Claire Saxton
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clarinetsax.bsky.social
Claire Saxton
@clarinetsax.bsky.social
430 followers 490 following 37 posts
Part of executive team at www.CancerSupportCommunity.org. Advocate for including Patient/Caregiver Experience, Health literacy/plain language in clinical & psychosocial research, health policy & value/HTA. Impact metrics & evaluation. Mom, cyclist, reader.
Posts Replies Media Videos
clarinetsax.bsky.social
For #NSCLC patients, socio-demographics better predict distress levels than metastatic status—challenging common assumptions in psych-oncology.

#ASCOQLTY25 #LungCancer #PsychosocialSupport
www.CancerSupportCommunity.org

Poster:
www.cancersupportcommunity.org/sites/defaul...
October 11, 2025 at 5:14 PM
Reposted by Claire Saxton
drruth.bsky.social
RCT shows that young children (age 28 days to 4 years of age) with Upper Respiratory Tract Infection (URTI) given probiotics (B breve, B lactis, and L rhamnosus) had 2 days less of fever than those on placebo. buff.ly/LeYbEeY

#medsky #pedsky
Probiotics and Fever Duration in Children With Upper Respiratory Tract Infections
This randomized clinical trial evaluates the efficacy and safety of a probiotic mixture containing Bifidobacterium breve M-16V, Bifidobacterium lactis HN019, and Lactobacillus rhamnosus HN001 in reduc...
buff.ly
March 22, 2025 at 2:52 AM
clarinetsax.bsky.social
Your voice matters! With crucial Congressional decisions ahead, tell your Congressperson to protect patient access to #healthcare, especially pediatric and adult cancer patients who access care through #Medicaid.

bit.ly/3Fk6mHZ

#CallCongress #CancerTreatment
#BudgetCuts
#ThisIsNotFraudOrWaste
March 10, 2025 at 8:35 PM
clarinetsax.bsky.social
www.CancerSupportCommunity.org congratulates Tim Taggart for successfully completing the Livermore Valley Half Marathon!🏅 Thank you for running with purpose for pediatric cancer and raising over $8,000 for The Bear Fund-

#FightCancerLikeABear #childhoodcancer
March 4, 2025 at 5:22 PM
clarinetsax.bsky.social
Make a difference in the lives of people facing cancer! Join
www.cancersupportcommunity.org. We're #hiring 3 key roles:
* VP, Helpline, Education, & Outreach: bit.ly/3XgHDtY
* Manager, Program & #HealthEquity bit.ly/4bhTHksData
* Manager, Research: bit.ly/3DeOcXe
Vice President, Helpline, Education and Outreach
Vice President, Helpline, Education and Outreach  Full-time      The Cancer Support Community (CSC), an international nonprofit organization headquartered in Washington, D.C., is seeking an ambitious ...
bit.ly
February 24, 2025 at 11:55 PM
Reposted by Claire Saxton
tmprowell.bsky.social
#MedSky #IDSky #PublicHealth
There is a widespread outbreak of #norovirus, a GI virus that causes projectile vomiting & profuse diarrhea usually lasting 24-48 hrs. Wastewater levels nationwide in 🇺🇸 are high. It’s miserable & incredibly contagious. So many friends are texting SOS, so here’s a 🧵. /1
January 5, 2025 at 1:31 AM
clarinetsax.bsky.social
So proud of my college student, Luke, who has found interesting things to do with what he is learning in class!

www.linkedin.com/posts/lukesa...

iustudentgovernment.indiana.edu/executive/su...
Luke Saxton-Stivers on LinkedIn: I am thrilled to reveal the culmination of a semester of work: Indiana…
I am thrilled to reveal the culmination of a semester of work: Indiana University Student Government's first ever Student Body Survey Report! Building not…
www.linkedin.com
January 4, 2025 at 12:07 AM
Reposted by Claire Saxton
gbosslet.bsky.social
@melodyschreiber.com wrote about my recent wrangling with #PriorAuthorization in @theguardian.com

It has been super frustrating
December 31, 2024 at 9:20 PM
Reposted by Claire Saxton
tommyd54.bsky.social
The USA trails developed countries in healthcare costs and outcomes for 5 key reasons:
December 19, 2024 at 11:29 PM
clarinetsax.bsky.social
The importance of vaccines!

www.nytimes.com/2024/12/18/h...

#MedSky
Tiny Coffins: Measles Is Killing Thousands of Children in Congo (Gift Article)
Problems with getting vaccines to families have left many children unvaccinated and in danger of contracting the virus.
www.nytimes.com
December 18, 2024 at 8:08 PM
clarinetsax.bsky.social
Top reasons #BreastCancer patients gave CancerSupportCommunity.org for not following their treatment plan 👇👇👇

Erica Fortune, PhD, presented findings about treatment tolerability & adherence at #SABCS24.

Full poster: bit.ly/3VwuXyq

#bcsm #GRASP #SABCS #cansky #oncsky
Reasons for not adhering to treatment plan: 80% To avoid side effects of treatment 67% Treatment interfered with work or daily activities 62% Treatment interfered with personal life
December 13, 2024 at 7:10 AM
Reposted by Claire Saxton
ufw.bsky.social
Rosa has worked in the apple harvest near Merced CA for the last 6 years. She says her shoulders and hands ache at the end of the day from the repetive motion of using the long handled shears to do her job. #WeFeedYou
A worker in an apple orchard where she is pruning the tree
December 8, 2024 at 9:00 PM
Reposted by Claire Saxton
danafarbernews.bsky.social
Patients with low-risk DCIS had comparable physical, emotional and psychological outcomes to patients who received standard treatment, according to results of the phase 3 COMET trial presented by @danafarber.bsky.social’s Ann Partridge, MD, MPH, at #SABCS24. @dfcibreastonc.bsky.social bit.ly/3ZLSgXI
December 12, 2024 at 7:45 PM
Reposted by Claire Saxton
fumikochino.bsky.social
#SABCS24: 957 pts w low risk #DCIS randomized to receive “guideline-concordant care” vs active monitoring
🗝️ points @2 yrs:

1️⃣Non inferior for dx invasive #breastCancer (!!!)
2️⃣"Lived Experience” similar, QOL/anxiety not worse
3️⃣Most got ET but only 55% in GCC got surg

jamanetwork.com/journals/jam...
December 12, 2024 at 5:59 PM
Reposted by Claire Saxton
ryanmarino.bsky.social
The American Medical Association surveyed doctors about insurance “prior authorizations” and found:

41 prior auths per doctor per week

13 hours spent per week on prior auths

24% reported hospitalizations due to delays from prior auths

8% reported disability/deaths due to delays from prior auths
Infographic summarizing negative outcomes documented from prior authorization Infographic summarizing negative outcomes documented from prior authorization
December 12, 2024 at 11:26 PM
clarinetsax.bsky.social
Thanks to everyone at @beigene.bsky.social for allowing me to talk about the advancements that have been made in #BreastCancer since I started in patient advocacy in 1998 as well as the many advancements that are still so needed!

ow.ly/NEUA50UnQBX

#CanSky #OncSky #BCSM #MedSky #Cancer #Oncology
Do We Still Need To Invest in Breast Cancer Research? Part I
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
ow.ly
December 12, 2024 at 5:39 PM
Reposted by Claire Saxton
stage4kelly.bsky.social
The FDA Oncology’s Project
Optimus aims to address dose optimization and was at least partly prompted by patients via PCDI #sabcs24

sabcs24
December 10, 2024 at 8:41 PM
Reposted by Claire Saxton
christeeny513.bsky.social
Really proud of my work wife (@itsnotpink.bsky.social) filling the shoes of the late Anne Loeser - the driving force & founder of @therightdose.bsky.social. She leaves a legacy that improves the lives of MBC patients who are on treatment indefinitely through drug dose optimization.

#SABCS2024 #bcsm
December 10, 2024 at 8:58 PM
Reposted by Claire Saxton
alvarezsoto.bsky.social
Some results from our poster using the SEER database looking into outcomes disparities by race and socioeconomic status. Low socioeconomic status (SEE) means lower survival. When we stratify by race, Low SES means higher hazard risk of death in White and Hispanics but not in Black patients. #ASH
December 8, 2024 at 1:41 AM
Reposted by Claire Saxton
vanhollen.senate.gov
Medicare coverage for telehealth is set to expire on 12/31 — increasing barriers to care for those who depend on telehealth, including seniors, people with disabilities and underserved communities.

We're fighting to extend this coverage so no one loses access to the care they need.
December 11, 2024 at 7:12 PM
clarinetsax.bsky.social
What are top barriers to care & psychosocial / practical needs of CAR T patients & caregivers in CancerSupportCommunity.org’s Proactive Navigation program?

Read more: https://bit.ly/49oimmC

Or watch our lead author:
https://postercast.com/view_postercast.php?&sess=r6e1e3_Wj9E&posterfor=209343
Top reasons for contacting the helpline: • CAR T Cell Therapy Education/Information • Financial Concerns • Need for Emotional Support • Lodging & Transportation
December 9, 2024 at 2:31 AM
clarinetsax.bsky.social
If you’re at #ASH24, join me at 6pm tonight at poster #3716 to learn more about CancerSupportCommunity.org 's proactive CAR T patient & caregiver navigation.

www.cancersupportcommunity.org/sites/defaul...
A picture of the research poster. Better view is available by downloading the pdf at the link above
December 8, 2024 at 7:00 PM
clarinetsax.bsky.social
What do patients think is most important when deciding if a treatment is tolerable to them? Read this synopsis of research presented at #ASH24 by CancerSupportCommunity.org here: bit.ly/3VqQ9pI

Or listen to Erica Fortune, PhD present on it here:

postercast.com/view_posterc...
bit.ly
December 8, 2024 at 1:53 AM
clarinetsax.bsky.social
If you’re at #ASH24, join me now at poster #2437 to learn more about what patients think is important when deciding if a treatment is tolerable to them.
December 8, 2024 at 1:15 AM
clarinetsax.bsky.social
CancerSupportCommunity.org is at #ASH24 to learn more and find ways to partner to ensure EVERYONE with cancer has access to care & the support they want & need.

Join the conversation!
#CanSky #OncoSky #EquityInCancerCare
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December 6, 2024 at 8:09 AM