ICanCME Canadian Research Network
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
Pinned
ICanCME Research Network
youtube.com
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
Reposted by ICanCME Canadian Research Network
New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy.
Please share widely.
For all the info and survey link, head on over to
www.physiosforme.com/o2survey
Please share widely.
For all the info and survey link, head on over to
www.physiosforme.com/o2survey
02 Chamber survey | Physiosforme
www.physiosforme.com
February 5, 2026 at 6:39 PM
New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy.
Please share widely.
For all the info and survey link, head on over to
www.physiosforme.com/o2survey
Please share widely.
For all the info and survey link, head on over to
www.physiosforme.com/o2survey
We would love your support in helping us to increase our reach.
Please like, share, and subscribe to the videos on YouTube and on here. 💙
Please like, share, and subscribe to the videos on YouTube and on here. 💙
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
ICanCME Research Network
youtube.com
February 5, 2026 at 6:35 PM
We would love your support in helping us to increase our reach.
Please like, share, and subscribe to the videos on YouTube and on here. 💙
Please like, share, and subscribe to the videos on YouTube and on here. 💙
Hey there. Have you watched yet?
What are you waiting for? It’s great content, driven by #PwME!
#ICanCME2025
What are you waiting for? It’s great content, driven by #PwME!
#ICanCME2025
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
ICanCME Research Network
youtube.com
January 30, 2026 at 5:33 AM
Hey there. Have you watched yet?
What are you waiting for? It’s great content, driven by #PwME!
#ICanCME2025
What are you waiting for? It’s great content, driven by #PwME!
#ICanCME2025
Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis!
Please check out the criteria and deadlines in the application.
icancme.ca/research/sma...
Please check out the criteria and deadlines in the application.
icancme.ca/research/sma...
SMART Grant Program - ICanCME
icancme.ca
January 29, 2026 at 7:03 PM
Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis!
Please check out the criteria and deadlines in the application.
icancme.ca/research/sma...
Please check out the criteria and deadlines in the application.
icancme.ca/research/sma...
Reposted by ICanCME Canadian Research Network
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @uoftmedicine.bsky.social
Remember to submit an abstract for the poster presentations for the 2026 International Forum on COVID Rehabilitation Research. Submissions are due TOMORROW! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf @kellyobrien25.bsky.social @drjillcameron.bsky.social
January 29, 2026 at 7:02 PM
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
ICanCME Research Network
youtube.com
January 20, 2026 at 10:55 PM
Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
The theme of our #Canadian conference was “Nothing About Us Without Us”.
Please #subscribe to our channel to help us drive engagement and watch and like our videos too.
youtube.com/@icancmerese...
Reposted by ICanCME Canadian Research Network
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @sunsopeningband.bsky.social @uoftmedicine.bsky.social @breathewellphysio.bsky.social
Don’t miss your chance to submit an abstract for the poster presentations at the 2026 International Forum on COVID Rehabilitation Research. Submissions are due Friday January 30, 2026! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf
2026 International Forum on COVID Rehabilitation Research
tinyurl.com
January 20, 2026 at 8:58 PM
Reposted by ICanCME Canadian Research Network
@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @uoftmedicine.bsky.social @apresj20.bsky.social @breathewellphysio.bsky.social
Abstract submissions for poster presentations at the 2026 International Forum on COVID Rehabilitation Research is NOW OPEN! The deadline to submit is Friday January 30! Share your #COVIDRehab research! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf
January 6, 2026 at 7:26 PM
Reposted by ICanCME Canadian Research Network
Thank you for the great work!
November 7, 2025 at 12:22 AM
Thank you for the great work!
Reposted by ICanCME Canadian Research Network
Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.
simonspichak.beehiiv.com/p/day-3-of-t...
simonspichak.beehiiv.com/p/day-3-of-t...
November 7, 2025 at 1:31 AM
Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.
simonspichak.beehiiv.com/p/day-3-of-t...
simonspichak.beehiiv.com/p/day-3-of-t...
Reposted by ICanCME Canadian Research Network
If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
November 6, 2025 at 10:25 PM
If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.
Day 2 reflections: "Who is driving and who is the passenger"- Symptoms don't exist in isolation; they collide, overlap, and amplify each other. For those living with ME/CFS, LC, managing life is about navigating the unpredictable system when the "driver" role constantly shifts
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
November 6, 2025 at 7:48 PM
Reposted by ICanCME Canadian Research Network
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
November 6, 2025 at 5:48 PM
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
Reposted by ICanCME Canadian Research Network
November 6, 2025 at 6:24 PM
Reposted by ICanCME Canadian Research Network
It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
November 6, 2025 at 6:29 PM
It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Are you registered?
If so, please join us for our last day together! 💙
If so, please join us for our last day together! 💙
Today is the last day of the #ICanCME2025 Conference.
We will be talking research design today!
Common mistakes, gaps in knowledge, tools we need to create, opportunities for increased diversity and inclusion, hoe to increase accessibility in research, why patient partnership matters, and more!
We will be talking research design today!
Common mistakes, gaps in knowledge, tools we need to create, opportunities for increased diversity and inclusion, hoe to increase accessibility in research, why patient partnership matters, and more!
November 6, 2025 at 1:06 PM
Are you registered?
If so, please join us for our last day together! 💙
If so, please join us for our last day together! 💙
Reposted by ICanCME Canadian Research Network
We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME.
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
November 5, 2025 at 9:49 PM
We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME.
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
Reposted by ICanCME Canadian Research Network
@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. 🩵💙🩵
November 5, 2025 at 10:52 PM
@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. 🩵💙🩵
Reposted by ICanCME Canadian Research Network
I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously.
#ICanCME
#ICanCME
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
simonspichak.beehiiv.com
November 6, 2025 at 1:18 AM
I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously.
#ICanCME
#ICanCME
Reposted by ICanCME Canadian Research Network
We are excited and ready for day 2 of @icancmeresearch.bsky.social!
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
November 5, 2025 at 5:58 PM
We are excited and ready for day 2 of @icancmeresearch.bsky.social!
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
Reposted by ICanCME Canadian Research Network
Excited for day two of the excellent @icancmeresearch.bsky.social conference!
Starting now! #ICanCME2025
Starting now! #ICanCME2025
November 5, 2025 at 6:00 PM
Excited for day two of the excellent @icancmeresearch.bsky.social conference!
Starting now! #ICanCME2025
Starting now! #ICanCME2025
Reposted by ICanCME Canadian Research Network
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
November 5, 2025 at 1:57 AM
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Reposted by ICanCME Canadian Research Network
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
simonspichak.beehiiv.com
November 5, 2025 at 2:00 AM
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
Reposted by ICanCME Canadian Research Network
Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME).
Huge shout-out for the respect for lived experience! Wonderful start!
#ICanCME2025
#NothingAboutUsWithoutUs
@icancmeresearch.bsky.social, applause to planning team!
Huge shout-out for the respect for lived experience! Wonderful start!
#ICanCME2025
#NothingAboutUsWithoutUs
@icancmeresearch.bsky.social, applause to planning team!
November 4, 2025 at 6:18 PM
Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME).
Huge shout-out for the respect for lived experience! Wonderful start!
#ICanCME2025
#NothingAboutUsWithoutUs
@icancmeresearch.bsky.social, applause to planning team!
Huge shout-out for the respect for lived experience! Wonderful start!
#ICanCME2025
#NothingAboutUsWithoutUs
@icancmeresearch.bsky.social, applause to planning team!
Reposted by ICanCME Canadian Research Network
Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.
November 4, 2025 at 8:09 PM
Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.