Siobhan Gaynor
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siobhangaynor.bsky.social
Siobhan Gaynor
@siobhangaynor.bsky.social
Metastatic Breast Cancer patient and researcher. Stage 4 Cancer advocate for better care, research, epidemiology and clinical guidelines. Irish. #oncsky #bcsm
Pinned
Delighted to report that the publication or our patient work in Irish Metastatic Breast Cancer patients has gone live. www.sciencedirect.com/science/arti...
A patient- led survey on information and communication needs of patients with metastatic breast cancer in Ireland and Northern Ireland (CTRIAL-IE 23-05)
Although treatment advances have improved survival rates for patients with metastatic breast cancer (MBC), patient expressed needs have not been evalu…
www.sciencedirect.com
Reposted by Siobhan Gaynor

Message from Mand 👇

She lifted it from another social account; not sure of its origin but we love the message.

#IamStillHere #MetastaticCancer
#Cansky

Mand is a #CancerDinosaur
December 20, 2024 at 7:53 AM
Reposted by Siobhan Gaynor
Now, on to liver mets with Dr Peter Vermeulen: not all liver mets are equal. #SABCS24
December 12, 2024 at 10:17 PM
Reposted by Siobhan Gaynor
Congratulations to DR Steffi Oesterreichs @oesterreichs on her AACR Award. She has done sooooo much for people with ILC, not just through her brilliant research, but through her embrace of and collaboration with advocates. @metavivor is so proud to have funded her! #SABCS24
December 12, 2024 at 10:13 PM
Reposted by Siobhan Gaynor
#SABCS24 Day 1 Highlights #CommunityOnc:

1. @FDAOncology Reviews recent approvals: #Ribociclib & #Inavolisib

2. #PADMA: HR+ ET + CDK4/6i vs Chemo 1L

3. #DB06: HR+ TDXd

4. #KN522: biomarker analysis

#OncSky #CanSky @sabcs.bsky.social @drsarahsammons.bsky.social @dr-rshatsky.bsky.social

1/5
December 11, 2024 at 2:26 AM
Reposted by Siobhan Gaynor
Next up, @fredhutch.bsky.social's Dr. Sara Hurvitz moderates a packed panel on clinical approaches to ER+ #metastatic #breastcancer. Happy to see patient advocates on so many panels! #AmyBeumer will be bringing in the patient voice here. #bcsm @oncoalert.bsky.social

#sabcs24 #cansky #oncosky
December 11, 2024 at 9:47 PM
Reposted by Siobhan Gaynor
I’m so glad I listened to the oncologist on this. It felt counterintuitive to go for a walk when I was so fatigued from chemo. But it really did help.

1/2

#graphicmedicine #cansky #breastcancer #lifewriting
December 12, 2024 at 7:42 AM
Reposted by Siobhan Gaynor
The food you eat may be affecting your body's ability to fight cancer cells.

MSK's gastroenterologist Dr. Robin Mendelsohn explains what may be the cause (via @cnn.com ) ⬇️ #cansky
Certain foods may disrupt your body’s fight against cancer cells, study says | CNN
Higher levels of omega-6 fatty acids often found in ultraprocessed foods may interfere with the immune system’s fight against cancer cells, a new study says.
www.cnn.com
December 12, 2024 at 6:25 PM
Reposted by Siobhan Gaynor
Remember for my YAs out there particularly…. More and more advocacy work is needed to show that with a YA #Cancer diagnosis there is much more at play.

-time off work
-fertility
-financially planning
-social circle pressure

Just some of the things🫶🏻

#Cansky #Oncsky
December 12, 2024 at 6:48 PM
Reposted by Siobhan Gaynor
How chemotherapy has an impact on #ovariancancer and the potential for maintaining its efficacy with immunotherapy.

Still early stage research but potentially very promising.

#cansky #ovcasky #medsky #TCells

healthcare-in-europe.com/en/news/chem...
How chemotherapy affects ovarian cancer tumours
Researchers have discovered how chemotherapy can change tumours, making them more vulnerable to new types of treatments.
healthcare-in-europe.com
December 12, 2024 at 8:47 PM
Reposted by Siobhan Gaynor
Managing cancer care (appts, meds, messages, billing) is often a full-time job.

This survey shows how admin burdens like #PriorAuth make people delay/forgo care. While most (gen non-elderly population) don't encounter billing, >1/3 who do delay/miss care because of it.

#CanSky #OncSky #MedSky
December 12, 2024 at 9:28 PM
Reposted by Siobhan Gaynor
The study looked at men going thru "active surveillance" 4 their low-risk #prostatecancer. Cool potential here 4 reducing the pt burden since active surveillance involves going in 4 many biopsies, blood draws, MRIs. Today at #SABCS24, active monitoring 4 low-risk #DCIS came up. 👍#cansky #oncosky
December 12, 2024 at 11:10 PM
Reposted by Siobhan Gaynor
The holidays are stressful.

The holidays with cancer are especially stressful.

I wrote a blog/made a vlog about some ways to manage this. Easier said than done, but well worth attempting.

Blog: mantacares.com/blogs/newsle...

Vlog: www.youtube.com/watch?v=VQVk...

#thankscancer #cansky #oncosky
Cancer and Holiday Stress: ‘Tis the Season to Be Kind to Yourself
Guest post by Mike Linn. Opinions are those of the author. Being a cancer patient is easily the most stressful thing I’ve ever gone through. Combining holiday stress with my diagnosis has been a uniqu...
mantacares.com
December 13, 2024 at 12:40 AM
Reposted by Siobhan Gaynor
Top reasons #BreastCancer patients gave CancerSupportCommunity.org for not following their treatment plan 👇👇👇

Erica Fortune, PhD, presented findings about treatment tolerability & adherence at #SABCS24.

Full poster: bit.ly/3VwuXyq

#bcsm #GRASP #SABCS #cansky #oncsky
December 13, 2024 at 7:10 AM
Reposted by Siobhan Gaynor
Disinformation and Misinformation shared by Steven Bartlett in his so-called health podcast has multiple dubious claims, debunked ‘experts’ including Malhotra and people with stakes in wellness including the host who also makes £££ from the podcasts. 😡😡😡🧪
Steven Bartlett sharing harmful health misinformation on Diary of CEO podcast
Disproven health claims are accepted with little challenge by host on number one podcast, BBC investigation finds.
www.bbc.co.uk
December 13, 2024 at 8:06 AM
Reposted by Siobhan Gaynor
Can precision cancer care become accessible to all? In this talk, Dr Benedikt Westphalen explores the challenges of access, expertise, and infrastructure and how AI could unlock its potential.

📺 Watch now to learn more: bit.ly/3ZvtlpH

#PrecisionOncology #AI
Scaling Precision Oncology – In or Out of Reach?
With Dr. Benedikt Westphalen. Precision oncology offers hope by tailoring cancer treatments to individual molecular and genetic profiles, but how close are we to making it accessible for all? This video explores the challenges and opportunities in scaling precision oncology amidst a global cancer crisis, with 20 million new cases and 10 million deaths annually. Key Discussion Points: 🔬 Challenges: Unequal access to molecular profiling and diagnostics. Limited expertise in interpreting test results. Barriers to accessing targeted therapies. Infrastructure limitations for scaling diagnostics and treatment. 🌟 Opportunities: Harnessing AI and advanced technologies for diagnostics. Integrating genomic testing into standard care practices. Enhancing global collaboration to ensure equal access. Discover how systemic changes, technological innovations, and collaborative efforts could reshape cancer care and unlock the full potential of precision oncology for patients worldwide.
bit.ly
December 10, 2024 at 2:30 PM
Reposted by Siobhan Gaynor
A commonly inherited human PCSK9 germline variant drives breast cancer metastasis via LRP1 receptor. #Cell

www.cell.com/cell/abstrac...
December 10, 2024 at 11:02 AM
Reposted by Siobhan Gaynor
National Cancer Registry Ireland Annual Report 2024. ‘Cancer in Ireland 1994-2022’.

www.ncri.ie/sites/ncri/f...
www.ncri.ie
December 10, 2024 at 10:19 AM
Reposted by Siobhan Gaynor
Without discussing sudden death, pain control with morphine, needing more rest, looking back with gratitude or forward with adjusted hopes, we were able to discuss every aspect of her care with her.
Her metaphor.
And our astonishing privilege.
December 6, 2024 at 4:07 PM
Reposted by Siobhan Gaynor
‘Ireland’s midwest has lowest survival rate for common cancers, report finds.’

www.irishtimes.com/health/2024/...
Ireland’s midwest has lowest survival rate for common cancers, report finds
Cancer registry’s annual report examined variation in incidence and survival over a 10-year period
www.irishtimes.com
December 10, 2024 at 10:20 AM
Reposted by Siobhan Gaynor
If I’ve learned anything, it’s that our sense of identity (and how we feel other people perceive us) is crucial to our ability to heal.

#graphicmedicine #cansky #breastcancer
December 10, 2024 at 10:43 AM
Reposted by Siobhan Gaynor
Patients always ask what they can do to improve outcomes. Meta-analysis shows exercise improves fatigue, QoL and dyspnoea in advanced lung cancer https://buff.ly/3ZHjNcD Found with researchbriefing.com
buff.ly
December 10, 2024 at 9:00 AM
Reposted by Siobhan Gaynor
View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24!
Let’s do this!
#bcsm
@oncoalert.bsky.social
#metastaticbreastcancer
#PatientAdvocates
@sabcs.bsky.social
December 10, 2024 at 3:57 AM