I'm grateful to have been able to present preliminary findings at #ICanCME2025, and can't wait until it's a paper to show you.

Thanks to organizers and all who presented & will present today! Your work means a lot to us broadly, and a lot to me in particular. ❤️

We appreciate you!

--but pay a great deal for the fallout. And that a lot of people attending conferences may think, "People with lived experience seem bright, alert and focused. They look neat and tidy. How bad can it be?"

I don't feel like I'm fully crashed. I managed with lots of extra meds and got good rest.

Considering how flattened I am, I don't think I can cover the third day.

One thing I appreciated about the #ICanCME2025 conference opener was that the conference organizers talked about this: how people like me would look 'together' and 'on' while the conference was underway--

Thank you for sharing Sabrina

100%

Ugh. I hear you. Come on, meds.

Today is research design. 💙💙💙

Thank you so much @spichaksimon.bsky.social for your live tweeting the #ICanCME2025 conference today. 🙏

The energy and time you give to support our #MECFS community is so appreciated. 💙

My teen chose this as his favorite presentations so far! 💙

I love that you’re already promoting next year! 😜

You’re amazing. Have I mentioned that lately?

Love that we are getting some poop visualizations. /gen

One of those things that even some doctors are squeamish about, but it's an important diagnostic!

Rebecca Ryan is discussing how #POTS affects digestive function re: hypovolemia, & #MCAS can affect what/whether ppl eat on a regular schedule.

Rebecca Ryan up now to discuss GI manifestations in ME #ICanCME2025

Very cool imagery in Sammie's presentation. A collage of dismissive statements teens have heard when they say they're sick, including " you would feel better if you didn't spend all day in bed", "you are looking really well", "it could be a lot worse" and "kids don't get Long COVID"

#ICanCME2025

Love the way Maitland frames mast cells as helpers who have lost their way 😂

And that there are a lot of potentially underlying causes and that it's best to look for autonomic and connective tissue issues for first mover

#ICanCME2025

The legendary Anne Maitland is here! Nearly every interesting paper on #MCAS has her as an author. #ICanCME

Just gave the talk!! (Whew.) Sabrina said "please go slowly for the interpreter" and that added five minutes, just goes to show how quickly I usually talk!

Getting ready for Day 2 at the #ICanCME2025 conference!

I'll be delivering a talk about neurodiversity in #pwME and IACCs in general. Hope to see you there!

Yeah, I had to stop, folks! It was really good, though, and what I liked most about it was the wide-ranging series of topics so far. It hasn't felt like any other research conference I've attended.

#ICanCME2025 has a combination qual/quant vibe that's really appealing.

It’s not the best picture of me ever…🫣🤭

…but I do love repping the cool MEAction shirts. 💙

We’re @meactnet.bsky.social fans in my house.