8, 2025 at 8:25 PM
The holidays can be tough when you’re living with a chronic illness. 💙
Join our Support Group on Dec 9 at 1:00 pm MST as we talk about what this season is like, what makes it challenging, and what helps us get through it with more ease.
🔗 https://bit.ly/4npZ4Ud #BHCSupportGroup
Join our Support Group on Dec 9 at 1:00 pm MST as we talk about what this season is like, what makes it challenging, and what helps us get through it with more ease.
🔗 https://bit.ly/4npZ4Ud #BHCSupportGroup
Reposted by Elly Brosius, MS
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
December 2, 2025 at 3:39 PM
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
Reposted by Elly Brosius, MS
1. It's here...... #GivingTuesday2025 ! In the next 24 hours help us raise 24K to support our mission of pioneering accessible, patient-led efforts to uncover scientific insights and improve overall quality of life for our global MECFS & Long Covid community
December 2, 2025 at 2:03 PM
1. It's here...... #GivingTuesday2025 ! In the next 24 hours help us raise 24K to support our mission of pioneering accessible, patient-led efforts to uncover scientific insights and improve overall quality of life for our global MECFS & Long Covid community
It's Giving Tuesday. Please support this relatively new organization that has made an impact with free educational videos, securing discounts on helpful supplements and tests, bringing together researchers, clinicians, and patients, with more.
You can also help by sharing our fundraising on social media and by encouraging others who can donate to give to @renegaderesearch.bsky.social.
Small donations add up, and many people are looking to make bigger end of year gifts! www.zeffy.com/en-US/fundra...
Small donations add up, and many people are looking to make bigger end of year gifts! www.zeffy.com/en-US/fundra...
Accelerate research and care for ME/CFS & Long COVID
Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...
www.zeffy.com
December 2, 2025 at 1:51 PM
It's Giving Tuesday. Please support this relatively new organization that has made an impact with free educational videos, securing discounts on helpful supplements and tests, bringing together researchers, clinicians, and patients, with more.
Reposted by Elly Brosius, MS
#MEAction has a 3X Matching opportunity for this #GivingTuesday - all donations will be TRIPLED today! www.meaction.net/donate
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
December 2, 2025 at 1:33 PM
#MEAction has a 3X Matching opportunity for this #GivingTuesday - all donations will be TRIPLED today! www.meaction.net/donate
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
❤️ Please keep boosting, quote boosting, engaging with this ❤️
The more people who see it and donate, the sooner I can continue lifesaving neurosurgical care travels
2025, 2026 at least with lots of tests, surgeries, treatments on the table
Medicare, Medicaid cuts will make this even harder now 😢
The more people who see it and donate, the sooner I can continue lifesaving neurosurgical care travels
2025, 2026 at least with lots of tests, surgeries, treatments on the table
Medicare, Medicaid cuts will make this even harder now 😢
So half of a bone compressing my jugular is stuck in a nerve bundle and can’t be removed rn without major permanent nerve damage (other half is out)
Neurosurgeon: going to have nightmares about this! (jokes and steroids help, my bones ruining my life stays a joke) www.gofundme.com/f/help-emily...
Neurosurgeon: going to have nightmares about this! (jokes and steroids help, my bones ruining my life stays a joke) www.gofundme.com/f/help-emily...
December 2, 2025 at 1:47 PM
Reposted by Elly Brosius, MS
I once asked a bookseller at a large indie store how many people would have to buy a book for it to get the attention of the store buyer and cause an additional order and they said: Three.
I see some book piracy discourse, and, to make a positive argument in favor of buying books, your marginal ability to influence what books get published and support the careers of writers you like is massive compared to most other forms of media.
November 25, 2025 at 11:07 PM
I once asked a bookseller at a large indie store how many people would have to buy a book for it to get the attention of the store buyer and cause an additional order and they said: Three.
Adding a bookmark for this page!
The rest of this thread will contain our affiliate and/or discount information by vendor.
You can also go to our website to see or share them all at once. www.renegade-research.org/discounts-an...
You can also go to our website to see or share them all at once. www.renegade-research.org/discounts-an...
Discounts & Affiliate Links | Renegade Research
Tests and supplements available at a discount using either a code or special link. Affiliate links to help us fund our mission.
www.renegade-research.org
November 25, 2025 at 8:15 PM
Adding a bookmark for this page!
Reposted by Elly Brosius, MS
Prodrome Science, the store for plasmologens including Glia and Neuro, gave us the affiliate code discount “Falor35” to save 35%! 💸
Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.
Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.
Prodrome | Plasmalogen Supplements for Brain Health
Discover the power of plasmalogen supplements at Prodrome. Real research bringing new hope for people with Dementia, Alzheimer’s, and other brain health.
Prodrome.com
November 25, 2025 at 8:10 PM
Prodrome Science, the store for plasmologens including Glia and Neuro, gave us the affiliate code discount “Falor35” to save 35%! 💸
Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.
Glia was used in the @remissionbiome.bsky.social protocol. Go to Prodrome.com and add code “Falor35” at checkout.
Reposted by Elly Brosius, MS
#MECFS and #LongCovid organizations are underfunded, especially patient-led nonprofits. That’s why Renegade Research has a mixed funding model including affiliate links and discount codes.
With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵
With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵
November 25, 2025 at 8:02 PM
#MECFS and #LongCovid organizations are underfunded, especially patient-led nonprofits. That’s why Renegade Research has a mixed funding model including affiliate links and discount codes.
With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵
With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵
Attention Amazon Shoppers:
@renegaderesearch.bsky.social is an Amazon Affiliate!
We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs.
Categories are on the left: health devices, pets, comfort, science, books, & more.
Pets
a.co/0hrS2JF
@renegaderesearch.bsky.social is an Amazon Affiliate!
We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs.
Categories are on the left: health devices, pets, comfort, science, books, & more.
Pets
a.co/0hrS2JF
Check out my list on Amazon
a.co
November 21, 2025 at 9:41 PM
Attention Amazon Shoppers:
@renegaderesearch.bsky.social is an Amazon Affiliate!
We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs.
Categories are on the left: health devices, pets, comfort, science, books, & more.
Pets
a.co/0hrS2JF
@renegaderesearch.bsky.social is an Amazon Affiliate!
We earn a small % of purchases made after clicking one of our links and purchasing what you want within 24 hrs.
Categories are on the left: health devices, pets, comfort, science, books, & more.
Pets
a.co/0hrS2JF
This event just got underway. Still time to join and learn about this exciting company dedicated to M E C F S and L C advances and the sophisticated tests: 31 marker and RNA sequencing.
We'll host a Clinician's Roundtable with @amaticahealth.bsky.social. Researchers, patients, caregivers are also welcome.
Amatica is a patient-founded data science company focused on chronic neuro-immune diseases (Long COVID, ME/CFS, MCAS, Fibromyalgia)
Register: us06web.zoom.us/webinar/regi... 2/2
Amatica is a patient-founded data science company focused on chronic neuro-immune diseases (Long COVID, ME/CFS, MCAS, Fibromyalgia)
Register: us06web.zoom.us/webinar/regi... 2/2
Welcome! You are invited to join a webinar: Amatica Health Adds Dashboard for Clinicians. After registering, you will receive a confirmation email about joining the webinar.
Renegade Research is hosting a roundtable for clinicians to learn about how to implement Amatica Health tools in their clinical practices. Researchers, patients, and caregivers are also welcome.
Amat...
us06web.zoom.us
November 21, 2025 at 5:22 PM
This event just got underway. Still time to join and learn about this exciting company dedicated to M E C F S and L C advances and the sophisticated tests: 31 marker and RNA sequencing.
Reposted by Elly Brosius, MS
Amatica Health are offering over a £1000 worth of testing for teens under 18 with Long Covid/ ME.
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
November 19, 2025 at 6:34 PM
Amatica Health are offering over a £1000 worth of testing for teens under 18 with Long Covid/ ME.
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Google form to apply is here 👇
docs.google.com/forms/u/3/d/...
Reposted by Elly Brosius, MS
This support meeting for ME/CFS, LC, people with PEM, is
TODAY!
9:30 AM Pacific US (Sorry)
11:30 AM Central US
12:30 PM Eastern US
5:30 GMT
TODAY!
9:30 AM Pacific US (Sorry)
11:30 AM Central US
12:30 PM Eastern US
5:30 GMT
Our next meeting is Nov 19 🗓️
NC @MEActNet Chapter SUPPORT Zoom is
Wed. 11/19/25, (3rd Wed every month)
12:30 PM ET US
We welcome those near & far with ME/CFS/POTS/OI/HSD +/- Long Covid(PASC), & caregivers, family, friends, allies.
Got PEM? We do, too.
www.meaction.net/event-detail...
NC @MEActNet Chapter SUPPORT Zoom is
Wed. 11/19/25, (3rd Wed every month)
12:30 PM ET US
We welcome those near & far with ME/CFS/POTS/OI/HSD +/- Long Covid(PASC), & caregivers, family, friends, allies.
Got PEM? We do, too.
www.meaction.net/event-detail...
#MEAction North Carolina Support Call | #MEAction
Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...
www.meaction.net
November 19, 2025 at 4:12 PM
This support meeting for ME/CFS, LC, people with PEM, is
TODAY!
9:30 AM Pacific US (Sorry)
11:30 AM Central US
12:30 PM Eastern US
5:30 GMT
TODAY!
9:30 AM Pacific US (Sorry)
11:30 AM Central US
12:30 PM Eastern US
5:30 GMT
Reposted by Elly Brosius, MS
Art gives emotion a body.
November 17, 2025 at 10:30 PM
Art gives emotion a body.
Reposted by Elly Brosius, MS
Our Data Analysis Team reviewed our @remissionbiome.bsky.social project’s preliminary results in a presentation from Jan. 2024 youtu.be/Y4Un2rQLKTw?...
With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa
5/
With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa
5/
Remission Biome Project - Preliminary Results Community Meeting by Renegade Research. Jan 17, 2024
YouTube video by Renegade Research
youtu.be
November 15, 2025 at 11:31 PM
Our Data Analysis Team reviewed our @remissionbiome.bsky.social project’s preliminary results in a presentation from Jan. 2024 youtu.be/Y4Un2rQLKTw?...
With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa
5/
With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa
5/
Reposted by Elly Brosius, MS
A 2025 Keystone Conference presentation for “Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study” by @thosvarley.bsky.social, @taraf.bsky.social, @katboniface.bsky.social, @ellybrosius.bsky.social, @isabelrb.bsky.social, @tessfalor.bsky.social, Mike
10/
10/
November 16, 2025 at 6:51 PM
A 2025 Keystone Conference presentation for “Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study” by @thosvarley.bsky.social, @taraf.bsky.social, @katboniface.bsky.social, @ellybrosius.bsky.social, @isabelrb.bsky.social, @tessfalor.bsky.social, Mike
10/
10/
Reposted by Elly Brosius, MS
Kristen Johansson details her journey with Lyme disease and how it led her to public health in the newest issue of Hopkins Bloomberg Public Health magazine.
Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...
Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...
November 5, 2025 at 7:08 PM
Kristen Johansson details her journey with Lyme disease and how it led her to public health in the newest issue of Hopkins Bloomberg Public Health magazine.
Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...
Read her full story: magazine.publichealth.jhu.edu/2025/when-ly...
Reposted by Elly Brosius, MS
I have lots of stuff with viruses and bacteria for all your microbiology friends artologica.etsy.com #sciart 🦠
November 12, 2025 at 2:36 PM
I have lots of stuff with viruses and bacteria for all your microbiology friends artologica.etsy.com #sciart 🦠
Reposted by Elly Brosius, MS
![>>Satire - insurance company introduces new "maybe we'll pay...but probably not" coverage option
[pic of doctor talking to patient]
mybodyistryingtokillme.com](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreih535rv32uk4r7kwx3urokd2iewrn75ev72e2lsjwoujj6ggzhtxy@jpeg)
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
November 11, 2025 at 3:10 PM
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social