Alison Twycross RN PhD
@alitwy.bsky.social
Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Pinned
https://petition.parliament.uk/petitions/7320…
We need UKHSA to start doing their job
If they provide data on hospital acquired #covid infections then the need for effective airborne infection prevention measures will be clear for ALL to see
Please SIGN & help to AMPLIFY
🔽 🔽
petition.parliament.uk/petitions/7320…
If they provide data on hospital acquired #covid infections then the need for effective airborne infection prevention measures will be clear for ALL to see
Please SIGN & help to AMPLIFY
🔽 🔽
petition.parliament.uk/petitions/7320…
Calling all UK healthcare workers with Long Covid ⬇️⬇️⬇️
Healthcare workers with Long Covid - this is your invitation to our dedicated online support group! Come together on Tuesday, February 24th from 11:00 AM to 12:00 PM and share insights & experiences. Click here to join this important conversation: teams.microsoft.com/....
February 19, 2026 at 7:51 PM
Calling all UK healthcare workers with Long Covid ⬇️⬇️⬇️
Reposted by Alison Twycross RN PhD
📢 Our Annual General Meeting (AGM) will be held on Wednesday 11 March 2026, 3pm–5pm.
Register here:
shh-uk.org/?mailpoet...
#AGM2026 #CommunityEngagement #NonprofitLife #Leadership #GetInvolved #SaveTheDate
Register here:
shh-uk.org/?mailpoet...
#AGM2026 #CommunityEngagement #NonprofitLife #Leadership #GetInvolved #SaveTheDate
February 19, 2026 at 5:15 PM
📢 Our Annual General Meeting (AGM) will be held on Wednesday 11 March 2026, 3pm–5pm.
Register here:
shh-uk.org/?mailpoet...
#AGM2026 #CommunityEngagement #NonprofitLife #Leadership #GetInvolved #SaveTheDate
Register here:
shh-uk.org/?mailpoet...
#AGM2026 #CommunityEngagement #NonprofitLife #Leadership #GetInvolved #SaveTheDate
Reposted by Alison Twycross RN PhD
Healthcare workers with Long Covid - this is your invitation to our dedicated online support group! Come together on Tuesday, February 24th from 11:00 AM to 12:00 PM and share insights & experiences. Click here to join this important conversation: teams.microsoft.com/....
February 19, 2026 at 7:17 PM
Healthcare workers with Long Covid - this is your invitation to our dedicated online support group! Come together on Tuesday, February 24th from 11:00 AM to 12:00 PM and share insights & experiences. Click here to join this important conversation: teams.microsoft.com/....
Reposted by Alison Twycross RN PhD
Attention all healthcare workers living with Long Covid? You're not alone. Join our online support group on Tuesday, February 24th 11:00 12:00. Share experiences, find encouragement, and build connections in a safe space. Access the meeting here: teams.microsoft.com/....
February 19, 2026 at 9:17 AM
Attention all healthcare workers living with Long Covid? You're not alone. Join our online support group on Tuesday, February 24th 11:00 12:00. Share experiences, find encouragement, and build connections in a safe space. Access the meeting here: teams.microsoft.com/....
Reposted by Alison Twycross RN PhD
Join us for an online support group for healthcare workers with Long Covid. Whether you're still working or not, connect with peers who understand your journey. Tuesday, February 24th from 11:00 AM to 12:00 PM. Click here to join: teams.microsoft.com/....
February 18, 2026 at 8:17 PM
Join us for an online support group for healthcare workers with Long Covid. Whether you're still working or not, connect with peers who understand your journey. Tuesday, February 24th from 11:00 AM to 12:00 PM. Click here to join: teams.microsoft.com/....
Reposted by Alison Twycross RN PhD
That’s quite a strange article on #LongCovid. And quite worrying. The writer says she wakes with severe nausea every morning. Her doctors have been advising her to keep up with physical exercises so as not to decondition. Is she in rolling PEM???
www.theguardian.com/society/2026...
www.theguardian.com/society/2026...
Long Covid is still here. I know – my life came to a stop because of it
With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose. Rolled-back federal funding has led longhaulers to ask: is this all in my head?
www.theguardian.com
February 18, 2026 at 4:36 PM
That’s quite a strange article on #LongCovid. And quite worrying. The writer says she wakes with severe nausea every morning. Her doctors have been advising her to keep up with physical exercises so as not to decondition. Is she in rolling PEM???
www.theguardian.com/society/2026...
www.theguardian.com/society/2026...
Reposted by Alison Twycross RN PhD
On #LongCOVID & writing -
Circa 2023
"Worst of all, I couldn’t concentrate enough to compose sentences. Writing had been my haven since I was 6" -
@madelinemiller.bsky.social
www.washingtonpost.com/opinions/202...
Circa 2023
"Worst of all, I couldn’t concentrate enough to compose sentences. Writing had been my haven since I was 6" -
@madelinemiller.bsky.social
www.washingtonpost.com/opinions/202...
Opinion | Long covid has derailed my life. Make no mistake: It could yours, too.
No matter how immortal we feel, we are all — still — at risk of developing crushing, life-altering symptoms.
www.washingtonpost.com
February 18, 2026 at 5:03 PM
On #LongCOVID & writing -
Circa 2023
"Worst of all, I couldn’t concentrate enough to compose sentences. Writing had been my haven since I was 6" -
@madelinemiller.bsky.social
www.washingtonpost.com/opinions/202...
Circa 2023
"Worst of all, I couldn’t concentrate enough to compose sentences. Writing had been my haven since I was 6" -
@madelinemiller.bsky.social
www.washingtonpost.com/opinions/202...
Reposted by Alison Twycross RN PhD
🧬 New Research Summary: Long Covid & the Gut Microbiome
Emerging studies suggest microbiome based treatments could target Long Covid symptoms.
Read more: shh-uk.org/?p=35452
#LongCovid #GutHealth #Microbiome #HealthResearch #PostCovidRecovery #MedicalInnovation
Emerging studies suggest microbiome based treatments could target Long Covid symptoms.
Read more: shh-uk.org/?p=35452
#LongCovid #GutHealth #Microbiome #HealthResearch #PostCovidRecovery #MedicalInnovation
February 16, 2026 at 12:30 PM
🧬 New Research Summary: Long Covid & the Gut Microbiome
Emerging studies suggest microbiome based treatments could target Long Covid symptoms.
Read more: shh-uk.org/?p=35452
#LongCovid #GutHealth #Microbiome #HealthResearch #PostCovidRecovery #MedicalInnovation
Emerging studies suggest microbiome based treatments could target Long Covid symptoms.
Read more: shh-uk.org/?p=35452
#LongCovid #GutHealth #Microbiome #HealthResearch #PostCovidRecovery #MedicalInnovation
Reposted by Alison Twycross RN PhD
Exciting news.
Our online support groups for healthcare workers with Long Covid are up and running.
The next group is on Tuesday 24th February from 1100-1200.
To join please use this link: teams.microsoft.com/...
If you have any questions please email: supportgroup@shh-uk.org
Our online support groups for healthcare workers with Long Covid are up and running.
The next group is on Tuesday 24th February from 1100-1200.
To join please use this link: teams.microsoft.com/...
If you have any questions please email: supportgroup@shh-uk.org
February 18, 2026 at 11:18 AM
Exciting news.
Our online support groups for healthcare workers with Long Covid are up and running.
The next group is on Tuesday 24th February from 1100-1200.
To join please use this link: teams.microsoft.com/...
If you have any questions please email: supportgroup@shh-uk.org
Our online support groups for healthcare workers with Long Covid are up and running.
The next group is on Tuesday 24th February from 1100-1200.
To join please use this link: teams.microsoft.com/...
If you have any questions please email: supportgroup@shh-uk.org
Reposted by Alison Twycross RN PhD
Great to see @laylamoran.bsky.social paying attention to the ongoing challenges faced by millions with #LongCovid. Let’s hope this leads to much needed action by the Health & Social Care Committee.
Thanks to @joplatt.bsky.social & @longcovidsupport.bsky.social Chair @nigelrothband.bsky.social!
Thanks to @joplatt.bsky.social & @longcovidsupport.bsky.social Chair @nigelrothband.bsky.social!
A productive meeting in Parliament with Jo Platt MP, Chair of the All-Party Parliamentary Group on Long Covid, & Layla Moran MP, Chair of the Health & Social Care Committee.
Thanks to Layla for her understanding, continued support, & her clear commitment to recognition, accountability & action.
Thanks to Layla for her understanding, continued support, & her clear commitment to recognition, accountability & action.
January 28, 2026 at 7:28 PM
Great to see @laylamoran.bsky.social paying attention to the ongoing challenges faced by millions with #LongCovid. Let’s hope this leads to much needed action by the Health & Social Care Committee.
Thanks to @joplatt.bsky.social & @longcovidsupport.bsky.social Chair @nigelrothband.bsky.social!
Thanks to @joplatt.bsky.social & @longcovidsupport.bsky.social Chair @nigelrothband.bsky.social!
Reposted by Alison Twycross RN PhD
Reposted by Alison Twycross RN PhD
@longcovidsupport.bsky.social @longcovidsos.bsky.social @longcovidkids.bsky.social
@joda.bsky.social @margaretohara.bsky.social @oonaghcousins.bsky.social @1goodtern.bsky.social @catinthehat.bsky.social @astroroyalscot.bsky.social @ruairidhm.bsky.social @scribblerpen.bsky.social
@joda.bsky.social @margaretohara.bsky.social @oonaghcousins.bsky.social @1goodtern.bsky.social @catinthehat.bsky.social @astroroyalscot.bsky.social @ruairidhm.bsky.social @scribblerpen.bsky.social
February 16, 2026 at 4:09 PM
Reposted by Alison Twycross RN PhD
👇🏼 the reality for tens of thousands of people with Long COVID
📣 6 years ago I had my first Covid-19 symptoms. Despite various debilitating symptoms still impacting my life, I was discharged from my #LongCovid service in 2024. Like thousands of others with chronic illness, I have no ongoing care.
Take a look at my video ⬇️
#CureLongCovid
Take a look at my video ⬇️
#CureLongCovid
February 16, 2026 at 4:33 PM
👇🏼 the reality for tens of thousands of people with Long COVID
I’ve also had Long Covid for 6 years. I was eventually seen by the local Long Covid service when it was set up in 2021 but was discharged once I’d had a few tests and completed some rehab online workshops.
February 18, 2026 at 5:31 PM
I’ve also had Long Covid for 6 years. I was eventually seen by the local Long Covid service when it was set up in 2021 but was discharged once I’d had a few tests and completed some rehab online workshops.
Reposted by Alison Twycross RN PhD
Six Years. I too caught Covid this time in 2020.
In those 6 years, incl. the Covid inquiry, we shared testimonies, gathered evidence, gave those who need to know all the information they needed. They know.
We're still here, still ill. Like doing all, doing nothing is an active choice💔 #CureLongCovid
In those 6 years, incl. the Covid inquiry, we shared testimonies, gathered evidence, gave those who need to know all the information they needed. They know.
We're still here, still ill. Like doing all, doing nothing is an active choice💔 #CureLongCovid
📣 6 years ago I had my first Covid-19 symptoms. Despite various debilitating symptoms still impacting my life, I was discharged from my #LongCovid service in 2024. Like thousands of others with chronic illness, I have no ongoing care.
Take a look at my video ⬇️
#CureLongCovid
Take a look at my video ⬇️
#CureLongCovid
February 16, 2026 at 6:09 PM
Six Years. I too caught Covid this time in 2020.
In those 6 years, incl. the Covid inquiry, we shared testimonies, gathered evidence, gave those who need to know all the information they needed. They know.
We're still here, still ill. Like doing all, doing nothing is an active choice💔 #CureLongCovid
In those 6 years, incl. the Covid inquiry, we shared testimonies, gathered evidence, gave those who need to know all the information they needed. They know.
We're still here, still ill. Like doing all, doing nothing is an active choice💔 #CureLongCovid
Reposted by Alison Twycross RN PhD
Powerful video from @nikki-s.bsky.social on 6 years of #LongCovid.
Tens of thousands of others are approaching same anniversary in UK alone - millions worldwide.
A very long tail from the pandemic.
#CountLongCovid
#CareForLongCovid
#ResearchLongCovid
Tens of thousands of others are approaching same anniversary in UK alone - millions worldwide.
A very long tail from the pandemic.
#CountLongCovid
#CareForLongCovid
#ResearchLongCovid
📣 6 years ago I had my first Covid-19 symptoms. Despite various debilitating symptoms still impacting my life, I was discharged from my #LongCovid service in 2024. Like thousands of others with chronic illness, I have no ongoing care.
Take a look at my video ⬇️
#CureLongCovid
Take a look at my video ⬇️
#CureLongCovid
February 17, 2026 at 11:18 AM
Powerful video from @nikki-s.bsky.social on 6 years of #LongCovid.
Tens of thousands of others are approaching same anniversary in UK alone - millions worldwide.
A very long tail from the pandemic.
#CountLongCovid
#CareForLongCovid
#ResearchLongCovid
Tens of thousands of others are approaching same anniversary in UK alone - millions worldwide.
A very long tail from the pandemic.
#CountLongCovid
#CareForLongCovid
#ResearchLongCovid
Reposted by Alison Twycross RN PhD
This is true (UK). I was discharged from #LongCovid Hospital Clinic in 2022, a 2yr wait since 2020 infection, with myriad ongoing symptoms. Offered only Talking Therapy in 2024. There's zero support, nothing joined up, government sweeping us under a carpet. Life is upside down, frightening. I cry.
📣 6 years ago I had my first Covid-19 symptoms. Despite various debilitating symptoms still impacting my life, I was discharged from my #LongCovid service in 2024. Like thousands of others with chronic illness, I have no ongoing care.
Take a look at my video ⬇️
#CureLongCovid
Take a look at my video ⬇️
#CureLongCovid
February 17, 2026 at 5:02 PM
This is true (UK). I was discharged from #LongCovid Hospital Clinic in 2022, a 2yr wait since 2020 infection, with myriad ongoing symptoms. Offered only Talking Therapy in 2024. There's zero support, nothing joined up, government sweeping us under a carpet. Life is upside down, frightening. I cry.
Reposted by Alison Twycross RN PhD
📣 6 years ago I had my first Covid-19 symptoms. Despite various debilitating symptoms still impacting my life, I was discharged from my #LongCovid service in 2024. Like thousands of others with chronic illness, I have no ongoing care.
Take a look at my video ⬇️
#CureLongCovid
Take a look at my video ⬇️
#CureLongCovid
February 16, 2026 at 4:09 PM
📣 6 years ago I had my first Covid-19 symptoms. Despite various debilitating symptoms still impacting my life, I was discharged from my #LongCovid service in 2024. Like thousands of others with chronic illness, I have no ongoing care.
Take a look at my video ⬇️
#CureLongCovid
Take a look at my video ⬇️
#CureLongCovid
Reposted by Alison Twycross RN PhD
Thought I’d start sharing links to podcasts & webinars I’ve been involved in over the years.
Starting with the very first one!
It began with a tweet about spoons, which led to a chat on the @longcovidphysio.bsky.social podcast.
#LongCovid #POTS #ChronicIllness #Pacing #OccupationalTherapy
Starting with the very first one!
It began with a tweet about spoons, which led to a chat on the @longcovidphysio.bsky.social podcast.
#LongCovid #POTS #ChronicIllness #Pacing #OccupationalTherapy
February 13, 2026 at 3:07 PM
Thought I’d start sharing links to podcasts & webinars I’ve been involved in over the years.
Starting with the very first one!
It began with a tweet about spoons, which led to a chat on the @longcovidphysio.bsky.social podcast.
#LongCovid #POTS #ChronicIllness #Pacing #OccupationalTherapy
Starting with the very first one!
It began with a tweet about spoons, which led to a chat on the @longcovidphysio.bsky.social podcast.
#LongCovid #POTS #ChronicIllness #Pacing #OccupationalTherapy
Reposted by Alison Twycross RN PhD
🛒💜 Support us for FREE
Support SHH-UK just by shopping online as usual. It costs nothing, but every purchase raises a free donation via EasyFundraising.
👉 Sign up: easyfundraising.org....
#LongCovid #SupportHealthcareWorkers #EasyFundraising #ShopForGood #NHS #Charity
Support SHH-UK just by shopping online as usual. It costs nothing, but every purchase raises a free donation via EasyFundraising.
👉 Sign up: easyfundraising.org....
#LongCovid #SupportHealthcareWorkers #EasyFundraising #ShopForGood #NHS #Charity
February 14, 2026 at 8:00 PM
🛒💜 Support us for FREE
Support SHH-UK just by shopping online as usual. It costs nothing, but every purchase raises a free donation via EasyFundraising.
👉 Sign up: easyfundraising.org....
#LongCovid #SupportHealthcareWorkers #EasyFundraising #ShopForGood #NHS #Charity
Support SHH-UK just by shopping online as usual. It costs nothing, but every purchase raises a free donation via EasyFundraising.
👉 Sign up: easyfundraising.org....
#LongCovid #SupportHealthcareWorkers #EasyFundraising #ShopForGood #NHS #Charity
Reposted by Alison Twycross RN PhD
🚨 New resources
📊 Young doctor sickness in the National Health Service
🌬 IAQ guide (Health and Safety Authority)
📣 Safe Air letter to the UK Health Security Agency
🔗 shh-uk.org/sickness-...
🔗 shh-uk.org/indoor-ai...
🔗 shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth
📊 Young doctor sickness in the National Health Service
🌬 IAQ guide (Health and Safety Authority)
📣 Safe Air letter to the UK Health Security Agency
🔗 shh-uk.org/sickness-...
🔗 shh-uk.org/indoor-ai...
🔗 shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth
February 15, 2026 at 10:00 AM
🚨 New resources
📊 Young doctor sickness in the National Health Service
🌬 IAQ guide (Health and Safety Authority)
📣 Safe Air letter to the UK Health Security Agency
🔗 shh-uk.org/sickness-...
🔗 shh-uk.org/indoor-ai...
🔗 shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth
📊 Young doctor sickness in the National Health Service
🌬 IAQ guide (Health and Safety Authority)
📣 Safe Air letter to the UK Health Security Agency
🔗 shh-uk.org/sickness-...
🔗 shh-uk.org/indoor-ai...
🔗 shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth
Reposted by Alison Twycross RN PhD
🚨 New resources
📊 Young doctor sickness in the National Health Service
🌬 IAQ guide (Health and Safety Authority)
📣 Safe Air letter to the UK Health Security Agency
🔗 shh-uk.org/sickness-...
🔗 shh-uk.org/indoor-ai...
🔗 shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth
📊 Young doctor sickness in the National Health Service
🌬 IAQ guide (Health and Safety Authority)
📣 Safe Air letter to the UK Health Security Agency
🔗 shh-uk.org/sickness-...
🔗 shh-uk.org/indoor-ai...
🔗 shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth
February 15, 2026 at 10:01 AM
Reposted by Alison Twycross RN PhD
🌟 Join the SHH UK Volunteer Team 🌟
👉 Find out more and sign up here: reachvolunteering.or...
Let’s make an impact together ✨
#VolunteerWithPurpose #GiveBackUK #SupportHeroes #CommunityFirst #MakeADifference #VolunteerOpportunity
👉 Find out more and sign up here: reachvolunteering.or...
Let’s make an impact together ✨
#VolunteerWithPurpose #GiveBackUK #SupportHeroes #CommunityFirst #MakeADifference #VolunteerOpportunity
February 11, 2026 at 6:00 AM
🌟 Join the SHH UK Volunteer Team 🌟
👉 Find out more and sign up here: reachvolunteering.or...
Let’s make an impact together ✨
#VolunteerWithPurpose #GiveBackUK #SupportHeroes #CommunityFirst #MakeADifference #VolunteerOpportunity
👉 Find out more and sign up here: reachvolunteering.or...
Let’s make an impact together ✨
#VolunteerWithPurpose #GiveBackUK #SupportHeroes #CommunityFirst #MakeADifference #VolunteerOpportunity
Reposted by Alison Twycross RN PhD
Our SHH-UK AGM is taking place on 11th March 2026, 3-5pm.
It’s an opportunity to:
✔ Reflect on the past year
✔ Share progress & impact
✔ Discuss our 2026–2028 strategy & plans for the future
To join please email info@shh-uk.org for details
It’s an opportunity to:
✔ Reflect on the past year
✔ Share progress & impact
✔ Discuss our 2026–2028 strategy & plans for the future
To join please email info@shh-uk.org for details
February 12, 2026 at 3:20 PM
Our SHH-UK AGM is taking place on 11th March 2026, 3-5pm.
It’s an opportunity to:
✔ Reflect on the past year
✔ Share progress & impact
✔ Discuss our 2026–2028 strategy & plans for the future
To join please email info@shh-uk.org for details
It’s an opportunity to:
✔ Reflect on the past year
✔ Share progress & impact
✔ Discuss our 2026–2028 strategy & plans for the future
To join please email info@shh-uk.org for details
Reposted by Alison Twycross RN PhD
News Release 10-Feb-2026
"Long COVID linked to Alzheimer’s disease mechanisms: Diseases cause damage in some of the same ways"
www.eurekalert.org/news-release...
New US research.
Full paper:
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
#LongCovid #COVIDBrain #NeuroPASC #postcovid
"Long COVID linked to Alzheimer’s disease mechanisms: Diseases cause damage in some of the same ways"
www.eurekalert.org/news-release...
New US research.
Full paper:
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
#LongCovid #COVIDBrain #NeuroPASC #postcovid
February 10, 2026 at 2:11 PM
News Release 10-Feb-2026
"Long COVID linked to Alzheimer’s disease mechanisms: Diseases cause damage in some of the same ways"
www.eurekalert.org/news-release...
New US research.
Full paper:
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
#LongCovid #COVIDBrain #NeuroPASC #postcovid
"Long COVID linked to Alzheimer’s disease mechanisms: Diseases cause damage in some of the same ways"
www.eurekalert.org/news-release...
New US research.
Full paper:
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
#LongCovid #COVIDBrain #NeuroPASC #postcovid