Cyan (Sian)
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cyandippy.bsky.social
Cyan (Sian)
@cyandippy.bsky.social
She/Her, Thornback, Music Lover, AFOL, Model, Disabled and Chronically ill.
Still shielding.
Reposted by Cyan (Sian)
Doctors & scientists urge WHO: N95s—not surgical masks—must be the standard in healthcare.
Add your name before Oct 31 👇

tinyurl.com/RespiratorsN...

#RespiratorsNotSurgicals #ProtectHCWs
A Call for the Universal Use of Respirators in Healthcare - Add Your Name
In an effort to advance global public health through turbulent times, a group of experts from around the globe in medicine, public health, law, industrial hygiene, and other disciplines, met at the Un...
tinyurl.com
October 28, 2025 at 8:46 PM
Reposted by Cyan (Sian)
a lot of things are happening, & a lot of folks are looking for something actionable to do—if you cannot do anything else, let wearing a respirator in your daily life be the tide-shifting behavior you seek. normalizing using this mitigation tool matters. seriously, watch👇🏻
www.tiktok.com/t/ZTjso3yCs/
June 13, 2025 at 1:06 AM
Reposted by Cyan (Sian)
How do you fight for visibility when you’re too sick to leave your bed?

This May, individuals around the world used their limited energy to share powerful messages, completing the sentence “ME/CFS is…”

Explore community voices on our website: www.omf.ngo/community-vo...
Community Voices - “ME/CFS Is..” - Open Medicine Foundation
For ME/CFS Awareness Day, individuals shared powerful messages about the reality of living with ME/CFS. Explore the gallery of voices and help raise awareness.
www.omf.ngo
May 12, 2025 at 4:19 PM
Reposted by Cyan (Sian)
If you’re in the UK, please sign this petition to force the government to respond to requests for increased protection against airborne viruses.
May 11, 2025 at 7:37 PM
Reposted by Cyan (Sian)
This is incredible. This computer science professor makes his students play a game that simulates the risks and repercussions of getting Long COVID, and then he's like, hey anybody want a mask? And: "approximately 95 to 100% of students who’ve played the game now wear masks in his classroom."
Games can be sense-making tools, allowing players to vicariously experience the risks of contracting COVID-19, recognize #LongCOVID’s most challenging symptoms, and connect with others amid an ongoing public health crisis.

Read more from @kaatefishman.bsky.social: bit.ly/4iQhmuE
May 8, 2025 at 3:19 PM
Reposted by Cyan (Sian)
David Lynch passes away at 78 after a battle with emphysema.

He had stated in 2024 that he could no longer leave his home due to the high risk of Covid.

If more people would mask up, we wouldn’t have to isolate. “You do you” policies leave people like Lynch with no choice but to “just stay home”
Director David Lynch Gives Health Update, Can No Longer Leave House
The 'Blue Velvet' director says he's now housebound with emphysema, but will "never retire."
www.hollywoodreporter.com
January 16, 2025 at 8:53 PM
Reposted by Cyan (Sian)
Like with Brianna Ghey the fact these horrific attacks are done by young people is so scary, a whole generation is growing up having learned to hate and destroy us
Every transphobic “journalist” every media editor is responsible for this transphobic attack.

Especially the Murdoch media, the BBC, the Telegraph, the Observer, the Mail, the Express, Unherd, New Statesman etc… www.independent.co.uk/news/uk/crim...
Teenager stabbed in transphobic attack by gang outside Harrow roller blades disco
The victim suffered nine knife wounds and was subjected to transphobic slurs
www.independent.co.uk
January 16, 2025 at 7:53 AM
Reposted by Cyan (Sian)
An incredibly well-researched piece on the horrors of Neil Gaiman. It is extremely upsetting and explicit. Please be careful reading it.

www.vulture.com/article/neil...
There Is No Safe Word
How the best-selling fantasy author Neil Gaiman hid the darkest parts of himself for decades.
www.vulture.com
January 13, 2025 at 11:12 AM
Reposted by Cyan (Sian)
I want to see the ME
Association flourish. I want to see it lead with innovation and
compassion and make a real difference to people with ME.
That's hard when the person in charge is mocking patients and ignoring concerns.

www.change.org/p/me-associa...
December 6, 2024 at 8:56 AM
Reposted by Cyan (Sian)
In PEM from advocacy last few weeks but just coming on to share this follow up letter and petition to ME Association calling for accountability and action.

www.change.org/p/me-associa...
Sign the Petition
ME Association Chair Neil Riley must step down
www.change.org
December 4, 2024 at 7:15 PM
Tried to distract myself from the assisted suicide bill news today by watching a comfort show... This episode contains sexual harassment and assault.

I guess I'll continue crying instead.
November 29, 2024 at 8:50 PM
Reposted by Cyan (Sian)
In societies that demonise long term chronically sick people, fail to cure them and instead demand they get back to work, euthanasia should not exist
November 29, 2024 at 6:06 PM
Reposted by Cyan (Sian)
If you are new to Bluesky you might not know about Jamal- but he’s been here a long long time and once the entire site did a fundraiser to help him and his 13 family members. He still needs help in order to hopefully evacuate and survive the winter www.gofundme.com/f/sspqf-10k-...
November 27, 2024 at 8:58 PM
October is typically a bad month for me, but this November feels very Octobery...
November 16, 2024 at 3:48 PM
Having a body that can't handle stress with everything that's going on in the world right now and a lot of personally triggering stuff is very unhelpful.

I've lost so much functioning this year, this body is basically decorative now.
November 12, 2024 at 4:50 PM
Reposted by Cyan (Sian)
I would feel easier with assisted dying if proponents admitted “safeguards” are rarely going to be foolproof. Many disabled people are highly aware of the dangers that come with relying on the authorities for your wellbeing. No bill can undo prejudice. www.theguardian.com/society/2024...
Assisted dying bill’s ‘strict’ safeguards to include long jail terms for coercion
Labour MP’s proposed legislation for England and Wales also includes powers for judges to cross-examine patients
www.theguardian.com
November 12, 2024 at 9:48 AM
Reposted by Cyan (Sian)
Other creatives who still care about, y’know, not killing each other, let’s build this little community!
I'm working on a starter pack and accompanying list of creatives (artists, writers, filmmakers, etc) who are still committed to masking, and if you'd be okay being included I'd like to add you! If you wanted to also share this so I can reach more people that might help a lot!
October 18, 2024 at 5:42 AM
Reposted by Cyan (Sian)
this is your yearly reminder that activated charcoal, probably the most popular thing to use to make food black, interferes with your absorption of medication, including birth control. Enjoy the season safely.
October 1, 2024 at 2:44 PM
Wanted to try out a new sewing technique so made myself a cushion cover with the Progress Pride flag on one side and the Disability Pride flag on the other, finished it off with black edging and an invisible zip.
June 21, 2024 at 3:57 AM
Reposted by Cyan (Sian)
It’s #MEAwarenessDay 💙 I got sick with a virus the summer of 2015 and had to quit everything. I’m grateful I was able to find ways to make art again, but I’m still very limited in what I can manage. Here’s some ways you can enjoy my art & help the #MECFS community
I wrote a blog post on all the ways I'm participating in
Opera Mariposa's #MECFS benefit this year for #MEAwarenessMonth. There is art, music, and prizes to be won!

liapas.com/2024/05/10/o...
Opera Mariposa Benefit 2024 | Lia Pas
liapas.com
May 12, 2024 at 4:13 PM
So much awfulness going on everywhere. Feeling pretty useless as I'm still not really functioning... But I have kept myself alive this past week.
Might not seem like much but I'm proud of myself.
May 1, 2024 at 9:12 PM
There's something particularly cruel about an illness that punishes you for having emotions, and you're emotionally struggling due to the way people who have the same illness are being treated.

#PwME #SevereME
April 25, 2024 at 9:26 AM
Reposted by Cyan (Sian)
It isn't a coincidence that more protestors are wearing high quality KN95 or N95 masks these days. For years COVID safe advocates and mask blocs, who are connected to diverse organizing groups, have worked hard to educate allies and provide communities with free respirator masks.
April 24, 2024 at 10:26 PM
Reposted by Cyan (Sian)
Ay crosspost but share this and get it to your local dolls what ain’t on social media as much.
April 18, 2024 at 9:31 PM