Alison Twycross RN PhD
@alitwy.bsky.social
Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Pinned
https://petition.parliament.uk/petitions/7320…
We need UKHSA to start doing their job
If they provide data on hospital acquired #covid infections then the need for effective airborne infection prevention measures will be clear for ALL to see
Please SIGN & help to AMPLIFY
🔽 🔽
petition.parliament.uk/petitions/7320…
If they provide data on hospital acquired #covid infections then the need for effective airborne infection prevention measures will be clear for ALL to see
Please SIGN & help to AMPLIFY
🔽 🔽
petition.parliament.uk/petitions/7320…
Reposted by Alison Twycross RN PhD
#ME #LongCovid #Lyme #POTS #PEM #MCAS
#LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
#LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
November 15, 2025 at 10:44 AM
Reposted by Alison Twycross RN PhD
Germany will invest in research on Long COVID and related conditions — great news!
Karl Lauterbach: Forschung gegen ME/CFS wird ausgeweitet: Union und SPD wollen mehr Geld in die Erforschung postinfektiöser Erkrankungen wie Long Covid stecken. Deutschland könne damit zum weltweiten Vorreiter werden, sagt Ex-Gesundheitsminister Lauterbach.
Karl Lauterbach: Forschung gegen ME/CFS wird ausgeweitet
Union und SPD wollen mehr Geld in die Erforschung postinfektiöser Erkrankungen wie Long Covid stecken. Deutschland könne damit zum weltweiten Vorreiter werden, sagt Ex-Gesundheitsminister Lauterbach.
www.spiegel.de
November 15, 2025 at 10:36 AM
Germany will invest in research on Long COVID and related conditions — great news!
Reposted by Alison Twycross RN PhD
👉 #SaveTheDate
We’re delighted to be taking part in Big Give’s #ChristmasChallenge!
From 2–9 December, every donation you make to LCK will be doubled. That means twice the impact for children and young people living with Long Covid and overlapping conditions. 💚
#LongCovid #LongCovidKids
We’re delighted to be taking part in Big Give’s #ChristmasChallenge!
From 2–9 December, every donation you make to LCK will be doubled. That means twice the impact for children and young people living with Long Covid and overlapping conditions. 💚
#LongCovid #LongCovidKids
November 15, 2025 at 9:32 AM
👉 #SaveTheDate
We’re delighted to be taking part in Big Give’s #ChristmasChallenge!
From 2–9 December, every donation you make to LCK will be doubled. That means twice the impact for children and young people living with Long Covid and overlapping conditions. 💚
#LongCovid #LongCovidKids
We’re delighted to be taking part in Big Give’s #ChristmasChallenge!
From 2–9 December, every donation you make to LCK will be doubled. That means twice the impact for children and young people living with Long Covid and overlapping conditions. 💚
#LongCovid #LongCovidKids
Reposted by Alison Twycross RN PhD
When I had a Stroke in 2022, after having Long Covid on two occasions, the Professor believed microclots caused by the Long Covid may have caused my “small vessel Stroke”. I’m pleased this has now been identified as a possible cause for this type of Stroke.
More hope for Long Covid🌈 from Stellenbosch University;
“identified the most predictive biomarker combinations, enhancing diagnostic reliability and paving the way for personalized medicine approaches.
www.su.ac.za/en/faculties...
“identified the most predictive biomarker combinations, enhancing diagnostic reliability and paving the way for personalized medicine approaches.
www.su.ac.za/en/faculties...
Scientists reveal another piece in Long COVID puzzle
New study reveals a structural association between circulating microclots and neutrophil extracellular traps (NETs) in patients with Long COVID. When dysregulated, this interaction may become pathogen...
www.su.ac.za
November 15, 2025 at 8:21 AM
When I had a Stroke in 2022, after having Long Covid on two occasions, the Professor believed microclots caused by the Long Covid may have caused my “small vessel Stroke”. I’m pleased this has now been identified as a possible cause for this type of Stroke.
Reposted by Alison Twycross RN PhD
Long Covid can impact anyone regardless of age or health status. Women can be at higher increased risk of severe outcomes. There is not enough awareness of long Covid very little help for sufferers. COVID has been politicised so I believe out there many struggle on not wanting to label 🧵
One Public Health department is telling the whole story. Shining a light on those who are being less than transparent! Oopsie!
November 15, 2025 at 8:04 AM
Long Covid can impact anyone regardless of age or health status. Women can be at higher increased risk of severe outcomes. There is not enough awareness of long Covid very little help for sufferers. COVID has been politicised so I believe out there many struggle on not wanting to label 🧵
Reposted by Alison Twycross RN PhD
📚 Research Summary - Long Covid in Brazil — Global Lessons 🌍
Long Covid needs global solutions. 💚
🔗 Read more: shh-uk.org/?p=35224
#SafeAir4All #longcovidawareness #longcovid #longcovidawareness #publichealth #healthcare
Long Covid needs global solutions. 💚
🔗 Read more: shh-uk.org/?p=35224
#SafeAir4All #longcovidawareness #longcovid #longcovidawareness #publichealth #healthcare
November 17, 2025 at 9:00 AM
📚 Research Summary - Long Covid in Brazil — Global Lessons 🌍
Long Covid needs global solutions. 💚
🔗 Read more: shh-uk.org/?p=35224
#SafeAir4All #longcovidawareness #longcovid #longcovidawareness #publichealth #healthcare
Long Covid needs global solutions. 💚
🔗 Read more: shh-uk.org/?p=35224
#SafeAir4All #longcovidawareness #longcovid #longcovidawareness #publichealth #healthcare
Reposted by Alison Twycross RN PhD
This is genuinely the boogie man I'm afraid of.
☑️ Strange changes found in blood of long Covid patients | The Independent
www.independent.co.uk/news/science...
#covid
☑️ Strange changes found in blood of long Covid patients | The Independent
www.independent.co.uk/news/science...
#covid
Strange changes found in blood of long Covid patients | The Independent
Tiny clots appeared larger-than-normal in long Covid patients, study finds
www.independent.co.uk
November 17, 2025 at 9:42 AM
This is genuinely the boogie man I'm afraid of.
☑️ Strange changes found in blood of long Covid patients | The Independent
www.independent.co.uk/news/science...
#covid
☑️ Strange changes found in blood of long Covid patients | The Independent
www.independent.co.uk/news/science...
#covid
Reposted by Alison Twycross RN PhD
Strange changes found in blood of long Covid patients
Strange changes found in blood of long Covid patients
Strange changes found in blood of long Covid patients
www.independent.co.uk
November 17, 2025 at 9:32 AM
Strange changes found in blood of long Covid patients
Reposted by Alison Twycross RN PhD
#openaccess FREE to read, adapt, reuse!
Contribution from J Collett @obu-hst-research.bsky.social:
Daily stress and worry are additional triggers of symptom fluctuations in individuals living with Long COVID
doi.org/10.1093/abm/...
#brookes #oa
radar.brookes.ac.uk/radar/items/...
Contribution from J Collett @obu-hst-research.bsky.social:
Daily stress and worry are additional triggers of symptom fluctuations in individuals living with Long COVID
doi.org/10.1093/abm/...
#brookes #oa
radar.brookes.ac.uk/radar/items/...
Daily stress and worry are additional triggers of symptom fluctuations in individuals living with Long COVID: results from an intensive longitudinal cohort study
AbstractBackground. Recent research has shown that exertion in physical, cognitive, social, and self-care activities triggers symptom severity in individua
doi.org
November 17, 2025 at 9:28 AM
#openaccess FREE to read, adapt, reuse!
Contribution from J Collett @obu-hst-research.bsky.social:
Daily stress and worry are additional triggers of symptom fluctuations in individuals living with Long COVID
doi.org/10.1093/abm/...
#brookes #oa
radar.brookes.ac.uk/radar/items/...
Contribution from J Collett @obu-hst-research.bsky.social:
Daily stress and worry are additional triggers of symptom fluctuations in individuals living with Long COVID
doi.org/10.1093/abm/...
#brookes #oa
radar.brookes.ac.uk/radar/items/...
Reposted by Alison Twycross RN PhD
🦠 New Research Summary alert
Respirators > Masks ✅
Time to raise the standard 🛡️
🔗 More info: shh-uk.org/?p=35222
#SafeAir4All #publichealth #longcovid #longcovidawareness #longcovidjourney #cleanair
Respirators > Masks ✅
Time to raise the standard 🛡️
🔗 More info: shh-uk.org/?p=35222
#SafeAir4All #publichealth #longcovid #longcovidawareness #longcovidjourney #cleanair
November 10, 2025 at 2:00 PM
🦠 New Research Summary alert
Respirators > Masks ✅
Time to raise the standard 🛡️
🔗 More info: shh-uk.org/?p=35222
#SafeAir4All #publichealth #longcovid #longcovidawareness #longcovidjourney #cleanair
Respirators > Masks ✅
Time to raise the standard 🛡️
🔗 More info: shh-uk.org/?p=35222
#SafeAir4All #publichealth #longcovid #longcovidawareness #longcovidjourney #cleanair
Based in the UK? Looking for a new challenge? Why not join our team of online support group moderators led by @erinuk.bsky.social or our social media team led by Lisa.
✨ URGENT VOLUNTEER CALL ✨
We’re looking for passionate people to join our team 💙
🖥️ Online Support Group Moderators
📱 Social Media Content Creators
📩 Email volunteer@shh-uk.org for more info.
#Volunteer #SupportCommunity #MakeADifference #JoinUs
We’re looking for passionate people to join our team 💙
🖥️ Online Support Group Moderators
📱 Social Media Content Creators
📩 Email volunteer@shh-uk.org for more info.
#Volunteer #SupportCommunity #MakeADifference #JoinUs
November 15, 2025 at 11:14 AM
Based in the UK? Looking for a new challenge? Why not join our team of online support group moderators led by @erinuk.bsky.social or our social media team led by Lisa.
Reposted by Alison Twycross RN PhD
✨ URGENT VOLUNTEER CALL ✨
We’re looking for passionate people to join our team 💙
🖥️ Online Support Group Moderators
📱 Social Media Content Creators
📩 Email volunteer@shh-uk.org for more info.
#Volunteer #SupportCommunity #MakeADifference #JoinUs
We’re looking for passionate people to join our team 💙
🖥️ Online Support Group Moderators
📱 Social Media Content Creators
📩 Email volunteer@shh-uk.org for more info.
#Volunteer #SupportCommunity #MakeADifference #JoinUs
November 13, 2025 at 2:51 PM
✨ URGENT VOLUNTEER CALL ✨
We’re looking for passionate people to join our team 💙
🖥️ Online Support Group Moderators
📱 Social Media Content Creators
📩 Email volunteer@shh-uk.org for more info.
#Volunteer #SupportCommunity #MakeADifference #JoinUs
We’re looking for passionate people to join our team 💙
🖥️ Online Support Group Moderators
📱 Social Media Content Creators
📩 Email volunteer@shh-uk.org for more info.
#Volunteer #SupportCommunity #MakeADifference #JoinUs
Reposted by Alison Twycross RN PhD
🕒 It’s the 15th hour of the 15th day — time to spotlight Long Covid.
💬 We invite you — allies, friends, colleagues — to post a Long Covid fact or article today.
#LongCovid #LongCovidAwareness #SHHUK #SupportHealthcareHeroes #safeair4all
💬 We invite you — allies, friends, colleagues — to post a Long Covid fact or article today.
#LongCovid #LongCovidAwareness #SHHUK #SupportHealthcareHeroes #safeair4all
November 15, 2025 at 12:00 AM
🕒 It’s the 15th hour of the 15th day — time to spotlight Long Covid.
💬 We invite you — allies, friends, colleagues — to post a Long Covid fact or article today.
#LongCovid #LongCovidAwareness #SHHUK #SupportHealthcareHeroes #safeair4all
💬 We invite you — allies, friends, colleagues — to post a Long Covid fact or article today.
#LongCovid #LongCovidAwareness #SHHUK #SupportHealthcareHeroes #safeair4all
Reposted by Alison Twycross RN PhD
Read this because you may have Long Covid without knowing it is Long Covid. The severity might vary, but the outcomes are harsh and deleterious.
👇👇👇👇
👇👇👇👇
So I try not to give too many gory details about life with long covid, but I also think it’s important to give a clear picture of what can happen to anyone.
Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.
Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.
November 13, 2025 at 9:30 PM
Read this because you may have Long Covid without knowing it is Long Covid. The severity might vary, but the outcomes are harsh and deleterious.
👇👇👇👇
👇👇👇👇
Reposted by Alison Twycross RN PhD
Gloucestershire woman says long Covid has ‘ruined’ her life
https://www.europesays.com/uk/568471/
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms…#uk #news #uknews
https://www.europesays.com/uk/568471/
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms…#uk #news #uknews
Gloucestershire woman says long Covid has 'ruined' her life - United Kingdom
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms for more than five years, including heart palpitations,
www.europesays.com
November 13, 2025 at 10:10 PM
Gloucestershire woman says long Covid has ‘ruined’ her life
https://www.europesays.com/uk/568471/
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms…#uk #news #uknews
https://www.europesays.com/uk/568471/
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms…#uk #news #uknews
Reposted by Alison Twycross RN PhD
Gloucestershire woman says long Covid has ‘ruined’ her life
https://www.europesays.com/uk/568471/
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms…
https://www.europesays.com/uk/568471/
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms…
Gloucestershire woman says long Covid has 'ruined' her life - United Kingdom
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms for more than five years, including heart palpitations,
www.europesays.com
November 13, 2025 at 10:20 PM
Gloucestershire woman says long Covid has ‘ruined’ her life
https://www.europesays.com/uk/568471/
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms…
https://www.europesays.com/uk/568471/
Ms Lunt Davies, who volunteers with Long Covid SOS, said she had struggled with a number of symptoms…
Reposted by Alison Twycross RN PhD
1/ The next APPG on Long Covid will meet on 3rd December 2025 at 10am.
The meeting will look back at the past year’s work and set plans for the year ahead.
If Long Covid affects you or those around you, ask your MP to be there.
The meeting will look back at the past year’s work and set plans for the year ahead.
If Long Covid affects you or those around you, ask your MP to be there.
November 13, 2025 at 10:39 PM
1/ The next APPG on Long Covid will meet on 3rd December 2025 at 10am.
The meeting will look back at the past year’s work and set plans for the year ahead.
If Long Covid affects you or those around you, ask your MP to be there.
The meeting will look back at the past year’s work and set plans for the year ahead.
If Long Covid affects you or those around you, ask your MP to be there.
Reposted by Alison Twycross RN PhD
"Scientists Just Developed A Blood Test That Can Diagnose Chronic Fatigue And Long Covid."
🔹Blood test detected CFS with 92% accuracy.
🔹CFS and long COVID overlap means it may lead to a long COVID test.
🔹Unclear exactly when either test might be available.
Source: archive.li/K0txX
🔹Blood test detected CFS with 92% accuracy.
🔹CFS and long COVID overlap means it may lead to a long COVID test.
🔹Unclear exactly when either test might be available.
Source: archive.li/K0txX
November 14, 2025 at 1:32 AM
"Scientists Just Developed A Blood Test That Can Diagnose Chronic Fatigue And Long Covid."
🔹Blood test detected CFS with 92% accuracy.
🔹CFS and long COVID overlap means it may lead to a long COVID test.
🔹Unclear exactly when either test might be available.
Source: archive.li/K0txX
🔹Blood test detected CFS with 92% accuracy.
🔹CFS and long COVID overlap means it may lead to a long COVID test.
🔹Unclear exactly when either test might be available.
Source: archive.li/K0txX
Reposted by Alison Twycross RN PhD
Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID.
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Chronic Fatigue Syndrome: Bundesregierung will Erforschung von ME/CFS stärker fördern
Die Zahl der Long-Covid- und ME/CFS-Erkrankungen hat seit der Pandemie stark zugenommen. Bis 2036 sollen deswegen 500 Millionen Euro in die Forschung investiert werden.
www.zeit.de
November 14, 2025 at 6:50 AM
Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID.
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Reposted by Alison Twycross RN PhD
Another acquaintance died only middle aged from a sudden heart attack last week. This is the third person I know who has had a heart attack in the last two years. All had one thing in common, they had just had COVID again. 🧵
November 14, 2025 at 7:11 AM
Another acquaintance died only middle aged from a sudden heart attack last week. This is the third person I know who has had a heart attack in the last two years. All had one thing in common, they had just had COVID again. 🧵
Reposted by Alison Twycross RN PhD
@rthonwesstreeting.bsky.social @ukhsa.bsky.social
INFORM THE BRITISH PUBLIC
we need sane Covid and LOng Covid measures, safe schools/trains and public places esp hospitals and plans for future pandemics.
The failure to do any of this shows us what useless wassocks you are.
INFORM THE BRITISH PUBLIC
we need sane Covid and LOng Covid measures, safe schools/trains and public places esp hospitals and plans for future pandemics.
The failure to do any of this shows us what useless wassocks you are.
Another acquaintance died only middle aged from a sudden heart attack last week. This is the third person I know who has had a heart attack in the last two years. All had one thing in common, they had just had COVID again. 🧵
November 14, 2025 at 7:45 AM
@rthonwesstreeting.bsky.social @ukhsa.bsky.social
INFORM THE BRITISH PUBLIC
we need sane Covid and LOng Covid measures, safe schools/trains and public places esp hospitals and plans for future pandemics.
The failure to do any of this shows us what useless wassocks you are.
INFORM THE BRITISH PUBLIC
we need sane Covid and LOng Covid measures, safe schools/trains and public places esp hospitals and plans for future pandemics.
The failure to do any of this shows us what useless wassocks you are.
Reposted by Alison Twycross RN PhD
My MCAS hit before Covid, but it’s been devastating to my ability to eat.
I’m down to 10 safe foods. I’m malnourished and still losing weight.
The digestive and allergic issues that can accompany Long Covid are very destructive to quality of life.
I’m down to 10 safe foods. I’m malnourished and still losing weight.
The digestive and allergic issues that can accompany Long Covid are very destructive to quality of life.
So I try not to give too many gory details about life with long covid, but I also think it’s important to give a clear picture of what can happen to anyone.
Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.
Over the last yearish, I’ve become allergic to more than 70 foods. Today I lost soy. I’m not how long I can keep eating at all.
November 12, 2025 at 3:15 AM
My MCAS hit before Covid, but it’s been devastating to my ability to eat.
I’m down to 10 safe foods. I’m malnourished and still losing weight.
The digestive and allergic issues that can accompany Long Covid are very destructive to quality of life.
I’m down to 10 safe foods. I’m malnourished and still losing weight.
The digestive and allergic issues that can accompany Long Covid are very destructive to quality of life.
Reposted by Alison Twycross RN PhD
Long COVID is here to stay—even in children - The Lancet Infectious Diseases www.thelancet.com/journals/lan...
Long COVID is here to stay—even in children
Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex,
multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact
the daily life of those...
www.thelancet.com
November 12, 2025 at 3:46 AM
Long COVID is here to stay—even in children - The Lancet Infectious Diseases www.thelancet.com/journals/lan...
Reposted by Alison Twycross RN PhD
"The risk of long COVID was 36% lower in adolescents vaccinated within 6 months before their first infection than in their unvaccinated peers..." www.cidrap.umn.edu/covid-19/cov...
COVID vaccination cuts risk of long-term symptoms in teens by over a third, data suggest
www.cidrap.umn.edu
November 12, 2025 at 3:53 AM
"The risk of long COVID was 36% lower in adolescents vaccinated within 6 months before their first infection than in their unvaccinated peers..." www.cidrap.umn.edu/covid-19/cov...