Carrie Anna McGinn
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carriemcginn.bsky.social
Carrie Anna McGinn
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec

#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
Pinned
May 12th is International #MEAwarenessDay.

Half of people with Long COVID develop #MyalgicEncephalomyelitis (ME)... including me.

Since the pandemic, millions of new people worldwide have developed #MECFS, a complex, chronic, multisystem and disabling illness with no treatments and no cure.

1/
Reposted by Carrie Anna McGinn
Prévisions de COVID pour le Canada : NOV 8 - NOV 21, 2025

QUÉBEC

TRÈS ÉLEVÉ [stable]

Environ 1 personne sur 115 est infectée

Par rapport au point le plus bas de la pandémie au Canada :

-Infections : 7.5 x🔺
-COVID longue : 6.0 x🔺
-Hospitalisations : 11.0 x🔺
-Décès : 11.7 x🔺
November 10, 2025 at 11:52 PM
Reposted by Carrie Anna McGinn
Canadian COVID Forecast Nov 8 - Nov 21, 2025

CANADA

VERY HIGH [no change]

About 1 of every 118 people is infected.

Compared to lowest point of pandemic in Canada:

-Infections: 7.6 x higher
-Long COVID: 6.0 x higher
-Hospitalizations: 10.4 x higher
-Deaths: 12.2 x higher
November 10, 2025 at 10:58 PM
Reposted by Carrie Anna McGinn
Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.

simonspichak.beehiiv.com/p/day-3-of-t...
November 7, 2025 at 1:31 AM
Reposted by Carrie Anna McGinn
The World Health Network (WHN) is gathering stories to raise awareness about Long COVID. We want to hear from those with lived experience — patients, caregivers, clinicians, and advocates — so we can share your stories and help others understand the impact of Long COVID.
November 4, 2025 at 3:57 PM
Thank you so much @spichaksimon.bsky.social for live tweeting the #ICanCME2025 conference today. 🙏

I'm looking forward to reading your @icancmeresearch.bsky.social conference summary too.

The energy and time you give to support our #MECFS community is so appreciated. 💙
November 5, 2025 at 4:59 AM
Reposted by Carrie Anna McGinn
Covering the @icancmeresearch.bsky.social live over on the other app.

Will be posting a brief summary of the day's talks as well.

x.com/SpichakSimon...
Simon Spichak on X: "A little late to the party but following the @ICanCMEResearch conference. First keynote coming on" / X
A little late to the party but following the @ICanCMEResearch conference. First keynote coming on
x.com
November 4, 2025 at 8:12 PM
Reposted by Carrie Anna McGinn
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.

simonspichak.beehiiv.com/p/icancme-da...
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
simonspichak.beehiiv.com
November 5, 2025 at 2:00 AM
Reposted by Carrie Anna McGinn
This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.

The main presentations take place at:

1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time

#ICanCME2025
November 5, 2025 at 1:57 AM
Reposted by Carrie Anna McGinn
1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.

The main presentations take place at:

1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time

#ICanCME2025
October 2, 2025 at 5:41 PM
Reposted by Carrie Anna McGinn
Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME).

Huge shout-out for the respect for lived experience! Wonderful start!

#ICanCME2025

#NothingAboutUsWithoutUs

@icancmeresearch.bsky.social, applause to planning team!
November 4, 2025 at 6:18 PM
Reposted by Carrie Anna McGinn
The #ICanCME2025 Conference is off to a fantastic start!
November 4, 2025 at 7:19 PM
Reposted by Carrie Anna McGinn
Free, virtual ME conference (Nov 4–6, 1–5 pm ET).
BHC's Dr. Brayden Yellman speaks on dysautonomia & connective tissue disorders and joins the comorbidities Q&A panel.
Register: https://forms.gle/R8tJgR2x3WBNr9pF8

#ICanCME2025 #MECFS #LongCOVID #MedEdMatters #MedicalEducation
October 9, 2025 at 4:35 PM
Reposted by Carrie Anna McGinn
November 4, 2025 at 7:16 PM
Reposted by Carrie Anna McGinn
Honored to be speaking about ME, gender bias in medicine, and women's "unexplained" chronic illness at the #ICanCME2025 conference this afternoon. Thanks @icancmeresearch.bsky.social! icancme.ca/research/202...
2025 ME Conference - ICanCME
icancme.ca
November 4, 2025 at 4:44 PM
Reposted by Carrie Anna McGinn
#ICanCME2025 is happening this week!

This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far.

And please be patient with us this week if we run into any issues. 🤞💙
November 3, 2025 at 3:51 PM
Reposted by Carrie Anna McGinn
Important coverage 🧵
At the #ICanCME2025 conference today!

Sabrina Poirier & Maeghan Taverner's intros blew me away.

~Acknowledging labor from people with lived experience
~Setting out expectations
~Moment of silence for those we've lost

This is what a conference designed by people with lived experience looks like 🧪
November 4, 2025 at 8:15 PM
Reposted by Carrie Anna McGinn
This is so powerful. Acknowledging lived experience, honoring loss, and setting clear intentions , this is how real change begins. Thank you for sharing this moment.
At the #ICanCME2025 conference today!

Sabrina Poirier & Maeghan Taverner's intros blew me away.

~Acknowledging labor from people with lived experience
~Setting out expectations
~Moment of silence for those we've lost

This is what a conference designed by people with lived experience looks like 🧪
November 4, 2025 at 6:41 PM
Reposted by Carrie Anna McGinn
At the #ICanCME2025 conference today!

Sabrina Poirier & Maeghan Taverner's intros blew me away.

~Acknowledging labor from people with lived experience
~Setting out expectations
~Moment of silence for those we've lost

This is what a conference designed by people with lived experience looks like 🧪
November 4, 2025 at 6:23 PM
Reposted by Carrie Anna McGinn
Join us tomorrow online at the Canadian Collaborative conference on Myalgic Encephalomyelitis (ME)! I will be talking a bit about Cognitive Dysfunction in ME and the lessons we have been learning from Long Covid research.

Free registration here: icancme.ca/research/202...

#ME #LongCovid
November 3, 2025 at 6:05 PM
Reposted by Carrie Anna McGinn
Prévisions de COVID pour le Canada : OCT 25 - NOV 7, 2025

QUÉBEC

ÉLEVÉ [en baisse]

Environ 1 personne sur 134 est infectée

Par rapport au point le plus bas de la pandémie au Canada :

-Infections : 6.3 x🔺
-COVID longue : 6.3 x🔺
-Hospitalisations : 12.9 x🔺
-Décès : 8.9 x🔺
October 28, 2025 at 12:08 AM
Reposted by Carrie Anna McGinn
Canadian COVID Forecast Oct 25 - Nov 7, 2025

CANADA

VERY HIGH [decreasing]

About 1 of every 126 people is infected.

Compared to lowest point of pandemic in Canada:

-Infections: 7.6 x higher
-Long COVID: 6.3 x higher
-Hospitalizations: 13.3 x higher
-Deaths: 10.5 x higher
October 27, 2025 at 10:33 PM
Reposted by Carrie Anna McGinn
Canadian COVID Forecast Oct 11 - Oct 24, 2025

CANADA

HIGH [no change]

About 1 of every 95 people is infected.

Compared to lowest point of pandemic in Canada:

-Infections: 6.1 x higher
-Long COVID: 5.9 x higher
-Hospitalizations: 11.3 x higher
-Deaths: 9.2 x higher
October 15, 2025 at 12:43 AM
Reposted by Carrie Anna McGinn
Canadian COVID Forecast Aug 30 - Sep 12 2025
CANADA

High [No change]

About 1 in 65 people in Canada are CURRENTLY infected.

Compared to lowest point of pandemic in Canada:

-Infections ~7.2 higher
-Long COVID ~7.7 higher
-Hospitalizations ~10.7 higher
-Deaths ~10.9 higher
September 1, 2025 at 10:13 PM
Reposted by Carrie Anna McGinn
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!

Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.

🗓️ Register: us02web.zoom.us/webinar/regi...

#LongCOVID
June 24, 2025 at 9:43 PM
Reposted by Carrie Anna McGinn
@patientled.bsky.social is hosting a free webinar next week, where the results and latest progress from biomedical studies funded by the Patient-Led Research Fund (PLRF) will be presented!

When: Thursday July 9th, 2025 | 1PM - 5PM ET
Where: Register on Zoom us02web.zoom.us/webinar/regi...
July 3, 2025 at 2:42 PM