Janice Cowden
@janicetnbcmets.bsky.social
🌍 Avid Traveler | Proud Nana of 3 | #MetastaticBreastCancer #PatientAdvocate / Knowledge Seeker | Retired Nurse | Dx #mTNBC 2016, “Dancing w NED” since 11/2016 | 🚫politics | @METAvivor @The_Right_Dose @OncoAlert #bcsm
Pinned
Janice Cowden
@janicetnbcmets.bsky.social
· Nov 27
@therightdose.bsky.social look who’s arrived on #BlueSky ~ PCDI (Patient Centered Dosing Initiative)! 💊
*Follow us here*
@itsnotpink.bsky.social
@amybeumer.bsky.social
@marthacarlson.bsky.social
@stage4kelly.bsky.social
@faceofstage4.bsky.social
@jolynn2019mbc.bsky.social
*Follow us here*
@itsnotpink.bsky.social
@amybeumer.bsky.social
@marthacarlson.bsky.social
@stage4kelly.bsky.social
@faceofstage4.bsky.social
@jolynn2019mbc.bsky.social
Reposted by Janice Cowden
THIS‼️
🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+
🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD
🔺earlier det=earlier intervention = better outcomes for pts
”.. maybe we should be routinely performing brain MRIs in those patients”💡
#bcsm
#BCBM
www.medpagetoday.com/hematologyon...
🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+
🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD
🔺earlier det=earlier intervention = better outcomes for pts
”.. maybe we should be routinely performing brain MRIs in those patients”💡
#bcsm
#BCBM
www.medpagetoday.com/hematologyon...
Time to Reconsider MRI to Detect Asymptomatic Brain Mets in Breast Cancer?
Initial MRI showed asymptomatic brain lesions in 14% of patients, increasing to 25% at 6 months
www.medpagetoday.com
January 31, 2025 at 3:01 AM
THIS‼️
🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+
🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD
🔺earlier det=earlier intervention = better outcomes for pts
”.. maybe we should be routinely performing brain MRIs in those patients”💡
#bcsm
#BCBM
www.medpagetoday.com/hematologyon...
🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+
🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD
🔺earlier det=earlier intervention = better outcomes for pts
”.. maybe we should be routinely performing brain MRIs in those patients”💡
#bcsm
#BCBM
www.medpagetoday.com/hematologyon...
Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate!
January 20, 2025 at 3:35 PM
Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate!
Reposted by Janice Cowden
Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...
Empowering Patients: ASCO’s Inclusive Approach to Clinical Trials
ASCO's CDK4/6 Inhibitor Dosing Knowledge (CDK) Study prioritizes patient advocacy and engagement to improve outcomes and quality of life for individuals with cancer.
connection.asco.org
January 18, 2025 at 5:12 PM
Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...
Reposted by Janice Cowden
www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #cansky
Finding the Magic, Just in Time
Clare Cory was 59 years old and had been single almost her whole life. She thought her love story was over. Then everything changed.
www.nytimes.com
January 14, 2025 at 5:56 AM
www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #cansky
Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session!
#bcsm
#PatientAdvocate
#bcsm
#PatientAdvocate
So excited to begin my #Medsky journey by presenting with my amazing clinic mentor @dr-rshatsky.bsky.social at
#TBT on new developments in HR+ MBC! ! It will be on Tuesday the 14th at 5pm pacific, 8pm eastern!
#bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
#TBT on new developments in HR+ MBC! ! It will be on Tuesday the 14th at 5pm pacific, 8pm eastern!
#bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
January 14, 2025 at 1:43 PM
Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session!
#bcsm
#PatientAdvocate
#bcsm
#PatientAdvocate
Reposted by Janice Cowden
#OncoSky #CanSky Listen up!! For those who used to enjoy Tumor Board Tuesday #TBT. We have been speaking to the wonderful Dr. P @mpishvaian.bsky.social and we will be starting some Tumor Board Tuesday “Sky Chats” over here soon! Stay tuned! #TBT is a wonderful learning/CME resource!!! #bcsm
December 5, 2024 at 2:14 PM
Reposted by Janice Cowden
Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
January 9, 2025 at 1:39 PM
Reposted by Janice Cowden
Especially important for our #oncosky community due to weakened immunity to infections.
Please read this excellent educational public health tgread by @tmprowell.bsky.social
Please read this excellent educational public health tgread by @tmprowell.bsky.social
#MedSky #IDSky #PublicHealth
There is a widespread outbreak of #norovirus, a GI virus that causes projectile vomiting & profuse diarrhea usually lasting 24-48 hrs. Wastewater levels nationwide in 🇺🇸 are high. It’s miserable & incredibly contagious. So many friends are texting SOS, so here’s a 🧵. /1
There is a widespread outbreak of #norovirus, a GI virus that causes projectile vomiting & profuse diarrhea usually lasting 24-48 hrs. Wastewater levels nationwide in 🇺🇸 are high. It’s miserable & incredibly contagious. So many friends are texting SOS, so here’s a 🧵. /1
January 5, 2025 at 9:17 AM
Especially important for our #oncosky community due to weakened immunity to infections.
Please read this excellent educational public health tgread by @tmprowell.bsky.social
Please read this excellent educational public health tgread by @tmprowell.bsky.social
📑 benefits of P2P online support, “..most reported was being better informed…a predominant aspect of group participation is the exchange of info, the sharing of knowledge related to the disease, tx methods, or rec.”https://link.springer.com/content/pdf/10.1007/s00520-024-09119-5.pdf
#bcsm
#cancer
#bcsm
#cancer
January 5, 2025 at 1:37 PM
Reposted by Janice Cowden
Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side too💔 #cansky #cancer #Stage4NeedsMore
Our friend Lori Carrey has journeyed on. I’m not sure if the details but saw a post on x from her friend.
#cansky
Our community will not be the same without her.
#cansky
Our community will not be the same without her.
January 4, 2025 at 1:46 PM
Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side too💔 #cansky #cancer #Stage4NeedsMore
Reposted by Janice Cowden
Happy New Year from OncoAlert
@doublewhammied.bsky.social
@janicetnbcmets.bsky.social
@kjankovic.bsky.social
@seanmmcbride.bsky.social
@icromeattini.bsky.social
@jdmunter.bsky.social
@achoud72.bsky.social
@jesusanampa.bsky.social
@weoncologists.bsky.social
@doublewhammied.bsky.social
@janicetnbcmets.bsky.social
@kjankovic.bsky.social
@seanmmcbride.bsky.social
@icromeattini.bsky.social
@jdmunter.bsky.social
@achoud72.bsky.social
@jesusanampa.bsky.social
@weoncologists.bsky.social
January 1, 2025 at 5:17 AM
Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, 👊 change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & 📣 need to ⬆️ 💲for MBC #research!
#bcsm
donate.metavivor.org/event/2025-g...
#bcsm
donate.metavivor.org/event/2025-g...
December 31, 2024 at 3:37 PM
Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, 👊 change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & 📣 need to ⬆️ 💲for MBC #research!
#bcsm
donate.metavivor.org/event/2025-g...
#bcsm
donate.metavivor.org/event/2025-g...
Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025!
Thankful for the #bcsm community!
#HappyHolidays
#Gratitude
Thankful for the #bcsm community!
#HappyHolidays
#Gratitude
December 23, 2024 at 3:46 AM
Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025!
Thankful for the #bcsm community!
#HappyHolidays
#Gratitude
Thankful for the #bcsm community!
#HappyHolidays
#Gratitude
Reposted by Janice Cowden
December 19, 2024 at 5:34 AM
It’s a privilege to be part of this meaningful work!
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL
December 18, 2024 at 5:34 PM
It’s a privilege to be part of this meaningful work!
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL
Reposted by Janice Cowden
Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis.
In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC???
pubmed.ncbi.nlm.nih.gov/39567687/
In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC???
pubmed.ncbi.nlm.nih.gov/39567687/
Normal breast tissues harbour rare populations of aneuploid epithelial cells - PubMed
Aneuploid epithelial cells are common in breast cancer<sup>1,2</sup>; however, their presence in normal breast tissues is not well understood. To address this question, we applied single-cell DNA sequ...
pubmed.ncbi.nlm.nih.gov
December 10, 2024 at 11:10 PM
Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis.
In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC???
pubmed.ncbi.nlm.nih.gov/39567687/
In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC???
pubmed.ncbi.nlm.nih.gov/39567687/
Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts.
#metastaticbreastcancer
#AdvancedBC
#bcsm
@sabcs.bsky.social
@mbcalliance
@ABCGlobalAll
#metastaticbreastcancer
#AdvancedBC
#bcsm
@sabcs.bsky.social
@mbcalliance
@ABCGlobalAll
December 10, 2024 at 4:25 PM
Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts.
#metastaticbreastcancer
#AdvancedBC
#bcsm
@sabcs.bsky.social
@mbcalliance
@ABCGlobalAll
#metastaticbreastcancer
#AdvancedBC
#bcsm
@sabcs.bsky.social
@mbcalliance
@ABCGlobalAll
View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24!
Let’s do this!
#bcsm
@oncoalert.bsky.social
#metastaticbreastcancer
#PatientAdvocates
@sabcs.bsky.social
Let’s do this!
#bcsm
@oncoalert.bsky.social
#metastaticbreastcancer
#PatientAdvocates
@sabcs.bsky.social
December 10, 2024 at 3:57 AM
View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24!
Let’s do this!
#bcsm
@oncoalert.bsky.social
#metastaticbreastcancer
#PatientAdvocates
@sabcs.bsky.social
Let’s do this!
#bcsm
@oncoalert.bsky.social
#metastaticbreastcancer
#PatientAdvocates
@sabcs.bsky.social
✈️ Tampa —>Houston for BCM researcher/lab visits today, now 🚌 Houston—>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social
See you soon @sabcs.bsky.social!!
#bcsm
@oncoalert.bsky.social
#SABCS24
See you soon @sabcs.bsky.social!!
#bcsm
@oncoalert.bsky.social
#SABCS24
December 9, 2024 at 8:56 PM
✈️ Tampa —>Houston for BCM researcher/lab visits today, now 🚌 Houston—>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social
See you soon @sabcs.bsky.social!!
#bcsm
@oncoalert.bsky.social
#SABCS24
See you soon @sabcs.bsky.social!!
#bcsm
@oncoalert.bsky.social
#SABCS24
Reposted by Janice Cowden
If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty
#Cansky #SuppOnc #hpm #SurvOnc
#Cansky #SuppOnc #hpm #SurvOnc
Two weeks until the #MASCC25 Conference Scholarship deadline on December 18!
All other abstracts (including other award/scholarship applications) are due by January 8, 2025.
mascc.org/annualmeetin...
#SuppOnc #SurvOnc #GlobOnc #PallOnc #Oncology @oncoalert.bsky.social
All other abstracts (including other award/scholarship applications) are due by January 8, 2025.
mascc.org/annualmeetin...
#SuppOnc #SurvOnc #GlobOnc #PallOnc #Oncology @oncoalert.bsky.social
December 7, 2024 at 11:13 PM
If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty
#Cansky #SuppOnc #hpm #SurvOnc
#Cansky #SuppOnc #hpm #SurvOnc
Reposted by Janice Cowden
This is the best explanation of breast cancer in men published to date.
www.mdanderson.org/cancerwise/m...
#Cansky #Oncosky #CancerBS
www.mdanderson.org/cancerwise/m...
#Cansky #Oncosky #CancerBS
Can men get breast cancer? 10 things to know
Breast cancer is often thought of as a woman’s disease. But men can get breast cancer, too. Breast medical oncologist Sharon Giordano, M.D., shares insights about male breast cancer.
www.mdanderson.org
December 7, 2024 at 1:07 AM
This is the best explanation of breast cancer in men published to date.
www.mdanderson.org/cancerwise/m...
#Cansky #Oncosky #CancerBS
www.mdanderson.org/cancerwise/m...
#Cansky #Oncosky #CancerBS
Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven “therapeutic” protocols, & let’s not forget coffee enemas 😳
All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients)
#Oncosky
#Cansky
#bcsm
#metastaticbreastcancer
All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients)
#Oncosky
#Cansky
#bcsm
#metastaticbreastcancer
December 6, 2024 at 2:52 PM
Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven “therapeutic” protocols, & let’s not forget coffee enemas 😳
All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients)
#Oncosky
#Cansky
#bcsm
#metastaticbreastcancer
All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients)
#Oncosky
#Cansky
#bcsm
#metastaticbreastcancer
Reposted by Janice Cowden
@janicetnbcmets.bsky.social pointed out how helpful having oncology tweetorials were on Twitter & the oncology health care community here is large & active so I'm sure they'll participate but we'll also need patients experts to do some, too.
Any other ideas?
#oncosky
Any other ideas?
#oncosky
December 5, 2024 at 1:19 AM
@janicetnbcmets.bsky.social pointed out how helpful having oncology tweetorials were on Twitter & the oncology health care community here is large & active so I'm sure they'll participate but we'll also need patients experts to do some, too.
Any other ideas?
#oncosky
Any other ideas?
#oncosky
Reposted by Janice Cowden
The breast cancer community on Twitter was historically strong & proactive.
@janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials
Would you participate & what topics interest you?
(continued)
@janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials
Would you participate & what topics interest you?
(continued)
December 4, 2024 at 9:17 PM
The breast cancer community on Twitter was historically strong & proactive.
@janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials
Would you participate & what topics interest you?
(continued)
@janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials
Would you participate & what topics interest you?
(continued)