Eleanor Fielding
@meownersclub.bsky.social
‘We’re driving in the dark with our sunglasses on!”
Retired lecturer/therapist -CCCS Birmingham, Open University, feminism, politics, culture, disability, science, music, languages. Woke AF
#ME (1987) Maker of #FanningTheFlames
Retired lecturer/therapist -CCCS Birmingham, Open University, feminism, politics, culture, disability, science, music, languages. Woke AF
#ME (1987) Maker of #FanningTheFlames
Reposted by Eleanor Fielding
9️⃣ We know that the Long Covid & ME research fields have a disproportionate number of problematic trials that veer into harm. We know exercise & the Lightning Process interventions pass through ethics. We need our gatekeepers to not pass the burden to vulnerable patients.
December 6, 2025 at 8:07 PM
9️⃣ We know that the Long Covid & ME research fields have a disproportionate number of problematic trials that veer into harm. We know exercise & the Lightning Process interventions pass through ethics. We need our gatekeepers to not pass the burden to vulnerable patients.
Reposted by Eleanor Fielding
1) 🧬 New results from the LOCOME project. It applied the combinatorial analytics of PrecisionLife on data from DecodeME.
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
December 5, 2025 at 8:45 AM
1) 🧬 New results from the LOCOME project. It applied the combinatorial analytics of PrecisionLife on data from DecodeME.
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
Reposted by Eleanor Fielding
7-minute English-language interview on FRANCE 24 English with Alain Moreau PhD (funded by @openmedf.bsky.social ) who talks about his research findings & their possible implications
www.youtube.com/watch?v=EZOH...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.youtube.com/watch?v=EZOH...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
December 6, 2025 at 4:21 PM
7-minute English-language interview on FRANCE 24 English with Alain Moreau PhD (funded by @openmedf.bsky.social ) who talks about his research findings & their possible implications
www.youtube.com/watch?v=EZOH...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.youtube.com/watch?v=EZOH...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Reposted by Eleanor Fielding
#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
December 4, 2025 at 8:33 AM
#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
December 4, 2025 at 8:33 AM
Reposted by Eleanor Fielding
December 4, 2025 at 8:25 AM
Reposted by Eleanor Fielding
Reposted by Eleanor Fielding
Thinking of Jo and everything she tried to prevent this death.
December 2, 2025 at 2:06 PM
Thinking of Jo and everything she tried to prevent this death.
Reposted by Eleanor Fielding
Great news, the petition:
Call a public inquiry into Russian influence on UK politics & democracy
petition.parliament.uk/petitions/74...
Is at the Petition Committee stage, a date is being set.
Call a public inquiry into Russian influence on UK politics & democracy
petition.parliament.uk/petitions/74...
Is at the Petition Committee stage, a date is being set.
Petition: Call a public inquiry into Russian influence on UK politics & democracy
We are concerned about reported efforts from Russia to influence democracy in the US, UK, Europe and elsewhere. We believe we must establish the depth and breadth of possible Russian influence campaig...
petition.parliament.uk
December 2, 2025 at 11:11 AM
Great news, the petition:
Call a public inquiry into Russian influence on UK politics & democracy
petition.parliament.uk/petitions/74...
Is at the Petition Committee stage, a date is being set.
Call a public inquiry into Russian influence on UK politics & democracy
petition.parliament.uk/petitions/74...
Is at the Petition Committee stage, a date is being set.
Reposted by Eleanor Fielding
Just heard the news that the MAGA and MAHA hero Martin Kulldorff, one of RFK Jr’s key henchmen in the push to roll back vaccination, has been appointed to HHS. Lord help us 😢
RFK Jr & his loyal henchmen (the Great Barrington Declaration dudes Jay Bhattacharya & Martin Kulldorff; Martin Makary; Dr Oz; Vinay Prasad) have been successfully dismantling the US vaccination system & achieved the return of deadly vaccine preventable diseases. This is the world they worked for...
SCOOP: CDC officials on Monday linked for the first time the measles outbreak that began in Texas with another in Utah and Arizona, a finding that could end America’s status as a nation that has eliminated measles.
(Gift link)
www.nytimes.com/2025/11/17/h...
(Gift link)
www.nytimes.com/2025/11/17/h...
December 1, 2025 at 11:08 PM
Just heard the news that the MAGA and MAHA hero Martin Kulldorff, one of RFK Jr’s key henchmen in the push to roll back vaccination, has been appointed to HHS. Lord help us 😢
Reposted by Eleanor Fielding
Great article, well worth a read.
Long Covid is definitely not so much a journey as an abduction or a forced march.
Though saying that, anyone trying to get me to do a forced march right now would quickly realise their mistake.
Long Covid is definitely not so much a journey as an abduction or a forced march.
Though saying that, anyone trying to get me to do a forced march right now would quickly realise their mistake.
Opinion piece on the word "journey" as a problematic euphemism for #chronicillness.
"Sugarcoating my bitter pill, a chronic disease, by calling it a “journey” might sweeten it for you, but not for me"
www.statnews.com/2025/11/25/c...
Screenshot from latest Science for ME weekly update
#LongCovid
"Sugarcoating my bitter pill, a chronic disease, by calling it a “journey” might sweeten it for you, but not for me"
www.statnews.com/2025/11/25/c...
Screenshot from latest Science for ME weekly update
#LongCovid
December 2, 2025 at 7:34 AM
Great article, well worth a read.
Long Covid is definitely not so much a journey as an abduction or a forced march.
Though saying that, anyone trying to get me to do a forced march right now would quickly realise their mistake.
Long Covid is definitely not so much a journey as an abduction or a forced march.
Though saying that, anyone trying to get me to do a forced march right now would quickly realise their mistake.
Reposted by Eleanor Fielding
@gtconway.bsky.social
He's a completely unhinged and dangerous dickhead... Just like the POTUS who appointed him.
I have come to realise that America is in the throes of democratic death....
Watching a once decent people committing suicide in real time is ugly.
I expect zero accountability
He's a completely unhinged and dangerous dickhead... Just like the POTUS who appointed him.
I have come to realise that America is in the throes of democratic death....
Watching a once decent people committing suicide in real time is ugly.
I expect zero accountability
December 2, 2025 at 8:36 AM
@gtconway.bsky.social
He's a completely unhinged and dangerous dickhead... Just like the POTUS who appointed him.
I have come to realise that America is in the throes of democratic death....
Watching a once decent people committing suicide in real time is ugly.
I expect zero accountability
He's a completely unhinged and dangerous dickhead... Just like the POTUS who appointed him.
I have come to realise that America is in the throes of democratic death....
Watching a once decent people committing suicide in real time is ugly.
I expect zero accountability
www.facebook.com/photo.php?fb...
Ron Davis PhD and the itaconate shunt hypothesis.
@r3beccaf.bsky.social
@margaretohara.bsky.social
Ron Davis PhD and the itaconate shunt hypothesis.
@r3beccaf.bsky.social
@margaretohara.bsky.social
Redirecting...
www.facebook.com
December 1, 2025 at 12:15 PM
www.facebook.com/photo.php?fb...
Ron Davis PhD and the itaconate shunt hypothesis.
@r3beccaf.bsky.social
@margaretohara.bsky.social
Ron Davis PhD and the itaconate shunt hypothesis.
@r3beccaf.bsky.social
@margaretohara.bsky.social
Reposted by Eleanor Fielding
#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
It’s really disgraceful the way the British Medical Establishment has weaponised the biopsychosocial model worldwide. I apologise for my fellow citizens.
Here’s my cartoon for this week attacking the BMA on this issue.
Here’s my cartoon for this week attacking the BMA on this issue.
November 30, 2025 at 5:47 PM
Reposted by Eleanor Fielding
It’s really disgraceful the way the British Medical Establishment has weaponised the biopsychosocial model worldwide. I apologise for my fellow citizens.
Here’s my cartoon for this week attacking the BMA on this issue.
Here’s my cartoon for this week attacking the BMA on this issue.
November 29, 2025 at 2:38 PM
It’s really disgraceful the way the British Medical Establishment has weaponised the biopsychosocial model worldwide. I apologise for my fellow citizens.
Here’s my cartoon for this week attacking the BMA on this issue.
Here’s my cartoon for this week attacking the BMA on this issue.
Reposted by Eleanor Fielding
Reposted by Eleanor Fielding
3/5
my first 0.5mg of Naltrexone tonight. 😁
0.5mg for 7 days
1.0mg for 7 days
1.5mg for 7 days
2mg for 7 days
3mg for 7 days
4mg for 7 days
And finally 4.5mg for ever, possibly, maybe, if it helps.
They say I should start to feel the effects after 4-6 weeks, with full effect around 12 weeks.
my first 0.5mg of Naltrexone tonight. 😁
0.5mg for 7 days
1.0mg for 7 days
1.5mg for 7 days
2mg for 7 days
3mg for 7 days
4mg for 7 days
And finally 4.5mg for ever, possibly, maybe, if it helps.
They say I should start to feel the effects after 4-6 weeks, with full effect around 12 weeks.
November 29, 2025 at 1:57 PM
3/5
my first 0.5mg of Naltrexone tonight. 😁
0.5mg for 7 days
1.0mg for 7 days
1.5mg for 7 days
2mg for 7 days
3mg for 7 days
4mg for 7 days
And finally 4.5mg for ever, possibly, maybe, if it helps.
They say I should start to feel the effects after 4-6 weeks, with full effect around 12 weeks.
my first 0.5mg of Naltrexone tonight. 😁
0.5mg for 7 days
1.0mg for 7 days
1.5mg for 7 days
2mg for 7 days
3mg for 7 days
4mg for 7 days
And finally 4.5mg for ever, possibly, maybe, if it helps.
They say I should start to feel the effects after 4-6 weeks, with full effect around 12 weeks.
Reposted by Eleanor Fielding
November 29, 2025 at 1:57 PM
Reposted by Eleanor Fielding
"It's day 667 since he became ill. For almost two years, he's been lying in the dark, in the silence, in a darkened extension of his mother's house, where she had to give up her job to care for him. [] But Kelvin's world is as small as his room"
#LongCovid
www.volkskrant.nl/kijkverder/v...
#LongCovid
www.volkskrant.nl/kijkverder/v...
667 dagen in het donker: hoe postcovidpatiënten uit de maatschappij verdwenen
Ze leven achter gesloten gordijnen, aan bed gekluisterd. Voor de allerziekste postcovidpatiënten in Nederland is er nog steeds geen passende hulp of zicht op genezing. Vier van hen gunden ons een blik...
www.volkskrant.nl
November 29, 2025 at 1:57 PM
"It's day 667 since he became ill. For almost two years, he's been lying in the dark, in the silence, in a darkened extension of his mother's house, where she had to give up her job to care for him. [] But Kelvin's world is as small as his room"
#LongCovid
www.volkskrant.nl/kijkverder/v...
#LongCovid
www.volkskrant.nl/kijkverder/v...
#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
November 29, 2025 at 2:05 PM
Reposted by Eleanor Fielding
#MillionsMissing
#LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@georgemonbiot.bsky.social
@davidjoffe64.bsky.social
#ME #LongCovid #Lyme #POTS #MCAS
#LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@georgemonbiot.bsky.social
@davidjoffe64.bsky.social
#ME #LongCovid #Lyme #POTS #MCAS
Yup - the idiot-followers of medical ignorance pop-up everywhere. Grrrr
#IYKYK
#ChronicIllness #ChronicIllnessMemes #WheelchairUsers #PEM
#ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease
#PostInfectiousIllness
#IYKYK
#ChronicIllness #ChronicIllnessMemes #WheelchairUsers #PEM
#ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease
#PostInfectiousIllness
November 28, 2025 at 12:47 PM