Sabrina Poirier
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Pinned
Hey everyone. I have updated my starter pack of community leaders, advocates, researchers, clinicians, patients and carers from our #LongCOVID and #MyalgicEncephalomyelitis community.
Please check it out and feel free to share.
go.bsky.app/6R7bqc7
Please check it out and feel free to share.
go.bsky.app/6R7bqc7
Reposted by Sabrina Poirier
51% Long Covid is ME.
Research the Canadian Consensus Criteria for best diagnostic tools available for #ME @sabrinapoirier.bsky.social is also a great resource 🙏🏻 as is @sunsopeningband.bsky.social 🙏🏻🙏🏻 particularly on understanding how #PEM Trump's everything in symptom management.
Research the Canadian Consensus Criteria for best diagnostic tools available for #ME @sabrinapoirier.bsky.social is also a great resource 🙏🏻 as is @sunsopeningband.bsky.social 🙏🏻🙏🏻 particularly on understanding how #PEM Trump's everything in symptom management.
February 15, 2026 at 8:46 PM
51% Long Covid is ME.
Research the Canadian Consensus Criteria for best diagnostic tools available for #ME @sabrinapoirier.bsky.social is also a great resource 🙏🏻 as is @sunsopeningband.bsky.social 🙏🏻🙏🏻 particularly on understanding how #PEM Trump's everything in symptom management.
Research the Canadian Consensus Criteria for best diagnostic tools available for #ME @sabrinapoirier.bsky.social is also a great resource 🙏🏻 as is @sunsopeningband.bsky.social 🙏🏻🙏🏻 particularly on understanding how #PEM Trump's everything in symptom management.
Reposted by Sabrina Poirier
Child at the podium: “A woo woo woo.”
Mamdani: That’s how I felt when we came up with this plan. Together, we will expand the idea of what is possible in our city—and what sounds and noises we can make at a press conference.
Mamdani: That’s how I felt when we came up with this plan. Together, we will expand the idea of what is possible in our city—and what sounds and noises we can make at a press conference.
February 6, 2026 at 4:11 AM
Child at the podium: “A woo woo woo.”
Mamdani: That’s how I felt when we came up with this plan. Together, we will expand the idea of what is possible in our city—and what sounds and noises we can make at a press conference.
Mamdani: That’s how I felt when we came up with this plan. Together, we will expand the idea of what is possible in our city—and what sounds and noises we can make at a press conference.
Reposted by Sabrina Poirier
The Epstein Files are one of the most solid forms of proof we have that the patriarchy is a disgusting corruption and not the natural order for a healthy society.
February 6, 2026 at 11:31 AM
The Epstein Files are one of the most solid forms of proof we have that the patriarchy is a disgusting corruption and not the natural order for a healthy society.
Reposted by Sabrina Poirier
Shooooot! We thought for sure the rain would keep ya’ll away, but we were dead wrong! Thanks for another baller day!!! We literally have the best followers, customers, and fans out there. We’re feeling the love.
January 30, 2025 at 2:04 AM
Shooooot! We thought for sure the rain would keep ya’ll away, but we were dead wrong! Thanks for another baller day!!! We literally have the best followers, customers, and fans out there. We’re feeling the love.
Reposted by Sabrina Poirier
We would love your support in helping us to increase our reach.
Please like, share, and subscribe to the videos on YouTube and on here. 💙
Please like, share, and subscribe to the videos on YouTube and on here. 💙
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
ICanCME Research Network
youtube.com
February 5, 2026 at 6:35 PM
We would love your support in helping us to increase our reach.
Please like, share, and subscribe to the videos on YouTube and on here. 💙
Please like, share, and subscribe to the videos on YouTube and on here. 💙
Reposted by Sabrina Poirier
For all the discussion of doxxing federal agents, there’s essentially no discussion of how those agents are taking steps that attach severe punitive measures that stretch across wide swaths of the federal bureaucracy against people acting lawfully.
A Minnesota woman observing ICE agents in her car was cornered on one-way streets. An agent approached, called her by name—citing facial recognition. Days later, her Global Entry and TSA privileges were revoked, with no explanation.
How ICE Already Knows Who Minneapolis Protesters Are
www.nytimes.com
January 30, 2026 at 12:42 PM
For all the discussion of doxxing federal agents, there’s essentially no discussion of how those agents are taking steps that attach severe punitive measures that stretch across wide swaths of the federal bureaucracy against people acting lawfully.
Reposted by Sabrina Poirier
This just in: "Don Lemon was taken into custody by federal agents last night in Los Angeles, where he was covering the Grammy awards," Lemon's attorney Abbe Lowell says.
January 30, 2026 at 1:04 PM
This just in: "Don Lemon was taken into custody by federal agents last night in Los Angeles, where he was covering the Grammy awards," Lemon's attorney Abbe Lowell says.
Reposted by Sabrina Poirier
Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis!
Please check out the criteria and deadlines in the application.
icancme.ca/research/sma...
Please check out the criteria and deadlines in the application.
icancme.ca/research/sma...
SMART Grant Program - ICanCME
icancme.ca
January 29, 2026 at 7:03 PM
Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis!
Please check out the criteria and deadlines in the application.
icancme.ca/research/sma...
Please check out the criteria and deadlines in the application.
icancme.ca/research/sma...
Reposted by Sabrina Poirier
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @sunsopeningband.bsky.social @uoftmedicine.bsky.social @breathewellphysio.bsky.social
Don’t miss your chance to submit an abstract for the poster presentations at the 2026 International Forum on COVID Rehabilitation Research. Submissions are due Friday January 30, 2026! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf
2026 International Forum on COVID Rehabilitation Research
tinyurl.com
January 20, 2026 at 8:58 PM
Reposted by Sabrina Poirier
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
ICanCME Research Network
youtube.com
January 20, 2026 at 10:55 PM
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
Reposted by Sabrina Poirier
@newfymainlander.bsky.social @writenrun.bsky.social @littleann4ever.bsky.social @sabrinapoirier.bsky.social @hershelman.bsky.social @hillygirl1979.bsky.social @crankycartoons.bsky.social @lianapaiva.bsky.social @kattifur.bsky.social @nicknobbe.bsky.social @reading5050.bsky.social
"It Feels like Everyone is sick"
Please help me continue my efforts to:
1. Raise Awareness for Covid and Long Covid.
2. Provide advocacy assistance.
3. Advocate for education, mitigation, and air filtration.
gofund.me/c4dae9171
Please help me continue my efforts to:
1. Raise Awareness for Covid and Long Covid.
2. Provide advocacy assistance.
3. Advocate for education, mitigation, and air filtration.
gofund.me/c4dae9171
January 9, 2026 at 4:58 AM
Reposted by Sabrina Poirier
Vancouverites - sharing this widely! It's about time. If other dentists want more business, it's time to adapt to meet the reality we're living in 🦷
January 9, 2026 at 4:52 AM
Vancouverites - sharing this widely! It's about time. If other dentists want more business, it's time to adapt to meet the reality we're living in 🦷
Reposted by Sabrina Poirier
@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @uoftmedicine.bsky.social @apresj20.bsky.social @breathewellphysio.bsky.social
Abstract submissions for poster presentations at the 2026 International Forum on COVID Rehabilitation Research is NOW OPEN! The deadline to submit is Friday January 30! Share your #COVIDRehab research! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf
January 6, 2026 at 7:26 PM
Reposted by Sabrina Poirier
Fab Rehabilitation Science Research Network for COVID. fireside chat w @sunsopeningband.bsky.social on PEM /PESE = Post Exertional Neuroimmune Exhaustion.
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
November 21, 2025 at 6:25 PM
Fab Rehabilitation Science Research Network for COVID. fireside chat w @sunsopeningband.bsky.social on PEM /PESE = Post Exertional Neuroimmune Exhaustion.
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
Reposted by Sabrina Poirier
@carriemcginn.bsky.social @sabrinapoirier.bsky.social @icancmeresearch.bsky.social
On Jan 15th, 2026.
ow.ly/Fnhy50XiObM
On Jan 15th, 2026.
ow.ly/Fnhy50XiObM
Welcome! You are invited to join a webinar: From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test. After registering, you will receive a confirmation email about joining the webinar...
Scientists have developed a simple, accurate blood test that can potentially identify Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) — a long-term, debilitating condition that affects m...
ow.ly
November 7, 2025 at 6:57 AM
Reposted by Sabrina Poirier
I'm grateful to have been able to present preliminary findings at #ICanCME2025, and can't wait until it's a paper to show you.
Thanks to organizers and all who presented & will present today! Your work means a lot to us broadly, and a lot to me in particular. ❤️
We appreciate you!
Thanks to organizers and all who presented & will present today! Your work means a lot to us broadly, and a lot to me in particular. ❤️
We appreciate you!
November 6, 2025 at 4:32 PM
I'm grateful to have been able to present preliminary findings at #ICanCME2025, and can't wait until it's a paper to show you.
Thanks to organizers and all who presented & will present today! Your work means a lot to us broadly, and a lot to me in particular. ❤️
We appreciate you!
Thanks to organizers and all who presented & will present today! Your work means a lot to us broadly, and a lot to me in particular. ❤️
We appreciate you!
Reposted by Sabrina Poirier
--but pay a great deal for the fallout. And that a lot of people attending conferences may think, "People with lived experience seem bright, alert and focused. They look neat and tidy. How bad can it be?"
I don't feel like I'm fully crashed. I managed with lots of extra meds and got good rest.
I don't feel like I'm fully crashed. I managed with lots of extra meds and got good rest.
November 6, 2025 at 4:32 PM
--but pay a great deal for the fallout. And that a lot of people attending conferences may think, "People with lived experience seem bright, alert and focused. They look neat and tidy. How bad can it be?"
I don't feel like I'm fully crashed. I managed with lots of extra meds and got good rest.
I don't feel like I'm fully crashed. I managed with lots of extra meds and got good rest.
Reposted by Sabrina Poirier
Considering how flattened I am, I don't think I can cover the third day.
One thing I appreciated about the #ICanCME2025 conference opener was that the conference organizers talked about this: how people like me would look 'together' and 'on' while the conference was underway--
One thing I appreciated about the #ICanCME2025 conference opener was that the conference organizers talked about this: how people like me would look 'together' and 'on' while the conference was underway--
November 6, 2025 at 4:32 PM
Considering how flattened I am, I don't think I can cover the third day.
One thing I appreciated about the #ICanCME2025 conference opener was that the conference organizers talked about this: how people like me would look 'together' and 'on' while the conference was underway--
One thing I appreciated about the #ICanCME2025 conference opener was that the conference organizers talked about this: how people like me would look 'together' and 'on' while the conference was underway--
Reposted by Sabrina Poirier
Thank you for sharing Sabrina
November 6, 2025 at 7:28 PM
Thank you for sharing Sabrina
Reposted by Sabrina Poirier
"Nothing About Us Without Us".
I've been thinking about the title of this meeting and asking myself, why don't we hold more scientific meetings like this? The public brings the questions for the scientists, and we show them what we are doing to address it. #ME #MECFS
#AcademicSky
I've been thinking about the title of this meeting and asking myself, why don't we hold more scientific meetings like this? The public brings the questions for the scientists, and we show them what we are doing to address it. #ME #MECFS
#AcademicSky
October 8, 2025 at 9:39 PM
"Nothing About Us Without Us".
I've been thinking about the title of this meeting and asking myself, why don't we hold more scientific meetings like this? The public brings the questions for the scientists, and we show them what we are doing to address it. #ME #MECFS
#AcademicSky
I've been thinking about the title of this meeting and asking myself, why don't we hold more scientific meetings like this? The public brings the questions for the scientists, and we show them what we are doing to address it. #ME #MECFS
#AcademicSky
Reposted by Sabrina Poirier
Thank you so much @spichaksimon.bsky.social for your live tweeting the #ICanCME2025 conference today. 🙏
The energy and time you give to support our #MECFS community is so appreciated. 💙
The energy and time you give to support our #MECFS community is so appreciated. 💙
November 5, 2025 at 4:57 AM
Thank you so much @spichaksimon.bsky.social for your live tweeting the #ICanCME2025 conference today. 🙏
The energy and time you give to support our #MECFS community is so appreciated. 💙
The energy and time you give to support our #MECFS community is so appreciated. 💙
Reposted by Sabrina Poirier
Love that we are getting some poop visualizations. /gen
One of those things that even some doctors are squeamish about, but it's an important diagnostic!
Rebecca Ryan is discussing how #POTS affects digestive function re: hypovolemia, & #MCAS can affect what/whether ppl eat on a regular schedule.
One of those things that even some doctors are squeamish about, but it's an important diagnostic!
Rebecca Ryan is discussing how #POTS affects digestive function re: hypovolemia, & #MCAS can affect what/whether ppl eat on a regular schedule.
November 5, 2025 at 9:22 PM
Reposted by Sabrina Poirier
Rebecca Ryan up now to discuss GI manifestations in ME #ICanCME2025
November 5, 2025 at 9:10 PM
Rebecca Ryan up now to discuss GI manifestations in ME #ICanCME2025
Reposted by Sabrina Poirier
Very cool imagery in Sammie's presentation. A collage of dismissive statements teens have heard when they say they're sick, including " you would feel better if you didn't spend all day in bed", "you are looking really well", "it could be a lot worse" and "kids don't get Long COVID"
#ICanCME2025
#ICanCME2025
November 5, 2025 at 9:09 PM
Very cool imagery in Sammie's presentation. A collage of dismissive statements teens have heard when they say they're sick, including " you would feel better if you didn't spend all day in bed", "you are looking really well", "it could be a lot worse" and "kids don't get Long COVID"
#ICanCME2025
#ICanCME2025