ICanCME Canadian Research Network
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
Reposted by ICanCME Canadian Research Network
Thank you for the great work!
November 7, 2025 at 12:22 AM
Thank you for the great work!
Reposted by ICanCME Canadian Research Network
Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.
simonspichak.beehiiv.com/p/day-3-of-t...
simonspichak.beehiiv.com/p/day-3-of-t...
November 7, 2025 at 1:31 AM
Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.
simonspichak.beehiiv.com/p/day-3-of-t...
simonspichak.beehiiv.com/p/day-3-of-t...
Reposted by ICanCME Canadian Research Network
If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
November 6, 2025 at 10:25 PM
If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.
Day 2 reflections: "Who is driving and who is the passenger"- Symptoms don't exist in isolation; they collide, overlap, and amplify each other. For those living with ME/CFS, LC, managing life is about navigating the unpredictable system when the "driver" role constantly shifts
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
November 6, 2025 at 7:48 PM
Reposted by ICanCME Canadian Research Network
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
November 6, 2025 at 5:48 PM
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
Reposted by ICanCME Canadian Research Network
November 6, 2025 at 6:24 PM
Reposted by ICanCME Canadian Research Network
It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
November 6, 2025 at 6:29 PM
It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
👉#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social
Are you registered?
If so, please join us for our last day together! 💙
If so, please join us for our last day together! 💙
Today is the last day of the #ICanCME2025 Conference.
We will be talking research design today!
Common mistakes, gaps in knowledge, tools we need to create, opportunities for increased diversity and inclusion, hoe to increase accessibility in research, why patient partnership matters, and more!
We will be talking research design today!
Common mistakes, gaps in knowledge, tools we need to create, opportunities for increased diversity and inclusion, hoe to increase accessibility in research, why patient partnership matters, and more!
November 6, 2025 at 1:06 PM
Are you registered?
If so, please join us for our last day together! 💙
If so, please join us for our last day together! 💙
Reposted by ICanCME Canadian Research Network
We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME.
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
November 5, 2025 at 9:49 PM
We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME.
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.
#ICanCME2025 #Paediatric #Children
Reposted by ICanCME Canadian Research Network
@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. 🩵💙🩵
November 5, 2025 at 10:52 PM
@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. 🩵💙🩵
Reposted by ICanCME Canadian Research Network
I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously.
#ICanCME
#ICanCME
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
simonspichak.beehiiv.com
November 6, 2025 at 1:18 AM
I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously.
#ICanCME
#ICanCME
Reposted by ICanCME Canadian Research Network
We are excited and ready for day 2 of @icancmeresearch.bsky.social!
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
November 5, 2025 at 5:58 PM
We are excited and ready for day 2 of @icancmeresearch.bsky.social!
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
Reposted by ICanCME Canadian Research Network
Excited for day two of the excellent @icancmeresearch.bsky.social conference!
Starting now! #ICanCME2025
Starting now! #ICanCME2025
November 5, 2025 at 6:00 PM
Excited for day two of the excellent @icancmeresearch.bsky.social conference!
Starting now! #ICanCME2025
Starting now! #ICanCME2025
Reposted by ICanCME Canadian Research Network
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
November 5, 2025 at 1:57 AM
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
Reposted by ICanCME Canadian Research Network
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
simonspichak.beehiiv.com
November 5, 2025 at 2:00 AM
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
@icancmeresearch.bsky.social. Features a link to my live tweets.
simonspichak.beehiiv.com/p/icancme-da...
Reposted by ICanCME Canadian Research Network
Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME).
Huge shout-out for the respect for lived experience! Wonderful start!
#ICanCME2025
#NothingAboutUsWithoutUs
@icancmeresearch.bsky.social, applause to planning team!
Huge shout-out for the respect for lived experience! Wonderful start!
#ICanCME2025
#NothingAboutUsWithoutUs
@icancmeresearch.bsky.social, applause to planning team!
November 4, 2025 at 6:18 PM
Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME).
Huge shout-out for the respect for lived experience! Wonderful start!
#ICanCME2025
#NothingAboutUsWithoutUs
@icancmeresearch.bsky.social, applause to planning team!
Huge shout-out for the respect for lived experience! Wonderful start!
#ICanCME2025
#NothingAboutUsWithoutUs
@icancmeresearch.bsky.social, applause to planning team!
Reposted by ICanCME Canadian Research Network
Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.
November 4, 2025 at 8:09 PM
Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.
Reposted by ICanCME Canadian Research Network
Covering the @icancmeresearch.bsky.social live over on the other app.
Will be posting a brief summary of the day's talks as well.
x.com/SpichakSimon...
Will be posting a brief summary of the day's talks as well.
x.com/SpichakSimon...
Simon Spichak on X: "A little late to the party but following the @ICanCMEResearch conference. First keynote coming on" / X
A little late to the party but following the @ICanCMEResearch conference. First keynote coming on
x.com
November 4, 2025 at 8:12 PM
Covering the @icancmeresearch.bsky.social live over on the other app.
Will be posting a brief summary of the day's talks as well.
x.com/SpichakSimon...
Will be posting a brief summary of the day's talks as well.
x.com/SpichakSimon...
Reposted by ICanCME Canadian Research Network
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
October 2, 2025 at 5:41 PM
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
The main presentations take place at:
1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time
#ICanCME2025
Reposted by ICanCME Canadian Research Network
#ICanCME2025 is happening this week!
This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far.
And please be patient with us this week if we run into any issues. 🤞💙
This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far.
And please be patient with us this week if we run into any issues. 🤞💙
November 3, 2025 at 3:51 PM
#ICanCME2025 is happening this week!
This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far.
And please be patient with us this week if we run into any issues. 🤞💙
This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far.
And please be patient with us this week if we run into any issues. 🤞💙
Reposted by ICanCME Canadian Research Network
Honored to be speaking about ME, gender bias in medicine, and women's "unexplained" chronic illness at the #ICanCME2025 conference this afternoon. Thanks @icancmeresearch.bsky.social! icancme.ca/research/202...
2025 ME Conference - ICanCME
icancme.ca
November 4, 2025 at 4:44 PM
Honored to be speaking about ME, gender bias in medicine, and women's "unexplained" chronic illness at the #ICanCME2025 conference this afternoon. Thanks @icancmeresearch.bsky.social! icancme.ca/research/202...
Reposted by ICanCME Canadian Research Network
The more I think about public education, climate change, science funding, the more I realize that Republican policy is predicated on the illusion that you can harm others in your environment without harming yourself.
Possibly some who don't know the definition of 'economic'.
The people they hate are "getting what's coming to them" so things are going great for them!
That makes them happier than affordable food, good jobs, or a cleaner, safer environment for them and their children
The people they hate are "getting what's coming to them" so things are going great for them!
That makes them happier than affordable food, good jobs, or a cleaner, safer environment for them and their children
November 3, 2025 at 4:31 PM
The more I think about public education, climate change, science funding, the more I realize that Republican policy is predicated on the illusion that you can harm others in your environment without harming yourself.
Yay! We were locked out of this account because we forgot the password.
Who can relate? 🙋🏻♀️
But we’re back! And ready to butterfly it up on here for the next few days of #ICanCME2025, our conference starting tomorrow.
Who can relate? 🙋🏻♀️
But we’re back! And ready to butterfly it up on here for the next few days of #ICanCME2025, our conference starting tomorrow.
November 3, 2025 at 4:17 PM
Yay! We were locked out of this account because we forgot the password.
Who can relate? 🙋🏻♀️
But we’re back! And ready to butterfly it up on here for the next few days of #ICanCME2025, our conference starting tomorrow.
Who can relate? 🙋🏻♀️
But we’re back! And ready to butterfly it up on here for the next few days of #ICanCME2025, our conference starting tomorrow.
Reposted by ICanCME Canadian Research Network
Please join @putrinolab.bsky.social and I for this free webinar on Tuesday where we will be talking about increasing accessibility and collaboration in research. 👇
Thanks for hosting us and this discussion @solveme.bsky.social and @batemanhornecenter.bsky.social ! 💙
Thanks for hosting us and this discussion @solveme.bsky.social and @batemanhornecenter.bsky.social ! 💙
Upcoming Webinar: Severe ME/CFS Research: Removing Barriers to Access
Learn how patient advocates & researchers are breaking barriers to make research more accessible for severe ME/CFS patients.
📅 NEW DATE: Tuesday, Jan 21, 10:00 am PT, 11:00 am MT, 12:00 pm CT, 1:00 pm ET
🔗 Register: bit.ly/3Xa4IyW
Learn how patient advocates & researchers are breaking barriers to make research more accessible for severe ME/CFS patients.
📅 NEW DATE: Tuesday, Jan 21, 10:00 am PT, 11:00 am MT, 12:00 pm CT, 1:00 pm ET
🔗 Register: bit.ly/3Xa4IyW
January 15, 2025 at 1:38 PM
Please join @putrinolab.bsky.social and I for this free webinar on Tuesday where we will be talking about increasing accessibility and collaboration in research. 👇
Thanks for hosting us and this discussion @solveme.bsky.social and @batemanhornecenter.bsky.social ! 💙
Thanks for hosting us and this discussion @solveme.bsky.social and @batemanhornecenter.bsky.social ! 💙
Reposted by ICanCME Canadian Research Network
The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/...
#PatientEngagement
#PatientEngagement
The BMJ will remunerate patient and public reviewers
The BMJ will offer £50 for reviews by patients and the public
From January 2025 patients and members of the public who complete a review for The BMJ will be offered £50 or a 12 month online subscript...
www.bmj.com
December 1, 2024 at 4:13 PM
The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/...
#PatientEngagement
#PatientEngagement